Rubinstein-Taybi Syndrome Support Group

Country: England & Wales
Charity number: 1147765
Status: Registered
Registered: June 20, 2012
Legal form: Charitable company

Address

Address: 169 Watford Road
Croxley Green
RICKMANSWORTH
Hertfordshire
WD3 3ED

Contact

Phone: 07812567647
Email: [email protected]
Website: rtsuk.org.uk

Activities

We seek to create a positive supportive network of parents, families and professionals in order to share information and experiences and to give emotional support. Activities include hosting regular get-togethers to support families of those affected by RTS; and the publication of an information booklet, regular newsletters and a website.

Objects: 1) The Relief Of The Persons Affected By Rubinstein Taybi Syndrome.2) To Advance Medical Research Into The Cause, Cure, Prevention Or Relief Of Such Conditions Provided That The Useful Results Of The Research Shall Be Published.

Classification

How: Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What: General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
Who: People With Disabilities, Other Defined Groups

Areas of operation

Country: Northern Ireland, Scotland
Region: Throughout England And Wales

Finances

Period end	Income	Expenditure
Dec. 31, 2024	£19,157	£23,828
Dec. 31, 2023	£41,410	£40,577
Dec. 31, 2022	£34,269	£29,887
Dec. 31, 2021	£22,248	£8,175
Dec. 31, 2020	£5,559	£8,375

Trustees

Name	Appointed
Abbas Meghjee	Feb. 8, 2021
Danielle McInerney-Jlassia	Sept. 11, 2025
Elisabeth Catherine Bach	April 14, 2024
Joanna Faye Mullins	Feb. 8, 2021
Julian Richard Smith	Sept. 22, 2020
Richard Kell	Sept. 11, 2025
Roseanna INGHAM	Oct. 23, 2022
Zohra Lakha	Sept. 22, 2020

OpenCharities