# RUBINSTEIN-TAYBI SYNDROME SUPPORT GROUP

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1147765
- **Other names:** RTS SUPPORT GROUP
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** June 20, 2012
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1147765


## Contact

- **Address:** 169 Watford Road, Croxley Green, RICKMANSWORTH, Hertfordshire
- **Postcode:** WD3 3ED
- **Phone:** 07812567647
- **Email:** info@rtsuk.org.uk
- **Website:** www.rtsuk.org.uk



## Activities

**Objects:** 1) THE RELIEF OF THE PERSONS AFFECTED BY RUBINSTEIN TAYBI SYNDROME.2) TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH CONDITIONS PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.

**Activities:** We seek to create a positive supportive network of parents, families and professionals in order to share information and experiences and to give emotional support. Activities include hosting regular get-togethers to support families of those affected by RTS; and the publication of an information booklet, regular newsletters and a website.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
- **Who:** People With Disabilities, Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £19157 | £23828 | — | — |
| Dec. 31, 2023 | £41410 | £40577 | — | — |
| Dec. 31, 2022 | £34269 | £29887 | — | — |
| Dec. 31, 2021 | £22248 | £8175 | — | — |
| Dec. 31, 2020 | £5559 | £8375 | — | — |



## Trustees

- ABBAS MEGHJEE — appointed Feb. 8, 2021
- Danielle McInerney-Jlassia — appointed Sept. 11, 2025
- Elisabeth Catherine Bach — appointed April 14, 2024
- Joanna Faye Mullins — appointed Feb. 8, 2021
- Julian Richard Smith — appointed Sept. 22, 2020
- Richard Kell — appointed Sept. 11, 2025
- Roseanna INGHAM — appointed Oct. 23, 2022
- Zohra Lakha — appointed Sept. 22, 2020


