| England | 8, Wales Charity registration | 8, Wales Charity registration | 8, Wales Charity registration | 8, Wales Charity registration | number: | 1144406 | ||||
|---|---|---|---|---|---|---|---|---|---|---|
| Scotland | Charity registration | number: | SC045407 | |||||||
| Company | registration | number: | 07775835 | |||||||
| Trustees | (Directors): | Dr William Evans | (Chair) | |||||||
| Dave Roberts | ||||||||||
| Janice Brooks | ||||||||||
| Helen Carter | ||||||||||
| Bill Owen | ||||||||||
| Richard Rogerson | (resigned | 30June 2022) | ||||||||
| Dr David Holton | ||||||||||
| Jacqueline Imrie |
||||||||||
| Joella Melville | ||||||||||
| Fiona Dunne | ||||||||||
| Chief Executive: | Toni Mathieson | |||||||||
| Co-opted | Members: | Prof Frances Platt | ||||||||
| Claire Fyvie | ||||||||||
| Bankers: | HSBC | |||||||||
| 53 High Street | ||||||||||
| Grays | ||||||||||
| Essex | ||||||||||
| RM17 6NH | ||||||||||
| Investment | Managers: | Investec Wealth | 8 Investment | Limited | ||||||
| 5 George Square | ||||||||||
| Glasgow | ||||||||||
| G2 1DY | ||||||||||
| Independent | Examiners: | James Anderson Pentland Estate |
&Co | |||||||
| Straiton | ||||||||||
| Edinburgh | ||||||||||
| EH20 9QH | ||||||||||
| Registered | address: | Suite 2 Vermont Concord |
House | |||||||
| Washington | ||||||||||
| Tyne 8 Wear | ||||||||||
| NE37 2SQ | ||||||||||
| Governing | document: | Memorandum | & | Articles ofAssociation |
| Unrestricted | Restricted | Endowment | Total | ||||
|---|---|---|---|---|---|---|---|
| Notes | Funds | Fund | Fund | Funds | 2021 | ||
| F | E | F | E | ||||
| Income and endowments Donations and legacies Charitable activities Other trading activities Investments |
from: | 72,315 3,120 106,893 4,477 |
4,000 225,598 |
76,315 228,718 106,893 4,477 |
142,225 185,974 18,678 4,041 |
||
| Total income | 186,805 | 229,598 | 416,403 | 350,918 | |||
| Expenditure on: Raising funds Charitable activities |
11,754 182,212 |
143,861 | 11,754 326,073 |
3,935 327,657 |
|||
| Total expenditure | 193,966 | 143,861 | 337,827 | 331,592 | |||
| Net income / expenditure losses on investments |
before | (7,161) | 85,737 | 78,576 | 19,326 | ||
| Net gains / (losses) on investments |
(9,157) | (9,157) | 22,859 | ||||
| Net movement in funds |
(7,161) | 85,737 | (9,157) | 69,419 | 42,185 | ||
| Reconciliation offunds: |
|||||||
| Total funds brought forward |
272,853 | 6,820 | 227,490 | 507,163 | 464,978 | ||
| Total funds carried forward | 15 | 265,692 | 92,557 | 218,333 | 576,582 | 507,163 |
| NIEMANN-PICK UK Company Number -07775835 |
NIEMANN-PICK UK Company Number -07775835 |
|||
|---|---|---|---|---|
| Balance Sheet | ||||
| As at 30 April | 2022 | Notes | 2022f | 2021f |
| Fixed Assets | ||||
| Tangible fixed Investments |
assets | 218,333 | 227,490 | |
| 218,333 | 227,490 | |||
| Current Assets Debtors Bank |
10 | 5,175 373,147 |
2,007 287,176 |
|
| 378,322 | 289,183 | |||
| Creditors Amounts falling due within one year |
20,073 | 9,510 | ||
| Net Current | Assets | 358,249 | 279,673 | |
| Net Assets | 576,582 | 507,163 | ||
| Funds General fund Designated fund |
15 | 241,360 24,332 |
199,677 73,176 |
|
| Unrestricted | funds | 265,692 | 272,853 | |
| Endowment fund Restricted funds |
218,333 92,557 |
227,490 6,820 |
||
| 576,582 | 507,163 |
| without any control or infl |
uen | ce over the content of the |
programme or the selection of sp |
eakers. |
|---|---|---|---|---|
| 2022 | 2021 | |||
| Income from charitable | activities | E | ||
| General fund -unrestricted | ||||
| Kickstart | 3,120 | |||
| Restricted fund Charities Aid Foundation |
129,417 | |||
| National Lottery Community Big Lottery Fund BBCChildren in Need Hollie Foundation Pears Foundation |
Fund | 9,827 20,491 11,063 9,800 |
124,859 33,268 13,313 14,534 |
|
| Orphazyme | 45,000 | |||
| 228,718 | 185,974 | |||
| Income from other trading | activities | |||
| General fund - unrestricted Fundraising events |
106,893 | 18,678 | ||
| Investment income |
||||
| General fund - unrestricted Bank interest Dividend income |
49 4,428 |
105 3,936 |
||
| 4,477 | 4,041 |
| he Year ended 30 April 2 | he Year ended 30 April 2 | 02 | 2 (continued) | ||
|---|---|---|---|---|---|
| Expenditure on charitable |
activities | 2022f | 2021 E |
||
| Helpline Ifamily support | Itravel | 129,640 | 140,703 | ||
| Information - social media |
8 | publications | 38,861 | 55,585 | |
| Conference costs | 2,690 | 26,163 | |||
| Research costs | 53,931 | 12,949 | |||
| Central office wages | 70,358 | 68,819 | |||
| Upkeep computer Rent & rates |
594 11,086 |
477 11,760 |
|||
| Other administration costs |
12,420 | 6,418 | |||
| Insurance &subscription |
2,120 | 2,101 | |||
| Bank charges Strategic review meeting |
186 1,110 |
213 | |||
| Independent examiner's |
fee | 1,800 | 1,800 | ||
| Legal fees Executive &management |
meetings | 1,277 | 333 336 |
||
| 326,073 | 327,657 | ||||
| Charged to - General fund —unrestricted - Restricted fund |
182,212 143,861 |
142,095 185,562 |
|||
| Tangible assets | |||||
| Equipment | |||||
| E | |||||
| Cost | |||||
| At 30 April 2021 and 2022 | 4,158 | ||||
| Depreciation | |||||
| At 30 April 2021 and 2022 | 4,158 | ||||
| Net BookValue | |||||
| At 30 April 2021 and 2022 | |||||
| Fixed asset investments | 2022 F |
2021f | |||
| Balance brought forward |
227,490 | 204,631 | |||
| (Impairment) / Increase |
in | value | (9,157) | 22,859 | |
| Market value at 30 April | 2022 | 218,333 | 227,490 | ||
| Historical cost of investments | |||||
| held at 30 April 2022 | 220,000 | 220,000 | |||
| Investments at fair value |
comprise: | ||||
| 2022 | |||||
| Fixed interest | 33.55% | ||||
| Securities | 40.15% | ||||
| Property Alternatives |
9.49% 16.60% |
||||
| Cash | 0.22% |
| Note | to the Financial Statements | ||||
|---|---|---|---|---|---|
| For the Year ended 30April 2022 | (continued) | ||||
| 2022 | 2021 | ||||
| 10. | Debtors | F | |||
| P repayments Amounts due from INPDA (note 18) |
1,340 968 |
450 | |||
| Amounts due from INPDR (note 18) |
1,749 | 651 | |||
| Other debtors | 1,118 | 906 | |||
| 5,175 | 2,007 | ||||
| 11. | Creditors: amounts falling due within one |
year | |||
| Amounts due to INPDR |
1,300 | ||||
| Other tax 8 social security | 2,898 | 2,420 | |||
| Accruals and deferred income |
15,875 | 7,090 | |||
| Accruals for grants payable | |||||
| 20,073 | 9,510 | ||||
| 12. | Employee information |
No | No | ||
| The average monthly number |
of employees | was: | |||
| Staff Costs | |||||
| Salaries | 143,367 | 140,711 | |||
| Social security costs | 14,713 | 13,293 | |||
| Pension costs | 3,085 | 2,779 | |||
| 161,165 | 156,783 |
| Statement of Funds | ||||||||
|---|---|---|---|---|---|---|---|---|
| Balance | Gains | / | Balance | |||||
| 2021-2022 | 30/4/2021f | Income f |
Expenditure | Transferf | (Losses) | 30/4/2022f | ||
| General fund Designated fund |
199,677 73,176 |
186,805 | 193,966 | 48,884 (48,844) |
241,360 24,332 |
|||
| Total unrestricted funds |
272,853 | 186,805 | 193,966 | 265,692 | ||||
| Endowment fund |
227,490 | (9,157) | 218,333 | |||||
| Restricted funds |
||||||||
| Big Lottery Fund National Lottery Community |
5,820 Fund |
9,827 | 5,820 9,827 |
|||||
| BBCChildren in Need Charities Aid Foundation Charities Aid Foundation |
1 2 |
20,491 109,417 10,000 |
20,491 43,927 1,025 |
65,490 8,975 |
||||
| Charities Aid Foundation |
3 | 10,000 | 10,000 | |||||
| Pears Foundation | 9,800 | 9,800 | ||||||
| Stewardship Fund Hollie Foundation Lesley Carlton Jones Orphazyme |
1,000 | 3,000 11,063 1,000 45,000 |
3,000 11,063 28,908 |
2,000 16,092 |
||||
| Total restricted funds |
6,820 | 229,598 | 143,861 | 92,557 | ||||
| Totalfunds | 507,163 | 416,403 | 337,827 | (9,157) | 576,582 | |||
| Balance | Gains | / | Balance | |||||
| 2020-2021 | 30/4/2020f | Income f |
Expenditure | Transferf | (Losses) f |
30/4/2021 f |
||
| General fund Designated fund |
150,939 107,000 |
160,944 | 146,030 | 33,824 (33,824) |
199,677 73,176 |
|||
| Total unrestricted funds |
257,939 | 160,944 | 146,030 | 272,853 | ||||
| Endowment fund |
204,631 | 22,859 | 227,490 | |||||
| Restricted funds Big Lottery Fund Big Lottery Fund BBCChildren in Need |
1,178 | 78,220 46,639 18,840 |
73,578 46,639 18,840 |
5,820 | ||||
| BBCChildren in Need |
14,428 | 14,428 | ||||||
| Pears Foundation | 14,534 | 14,534 | ||||||
| Stewardship Fund Hollie Foundation |
3,000 10,813 |
3,000 10,813 |
||||||
| Hollie Foundation | 2,500 | 2,500 | ||||||
| Hollie Foundation Lesley Carlton Jones |
1,230 | 1,000 | 1,230 | 1,000 | ||||
| Total restricted funds |
2,408 | 189,974 | 185,562 | 6,820 | ||||
| Totalfunds | 464,978 | 350,918 | 331,592 | 22,859 | 507,163 |
| The restricted funds ar |
e fo | r use | in terms ofthe grants awarded b |
in terms ofthe grants awarded b |
in terms ofthe grants awarded b |
y the | d | onors | as | fo | llows: | |||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Big Lottery Fund | Shaping our future together |
|||||||||||||
| Big Lottery Fund | Covid-19 funding | for salary costs, counselling | 8 family support | |||||||||||
| BBCChildren in Need |
Funding towards |
the post of Clinical | Nurse | Specialist | ||||||||||
| BBCChildren in Need |
Covid-19 funding | for care and support | team | salary costs | ||||||||||
| National Lottery Community |
Fund | Mental health | and wellbeing | |||||||||||
| Charities Aid Foundation |
1 | Continuation | and | development | ofservices | |||||||||
| Charities Aid Foundation |
2 | Strengthening | organisation | |||||||||||
| Charities Aid Foundation |
3 | Towards core salaries | ||||||||||||
| Pears Foundation | Covid-19 funding | for salary costs, overheads | 8 | family support | ||||||||||
| Hope for Hollie | Research | |||||||||||||
| Stewardship fund |
Research | |||||||||||||
| Hollie Foundation | Funding of Family Officer 8 children's |
programmes | ||||||||||||
| Hollie Foundation | NPUK Covid-19 | Support Fund |
||||||||||||
| Hollie Foundation | Funding of Children's programmes |
|||||||||||||
| Hollie Foundation | Literature re; |
Families Officer 8 Clinical Support | Nurse | |||||||||||
| Lesley Carlton Jones | Research; Peter | Carlton Jones | award | |||||||||||
| Orphazyme | Towards the |
collection of patient |
evidence | to | support | submissions | to | |||||||
| regulator in support of drug efficacy |
||||||||||||||
| Analysis of net assets | between | funds | ||||||||||||
| Unrestricted | Restricted | Endowment | Total | |||||||||||
| Funds | Funds | Funds | Funds | |||||||||||
| F | F | E | ||||||||||||
| 2022 | ||||||||||||||
| Fixed asset investments | 218,333 | 218,333 | ||||||||||||
| Current assets | 285,766 | 92,557 | 378,323 | |||||||||||
| Current liabilities |
(20,074) | (20,074) | ||||||||||||
| Net assets at 30 April 2022 | 265,692 | 92,557 | 218,333 | 576,582 | ||||||||||
| Unrestricted | Restricted | Endowment | Total | |||||||||||
| Funds | Funds | Funds | Funds | |||||||||||
| E | E | |||||||||||||
| 2021 | ||||||||||||||
| Fixed asset investments | 227,490 | 227,490 | ||||||||||||
| Current assets | 282,363 | 6,820 | 289,183 | |||||||||||
| Current liabilities |
(9,510) | (9,510) | ||||||||||||
| Net assets at 30 April 2021 | 272,853 | 6,820 | 227,490 | 507,163 |
| The transactions | in the year and the year end balances are | as follows: | |
|---|---|---|---|
| 2022 | 2021 | ||
| F | E | ||
| With INPDA | |||
| Wages Other costs |
4,113 1,263 |
4,548 132 |
|
| Reimbursement | ofresearch costs received | 7,170 | |
| Sum due to NPUK (note 10) | 968 | 450 | |
| With INP DR |
|||
| Wages Other costs |
11,073 3,622 |
5,381 168 |
|
| Sum due to NPUK | 449 | 651 |