##
|England|8, Wales Charity registration|8, Wales Charity registration|8, Wales Charity registration|8, Wales Charity registration|number:|1144406|||||
|---|---|---|---|---|---|---|---|---|---|---|
|Scotland|Charity registration|||number:||SC045407|||||
|Company|registration||number:|||07775835|||||
|Trustees|(Directors):|||||Dr William Evans|||(Chair)||
|||||||Dave Roberts|||||
|||||||Janice Brooks|||||
|||||||Helen Carter|||||
|||||||Bill Owen|||||
|||||||Richard Rogerson|||(resigned|30June 2022)|
|||||||Dr David Holton|||||
|||||||Jacqueline
Imrie|||||
|||||||Joella Melville|||||
|||||||Fiona Dunne|||||
|Chief Executive:||||||Toni Mathieson|||||
|Co-opted|Members:|||||Prof Frances Platt|||||
|||||||Claire Fyvie|||||
|Bankers:||||||HSBC|||||
|||||||53 High Street|||||
|||||||Grays|||||
|||||||Essex|||||
|||||||RM17 6NH|||||
|Investment||Managers:||||Investec Wealth||8 Investment||Limited|
|||||||5 George Square|||||
|||||||Glasgow|||||
|||||||G2 1DY|||||
|Independent||Examiners:||||James Anderson
Pentland
Estate|||&Co||
|||||||Straiton|||||
|||||||Edinburgh|||||
|||||||EH20 9QH|||||
|Registered||address:||||Suite 2 Vermont
Concord|||House||
|||||||Washington|||||
|||||||Tyne 8 Wear|||||
|||||||NE37 2SQ|||||
|Governing||document:||||Memorandum|&||Articles ofAssociation||
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||||Unrestricted|Restricted|Endowment|Total||
|---|---|---|---|---|---|---|---|
|||Notes|Funds|Fund|Fund|Funds|2021|
||||F||E|F|E|
|Income and endowments
Donations
and legacies
Charitable
activities
Other trading
activities
Investments|from:||72,315
3,120
106,893
4,477|4,000
225,598||76,315
228,718
106,893
4,477|142,225
185,974
18,678
4,041|
|Total income|||186,805|229,598||416,403|350,918|
|Expenditure
on:
Raising funds
Charitable
activities|||11,754
182,212|143,861||11,754
326,073|3,935
327,657|
|Total expenditure|||193,966|143,861||337,827|331,592|
|Net income
/ expenditure
losses on investments|before||(7,161)|85,737||78,576|19,326|
|Net gains
/ (losses) on investments|||||(9,157)|(9,157)|22,859|
|Net movement
in funds|||(7,161)|85,737|(9,157)|69,419|42,185|
|Reconciliation
offunds:||||||||
|Total funds brought
forward|||272,853|6,820|227,490|507,163|464,978|
|Total funds carried forward||15|265,692|92,557|218,333|576,582|507,163|
##
|NIEMANN-PICK
UK
Company
Number
-07775835|NIEMANN-PICK
UK
Company
Number
-07775835||||
|---|---|---|---|---|
|Balance Sheet|||||
|As at 30 April|2022|Notes|2022f|2021f|
|Fixed Assets|||||
|Tangible fixed
Investments|assets||218,333|227,490|
||||218,333|227,490|
|Current Assets
Debtors
Bank||10|5,175
373,147|2,007
287,176|
||||378,322|289,183|
|Creditors
Amounts
falling due within one year|||20,073|9,510|
|Net Current|Assets||358,249|279,673|
|Net Assets|||576,582|507,163|
|Funds
General fund
Designated
fund||15|241,360
24,332|199,677
73,176|
|Unrestricted|funds||265,692|272,853|
|Endowment
fund
Restricted funds|||218,333
92,557|227,490
6,820|
||||576,582|507,163|
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|without
any control or infl|uen|ce
over the content of the|programme
or the selection of sp|eakers.|
|---|---|---|---|---|
||||2022|2021|
|Income from charitable|activities||E||
|General fund -unrestricted|||||
|Kickstart|||3,120||
|Restricted
fund
Charities
Aid Foundation|||129,417||
|National
Lottery Community
Big Lottery Fund
BBCChildren
in Need
Hollie Foundation
Pears Foundation||Fund|9,827
20,491
11,063
9,800|124,859
33,268
13,313
14,534|
|Orphazyme|||45,000||
||||228,718|185,974|
|Income from other trading||activities|||
|General fund - unrestricted
Fundraising
events|||106,893|18,678|
|Investment
income|||||
|General fund - unrestricted
Bank interest
Dividend
income|||49
4,428|105
3,936|
||||4,477|4,041|
##
|he Year ended 30 April 2|he Year ended 30 April 2|02|2 (continued)|||
|---|---|---|---|---|---|
|Expenditure
on charitable|||activities|2022f|2021
E|
|Helpline Ifamily support|Itravel|||129,640|140,703|
|Information
- social media||8|publications|38,861|55,585|
|Conference costs||||2,690|26,163|
|Research costs||||53,931|12,949|
|Central office wages||||70,358|68,819|
|Upkeep computer
Rent & rates||||594
11,086|477
11,760|
|Other administration
costs||||12,420|6,418|
|Insurance
&subscription||||2,120|2,101|
|Bank charges
Strategic review meeting||||186
1,110|213|
|Independent
examiner's|fee|||1,800|1,800|
|Legal fees
Executive
&management||meetings||1,277|333
336|
|||||326,073|327,657|
|Charged
to - General fund
—unrestricted
- Restricted fund||||182,212
143,861|142,095
185,562|
|Tangible assets||||||
|||||Equipment||
|||||E||
|Cost||||||
|At 30 April 2021 and 2022||||4,158||
|Depreciation||||||
|At 30 April 2021 and 2022||||4,158||
|Net BookValue||||||
|At 30 April 2021 and 2022||||||
|Fixed asset investments||||2022
F|2021f|
|Balance brought
forward||||227,490|204,631|
|(Impairment)
/ Increase|in|value||(9,157)|22,859|
|Market value at 30 April|2022|||218,333|227,490|
|Historical cost of investments||||||
|held at 30 April 2022||||220,000|220,000|
|Investments
at fair value|comprise:|||||
|||||2022||
|Fixed interest||||33.55%||
|Securities||||40.15%||
|Property
Alternatives||||9.49%
16.60%||
|Cash||||0.22%||
##
|Note|to the Financial Statements|||||
|---|---|---|---|---|---|
|For the Year ended 30April 2022||(continued)||||
|||||2022|2021|
|10.|Debtors||||F|
||P repayments
Amounts
due from INPDA (note 18)|||1,340
968|450|
||Amounts
due from INPDR (note 18)|||1,749|651|
||Other debtors|||1,118|906|
|||||5,175|2,007|
|11.|Creditors: amounts
falling due within one||year|||
||Amounts
due to INPDR|||1,300||
||Other tax 8 social security|||2,898|2,420|
||Accruals and deferred
income|||15,875|7,090|
||Accruals for grants payable|||||
|||||20,073|9,510|
|12.|Employee
information|||No|No|
||The average
monthly
number|of employees|was:|||
||Staff Costs|||||
||Salaries|||143,367|140,711|
||Social security costs|||14,713|13,293|
||Pension costs|||3,085|2,779|
|||||161,165|156,783|
##
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|Statement of Funds|||||||||
|---|---|---|---|---|---|---|---|---|
|||Balance||||Gains|/|Balance|
|2021-2022||30/4/2021f|Income
f|Expenditure|Transferf|(Losses)||30/4/2022f|
|General fund
Designated
fund||199,677
73,176|186,805|193,966|48,884
(48,844)|||241,360
24,332|
|Total unrestricted
funds||272,853|186,805|193,966||||265,692|
|Endowment
fund||227,490||||(9,157)||218,333|
|Restricted
funds|||||||||
|Big Lottery Fund
National
Lottery Community||5,820
Fund|9,827|5,820
9,827|||||
|BBCChildren
in Need
Charities
Aid Foundation
Charities
Aid Foundation|1
2||20,491
109,417
10,000|20,491
43,927
1,025||||65,490
8,975|
|Charities
Aid Foundation|3||10,000|10,000|||||
|Pears Foundation|||9,800|9,800|||||
|Stewardship
Fund
Hollie Foundation
Lesley Carlton Jones
Orphazyme||1,000|3,000
11,063
1,000
45,000|3,000
11,063
28,908||||2,000
16,092|
|Total restricted
funds||6,820|229,598|143,861||||92,557|
|Totalfunds||507,163|416,403|337,827||(9,157)||576,582|
|||Balance||||Gains|/|Balance|
|2020-2021||30/4/2020f|Income
f|Expenditure|Transferf|(Losses)
f||30/4/2021
f|
|General
fund
Designated
fund||150,939
107,000|160,944|146,030|33,824
(33,824)|||199,677
73,176|
|Total unrestricted
funds||257,939|160,944|146,030||||272,853|
|Endowment
fund||204,631||||22,859||227,490|
|Restricted funds
Big Lottery Fund
Big Lottery Fund
BBCChildren
in Need||1,178|78,220
46,639
18,840|73,578
46,639
18,840||||5,820|
|BBCChildren
in Need|||14,428|14,428|||||
|Pears Foundation|||14,534|14,534|||||
|Stewardship
Fund
Hollie Foundation|||3,000
10,813|3,000
10,813|||||
|Hollie Foundation|||2,500|2,500|||||
|Hollie Foundation
Lesley Carlton Jones||1,230|1,000|1,230||||1,000|
|Total restricted
funds||2,408|189,974|185,562||||6,820|
|Totalfunds||464,978|350,918|331,592||22,859||507,163|
##
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|The restricted
funds ar|e fo|r use|in terms ofthe grants awarded
b|in terms ofthe grants awarded
b|in terms ofthe grants awarded
b|y the|d|onors||as|fo|llows:|||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|Big Lottery Fund|||Shaping
our future together||||||||||||
|Big Lottery Fund|||Covid-19 funding||for salary costs, counselling|||||8 family support|||||
|BBCChildren
in Need|||Funding
towards||the post of Clinical||Nurse||Specialist||||||
|BBCChildren
in Need|||Covid-19 funding||for care and support|||team||salary costs|||||
|National
Lottery Community||Fund|Mental health|and wellbeing|||||||||||
|Charities
Aid Foundation|1||Continuation|and|development|ofservices|||||||||
|Charities
Aid Foundation|2||Strengthening|organisation|||||||||||
|Charities
Aid Foundation|3||Towards core salaries||||||||||||
|Pears Foundation|||Covid-19 funding||for salary costs, overheads|||||8|family support||||
|Hope for Hollie|||Research||||||||||||
|Stewardship
fund|||Research||||||||||||
|Hollie Foundation|||Funding
of Family Officer 8 children's|||||programmes|||||||
|Hollie Foundation|||NPUK Covid-19||Support
Fund||||||||||
|Hollie Foundation|||Funding
of Children's
programmes||||||||||||
|Hollie Foundation|||Literature
re;|Families Officer 8 Clinical Support||||||||Nurse|||
|Lesley Carlton Jones|||Research; Peter||Carlton Jones|award|||||||||
|Orphazyme|||Towards
the|collection
of patient|||evidence|||to||support|submissions|to|
||||regulator
in support of drug efficacy||||||||||||
|Analysis of net assets|between||funds||||||||||||
||||Unrestricted||Restricted||Endowment||||||Total||
||||Funds||Funds||||Funds||||Funds||
||||F||||||||F||E||
|2022|||||||||||||||
|Fixed asset investments||||||||218,333|||||218,333||
|Current assets|||285,766||92,557||||||||378,323||
|Current
liabilities|||(20,074)||||||||||(20,074)||
|Net assets at 30 April 2022|||265,692||92,557|||218,333|||||576,582||
||||Unrestricted||Restricted||Endowment||||||Total||
||||Funds||Funds||||Funds||||Funds||
||||E||E||||||||||
|2021|||||||||||||||
|Fixed asset investments||||||||227,490|||||227,490||
|Current assets|||282,363||6,820||||||||289,183||
|Current
liabilities|||(9,510)||||||||||(9,510)||
|Net assets at 30 April 2021|||272,853||6,820|||227,490|||||507,163||
##
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|The transactions|in the year and the year end balances are|as follows:||
|---|---|---|---|
|||2022|2021|
|||F|E|
|With INPDA||||
|Wages
Other costs||4,113
1,263|4,548
132|
|Reimbursement|ofresearch costs received|7,170||
|Sum due to NPUK (note 10)||968|450|
|With INP
DR||||
|Wages
Other costs||11,073
3,622|5,381
168|
|Sum due to NPUK||449|651|