REGISIEREDCOMPANY NUMBER: 1177YM)71 (E*nd •md W•les) REGISTERED cHARy IYUMBER.. 1144342 REPORTOFTHE TRiISTEES Af4D UNAilDED Fll¥ANCIAL sfATEMENTS AR EIYD DECEMBER )JII
CIAL ATEME Reportof¢htTrM4rt1 I to 4 Stl¢nnl of TNslees' RU)1111k9 llldeFndent Exmlxr'5 Rep•rt ate•tOr nAncI#l Adh.1 tsmeDI of FIlltI Pfys5th Notes to tht FIM•Mrial 10 10 16
ARCOLEPSY UK OFTHE TRusfEES FOR ThE YEAR ENDED JI DECEMBER The fLnatxial Sments ¢ompty 7th CFrilies Act 2011. ts 0)Mp A¢i 2(th. Me¥nOrfiI aThJ Articlcs ol" theÈr in accorkn with tl Finwxial RqA)rt &aTthrd 4wli¢abk in the UK aryl Republic of Iland (FRS 102){cffrctive l Janu&tv 2015 OWECTIVES AiYD A1VEs s sel out in its Artick5 ofA5XKiat]o the obwu orN0k UK &TE to reb.ef 8Thd aid to tIKJ Jfftti fr(xn Narcol¢psy 8nd lth"ffjqthic Hyper50tw. To thal $4Tx)rt p with Na1 aTrl Idhythi¢ Hvprxjmn, tIiT tamilies. caTer$ 8T¥J otlEr5 ir¢#? in imtffow ollife. 1jjrptiipl acti&'itw i¢ve kn obiectiycs E". etleeL8 . Tr pn)mots(n aT¥] 0ntio(tsrfefc1X¢sreTr&1ll aThl itsdTts. . Cre4tsn8 f18 stra¢5 tIMt make tths rAJssLble . colleCty dh5tribAry mtormats"(xL wrlly Ill(x ts NaTrx>kF6y UK mtiJi& o)mwis1 ¥b5ile, F&¢¢ik. TMitter&TxI m4xIw 8thmlh. to cngjre theirri8hts¥r¢ aTwJ thAt tY hwe the neW1¢s8s thrs in We will deliverow oty'etti by." l4militsal lar5 . CamrAgJ8nu)8 10 Ex>licie50f kwS1&¥S aryj furMJJre . DelirIT re8th $wtyin&bk s¢m5tht sfy withrnro)Iqtsy. lknr fftilie5 . PTDiTrdin8 infornjaiicffl aTxI FWtw•l to pu)pk with 5y. trir tamij aThl carus. either diffttty, Our straic aim is all this a nb)I*l#1 of fwM1raiw", thaloBw 11CIans. medical
'JAT l.lj ED31 CE ACIUEVEMENfAND PERTrI)RMANCE CO actlvities movc trom IM)th orKratsonal aThJ rw UK. f¥vow Of knr8er markn USA IL8 5Krtthlialli' S¢th.tr routr kn afv•l USA Fr4Jml Admmisuoti part 12 montks We swxyttsl Per1 Irthrthkn AtT•lKat io Unl1 c11 aFvlicats( aThl 9 New sabdiry Livry AllowwrearwlKau(rt8lDLA relasChIldr ¢xd% ) (kn Benefits a&sL%bJ Ix)th thlts & thikhEn in makry sixces5fid c]aun5 tiknllll¥ £1.3m DJ'5abilitv LiviT Allowate & PqFAXJa] P4yrnats S[¢ may h9v¢ bcffl appl r(x tli i"e4r bLL the fi71 d"SOn those awarth L8m th 21)23. All ttKIj Ial of£l.3m IreMd¢ in 2U23 (kn m¢mt¢rthip It 3452 w 3698 owr the year. Narlep5. is a ratE takmB several year5 (or people ¢0 TEath the dia8TK)sis e at ¥4lLich time c8J18 fr reCorri them to cottscl Narcolepsy UK f¢ more Lnformalion atrKJut livi I1th the dis&bililv atsl wovisii) of help la1 tale. wutplacc adjtMent 5Krt m edWati (infant university). Im)1 aTMI rnans othes&wtsof lile 2023 %tivety assist1 27 wle ts) b), GP to make a Tefml io a Sleo Ca)tre. okn may dKided to follow $¢0$¢0(1¢ um1nlIty tfj. the rekvm)i mf(mli(rt) on b$1. Totsl Volwjtary tK>W5 1485 Totsl vol Value oflknlbjws £26n35 Thi's p9sI y¢4T ¢n a growh voluJtCU5 1)T.4 yxial mdia woittts. ITre•S71¥ ¢ multKharmel wesence to Exttrnl Etstgwent Orr of our critical is [0VlI74 the patIU of ts c<ThliiKm frrmn a PCTsThI. rnoJic41 itheraction & 8eneThl s)cial rmttttsve Cw[L1 HrMI slw clinic1. In th)nw thi"& matnthJMI w Tel&iJ(xthp with WaThvKk mcl sd)] with NaK%kw MOJ1 sttthy$ 8$ arn1 Sle¢p He41th I{ m(wJul¢. We al presenttd to stthts the NHS FJW Nat7 Sthx)l of Healt1e srp (Scientist Trainit)8 wb)m work with W¢ pres at ill an ajurt eveni ai (h]11 Pro in Slw med1 wh"Lch leads bi a I'P or M& li iry ts Skep arml Cwcwjian Ilitu1C ISCNI) sits 1th]n the Nuffjcld tkportmeni of cl1¢41 NcLuOsciccs 8t Univer5il)" of SCNI kn'ry IwIKr cNrKrt15e Pa8e 2
REPORT OFIHE TRuELs FOR THE YEAR ENDED 31 DECEMBER 2023 priw by an LtyJivTrdl Na[1q&SY orlth(pthic H)]xrxxDnM. We arc re8UaaYkn5al the DVLA Chan'ty Antiry•ted Nut Steps W¢ 1¥4ve seen to 8 lemtKKsry in xtsvity ol. pla¢'ll deyelorffljents for Narcokpsy andIth"OEmth tor UK marta&8 rthv Iul3 are follo ¢lmi¢sl tyjsjs FThwnly in th¢ US This dtKs plxe us at a disadv¢ it we arc tully alrE of01 IHv¢ tsk"¢n steps to ¢TMT¢ trot i1 able to FINAJYCIAL REVIEW nci#l R¢vlew ftd Results ft•r th¢ vmr The Ststement olFinsncial Adivity TEtknts ail r¢¢¢8 reeeiizbk Trt llTe4x¢ts"ve ofkn the itwme 15 S. aTE S&tisfKd rEIts pffj(xl RestnTS TlicY lad Ing conttrn FT¢¢ reserves available tor b). Nwc¢Ae9. UK dee to t1¢ •e r]b. less fiJTrJ5 wIM> L5 We alm lo tM)Id an otrational reSee ol. bqwd assets {cash cashA tothl of which Styld equB to at least s motthg cash flow. Howrver. th]"s almgys [thble atKI r4ures C4fEful marwcnt ot. available tury]5 dwll)8 cnticai W¢ that 2024 ryll t¢ a twollY dl¢uh year bA anticiimts lo relain Fetml dMI10r frorn fnends of Chlty whxh may allow oth m sknffiI or ew¥liiwe EA# maiTam ow abihty, wowde our A new Mrbsi has iren crea1 th]n' 2024 (thr Trsjli ora 1kn11> This si will pJ8eS enCOUrnBi118 users to Tcwr l(xmallv with wyj ofta5 a Th ot OF1m linwrialli" to the chHnty LI.th w5h to The wEb5ite this mLYe rxojeci Telared IlWIth8 will Cl avaijable lo fuTrJ the xiiillies ot"th¢ c1wV Jn lerni. Tr tres are of trK v¥ the clwts is a goi co[n (albeit c1x revmvl thn'n8 2023 Davld BThxkS. chaTra1 AcoaJlant.p]l th PAwd thl Iw Tnth8e FAlMU C(Ms atyj Dr Mollov fttwtsj. We thank ¢lThh lor IJMr sernte. U. GOVERNANCE AND MAI¥AGEMENr Coi"ernlng th)cumeDt Th¢ chpnty bv its d(thll, a dEtsl ol'tsuK aTrJ conwDMes a ]ld ¢lFry. ]lted by 8lJatailltt, ¥$ defirted by ComFns Atl 21X REFERENCE AND ADMINISTrATIVE DAlLs Reg15tered Comp•ny nuMr I)77171 (EI 8T¥1 Wal&%)
CE Reglitered Ch•rf¢v 1144342 Reglslered offlte Yrw Tree Ho The Shn]V
t Nwts Cambnd8es PE192BU Trustees E J CoAles(re518l 10.6.231 T J Kav8JHgh DrA J Mollo). (ff5i8td 10.6.23) E H NLcIM>115 (Te5JwI 114 241 M M Owthll Chair M$ H StroTWT D G Bk9)M (app)Inl 1.7.231 M J J Gutkne {r¢St)ed 318.241 Compgny SteretAry MrsNSRuk Ide#l EJminer Bra(Lsh&%i Johnwn CroftChymbcT5 I l B8n¢yoft Hihm HerfoidshtrE SGS IJQ Awlov by (ffthroftl iKxrd 0[tr&S 2024 atyj on its bthlf M M (YNeill- TA¢¢ Pa8e 4
NARCOLEPSY UK STATE OFiiiusfEES' RESPONS FOR THE YEAR ENDED 31 DECEMB R 2023 Th¢ thLStr¢S (wlM> OrN UK the Jxrpx¢s of knw) are wkble f(w pr¢p•n'T the slat¢ ot. attair5 Ot the charitable •yl of irwmr r¢tts and Vlical of IrKIlI[¥ the requirel to . se1 sjithbk p)liciesaThl tTxn awply obs¢N¢ m¢th(NtsaNI princwes in the Chan"ty S(XiP" rllMTKiHI >S1ti( ot charitsble L¥MnpnY aNI w enabk io enswe finarniil 5taterncnts complv the Comparri¢5 A¢t 2(Kb. Try are al>) re4yorrible safr@uar the &4seLS of ¢haritabl¢ ¢omp8nY a] hence for
Inthpendent examlDtr'5 report to the Ir4slees •fNr(olew UK Ctht CMp•fiy) I ¢IlY tsw¢s¢M my ex8mthAuon of the%¢(4$ yeareTrtsJ 31 tkcanTrKr 2023. R¢sn$1b11IIIts ind b*515 of repDrt As tlr chon¢l% trlJ51ees Compwry (atsj alx) its th[$ fw of ¢ThY law) you are for the satssfial mlf that the acc(M8 of the C(panY we reqwrol b) be alij Part 16 of 2(K6 Ad aTKI are ¢118ibl¢ fiff l T¢tKm IB5rtti of MY &NammalM of y(XT Cl5 tnts as C4TfiL¥I o under Stttson 145 of ts Chorll Ad 2011 Cthe 2011 Act) In out mv examina111 I have follomvj the thrtttso givcn by the Chanty C(x[unonuth SEC) 14951(blof thr 2011 ACL IndEpvndpn¢ Ex•tr.5 ¥tatemell1 I hwe Compla my examin8ivxL I confimi tho1 m mtr5 IBY¢ Lxxnc lo my in thE exthinalion
I8 me eaw to belLCVe.
the aOnts do ry>tXCOTd Mlthttrjse rwts. r th¢ do CnplY acc1 requLrtJnents of Sxls)n 3 of Acl otlxr tkn r¢qwr¢m¢N that th¢ gw¢ a ¥ThJ faw ¢W is a m&r a5 of an IThj¢pt eXamuon'. or aceowxts hav¢ w F¢n Fx¢wtyI in s¢t4Y(kn 1th mdlKxis arnl pruipk5 tsf the Sthtcmcni of P11(< for aTrJ fEFK¥tmB ty clwilies (aFplKabk io chantse5 Wanr t1r acco15 the Fla1 RqXB StsThlwrd &Ikb]e in the UK ar1 RqthlK of ITelaNI (FRS 10211. N¢il c Hardg FCA Croft ChllrnFS I]B8 Hithn Hertfords.[¢ SG5 IJQ
NARCOLEPSY UK STA R T71EY OF FIN AR NDED 31 DEC ER20 il.12.23 Totsl 31.12.22 as reststed INCOME AND EN])OWMEMS FTIOM I,4) 502 61.%9 10 169 468 Total 40.918 .758 62.148 EXPENDfTURE ON Ch4ritgbie •¢tl%ltles Narcolq)sy UK 54.939 7.872 62311 65212 Co(ExPENDrrURE) (14.021) {12.053) (3.(b41 RECONCILIATION OF FUNDS Totsl futKls Iwht fonv8rd SI1 56.841 s9.5 TIYTAL TriJ]¥DS CARRIED FORWARD 37320 44,788 56,841
OF FINANC !l.1213 T81 3112.22 Totsl f4md5 a$ rests1 FIXED ASSETS 835 CURRENf ASSETS Debtors Cash ai bojjk" 12 lJ61 44.678 2.691 37,710 i9.071 46,039 59.068 CREDrroRS .4mourts tallE iiithm one y 13 (1.447) (1.447) {3.(b2) NET CURRENf ASSETS 37.624 44.592 TOTAL ASSETS LE&S CiFRRENr LIABILrriES J7.820 44.788 56,841 NrrASS 37820 44.788 56841 14 37,820 51.841 RtrIctl fwLd5 TiyfAL FUNDS 44.788 .841 chan"table company is entiila frun atst urmkr swts"< 477 of cp&e5 Ad 2(K6 for yrdt cr¥Jrd 31 tkttmixr 2023. 311)¢¢¢mber 2023 inoc¢ordaKe 476 otthe Cnn5 Aci 2(Xkn. InwaCk)wI&Igc thwre4xthbilitses f enSw1 that fv chan"¢able ¢Thy k¥9 thDt Lx¥nplv wilh Se¢iiMs 38 atyl 387 of C(KnF1eS A¢¢ 2(K6 8ThJ prcp85iTE finawial trments 8JV¢ a tn fw view of of atTaJrs of the chmtsble companv as at ¢t¥l of¢ach yw ar¥J of d¢fi¢rt f(v fthatKial year in >[dance the requuements of 394 aThJ 395 3nd wh]¢h comph the re(wement8 of & CpaniC5 Act 2(XX¥ reJa¢ws io trjoncl mi&nents, tarasapphcabk ¢tnbk (a) (b)
NARCOLEPSY UK STATEMENT OF FINANCIAL PolON- mDliN¢d JI DECEMBER J)23 to the sn&ll Tt8llne. Hrr¢ a¥yovoJ bv ofTnL44 atKI tor 9 Nov¢mt¢r 2024 and Sig] ¢m its 1xhoEI'': M M (YNeill- Tnwee PaR¢ 9
NARCOL srATE I DECE R IHE YEAR E ATEMENf OFCOMPLLINCE Y¢w Tree Hou Shn]bkTY Church Strtet Si N¢Y)ts CambrLdBe5h]r¢ PE192BU The ohwritable comiMty$ fKial atem¢nts have be¢n tKerAral in ¢(pIlar with Ch&riti¢S SA)RP IFRS 102) as ilapplies Sknnents foru vwet¥Jcd 31 tkYAnixr 2023 AccouiYfiNG POLICIES Bsls of preprtr¢ the 17n(lA1 itAtrthents The fJrAro8] $thtncnts of ch"table cAxntAny, whKh is a tnefii entity FRS 102. h.¢ trmxn preparnl in the CIMn"tses WRP (FRS 1021 'AttmthB aT¥J Rqx)nm8 bv Chanlies. Stsmeni or Sthndard applicabk in UK aThl Rqxthltc of IreL4Tr1 (FRS 102) {eff¢ciiv¢ l J&rKw 2019y. Finalla1 Rewiing StaTrJard 102 '17 Findtal R418 StsTrlard ?b¢Ab]e in UK gTrJ Rq)ubh'c ot Irelarf aTrJ the Compm Act 2(K. Th¢ firm181 stat£ments have iren wepartsj Uhiorie41 cou c{£nI. Narcol¢p5y UK meeL¥ tk d¢f]nill ofa knril cntsty FRS 102. The amentsar¢ in 5rlir{£). IDcoffj¢ In¢A)me Is the ckn.iy htts ethitlem¢rt ro any c4xMlilioThs to itan(s) o( irKome hve bm m¢ li is wrtble i1ne wll re¢¢iV and the am(KJN c4n me4swed reknabli FAS to the fillmls. any FvfixmarK¢ atlachtsl thE w have F¢¢n m¢L il is proE•bk thRi thr irthne T¢ttivryJ the&M0¢th me49]r&l lblY a1 is de(errul. For le8acfft, eillen1 ts tsk¢n 8$ the carlr of d•t¢ on whch &thet' Tl ¢FAnt)' is th#t prrtte has fl11 a1 I]rItsOn kn Fen by exec{¥($) to Tnjst thai a di51ribuUon wiu made. M4n a da¥]]bAKM) Js wrr¢wed fr(¢n th e5k. of a lew in or rwl 15 ontv COn5Kk] [KblY i4lKn thc arno can t reli4bl% arKI cljarity hts r¥)tsfied of th¢ Inttrtjt rectivAbk Interest on fthjs held dewi is •¥J amouA mewvj relwbly Fry the ¢hth"ty. this is JKxm81ty ld or pyobk . the trAnk EXFndl¢u and IrrttoY¢rbbE v•t is recowS 15 8 ]e8al Ob1wts( a rAymeM third rArtv. rt is rKobable that Kllkment wll a1 the amothrf of Obli8ats can mc45wed rehabty. F.XFtTdLlwe is utthth¢ follow8]VIty Pa8¢ 10
NARCOLEPSY UK TO THE FINANCIAL AT£ETh. COttd ThE YEAR EI D 31 DECEMBER 2023 AccouiYfiJ¥G POLICIES-f•n¢Wtd E1pthdlth Trd Irrecoverlbk T8nglble flxed asKts t[ff" lx) i% follo amu&l rnte5 in(Ytsto lIe oft.each ove its &4imated life. TAx•tknD Fund croun¢ing Pemsknns tknn8 year. ¢hatitsbte COM otmad • trffji B&CE Hddll¥s L. cijrfjnlmkn pxyable tor Ihc yearare ¢lw8al ID th¢ wofii aTKI10$5 Lwl sl•l•y of the th#rllblt tompkn' In ol'ux charitsble o)mrAny Tr liw a member of the chTity) has unrknaken ext¢tyts w)tsl ort Vtar artaa Tn&CeC£ to a m¢mt¢r The Tnth Chtsb]e COrnfWb)' Ikbt•n ttd prePts Cgsh it b4Dk gad ID b Cash ai OTNI haTxI 1¥5h aT¥J slth terni hi8hly hwd iTrtrystinent¥ with a matwity of fvee monts or kss trvm tIK d&tc ot oF¢nI of the de.1 5Mnilara¢to Crnditots c11$ aye rwisEd the cFArity Obl11¢ le1[1n8 trom a ¢va)¢ thai wryll prthbly trsth in the IJa11¢r ol tWMIs kn a third rAty aDJ the mowrt io setsle th Obkn.8 ¢an me4wTttI ot estimatvj reliabty. Crelitors and rKowsirffts are NThaity reco8nis&l ai tl•r seldanent am01 after allow1 tor anv ¢tade th'xowLtsd Finao¢lal inthIS The Ch.ble c¢)m1Y cmly trLs fmwial &wts aThJ fr1810] li8kn.liw of a ku th91 qlIft. as bASiC filwl] InStrents B&sK t"11 iL4nun•)ts are inrf]al])' Tew*l ai u8j1Mm Val SLthw4rn¢lv measurd al etlecin'e mterest meW.
NARC - tootkn MBER FOR ThE DONATIONS AND LEGACIFS 31.12.23 3l.12.2? as r¢srat¢d ).45 9840 54.187 7.782 ).2) 61. Grants rff¢iYaJ, itxlth ID the aFthTe.ate folkyw5'. 31.12.23 31.12.22 9.840 7.782 31.12.23 31.1222 gs restst¢d Futh]yn8tvents io INVESTMM INCOME 31.12.23 31.1222 169 NET INCOMFJ(EXPENDfniRE) 31 12.23 31.12.22 &$ restsied 639 654 Py12
CIAL STATEMENfs- rontlnwd FOR THE YEAR ENDED 31 DECEMBER 2 TRUSTEES, REMUNERATION AND BENEFrrs lTr£te TX) In or (thr taKtits f(r ts ytar tnlrd 31 Lknni%r 2023 Ik yw ¢T¥tsI 31 DeCem1r 2022. 31 Dttanlxr2022 8vw m(xrthly nwntrrofemplirye¢51hw follows". 31.12.23 31 12.22 rests Sl1- 2022 COMPARAIIVES FOR THE ATEMENT OF FINANCIAL ACnVTfiES Tothl &s restsi¢d INCOME AND ENDOWMEMS FROM 49.187 12,782 61.969 Other tr8d]ngiiwtses 10 10 169 Total 49.Y 12.782 62,148 Ch4rltsble •rthltl¢s 57.430 7.782 65212 NET If4COMEI{EXPENDrnE) 18ffi4) {3.(f)41 REcONcoN OF FUNDS Totsl firyKig Cor44*Td 59.9)5 59.9)) 51.841 56.841 E¥8e 13
NARCOLEPSY UK I¥OTFSTO THE FINANCIAL ATEIK. f•ntiDued FOR 171E YEAR ENDED 31 DECEMBER 2• 11 PRIOR YEAR AIKiusfMENr fuThls(WdS £20.030) 8nd TEStTic¢d (¥$ £39.875y anatysi5 of ir*uTrme srnilarfv Temaw {urffe5tr £24,(MW .' rednrtgj funds w&8 £2.073 exwjsei The kntsl ire at41 trrtal (wds remain UrKeAa. TANGIBLE FIXED A&sErs Comwer eqLupmcni co A¢ l 2023 aThJ 31 fknber 2023 DEPRECIATiof4 Ai l Janw 2023 Char8¥ for v 1.12) 639 At 31 tknber 2023 1.764 NET BOOK VALUE Al 31 fkr¢mb¢r 2023 196 A131 tkc¢mt¢r 2022 835 li DEBTOR&. AMouNfs FALLG DUE wmllN ONE YEAR 31 12.23 31 1222 ,322 1.369 PrqA}ments lJ61 2.691 P8ge14
NOTESTOTHE FINANCIAL sfATEMEf475. FOR THE YEAR ENDED 31 DECEMBER 2023 li cREDoR&. AMOUNfs FALLING DUE wmiiN OI¥E YEAR 31.12.23 31 1222 1.447 3.¢ASZ 14 MOVEM IN FUNDS N¢t At 31.12.23 1.1.23 Unrutritted fvfjds G¢ml ti¢T¥J 51041 (14.021) 37320 Restrkted f¥nds TAL FUNDS 56.841 {12.053 1 44.788 Nd movqEKnt mfimds. in ts 8ixwe aR as follows." in (¥1$ UDrtstrlct¢d Gemal filljd ).918 (54.939) (14.021) Ru¢rl¢l¢d (7.872) 50.758 (62811) (12.053) frtyr l* f•ttd5 Net At 1.1.22 31.12.21 Unrestrirted funds Geml Iw¥J 59.WS 18.W) 51.841 Rejlrlcled T{AL Fuf4DS s9.5 13.IN I 56,841 Page15
co MOVEMETrry IN FUNDS- ¢othtltyMd Cornp&rntiv¢ n¢tMoVema m fi. intt ¥5 fOlkn.. JryxMntll8 ¢¥[ryI in fund5 Ll•nslrlrt¢d Gtrml fw 49366 (57.4301 (8,Ikn41 Restrl(ted fund5 12.782 (7.782) 62,148 (65,212) {3,(W} Is RELATED PARTY DISCIKJSURLS 11¢ relatd wy tra115 yeareth 31 2023. I& NAMES A]¥D FURprE OF FiJNDS Unr¢strkt¢d Ceneral other fithyLs aJKI COILS[ wblicy ofth¢ ¢h8wJti' Rejtrltttd Reglonal Support And other rtttrlded fvn partJ¢ular region or for (th Frticu]ar or rearthj knu8h cnoblll tK)n devek)tmcnt of vo1wtrer1sun srt* wFu"th we beu¢r able io focus on lo1 ]wJs 8ThJ throw the wovisi¢M of loc41 aTyJ m)nal 5X¢ infiastrWtU k) enwre that gjch 8rrws etYKiently •Thl efftttivety a Pa8¢ 16