REP OF TR ES FIN THEYEARE ED 31 DECE ER2 FOR EPS *ACCZSB21• 2W0912023 COMPANIES HOUSE
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Reportof theTrMs¢e I to 4 8 b) 15 16
FTH TR EM ER 2022 The fiJthn¢iaJ 51mrnts cornply with the (JJaTitits Act 2011. the compgnia% Act 2C(16, the Memorandum and Articles of As50ciaiion. and Accouttting and Rewtin8 by Clrities.. Statment of R£toMwd Prnett. applicxblt to chatities prepannE their i¢£ounts in o¢ctrdan¢e V•ith th¢ FirTKl RwbnB Statth 4•lic4ble in thc UK and Rcpublic of Irel4ttd (FRS 1021 leff¢¢ts"v¢ l Janwy 2015). A$ 5¢t in its knicl¢s of Associatio the obj¢uiv¢s of Nar¢olwJ UK provid¢ ffli¢f and aid to thos¢ th'D8 from rwcolew. To that e w¢ g¥pxt with Dwrol¢¥w, tbur famib'4 c4re15 ¢Ab¢r5 tnteresi£d in illyovinB djeirquaiity of life. (knpriTKipI Rctivitics to xhicvethesc cbj'taivts ate: . Thcpromotion andwgati1tt"oll of tofjfeftn rtJthDE to rwwlep5yand its ¢ff¢4S. and its effgtts. . Creating Ki funding slratwes l]w nuke wc&wtstible. FacebwK Twittet and5(KiJi mediagenerally. Wcwill deliver (wobittlivesby. .RaisiD8 wofe55ional. and ]IC aw4ff4w of the of p¥il¢ oarcolw. their ratnities and r4reT5. . Ddivuing relevant sustaitthbleservic¢s tha¢sall5fy the needsof pe(yle with Darcolqwj. their familits aYJd carers. . Pmiditi8 informatiw and pr¥1] to with nwtol¢psy, their faTnilies ¥JJd care¢ ¢rth¢r dwxty. i partsrship with othcr5 QT througll fxilitstingand >74PYting wwk of othcrorw]w. . Supp)rting Tcse4rch LryW the effts Nd rna0f narcojqw. Our stsategic airn is to acbievc atl this tlwough a wmbjnation of Goolinuing dia]08ue with politicians.
END ¢otporat¢ supp)na5 activcly rTr)v¢ away fmm both wational alld new devel(ry)nien( i(It¥ity in the UK in favour of the Scptember a8 we Al#b]e fiwdiDg low#rd% th¢ mJinlcnan¢c of helpi Jviw volunteeT Detwotk (kn rewster&l memknhip tnmsed frrn1 3074 w 3452 overthe yw. Total Vohtht•ry 5tsff Hows- 1.483 T(1 Voluntsryvalue of thesebtytrs. £24.81M) Exten1 Eozayo)tht activities at the Wokc Up N¢01¢PSY sethillar ID the USA and rnaint out relatiotithip with Watwirk Mediral School by Ne5llD8 ott Ett8 with Natwlew to their rntdiul stUdts 4 Psrt of th¢ir Jtwuat Sl¢¢p H¢aith aDd &xictynK Wc physically attcTrJcd the followin8 n¢Dng5 au¢)55 2022. Worfd Slc¢p 2022. Romc. the Norwegian NaT¢oIqJ5y We continued to work c105dy with tht UK aud V¢bicl¢ LI¢51B AB¢Dry OD b)tb l1¢Y alld sp¢cifi£ illdivhduaj dtiver issucs and this rel10t hs ptov¥vJ to bc very gxc4sfvl wbeo wc have bees askvj ty intercede ill the CDSiDg PTOC¢SS by aD iod.tvithl with Narr1 or Idiythic HyFa5OM We are regular atteDJe£5 at the DVLA We eX£t to see a tctt¥yJrary decrease io the aL#tvity of dev¢lorAnots for Nl¢0$Y aDd Idiopthi¢ Hyperso ITL the UK &s Dew frnrtiukn e following ciiDiC41 tria15 based iD thc USA aDd severRi legal This (kjes place us at • but it is one we e fillly w•Jr of And have tsken $tCP5 to en9¢ we will be Pagt2
REP HET EM 22 Rcgthves lleY4d goiD8 u>nc¢rtt Free rcwvcs available for ust by UK are detm&l to be that re&t"ly reats"sibl4 Icss fiJnd5 wh05C exptllth'ture. Th¢ operntiwal re5uv¢ Uld lirwO a5xLS rycar thE totsl of 51KMd quat¢ I¢ Six E)X4Jths' wh flow. How¢vu, is not always &wiTrle requiring ¢tl mana8emettt of available thds dwiog crItij ptriods 4lld sourcing ncw irKom¢ st[t4. Itl the ttlltL th¢ Tn¢$ kli¢v¢ that all ¥tiviti¢s thouid te available to fiJNI th¢ x¢Iviti of the ch•n"ry in the term. The ttustees are of the vi¢w the tharity ts a 8OlQg GoverDiDg dOet Register Coffjpw nutyber 077971 (E4JgId8nd Wa]es) Rtgl$t¢red Charrfy Dllmber 1144342 ReeL4teTed offiee Y¢e Tree Ho The SbrnFkny Church Street StNeots CambrtdgeshiT¢ PE19 2BU M M ON¢il E J Coates M J J GuttKi¢ T J KavaD88h A J Molloy E H Nicknlls H Stmrt TTustre{OEpytir&l 30 Apil 2022) Tnle¢ Company Secretary NSRu]¢
RT FTHET TEE Independtht Ex1 Brndthawjohnson I l Bancroft HJ"tchitt SG5 IJQ 26.{q.l.23 AFyoved by ¢Ndtrofth¢ iwdoftrus*eJ OD................ ....... ................ aNJ sId on its beIlf ty.. M M On¢ill. Tru P48e4
OTHETr LEP Indepe#deDteumi•¢T'$ report ¢0 the ¢rusttes•f NJrtoltP5y UK Cthe Cowy? Re5ponsibllltlts and b¥s •[ ryrt As the charitys tnte¢s of thE C¢)mpaDy {aDd also its d¢¢ for the puqkxs of t¢rtwy law) you are resyNe far the prgwthott ofthc8ccounts ÈD xcordance with the1wte oftheCotthPanieS Atx 2 Cthe 20&5 Arf). Hawihg satisficd myself the acojuttts of the ate not ryurrd to be dIl Part 16 01th¢ 2(KA5 aDd we ¢liwble for JDdeKtht I rqrfxt in rfwt of my examitwoD of your chan.tys aCCJntr carried out under Sedioll 145 of th¢ Ckn A¢1 201 I fth¢ 201 l A¢ry In r4Thying ow my cjamioation I have fo]lowed d Drfions by the CbityCtirDrnis£ionunderSecttoD 145(51 (b)of the 2011 ACL IDdqndtMt Slaf¢Wt txaminthon gjvingmc to lIeve.. the accouttts do t1 rompty Trith tht ]ntIn8 reqUtTe of Stttion 396 of the 20(15 Act th than any requirntitst that the ve • and fatr vknich is * mxtttr obnstdryed as rArt of sn iTthrthdtnt Reconde$j Pta¢*icE for acCnn8 attd repxtsn8 by clwiti¢S (appli1¢ to ¢hariti¢s pryiing th¢ir aG¢iMJnts in accordau¢ewith the Fin4Ucl Rt¥KxtiD8StsttdaTd applit4b]e LD the UK aTMJ Rcpublic of Ireland IFRS 102)). Neil C Harding FCA Croft aJamber5 I l Bancroft Hitch H¢TrfordsbhTe SG5 IJQ 27
IAL ACTtvtTIES MB FOR TH 31.12.22 Tots] 31.12.21 Total tknattons aDd le8acies 54.187 7.782 61969 46.447 io io 169 16,982 54.366 7.782 62.148 63,431 EXPENDrruAE ON Raising fiujds 852 Ch¥rltsble attlvlth Narcolepsy UK 30357 34.855 65212 58,862 Totsl 30.357 34,855 65,212 59.714 {27.073J (3,064) 3,717 RECONCIUATION OFFIFNDS Totsl fiLnd5 brou8lLt forwtrd 2Q030 39.875 s9.3 56.188 44.039 )18W2 56,841 59,905
COLE SY 31.1122 Totti funds 31.)2.21 fiwd FJXED ASSETS Tnb]e asstts 835 835 1,489 12 2.691 43575 2.691 56J77 3.012 56.991 Cash •t b7nk 12.802 462fO 12,802 s9.8 60.(KJ3 CREDITOILS Am(MJDts fa]liti8 ttrwithin 13 (5.2) (3,(62) 11,587) 432IM 11802 56.(N)6 58.416 44.039 11802 56.841 59.9]5 NET ASSETS 44.039 11802 56.841 59.9]5 14 44.039 IL802 20.030 39.875 Re5trictrd fiujds 5&841 59.905 The cb¥itsblr c4)mpw [5 ¥Id¢d to frun 4wJit Section 477 of the G)mpS Act 2(1)6 for the year eDded 311)ec¢nkn 2¢)22. 31 Dber2022 in pm)rdant¢ whth Srxb"M 476 oftht ClwleS Act2t¥J5. (al ¢D5UEin8 the th•n"tsble comtAay kws w<xds that c4npty with Srftiotis 386 aDd 387 of th¢ Cowtcs Aa 2006 gmd (b) N¢parwg sratemtJts wbicb a tswe fair view of tht stst¢ of affaits of the chxyitable c4)mpally as at the elld of 6JW¢ yeat and of tts sutpbts or deficii foz ¢ch fitiancial y¢aT iu cdance with th t¢4uiruueDts of Secriors 394 and 395 atsd *bidL tY with th¢ Fequir¢rDtffjt5 of the Coropjwfs Art 2006 reJatiDg tyfiD3Dcial so far&844)ti¢4bl¢ rthitabk biecttothE all C4JrnP•AJies res Tb¢ ffinancml . and were SiBDcdoD IL5 b¢balfby.' M M Onu"Il. ThL
TE FINAN IAL STATEM y¢WTr H¢JuFe Churh Strcet St Neots catu]dgejhIe PE19 2BU 102) &$ it opplirs to the fmattcial for the yeaT CtrI 31 Decmkn 2022. ACCOiINIING POLICIES Bsi5 of preparln% thefiDanthl #•t•rtots The fiDancial statr of the cknrirable tom[y, is a pthlic trtity wxder FRS 102, have bt PTtpaT&J ITr aco)rdance WLth the Clwitits SORP (FRS 1021 'Atc(#ting aDd RcprytsDg by Cthan"tics'. StateTtrrt RewJrtiL8 Stsndard awliublc in the UK Ryblic of Nreld IFRS 102) (effective l January 20I91', Fitithcial R¢pJrtsng Standard 102 Tr Rqw SthTthd ¥o]icabJe ID thE UK •ttd R¢publrG of UXLventioD. N¢0]gVKth¢ththe d¢fiDiti(o of a11¢bElleeDtlry wMknFRS IW2. IDtome Intomc is Tccogwsd wen thc charity eDtitletn¢nt to thE pryfoTmthce CQDditi'ons jtthCd fo the itern{s) of iticomt have be£n il prohble thc income will bc Tettived and thc amount be rneasured Y¢]Jabty. ¢bity has cntitiemcDi ty the aDy f0mlat C•Dditions a¢tsdKd to thc grants bv¢ been MCL it 15 FLY leBaci4 entitl41 is tskcD thc earb.er of the on •th"¢b ¢Èty. the ¢batity is awar¢ thai wobote bas Een * the esute ba% been fi]Sed aDd notification bas becn by thc executorf5) to the Tnt rb8t a distribution wiJ] be ma< a distrilxrtion is rtcivd fmm the e518te. of 8 legacy in wbolt or ¢ is Only considutsl ]x¥thty when the cwt be mtA%wd rdiably and ¢be ¢blty b&$ Ixell DotifieAI of thc exe£urcts tlltthtiott to ]nak¢ a distnlNtiixL IDter¢sl on fLmd5 kld on (kposit AS included whtsj ff¢ery¥lA¢ a1 the aJDOUDi c•ll be measured Tetiably by the EXpendIts is rwised ODCC thet¢ is a lyl { ¢&xhsfyve to moke a Faymtni to a third party, it is prnbablc thar selllemetsi will be and the olthe ObBation c4n bt Meas rtliably. EX'tU is riwifiedunder the following ¢i]ty bt4dm8S.'
LE NO STO EF CIAL ATEMETrs- EC tinued ACCOUTfflNG POLIC. t4)ntmned TllObiefix¢4 uets Tx¥th) Fund ctountiDg payabk ¢be ye4rare ity trryofitdkS 14g¥i sttss of the ckvitable ConnY In the evellt Of the cbaritsbl¢ . exh Trustee Oting • rttnber of th¢ rbity) bas tLdatskeD to ¢ontrilxth to th¢ awts of the clble cotDWy atwjnts &s required no( exceedtDg £1. This Debtors prqmywts C4sh #t bawk •ttd IA ld Creditors CteAi(Ots ar¢ r¢c¢Jguiffd where the chty has a pen[ obligation resuhin8 frottt a pst ev¢nt th& vrill pd>&bly Tcwlt ID the tranrfer of fiEDds to J third party and the Tnoulli duc kn setti¢ the obligatsotl can bc MClld or Th¢ ¢hitable wnpgoy onty fiDaDcd and babiliti¢5 of a bijd qualify Ls bAsic final instrum¢rbts. Basic itL8tsWDe#ty 4Tr illitialty T#ogDised al Innsactirn value aDd subswily rne&sured at thcir sett]cmtnt vaJuE with the ¢xc¢ptioo of bank loaos whickn are subsequendy at amortis¢d WSE ontitiUVI..
NOTE rNAN AR ENDE tiou R THE 31D CE 22 IKINATIONS AND GAc 31.12.22 31.l2.2l 54.187 38.947 7,500 61.969 46,447 31.12.22 31.12.21 7,782 7,5 31.1222 31.12.21 io IA982 31.12.22 31.12.21 169 Tolal 2022 Total 2021 stsff cost B(M)kkeepio8 45,756 Iswj 45,756 44585 L.500 1204 Office attd Mi*d]aDeo1 Telepbonc aDd t& 5,874 2.671 5,874 2.671 3.128 2,198 Travel co 1654 1.323 394 1.540 ,707 1,753 1.408 1.798 Subscriptsw5 Mask¢ting (34,855) 34,855 29.703 34.855 64558 58,403 Pa8¢ 10 cc411iDued...
EP TES TO TH FINAN TE OR HE YEARENDED3I DECEMBER 2 NetincompJ{exrknJitwe) 31.12.22 31.1121 654 459 elld¢d 31 D¢¢¢mber2021. 31 Decemt*r 2021. 31.12.22 31.12.21 EMpl•Yntntety Wages attd 5alati¢5 Pensiott ¢LW5 45.756 44.585 45.756 44.585 Ith 2021 COMPARATIVES FOR THE STATEM OFFINANCIAL AcnviTIES Totsl 3&947 46.447 16.982 16.982 55.931 7,500 63,431 B2ising fiJud5 852 852 Narcolyy UK 58.862 58862 Total 59,714 59,714 (3,783) 73 3.717 Pa8eil contiDUtA...
ci AR ENDE ST TE s- EMBER 022 inu Total funds RECONCILIATION OF FUNDS Totsi fim(ts brou8bt fOrwd 23.813 32J75 56.188 20.030 39.875 59,905 ii. COST At l Jattuary2022 aryd31 2022 1.960 DEPRECL4TION At l Jaouary 2022 471 654 At 31 tkt¢rnber2022 .125 AI 31 Dll2022 835 At 31 Dwber2WII 1,489 12. DEBTORS: AMouKfsFALLINGDiIEwrriin¥ ONEYEAR 31.1222 31.12.21 1,322 1.690 PrtyxyrtX*L8 1,369 2,691 3,012 Pa8e 12
LEP TES TOTHE FINAN THE YE ENDED TAT ECEM ER2 31.12.22 3l.12.2l 1.525 62 3.(3 10.278 14. Net Al 31.12.22 At 1.1.22 iry funds Unrestricted funds 20.030 24,0(Y) 44,039 Regtrlttrd 39,875 127.073) 11802 TOTAL FUNDS 59.9)5 {3.064) 56,841 UDre#rlctedh• 54J66 (30J57) 24.(rf)9 04,8551 {27,0731 61148 {65212) {3.064) N¢t )yle¢ At 31.12.21 Atl.1.2J U4restrlcted funds 23.813 {3,783) 20,030 32375 7JOO 39,875 5(188 3.717 59.4x15
E FINAN ME Incoming Rcsowcfs Movement UL fiLnds Gell¢r•] 55931 {59,714) 13.7831 63,431 (59,714) 3,717 Net Ai 31.)2.22 Atl.1.21 23.813 20226 44.039 32375 (19J73) 11802 56.188 653 56,841 &5 follow5= Resourc¢5 Movement iti fimds UDrtstricted funds Gelle1 fiADd 110297 (SV.07J ) 20226 15282 (34,855) (19.573) 125379 (124926) 653 Pa8e 14
NARC EP ATE ER *ttd R¢¥oDA Support withuj a tn"¢u[al re8t'uL bDth thrtyjgb aubling the crt4tioD aDd devdopmejjt of lota] voluDteerlsupporter sub which are bdtCT able to foJJs on local and the PTDViSiOD of 4 1(xal and gnd1 Pyl5
TA CIAL EM 31.12.22 31.12.21 Do••dDns legade5 54.187 3&947 7,5(p) 61969 46,447 Funttraising¢¥ettts 10 16.982 Inve4tmeDtIDcoiiie 169 TotslkncomlDg rtao•rc 62.148 63,431 RKe4nh gT8ni 852 Suppott ro4$ Wagrs 45.756 1,408 2.671 5.873 lJ24 1,5C(I 1,1 2,654 44.585 1,707 2.198 3.128 Tel¢phorLe Websire develOpntand maitite Bc4)k&eeping I,5(Kl 1204 394 1,753 Travel costs 64.174 58.(Q9 Flnatyce Bank cbar8es 394 459 654 1.038 853 65.212 59,714 leJpMditsreyllltoMe 3,71? Page 16