REP
OF
TR
ES
FIN
THEYEARE
ED 31 DECE
ER2
FOR
EPS
*ACCZSB21•
2W0912023
COMPANIES HOUSE
#72

Reportof theTrMs¢e
I to 4
8 b) 15
16

FTH
TR
EM
ER 2022
The fiJthn¢iaJ 51*mrnts cornply with the (JJaTitits Act 2011. the compgnia% Act 2C(16, the Memorandum and Articles of
As50ciaiion. and Accouttting and Rewtin8 by Cl*rities.. Statment of R£toMwd￿ Prnett.￿ applicxblt to chatities
prepannE their i¢£ounts in o¢ctrdan¢e V•ith th¢ Fir￿TK￿l RwbnB Statth 4•lic4ble in thc UK and Rcpublic of
Irel4ttd (FRS 1021 leff¢¢ts"v¢ l Janwy 2015).
A$ 5¢t in its knicl¢s of Associatio￿ the obj¢uiv¢s of Nar¢olwJ UK provid¢ ffli¢f and aid to thos¢ th'D8
from rwcolew. To that e￿ w¢ g¥pxt with Dwrol¢¥w, tbur famib'4 c4re15 ¢Ab¢r5 tnteresi£d in
illyovinB djeirquaiity of life.
(knpriTKipI Rctivitics to xhicvethesc cbj'taivts ate:
. Thcpromotion andwgati1￿tt"oll of tofjfeftn￿ rtJthDE to rwwlep5yand its ¢ff¢4S.
and its effgtts.
. Creating *Ki funding slratwes l]w nuke wc&wtstible.
FacebwK Twittet and5(KiJi mediagenerally.
Wcwill deliver (wobittlivesby.
.RaisiD8 wofe55ional. and ￿￿]IC aw4ff4w of the of p¥il¢ oarcolw. their
ratnities and r4reT5.
. Ddivuing relevant sustaitthbleservic¢s tha¢sall5fy the needsof pe(yle with Darcolqwj. their familits aYJd carers.
. Pm*iditi8 informatiw and pr¥1]￿ to with nwtol¢psy, their faTnilies ¥JJd care¢ ¢rth¢r dwxty. i
parts*rship with othcr5 QT througll fxilitstingand >74PYting wwk of othcrorw]w￿.
. Supp)rting Tcse4rch LryW the eff￿ts *Nd rna￿￿0f narcojqw.
Our stsategic airn is to acbievc atl this tlwough a wmbjnation of Goolinuing dia]08ue with politicians.

END
¢otporat¢ supp)na5 activcly rTr)v¢ away fmm both wational alld new devel(ry)nien( i(It¥ity in the UK in favour of the
Scptember a8 we A￿l#b]e fiwdiDg low#rd% th¢ mJinlcnan¢c of helpi￿ *Jviw volunteeT Detwotk
(kn rewster&l memknhip tnmsed frrn1 3074 w 3452 overthe yw.
Total Vohtht•ry 5tsff Hows- 1.483
T(￿1 Voluntsryvalue of thesebtytrs. £24.81M)
Exten￿1 Eozayo)tht
activities at the Wokc Up N￿¢01¢PSY sethillar ID the USA and rnaint￿ out relatiotithip with Watwirk
Mediral School by Ne5￿llD8 ott ￿￿Ett8 with Natwlew to their rntdiul stUd￿ts *4 Psrt of th¢ir Jtwuat Sl¢¢p H¢aith
aDd &xictynK
Wc physically attcTrJcd the followin8 n*¢Dng5 au¢)55 2022. Worfd Slc¢p 2022. Romc. the Norwegian NaT¢oIqJ5y
We continued to work c105dy with tht UK aud V¢bicl¢ LI¢￿51￿B AB¢Dry OD b)tb ￿l1¢Y alld sp¢cifi£ illdivhduaj
dtiver issucs and this rel￿10t￿￿ h*s ptov¥vJ to bc very gxc4sfvl wbeo wc have bees askvj ty intercede ill the
CDSiDg PTOC¢SS by aD iod.tvith￿l with Narr￿1￿ or Idiythic HyFa5OM￿ We are regular atteDJe£5 at the DVLA
We eX￿£t to see a tctt¥yJrary decrease io the aL#tvity of dev¢lorAnots for N￿l¢0$Y aDd Idiopthi¢
Hyperso￿ ITL the UK &s Dew frnrtiukn *e following ciiDiC41 tria15 based iD thc USA aDd severRi legal
This (kjes place us at • but it is one we *e fillly w•Jr of And have tsken $tCP5 to en9￿¢ we will be
Pagt2

REP
HET
EM
22
Rcgthves ￿lleY4￿d goiD8 u>nc¢rtt
Free rcwvcs available for ust by UK are detm&l to be that ￿ re&t"ly reats"sibl4 Icss fiJnd5 wh05C
exptllth'ture.
Th¢ operntiwal re5uv¢ *￿Uld lirwO a5xLS rycar thE totsl of 51KM￿d quat¢ I￿¢ Six
E)X4Jths' wh flow. How¢vu, is not always &wiTr*le requiring ¢￿t￿l mana8emettt of available thds dwiog crIti￿j
ptriods 4lld sourcing ncw irKom¢ st[t4￿. Itl the ttlltL th¢ Tn￿¢￿$ kli¢v¢ that all ¥tiviti¢s thouid te
available to fiJNI th¢ x¢Iviti￿ of the ch•n"ry in the term. The ttustees are of the vi¢w the tharity ts a 8OlQg
GoverDiDg dOe￿￿￿t
Register￿ Coffjpw nutyber
0779￿71 (E4JgI￿d8nd Wa]es)
Rtgl$t¢red Charrfy Dllmber
1144342
ReeL4teTed offiee
Y¢e Tree Ho
The SbrnFkny
Church Street
StNeots
CambrtdgeshiT¢
PE19 2BU
M M ON¢il
E J Coates
M J J GuttKi¢
T J KavaD88h
A J Molloy
E H Nicknlls
H Stmrt
TTustre{OEpytir&l 30 Apil 2022)
Tn￿le¢
Company Secretary
NSRu]¢

RT
FTHET
TEE
Independtht Ex￿￿1￿
Brndthawjohnson
I l Bancroft
HJ"tchitt
SG5 IJQ
26.{q.l.23
AFyoved by ¢Ndtrofth¢ iwdoftrus*eJ OD................ ....... ................ aNJ sI￿d on its beI￿lf ty..
M M On¢ill. Tru
P48e4

OTHETr
LEP
Indepe#deDteumi•¢T'$ report ¢0 the ¢rusttes•f NJrtoltP5y UK Cthe Cowy?
Re5ponsibllltlts and b*¥s •[ ryrt
As the charitys tn*te¢s of thE C¢)mpaDy {aDd also its d￿¢¢￿ for the puqkxs of t¢rtwy law) you are resyNe far
the prgwthott ofthc8ccounts ÈD xcordance with the1w￿te￿ oftheCotthPanieS Atx 2￿ Cthe 20&5 Arf).
Hawihg satisficd myself the acojuttts of the ate not ryurrd to be ￿dI*l Part 16 01th¢ 2(KA5
aDd we ¢liwble for JDdeK*tht I rqrfxt in rfwt of my examitwoD of your chan.tys aCC￿Jntr carried
out under Sedioll 145 of th¢ Ckn A¢1 201 I fth¢ 201 l A¢ry In r4Thying ow my cjamioation I have fo]lowed d
Drfions by the Cb*ityCtirDrnis£ionunderSecttoD 145(51 (b)of the 2011 ACL
IDdq*ndtMt Slaf¢Wt
txaminthon gjvingmc to ￿lIeve..
the accouttts do t￿1 rompty Trith tht ￿￿]ntIn8 reqUtTe￿ of Stttion 396 of the 20(15 Act th than any
requirntitst that the ￿ve • and fatr vknich is ￿ * mxtttr obnstdryed as rArt of sn iTthrthdtnt
Recon￿de$j Pta¢*icE for acC￿n￿n8 attd repxtsn8 by clwiti¢S (appli￿1¢ to ¢hariti¢s pryiing th¢ir aG¢iMJnts
in accordau¢ewith the Fin4Uc￿l Rt¥KxtiD8StsttdaTd applit4b]e LD the UK aTMJ Rcpublic of Ireland IFRS 102)).
Neil C Harding FCA
Croft aJamber5
I l Bancroft
Hitch
H¢TrfordsbhTe
SG5 IJQ
27

IAL ACTtvtTIES
MB
FOR TH
31.12.22
Tots]
31.12.21
Total
tknattons aDd le8acies
54.187
7.782
61969
46.447
io
io
169
16,982
54.366
7.782
62.148
63,431
EXPENDrruAE ON
Raising fiujds
852
Ch¥rltsble attlvlth
Narcolepsy UK
30357
34.855
65212
58,862
Totsl
30.357
34,855
65,212
59.714
{27.073J
(3,064)
3,717
RECONCIUATION OFFIFNDS
Totsl fiLnd5 brou8lLt forwtrd
2Q030
39.875
s9.￿3
56.188
44.039
)18W2
56,841
59,905

COLE
SY
31.1122
Totti
funds
31.)2.21
fiwd
FJXED ASSETS
T￿n￿b]e asstts
835
835
1,489
12
2.691
43575
2.691
56J77
3.012
56.991
Cash •t b7nk
12.802
462fO
12,802
s9.￿8
60.(KJ3
CREDITOILS
Am(MJDts fa]liti8 ttrwithin
13
(5.￿2)
(3,(62)
11,587)
432IM
11802
56.(N)6
58.416
44.039
11802
56.841
59.9]5
NET ASSETS
44.039
11802
56.841
59.9]5
14
44.039
IL802
20.030
39.875
Re5trictrd fiujds
5&841
59.905
The cb¥itsblr c4)mpw [5 ¥￿Id¢d to frun 4wJit Section 477 of the G)mp￿S Act 2(1)6 for the year
eDded 311)ec¢nkn 2¢)22.
31 D￿ber2022 in pm)rdant¢ whth Srxb"M 476 oftht Clw￿leS Act2t¥J5.
(al
¢D5UEin8 the th•n"tsble comtAay kws w<xds that c4npty with Srftiotis 386 aDd 387 of th¢
Cowtcs Aa 2006 gmd
(b) N¢parwg sratemtJts wbicb a tswe fair view of tht stst¢ of affaits of the chxyitable c4)mpally as
at the elld of 6JW¢￿ yeat and of tts sutpbts or deficii foz ¢*ch fitiancial y¢aT iu *c￿dance with th
t¢4uiruueDts of Secriors 394 and 395 atsd **bidL t￿￿Y with th¢ Fequir¢rDtffjt5 of the Coropjwfs Art
2006 reJatiDg tyfiD3Dcial so far&844)ti¢4bl¢ rth*itabk
biecttothE ￿all C4JrnP•AJies res￿
Tb¢ ffinancml
. and were SiBDcdoD IL5 b¢balfby.'
M M Onu"Il. ThL

TE
FINAN
IAL STATEM
y¢WTr￿ H¢JuFe
Churh Strcet
St Neots
catu￿]dgejhI￿e
PE19 2BU
102) &$ it opplirs to the fmattcial for the yeaT C￿trI 31 Decmkn 2022.
ACCOiINIING POLICIES
B*si5 of preparln% thefiDanthl #•t•rtots
The fiDancial statr￿￿ of the cknrirable tom[￿y, is a pthlic trtity wxder FRS 102, have bt
PTtpaT&J ITr aco)rdance WLth the Clwitits SORP (FRS 1021 'Atc(#￿ting aDd RcprytsDg by Cthan"tics'. StateTtrrt
RewJrtiL8 Stsndard awliublc in the UK Ryblic of Nrel￿d IFRS 102) (effective l January 20I91',
Fitithcial R¢pJrtsng Standard 102 Tr Rqw SthTthd ¥o]icabJe ID thE UK •ttd R¢publrG of
UXLventioD.
N￿¢0]g￿VKth¢ththe d¢fiDiti(o of a￿￿11¢bElle￿eDtlry wMknFRS IW2.
IDtome
Intomc is Tccogwsd w*en thc charity eDtitletn¢nt to thE pryfoTmthce CQDditi'ons jtt￿hCd fo the
itern{s) of iticomt have be£n il ￿ prohble thc income will bc Tettived and thc amount be rneasured
Y¢]Jabty.
¢b*ity has cntitiemcDi ty the aDy ￿f0mla￿t C•Dditions a¢tsdKd to thc grants bv¢ been MCL it 15
FLY leBaci4 entitl4￿￿1 is tskcD thc earb.er of the on •th"¢b ¢Èty. the ¢batity is awar¢ thai wobote bas
E*en * the esute ba% been fi￿]Sed aDd notification bas becn by thc executorf5) to the Tn￿t rb8t a
distribution wiJ] be ma< a distrilxrtion is rtcivd fmm the e518te. of 8 legacy in wbolt or
¢ is Only considutsl ]x¥thty when the cwt be mtA%wd rdiably and ¢be ¢b￿lty b&$ Ixell DotifieAI of
thc exe£urcts tlltthtiott to ]nak¢ a distnlNtiixL
IDter¢sl on fLmd5 kld on (kposit AS included whtsj ff¢ery¥lA¢ a￿1 the aJDOUDi c•ll be measured Tetiably by the
EXpendIts￿ is rwised ODCC thet¢ is a lyl {* ¢&xhsfy￿ve to moke a Faymtni to a third party, it is
prnbablc thar selllemetsi will be and the olthe Ob￿Bation c4n bt Meas￿ rtliably. EX￿￿￿'tU
is riwifiedunder the following *¢i￿]ty bt4dm8S.'

LE
NO
STO
EF
CIAL
ATEMETr￿s-
EC
tinued
ACCOUTfflNG POLIC￿. t4)ntmned
T*llObiefix¢4 *uets
T*x¥th)
Fund *ctountiDg
payabk ¢be ye4rare ity tr*ryofit￿dk*S
14g¥i st*tss of the ckvitable Con￿nY
In the evellt Of the cbaritsbl¢ ￿. exh Trustee Oting • rttnber of th¢ rb*ity) bas
tLdatskeD to ¢ontrilxth to th¢ awts of the c￿l￿ble cotDWy ￿ atwjnts &s required no( exceedtDg £1. This
Debtors prqmywts
C4sh #t bawk •ttd IA l￿d
Creditors
CteAi(Ots ar¢ r¢c¢Jguiffd where the chty has a p￿en[ obligation resuhin8 frottt a pst ev¢nt th& vrill pd>&bly
Tcwlt ID the tranrfer of fiEDds to J third party and the Tnoulli duc kn setti¢ the obligatsotl can bc MC￿ll￿d or
Th¢ ¢h￿itable wnpgoy onty fiDaDcd and babiliti¢5 of a bijd qualify Ls bAsic fin￿￿￿al
instrum¢rbts. Basic itL8tsWDe#ty 4Tr illitialty T#ogDised al Innsactirn value aDd subswily rne&sured
at thcir sett]cmtnt vaJuE with the ¢xc¢ptioo of bank loaos whickn are subsequendy at amortis¢d WSE
ontitiUVI..

NOTE
rNAN
AR ENDE
tiou
R THE
31D
CE
22
IKINATIONS AND ￿GAc
31.12.22
31.l2.2l
54.187
38.947
7,500
61.969
46,447
31.12.22
31.12.21
7,782
7,5
31.1222
31.12.21
io
IA982
31.12.22
31.12.21
169
Tolal 2022
Total 2021
stsff cost
B(M)kkeepio8
45,756
Iswj
45,756
44585
L.500
1204
Office attd Mi*d]aDeo￿1
Telepbonc aDd t&
5,874
2.671
5,874
2.671
3.128
2,198
Travel co
1654
1.323
394
1.540
,707
1,753
1.408
1.798
Subscriptsw5
Mask¢ting
(34,855)
34,855
29.703
34.855
64558
58,403
Pa8¢ 10
cc411iDued...

EP
TES TO TH
FINAN
TE
OR
HE YEARENDED3I DECEMBER 2
NetincompJ{exrknJitwe)
31.12.22
31.1121
654
459
elld¢d 31 D¢¢¢mber2021.
31 Decemt*r 2021.
31.12.22 31.12.21
EMpl•Yntnte￿ty
Wages attd 5alati¢5
Pensiott ¢LW5
45.756
44.585
45.756
44.585
Ith 2021 COMPARATIVES FOR THE STATEM￿ OFFINANCIAL AcnviTIES
Totsl
3&947
46.447
16.982
16.982
55.931
7,500
63,431
B2ising fiJud5
852
852
Narcolyy UK
58.862
58862
Total
59,714
59,714
(3,783)
73
3.717
Pa8eil
contiDUtA...

ci
AR ENDE
ST
TE
s-
EMBER 022
inu
Total
funds
RECONCILIATION OF FUNDS
Totsi fim(ts brou8bt fOrw￿d
23.813
32J75
56.188
20.030
39.875
59,905
ii.
COST
At l Jattuary2022 aryd31 2022
1.960
DEPRECL4TION
At l Jaouary 2022
471
654
At 31 tkt¢rnber2022
.125
AI 31 D￿ll￿2022
835
At 31 Dwber2WII
1,489
12. DEBTORS: AMouKfsFALLINGDiIEwrriin¥ ONEYEAR
31.1222
31.12.21
1,322
1.690
PrtyxyrtX*L8
1,369
2,691
3,012
Pa8e 12

LEP
TES TOTHE FINAN
THE YE
ENDED
TAT
ECEM
ER2
31.12.22
3l.12.2l
1.525
62
3.(￿3
10.278
14.
Net
Al
31.12.22
At 1.1.22
iry funds
Unrestricted funds
20.030
24,0(Y)
44,039
Regtrlttrd
39,875
127.073)
11802
TOTAL FUNDS
59.9)5
{3.064)
56,841
UDre#rlctedh•
54J66
(30J57)
24.(rf)9
04,8551
{27,0731
61148
{65212)
{3.064)
N¢t
￿￿)y￿le￿¢
At
31.12.21
Atl.1.2J
U4restrlcted funds
23.813
{3,783)
20,030
32375
7JOO
39,875
5(188
3.717
59.4x15

E FINAN
ME
Incoming Rcsowcfs Movement
UL fiLnds
Gell¢r•]
55931
{59,714)
13.7831
63,431
(59,714)
3,717
Net
Ai
31.)2.22
Atl.1.21
23.813
20226
44.039
32375
(19J73)
11802
56.188
653
56,841
&5 follow5=
Resourc¢5 Movement
iti fimds
UDrtstricted funds
Gelle￿1 fiADd
110297
(SV.07J )
20226
15282
(34,855)
(19.573)
125379
(124926)
653
Pa8e 14

NARC
EP
ATE
ER
*ttd R¢¥oDA Support
withuj a t￿n"¢u[al re8t'uL bDth thrtyjgb aubling the crt4tioD aDd devdopmejjt of lota] voluDteerlsupporter sub
which are bdtCT able to foJJs on local and the PTDViSiOD of 4 1(xal and ￿g￿nd1
Pyl5

TA
CIAL
EM
31.12.22
31.12.21
Do••dDns legade5
54.187
3&947
7,5(p)
61969
46,447
Funttraising¢¥ettts
10
16.982
Inve4tmeDtIDcoiiie
169
TotslkncomlDg rtao•rc
62.148
63,431
RKe4nh gT8ni
852
Suppott ro4$
Wagrs
45.756
1,408
2.671
5.873
lJ24
1,5C(I
1,1
2,654
44.585
1,707
2.198
3.128
Tel¢phorLe
Websire develOpn￿tand maitite
Bc4)k&eeping
I,5(Kl
1204
394
1,753
Travel costs
64.174
58.(Q9
Flnatyce
Bank cbar8es
394
459
654
1.038
853
65.212
59,714
leJpMditsreyllltoMe
3,71?
Page 16