REGISTERED CHARITY NUMBER: I 143642 R¢port of the Trustees atld Unaudited Fitlancial StattEntut$ for the Year Ended 31 Angy$t 2024 ror Pseudomyxoma Survlvor Harris Lacey and Swain Suite I The RivtTside Buildtn8 Htssl¢ East Yorkshire HU130DZ
bom+ The support network for those affected by pseudomyxoma peritonei. appendix cancers and rare peritoneal malignancies Registered charity 1143642 PSEUDOMYXOMASURVIVOR-ANNUAL REPORTTO 31 AUGUST 2024 The trustees present their report with the financial statements of the charity for the year ended 31 August 2024. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparingtheir 8ccounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ire18nd IFRS 1021 (effective 1 January 20191- OUR OBJECTIVES, AIMS AND ACTIVITIES: Pseudomyxoma Survivor's main objectives (as set out in the Constitution) are: To relieve the sickness, mental and emotional distress of those suffering from pseudomyxoma peritonei (PMP), their families and carers. To provide funds to support research into pseudomyxoma peritonei, its causes, treatment and cure and to publish the useful results of such research. To promote awareness of pseudomyxoma peritonei.
OURACHIEVEMENT AND PERFORMANCE: In order to support our patients and their caregivers we have provided.. A website providingfocussed advice, information and support. A private Facebook group which has over 1400 members from across the world. Patients are based in predoininantly English-speaking countries with members worldwide. Practical as well as emotional support to patients and families through our grant programme and have given financial support to 14 families this year13 applications were declined). A total of £7400 was paid. The ongoing provision of a Buddy Scheme to provide one-to-one support to patients and caregivers around the world. Access to a family flat in Manchester, to support the families of those patients being treated at The Christie. The flat is managed by the Christie Charitable Fund on our behalf. The flat contains personalised blankets and information about Pseudomyxoma SuNivor. We contributed £15,000 duringthis financial year. Ward toiletries to The Christie and Basingstoke. Support to patient days at both the Christie and Basingstoke hospitals In orderto promote awareness of pseudomyxoma peritonei. Trustees have: Attended the 13 International congress on Peritoneal Surface Malignancies IPSOGII in Venice in October 2023. The congress is dedicated to improving the treatment and suNiv81 of peritoneal metastases. Our Trustee. Tim Brill. presented to the full audience about the work of the charity and the journey of a patient. Patient and Caier Feedback p4 s91lln7 Attended various sessions hosted by National Voices. Findacure and data studies Attended Cancer52 meetings Promoted Rare Disease Day128th February 20241 Published monthly posts on all social media channels regarding the disease Supported many competitors and volunteers, by providing merchandise for a wide variety of events Provided specialist leaflets for the hospitals to hand out to patients.
We have contributed funds to the following research programmes during the year to 31 August 2024.. £31,000 to the Norwegian GNAS VaccineTrial at Oslo University QSLoun.r&&Oa[ A peptide rrIn tarrelin¥ Mlted Gft4AS - a potential novel treatment tor pseudomyxoma ponton•i A4Mhor% . * LTrii•b JiTh i*VAi wtylrdtj We continue to provide pro-bono support of research trials and studies. such as Patient physiotherapyfor Pseudomyxoma peritonei patients with the University of Liverpool, Early diagnostic tools application with the University of Nottingham, Assistance with an 8pplication towards a dietary study in Australia etc. Pseudomyxoma Survivor's purpose and its activities contribute to the public benefit through activities to support these objectives. We are here to help patients understand the treatment options, provide leaflets and online resources that they can trust. We represent the PMP community through links with other rare disease charities, by attending conferences and by supporting events organised to raise awareness of the disease. W8 take Pfide in the stewardship of our donations, which we demonstrated through this year with our committed registration with the Fundraising Regulator. Pseudomyxoma SuNivor has paid due regard to the Charity Commission's general guidanee on public benefit when reviewing its aims and objectives and in planning Its future activities. Charitable activities Pseudomyxoma is entirely reliant upon donations for our income and due to our very generous Sltpporters we have received £55,504 in donations and othey income. We are indebted to all of our fundraisers and their families and friends for their generosity.
Our Facebook support group goes frDm strength to strength, and we have continued support for the pseudomyxoma peritonei community on Rareconnect, 8 Eurordis initiative which provides a multi-lingual support plattDrm tor rare Qiseases end on the platform operated by Cancer Research. We have continued to develop a close wtsiking relationship with the teams at the 88singstoke and North Hampshire Hospital and The Christie hospital in Manchester which allows us to tietter support patients and identify rese8r¢h opportunities. Once again we were able to retain our status with the Great Non Profits organi88tion. FINANCIAL REVIEW Financial posltlon: We ere extremely pleased that we have total funds of £215.849 at the end of the financialyear. With appropriate and controlled governance procedures in place, th8 trustees continue to be confident that grants and awareness actwities can increase the value tsf the charity to the community. Pseudomyxoma Survivor's income and expenditure is relatively small and consequentlythe ch8rity does not have sufficient funds to invest in longer term investments such 8$ Stocks and shares. Reserves policy: Through prudence in our activities, we are now able to ensure that we have 8 reserve in future years. We will do this through our plen which ensures the charity has reserves to cover our improved grant schtsm8. basi¢ resources rtrquired to keep us'in business, 2nd to attend conferen¢$s where we can represent the voice cif the PMP community going forward, for 12 months. With appropriate 8nd controlled governance procedures in place, the trustees continue to be confident that grants and 8W8reness activities can increase the value Df the ¢hBrity to the community- During the yearto 31 August 2024. 12 months. expenditure equated to £77,257 whilst reserves at the period end totalled £215,849 and reserves excluding designated funds totalled £136.751. We have designated expenditure as at the year ended 31 AugLJSt 2024 01 £79,09812023: £117,500) which will be spent in accordance with our charitable objectives, aims and activities which are detailed in the Trustee report. All opportunities will be scrutinised in accordance with our due diligence procedures before any expenditure is committed. Futuro pi8ns.' Thanks to ourvery generous donors, we have plans in place to tinancially support the following initiatives during the finan¢i8lyear 202412025- The onEoing provision of family and caregivers accommodation at the Christie Hospltal in M8nche5ter. The team at Basingstoke Hospital and Southampton University are undertaking a reseerch programme into moleculer characteris8tions of PMP and we will continue financial support ol this research. W8 will have discussions with the Christie Hospital in Manchester to continue financially supportingthe prehabilitation study. We will continue to promote the Family Grants to give financial support where appropri8tg. We will keep in touch with all of our patients and caregivers especially when we knowthat they are going through stressful situations. We will continue to closely monitorthe Norwegian GNAS research programme
Pseudomyxoma Survivor Rtport of the TrustttS for the Yt#r Ended 31 August 2024 STRUCTURE,GOVERNANCE AND MANACEMENT Governing document Th¢ charity is controlled by its gov¢rning d¢cument, a deed of trust and con$titute$ an unincorporated charity. Recruitment appointment ol new trteeS Trustees are appointed by the existing trusiees. Orynisatlonal strueture In addition 10 the Trustees we have a group of volunteers who aciively undertake the d2y to day adrninistrntEoll of the Facebook group and a further 6Q who volunteer Buddy5 the Buddy sch¢mE. Our people PseudoTnyxoma Survivor is iolally reliant upon volunieers ro Tun and administsr the activities of thc gTOUP. We now have five active Trustees who have a wide Tange of skills and experience that will etLabl¢ us 10 grow and flourish in the future. The Tru5te¢s uive a huge amount of voluntary tirne lo support the Charity. Special mention thi5 financial year to all of our volunteers. who help moderate the group 2nd look aftcr the buddies scheme. The Friends of th¢ rharity this year that warrant special tnentitsn include the following gUPFK>rters'. The Alan Bosw¢ll Group. who kindly donated £5000 via #n employee nominaiion scheme. Karen's Big Smilt5 rharity trust who kindly donaied £IO.000 from their final distribution following the closure of Ihe haTIty. Rebecta Currie who raised awarene55 and funds. through her school. in tel¢bration of her amazing Mum There aFe far 100 many fundraisers and donors to name individually thi5 year bui a very 5Ptcial thank you to all those who donated to a successful'GoFundtn¢' ¢ampatgn to raise money for the Nonvegian research prograTnme. REFERENCE AND ADMINISTRATIVE DETAItS Registered Charity number 1143642 Printipal addre55 9 Ilrningion Close Hatton PaTk Warwick CVJ5 7TL Trustees Mrs S Oliver Mr T Brill Mrs C FletcheT Mrs A C Salisbury Mrn A B Brook Independent Exlmffirter Harris Lacey and Swain Suite I The Riverside Building H¢ss1¢ East Yorkshi HUIJ ODZ Page 5
PSed0mY1OrnJ Survts'or Rti)tsri ihe TTU.St¢¢s lor the Trear Lnded 31 August 2024 Appioved b). otdervf Ihe boatd of Mlee$ OD.... . . 21Tr:rand signed on its k.half b¥.. Mr% A C %alisburv- T e¢ Pag£ 6
Independent Examiner's R¢port to tbe Trustees of P5eudomyxomY& Survivor ljjdtpertdent examiner's report ¢0 th¢ trttstees o( Pseudomyxoma Survivor I report to the thariry trustees on my exarninatlOD of the accounts of Pseudornyxoma Survivor (the Trust) for th¢ year ended 31 August 2024. Respon$ibilities gnd basi5 ofreport As the charity trL]Stees of the Trust you ar¢ T¢sponsible for the preparation of the accounts in accordance WTth th¢ requirements of the Charities Act ?01 I Ilhe Act'}. I repoTt in respeci of my cxaminatioD of the TSS accounts carri¢d out under Section 145 of th¢ A¢t arnd in canying out tny tLimination I have followed all applicable Directions given by the Charity Comrnission under Section 145ISXbl of the Act. Indepettdent examiner's 5tattmetht I have ttsmpleied my examination. I ronfim that no material matteT$ have come to my attetltion in connetiion with Ihe exarninatlQD givin8 me cause lo believe that in any material respect.. accounting records were not kept in respect of the Trust as required by Section 130 of the Act., or the accounts do not accoTd with Ihose records., or the aceounis do noi comply with the 4)pSicable requirements ¢onceming the forni and content of acc4)unis sei out in the Charities IAccoLTrnts and R¢port$l Regulations 2008 oth¢r than any requiremenr rhat the accounts give a tru¢ and fair view which is not a matter considered as part of an independent examination. I have no concerns and have come across no other matt¢r5 in connection with the exatninatioft to which allention Should b¢ drawn in this report in ordei to enable a proper underslaTLding of the accounts to be T¢ach¢d. Lallra Drew Harris Lacey and Swain Suite I The Riversid¢ Building Hessle East Yorkshire HU13 ODZ Dale.. Page 7
P5¢udtsmyxomi Survivor Statement of Financial Activities for the Year Ended 31 August 2024 2024 Total fid$ Unresiricied nds Restricted funds Total funds Noie5 INCOME AND ENDOWMENTS FROM Donatiorts and legacies 58,741 5.475 64,216 87,687 EXPENDITURE ON Raising fijnds 9,293 9.293 6,963 Charitable activities Charitable activite5 GTanl making Support costs 12.621 22,515 1,830 12,621 53,513 1.830 12,915 85,088 1,476 31.000 Total 46.257 31.000 106,442 NET INCOMEIIEXPENDITURE) 12,484 31,CQOI 125,5251 31,0 {13,0411 (18.7551 Transfers betsveen fund$ Net movement irt funds 5,475 {13,0411 118,7551 RECONCILJATION OF FUNDS Toial funds brought foTward ?28,890 228,890 247,645 TOTAL FUNDS CARRIED FORWARD 21Q374 5,475 The not¢s foTtn part of these financial sta*meni$ Page 8
P4L'udom)'Il>D12 S[VIvOr BAlantc Slii'LI 31 .4Ug1l 2024 ?0?4 ?073 I InTL'£ificiLd Re%rricred funds funds CbRREi%T A55ETS Debtorb C.I5h at bank. 140 -5.4175 ?17382 21J.9 5,475 ?19.)75 ? Jl.056 CRF.I)ITORS knounls falling due within ont year 10 13.5261 13.i261 ET CURRFNT AS.SETS 210.J74 5.475 715.849 ?28.890 T()TAL ASS£"I'.% L C'UkltlNT LI,IBILITIES 210.J74 215,849 2?8.890 NET ASSETS 210.374 FIINDS UDrrslriitL¢ Re51Ticied funds ?10,i74 5.475 TOTAL FUliDS 278.890 The fanciAl statements M'ere appD)ved ihe Board of Trusieog and aiiiho."ised fw i¥ue . JDd tre siuni'd on its brhalt'bi.: Irs A C Salisbury- Tntee The nDliS fDrm pan oFthi , Pag¢ 9
P$¢dmyX0m1 Survivor Notes to tht FiTranci#l Statements (or the Year Ended 31 August 2024 ACCOUNTING POLICIES Basis of preparlrtg the financial 5tatetnents The financial 5tatem¢Dts of the charity, which is a public b¢n¢fit entity under FRS 102, have b¢¢n prepared in aceordance with the Charitie5 SORP IFRS 102) 'Accounling and Reporting by Ch2riiies'. Stht¢men¢ of Re¢otnmended Practice applicable to ¢harities pteparD)g their accounts in accordance wilh the Financial Reporting Standard applicable tn the UK and Republtc of Ireland IFRS 1021 (¢ff¢ctive l Jartllary 2019),, Financial Reportthg Standard 102 The Financial Reporting Standard applicable in the UK 2nd Republic of Ireland, and the Charities Aci 2011. The fiDancial statements have been prepared under the historical cosi convention. Ineorn¢ Income received for $ervices provided i5 accouDted foron an accruals basis. Cash donations. gifts and legacies are included in full in the incotn¢ and expenditure account as they are T¢c¢ived. Any signifjcani non-cash donation5 are included in the income and exp¢ndityre account ai Ihe trusttts. es1irnat¢ of their market value when received. The value of voluntary help is Dot included in the accounts. Grants and o>ther funding of a revenue nature are deftrred and Teleased io the income and ¢xpeoditUT¢ account over the period to which th¢y relate. Bank intere$1 is included in iht incom¢ and exptnditure account on an accTuais basis. Expenditure Liabilitie5 are iecognised as expendiwre as SQQn 25 there is a le1 or constructive obligation committing the charity to that expenditure. 11 15 probable that a tras)sfeT of econemic benefits will be reqlled in settlement and the amount of the obligation can be rnellred reliably. Exptnditute is accounted for on an accruals basis and has been classified under headings thai aggregate all cost related 10 the category. Where co515 canjoi b¢ directly attributed to panicular headings they have been all(Kat to activities on a ba515 consistent with the use vf resources. Gran15 offered subject to conditions which have not been mei at the year ¢nd date are noted as a committnent but ttot accrued 2$ expenditure. Taxation Tht charity is ex¢mpt from tax on tts charitable artivities. Futhd #ttounting Unrestricted funds can be used in accordanc¢ with the charitable objectives at th¢ di5¢retion of the trustees. Restricted funds can only be used for particular restric*d purposes within the objects of the ¢harity. Restrictions arise when specified by the donor or when are raised for particular re5trict¢d purposes. Further explanation of the nawre and purpos¢ of eath fund is included in the notss to the fmancial 51aiements. E$tim#¢t$ and judgetDellts Estitnates and judgemenis are continually evaluated atld are based on historical expcTiencr and other factors. including expectations of future even15 thaf are believed to be rea50n2ble under the circumstances. Although these estimat¢5 ar¢ based on the Directors, best knowledge of ihe amount. events or aciions, acttjal results ultimately differ from thest ¢5timates. The Direciors do noi ¢onsider there to be any rnat¢rial £stimates and judgements. Page ID iinued...
PseudomyxoD]a Survivor Notes to th¢ FiDanti81 St2tements- continued (or the Year Endd 31 August 2024 ACCOUNTING POLICIES- tontin¥ed Financial irt8truments The company only has financial assets and financial liabilities of a kind that qualify as basic financial insiruments. Basic financial instTuments, includino irade and other debtors and crediiors, initsally tognised at tran$aciion value subsequently measured at their settlcment value. RAISIIYC FUNDS Rsising donations a]Jd lcgwries 20?4 2023 Ju51 Giving Costs of gentraiing fvnds 1,325 1,422 5,541 9,293 CHARITABLE ACTIVITIES COSTS Grant funding of Support costs (see note 51 Direct Costs (see note 4} Totals Charitable aciiviies Grant making Support Costs 12,621 12,621 53,513 1.830 53.513 1,830 53.513 67,964 GRANTS PAYABLE 2024 2023 Grant making 85,088 The total grant$ paid to institution5 during the year was as follows.. ?024 2023 Grants given 46,000 A grznl totalling £31,000 wa5 awarded in the year to the NoNegian Radiutn Hospital for use in theirNornvegian GNAS researeh progrnrn¢. A thrther gTanl in the year w&% award¢d in relation to a flat at The Christie Hospital, furth¢T d¢tails rnay be found in the Report of the TSleeS. Paue 11 continued...
PseudomyxoJn2 Survivor Notes to the Financial Statements- Ctsntilllltd for the Y¢#r Ended 31 August 2024 SUPPORT COSTS Governance osls Support ¢o$is 1,834J Support C(1Sts, included in the above, are as follows.. ?024 Support costs 2023 Ttsial activiries Indep¢nd¢nt examination 1.560 TRUSTEES, REMUNERATION AND BENEFITS Th¢rt Was trustees. remuneTaiion tolalling £8,820 (2Q?3 - £7,560) but no other benefits for the Ye ¢nd¢d 31 August 20?4 or other benefits for the y¢ar ended JI August 2023. The remuneration a5 received by Mrs S Oliver for their role the Charity'5 adtnini5tr2ior, after much consideration by the ard os to how 10 fill this rol¢. This was recorded in th¢ Charitys boaTd meeiing minuies. Trllstees, expen5e5 There were no 31 August 2021. trustee5' expen5¢s paid for the year ended 31 August2024 nor for the year ended STAFF COSTS There were no suff G05ts for the year ended J l August ?024 nor for the year ¢nded 31 August 20?3. The average number of employees durin8 the year wa5 NIL (2023 - NIL). No employees received etnolum¢nts in excess of £60,000. COMPARATIVES FOR THE STATEMENT OF FINANCEAL ACTIVITIES Unrestricted funds Restri¢ied nds Total funds IIYCOME AND ENDOWMENfs FROM Donations and l¢gaci¢s 28,324 87,687 EXPENDITURE ON Raising funds 6,963 6,963 Charltable activities Charitabl¢ activites Grant making Support COS15 12,915 12,915 85,088 55.000 Total 51,442 NET INCOMEI{EXPENDITURE} 7.921 1?6,676} {18,75il Pag¢ 12 continued...
PseudoDJyxoma Survivor Note5 to the FinaDcial St2temtnts- colltillued for the Year Ended JI Allgu$t 2024 COMPARATIVES FOR THE ST ATEMENT OF FINANCIAL ACTIVITIES- ¢ontinued Unrestrict¢d Resiricied funds funds Total fijnds Tratt$fers between funds 26.676) 26,676 Net movement in fund$ 118,755) 118.755} RECONCILIATIOIY OF FUNDS Total ndS brought forward 247.645 247,645 TOTAL FUNDS CARRIED FORWARD 228.890 DEBTORS.. AMOUNTS FALLING DUE WITHIN ONE YEAR 2024 2023 Other debioT5 Prepayments and accTu¢d incotne 1,846 147 40 100 1,993 140 io. CREDITORS: AMOUNTS FALLING DUE WITHIN OIYE YEAR 2D?4 20?3 Trade creditors Other crediiors 1,696 1,830 456 1,740 2,196 MOVEMENT IN FUNDS Nei ov¢ment in fund5 Transfer5 between funds At 31.8.24 At 1.9.23 Unrestrieted fund5 General fund tksignaied fund I I 1.390 117.500 12,484 7.402 38.402 1)1,276 228,890 12,484 131,0001 210,374 R¢$trict¢d funds Research fund 125.5251 31,000 5,475 TOTAL FUNDS 228 890 13.0411 215 849 Page 13 tODtinued...
P5¢udoJnyiom2 Survivor Notes to the Financial S¢atements- tolltinued for the Year Ended 31 Augu5¢ 2024 mOVEMETr IN FUNDS- continued Net movement in fid& included in the above are as follows". Incorning resources Resources expended Movcment u) funds Unrestricted fullds Generdl fund 58,741 {46,2571 12,484 R¢5tricted futtds Research fvnd i,475 {31,0001 {25,5251 TOTAL FUNDS 64,216 77 2571 Comparwtives for movemtttt in fund5 Net movement in funds TransftT5 between funds At 31.8.23 At 1.9.22 Unre5trieted funds Gentral fund Desjonated fund 247,645 7.921 (144,176) 117.5QO 111,390 117,5iX) 247.fv15 7.921 126,6761 228.890 Reslritted (tsnd5 R¢5¢ar¢h fund (26.6761 26.676 TOTAL FUNDS 18,7551 228,890 Comparative net movement u) fllnds. included ll) the aknv¢ are as follows.. tn¢omiDg resources liesources expended Movement in funds Uthrestritted funds G¢neTal fLJnd 59,363 (51.4421 7,921 Restricted funds Research fund Family grants 23,324 5,000 {50,0001 5,0001 (26,676) 55.(KJO 26,6761 TOTAL FUNDS 106 4421 187551 Page 14 continu...
PseyJomyxoma Survivor Notes to the Financial Stat¢mtttts- tontinued for the Yesr Ended 31 Augu$t 2024 MOVEMENT IN FUNDS- continued A current y¢ar 12 months and prior year l? months ¢OTnbined position is as follows-. Net movetn¢nt In fund5 Transfers between funds Al 31.8.24 At 1.9.22 urtrIcted funds G¢lleral fund Designated fund ?47.645 20,405 1136,774) 79.098 131.276 247,645 20,405 (57,6761 210.374 Re5trleted fuDds Re5eaTch fund 152,?01) 57,676 5,475 TOTAL FUNDS 247.(A5 31.796) 215 849 A ¢UTrent year 12 months and prior y¢at 12 months combllJ¢d net tnovemeni in funds, includ¢d in th¢ ave are as follows-. Incoming resourc¢5 Resources expertde41 Movernent in funds Unre$tri¢ted furlds General fund (97,699) 20.405 Restricted fullds Research fund FaTnily grants 28,799 {81,000) 152201} 33.799 s6,0) 52,2011 TOTAL FUNDS 151,903 1183,699) 31796} estricted fund5 rlate to the provision of research fvndin8. TrAnsfers betweeD funds Fund tran5fws duTing the year relat¢ to the transfers of previously d¢sTgn21ed funds to cov¢r actual spending in the year. The designated fund relat¢5 to monies set aside for committed future spendin Page 15 Contioued...
P5eudomyryoma Survivor Notes to the Financial Statements- tontinued for th¢ YeAr Ehded 31 August 2024 12. RELATED PARTY DISCLOSURES There were no related party transa¢tions for the year ended 31 Aughjst 2024. Page 16