A In common with many chartties, the pandemic has disrupted our fundraising goals. Thanks to our new Fundraising and Marketing Officer. Adelle Scott. and her impactful social media presence. member donations have exceeded budget On the other hand. Jeans for Genes licence fee income has reduced and grant givers have refocused on social support for those in need as a result of Covid. Funding We have a great plan for30year birthday celebrations. Unfortunately, the Family Conference 15 cancelled due to Covid but will be replaced by an online event We have many committed fundraisors in our membership who we hope will support this initiative. Jeans for Genes income was badly affected by the disruption in schools and organisations so our licence fee income has more than halved contributing to an overall deficit for the year. We have a couple of volunteers already on board and doing great workfor u5. Thankyou Simon and Annabel. We will recruit more in future as we learn how to use their talents and manage the additional resource Resources We welcomed Adelle Scott our new Fundraising and Marketing Officer onto the team in April 2020 07
| 2021 | 2020 | |||||
|---|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | |||
| funds | funds | funds | funds | |||
| Notes | ||||||
| INCOME AND ENDOWMEPKS PROM | ||||||
| Donations and legacies |
33,535 | 7,400 | 40,935 | 26,209 | ||
| Investment income |
994 | |||||
| Other income | 42,157 | 42,157 | 89,594 | |||
| Total | 75,692 | 7,400 | 83,092 | 116,797 | ||
| BXPENDITURE ON | ||||||
| Raising funds | 3 | 32,809 | 32,809 | 29,658 | ||
| Charitable activities |
||||||
| Relief | 81,096 | 6,843 | 87,939 | 92,284 | ||
| Education | 29,556 | 29,556 | 17,732 | |||
| Medical Research | 5,400 | |||||
| Advocacy | 5,824 | |||||
| Governance | 9,735 | 9,735 | 5,658 | |||
| Total | 153,196 | 6,843 | 160,039 | 156,556 | ||
| Net gains/(losses) | on investments | 65,128 | 65,128 | (28,404) | ||
| NET INCOME/(BXPENDITURB) | (12,376) | 557 | (11,819) | (68,163) | ||
| RECONCILIATION OFFUNDS | ||||||
| Total funds bmught~ | 455,102 | 2,858 | 457,960 | 526,123 | ||
| TOTAL PUNDS CARRIED FORWARD | 442,726 | 3,415 | 446,141 | 457,960 |
| 2021 | 2020 | ||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| funds | funds | funds | funds | ||
| Notes | I | ||||
| FIXEDASSETS | |||||
| Investments | 251,706 | 251,706 | 288,915 | ||
| CURRENT ASSETS | |||||
| Debtors | 38,250 | 38,250 | 50,266 | ||
| Cash at bank | 186,915 | 3,415 | 190,330 | 185,218 | |
| 225,165 | 3,415 | 228,580 | 235,484 | ||
| CREDITORS | |||||
| Amounts falling due within one year |
10 | (34,145) | (34,145) | (66,439) | |
| NET~ASSETS | 191,020 | 3,415 | 194,435 | 169,045 | |
| TOTAL ASSETSLESS~ | |||||
| LIABILITIES | 442,726 | 3,415 | 446,141 | 457,960 | |
| NETASSETS | 442,726 | 3,415 | 446,141 | 457,960 | |
| FUNDS | |||||
| Unrestricted funds |
442,726 | 455,102 | |||
| Restricted funds |
3,415 | 2,858 | |||
| TOTAL FUNDS | 446,141 | 457,960 |
| RAISING | DONATIONS AND L | EGACIES | ||||
|---|---|---|---|---|---|---|
| 2021 | 2020 | |||||
| Direct and | support costs | 30,473 | 25,747 | |||
| INVES~ MANAGEMENT | COSTS | |||||
| 2021 | 2020 | |||||
| Portfolio management | 2,336 | 3,911 | ||||
| Aggregate | amounts | 32,809 | 29,658 | |||
| 4. | ~ABLEACTIVITKS COSTS | |||||
| Support | ||||||
| Direct | costs (see | |||||
| Costs | note 5) | Totals | ||||
| Relief | 58,736 | 29,203 | 87,939 | |||
| Education | 1,012 | 28,544 | 29,556 | |||
| Governance | 9,735 | 9,735 | ||||
| 69,483 | 57,747 | 127,230 | ||||
| 5. | SUPPORT | COSTS | Staffand | |||
| Management | ||||||
| Relief | 29,203 | |||||
| Education | 28,544 | |||||
| 57,747 |
| Unrestricted | Restricted | Total | |||
|---|---|---|---|---|---|
| funds | funds | funds | |||
| INCOMB AND ENDOWMENTS FROM | |||||
| Donations and legacies |
21,209 | 5,000 | 26,209 | ||
| Investment income |
994 | 994 | |||
| Other income | 89,594 | 89,594 | |||
| Total | 111,797 | 5,000 | 116,797 | ||
| EXPENDITURE ON | |||||
| Raising funds | 29,658 | 29,658 | |||
| Charitable activities | |||||
| Relief | 92,284 | 92,284 | |||
| Education | 15,590 | 2,142 | 17,732 | ||
| Medical Research | 5,400 | 5,400 | |||
| Advocacy | 5,824 | 5,824 | |||
| Governance | 5,658 | 5,658 | |||
| Total | 154,414 | 2,142 | 156,556 | ||
| Net gains/(losses) | on | investments | (28,404) | (28,404) | |
| NBTINCOMB/(EXPENDITURB) | (71,021) | 2,858 | (68,163) | ||
| Transfers between | funds | 15,550 | (15,550) | ||
| Net movement in funds |
(55,471) | (12,692) | (68,163) | ||
| RECONCILIATION | OFFUNDS | ||||
| Total funds brought forward | 510,573 | 15,550 | 526,123 | ||
| TOTAL FUNDS CARRIED FORWARD | 455,102 | 2,858 | 457,960 | ||
| FIXEDASSETINVESTMENTS | |||||
| Listed | Unlisted | ||||
| investments | investments | Totals | |||
| MARKET VALUE | |||||
| At 1 April 2020 | 288,914 | 288,915 | |||
| Drsposals | (100,000) | (100,000) | |||
| Revaluations | 62,791 | 62,791 | |||
| At 31March 2021 | 251,705 | 251,706 | |||
| NBTBOOKVALUE | |||||
| At 31March 2021 | 251,705 | 1 | 251,706 | ||
| At 31 March 2020 | 288,914 | 1 | 288,915 |
| Listed | Unlisted | |||||
|---|---|---|---|---|---|---|
| investments | investments | Totals | ||||
| Valuation in 2021 |
62,791 | 62,791 | ||||
| Cost | 188,914 | 188,915 | ||||
| 251,705 | 251,706 | |||||
| 9. | DEBTORS:AMOUNTS FALUNG DUBW1THW ONE YEAR | |||||
| 2021 | 2020 | |||||
| Trade debtors | 23,228 | 50,266 | ||||
| Other debtors | 15,022 | |||||
| 38,250 | 50,266 | |||||
| 10. | CREDITORS: AMOUNTS FALLING DUE WITHIN ONB YEAR | |||||
| 2021 | 2020 | |||||
| Trade creditors | 17,095 | 59,852 | ||||
| Amounts owed to group undertakings |
1 | |||||
| Social security and other taxes | 771 | |||||
| VAT | 6,430 | 4,992 | ||||
| Other creditors | 6,754 | 94 | ||||
| Accruals and deferred |
income | 3,095 | 1,500 | |||
| 34,145 | 66,439 | |||||
| 11. | MO~ IN FUNDS | |||||
| Net | Transfers | |||||
| movement | between | At | ||||
| At 1.4.20 | in funds | funds | 31.3.21 | |||
| Unrestricted fimds |
||||||
| General fund |
83,102 | (12,376) | 122,000 | 192,726 | ||
| Jeans for Genes support | 372,000 | (122,000) | 250,000 | |||
| 455,102 | (12,376) | 442,726 | ||||
| Restricted funds | ||||||
| Bryant Ltd (Family Support) | 2,858 | (2,615) | 243 | |||
| Orchard Therapeutics | (Family Support) | 500 | 500 | |||
| Orchard Therapeutics | (Newsletter | |||||
| sponsorslup) | 2,422 | 2,422 | ||||
| Emergency Leaflet | 250 | 250 | ||||
| 2,858 | 557 | 3,415 | ||||
| TOTAL FUNDS | 457,960 | (11,819) | 446,141 |
| Incoming | Resources | Gains and | Movement | |||
|---|---|---|---|---|---|---|
| resources | expended | losses | in funds | |||
| Umestricted funds |
||||||
| General fund | 75,692 | (153,196) | 65,128 | (12,376) | ||
| Restricted fimds | ||||||
| Bryant Ltd (Family Support) | (2,615) | (2,615) | ||||
| Orchard Therapeutics | (Family Support) | 2,000 | (1,500) | 500 | ||
| Orchard Therapeutics | (Newsletter | |||||
| sponsorship) Emergency Leaflet |
5,000 400 |
(2,578) ~150) |
2,422 250 |
|||
| 7,400 | (6,843) | 557 | ||||
| TOTAL FUNDS | 83,092 | (160,039) | 65,128 | (11,819) | ||
| Comparatives for movement |
in fimds | |||||
| Net | Transfers | |||||
| movement | between | At | ||||
| At 1vb19 | in funds | funds | 31.3.20 | |||
| Unrestricted funds |
||||||
| General fund | 138,573 | (71,021) | 15,550 | 83,102 | ||
| Jeans for Genes support | 372,000 | 372,000 | ||||
| 510,573 | (71,021) | 15,550 | 455,102 | |||
| Restricted funds | ||||||
| Family Conference | 15,050 | (15,050) | ||||
| Nursing Services |
500 | (500) | ||||
| Bryant Ltd (Family Support) | 2,858 | 2,858 | ||||
| 15,550 | 2,858 | (15,550) | 2,858 | |||
| TOTAL FUNDS | 526,123 | (68,163) | 457,960 |
| Incoming | Resources | Gains and | Movement | |
|---|---|---|---|---|
| resources | expended | losses | in funds | |
| Umestricted funds |
||||
| General fund | 111,797 | (154,414) | (28,404) | (71,021) |
| Restricted funds | ||||
| Bryant Ltd (Family Support) | 5,000 | (2,142) | 2,858 | |
| TOTAL FUNDS | 116,797 | (156,556) | ~28,404) | (68,163) |