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A In common with many chartties, the
pandemic has disrupted our fundraising
goals. Thanks to our new Fundraising and
Marketing Officer. Adelle Scott. and her
impactful social media presence. member
donations have exceeded budget On the
other hand. Jeans for Genes licence fee
income has reduced and grant givers have
refocused on social support for those in need
as a result of Covid.
Funding
We have a great plan for30year
birthday celebrations. Unfortunately,
the Family Conference 15 cancelled
due to Covid but will be replaced by
an online event We have many
committed fundraisors in our
membership who we hope will
support this initiative.
Jeans for Genes income was
badly affected by the
disruption in schools and
organisations so our licence
fee income has more than
halved contributing to an
overall deficit for the year.
We have a couple of
volunteers already on board
and doing great workfor u5.
Thankyou Simon and Annabel.
We will recruit more in future
as we learn how to use their
talents and manage the
additional resource
Resources
We welcomed Adelle Scott
our new Fundraising and
Marketing Officer onto the
team in April 2020
07
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||||||2021|2020|
|---|---|---|---|---|---|---|
||||Unrestricted|Restricted|Total|Total|
||||funds|funds|funds|funds|
|||Notes|||||
|INCOME AND ENDOWMEPKS PROM|||||||
|Donations
and legacies|||33,535|7,400|40,935|26,209|
|Investment
income||||||994|
|Other income|||42,157||42,157|89,594|
|Total|||75,692|7,400|83,092|116,797|
|BXPENDITURE ON|||||||
|Raising funds||3|32,809||32,809|29,658|
|Charitable
activities|||||||
|Relief|||81,096|6,843|87,939|92,284|
|Education|||29,556||29,556|17,732|
|Medical Research||||||5,400|
|Advocacy||||||5,824|
|Governance|||9,735||9,735|5,658|
|Total|||153,196|6,843|160,039|156,556|
|Net gains/(losses)|on investments||65,128||65,128|(28,404)|
|NET INCOME/(BXPENDITURB)|||(12,376)|557|(11,819)|(68,163)|
|RECONCILIATION OFFUNDS|||||||
|Total funds bmught~|||455,102|2,858|457,960|526,123|
|TOTAL PUNDS CARRIED FORWARD|||442,726|3,415|446,141|457,960|
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|||||2021|2020|
|---|---|---|---|---|---|
|||Unrestricted|Restricted|Total|Total|
|||funds|funds|funds|funds|
||Notes|I||||
|FIXEDASSETS||||||
|Investments||251,706||251,706|288,915|
|CURRENT ASSETS||||||
|Debtors||38,250||38,250|50,266|
|Cash at bank||186,915|3,415|190,330|185,218|
|||225,165|3,415|228,580|235,484|
|CREDITORS||||||
|Amounts
falling due within one year|10|(34,145)||(34,145)|(66,439)|
|NET~ASSETS||191,020|3,415|194,435|169,045|
|TOTAL ASSETSLESS~||||||
|LIABILITIES||442,726|3,415|446,141|457,960|
|NETASSETS||442,726|3,415|446,141|457,960|
|FUNDS||||||
|Unrestricted
funds||||442,726|455,102|
|Restricted
funds||||3,415|2,858|
|TOTAL FUNDS||||446,141|457,960|
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||RAISING|DONATIONS AND L|EGACIES||||
|---|---|---|---|---|---|---|
||||||2021|2020|
||Direct and|support costs|||30,473|25,747|
||INVES~ MANAGEMENT||COSTS||||
||||||2021|2020|
||Portfolio management||||2,336|3,911|
||Aggregate|amounts|||32,809|29,658|
|4.|~ABLEACTIVITKS COSTS||||||
||||||Support||
|||||Direct|costs (see||
|||||Costs|note 5)|Totals|
||Relief|||58,736|29,203|87,939|
||Education|||1,012|28,544|29,556|
||Governance|||9,735||9,735|
|||||69,483|57,747|127,230|
|5.|SUPPORT|COSTS||||Staffand|
|||||||Management|
||Relief|||||29,203|
||Education|||||28,544|
|||||||57,747|
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||||Unrestricted|Restricted|Total|
|---|---|---|---|---|---|
||||funds|funds|funds|
|INCOMB AND ENDOWMENTS FROM||||||
|Donations
and legacies|||21,209|5,000|26,209|
|Investment
income|||994||994|
|Other income|||89,594||89,594|
|Total|||111,797|5,000|116,797|
|EXPENDITURE ON||||||
|Raising funds|||29,658||29,658|
|Charitable activities||||||
|Relief|||92,284||92,284|
|Education|||15,590|2,142|17,732|
|Medical Research|||5,400||5,400|
|Advocacy|||5,824||5,824|
|Governance|||5,658||5,658|
|Total|||154,414|2,142|156,556|
|Net gains/(losses)|on|investments|(28,404)||(28,404)|
|NBTINCOMB/(EXPENDITURB)|||(71,021)|2,858|(68,163)|
|Transfers between|funds||15,550|(15,550)||
|Net movement
in funds|||(55,471)|(12,692)|(68,163)|
|RECONCILIATION||OFFUNDS||||
|Total funds brought forward|||510,573|15,550|526,123|
|TOTAL FUNDS CARRIED FORWARD|||455,102|2,858|457,960|
|FIXEDASSETINVESTMENTS||||||
||||Listed|Unlisted||
||||investments|investments|Totals|
|MARKET VALUE||||||
|At 1 April 2020|||288,914||288,915|
|Drsposals|||(100,000)||(100,000)|
|Revaluations|||62,791||62,791|
|At 31March 2021|||251,705||251,706|
|NBTBOOKVALUE||||||
|At 31March 2021|||251,705|1|251,706|
|At 31 March 2020|||288,914|1|288,915|
##
|||||Listed|Unlisted||
|---|---|---|---|---|---|---|
|||||investments|investments|Totals|
||Valuation
in 2021|||62,791||62,791|
||Cost|||188,914||188,915|
|||||251,705||251,706|
|9.|DEBTORS:AMOUNTS FALUNG DUBW1THW ONE YEAR||||||
||||||2021|2020|
||Trade debtors||||23,228|50,266|
||Other debtors||||15,022||
||||||38,250|50,266|
|10.|CREDITORS: AMOUNTS FALLING DUE WITHIN ONB YEAR||||||
||||||2021|2020|
||Trade creditors||||17,095|59,852|
||Amounts
owed to group undertakings|||||1|
||Social security and other taxes||||771||
||VAT||||6,430|4,992|
||Other creditors||||6,754|94|
||Accruals
and deferred|income|||3,095|1,500|
||||||34,145|66,439|
|11.|MO~ IN FUNDS||||||
|||||Net|Transfers||
|||||movement|between|At|
||||At 1.4.20|in funds|funds|31.3.21|
||Unrestricted
fimds||||||
||General
fund||83,102|(12,376)|122,000|192,726|
||Jeans for Genes support||372,000||(122,000)|250,000|
||||455,102|(12,376)||442,726|
||Restricted funds||||||
||Bryant Ltd (Family Support)||2,858|(2,615)||243|
||Orchard Therapeutics|(Family Support)||500||500|
||Orchard Therapeutics|(Newsletter|||||
||sponsorslup)|||2,422||2,422|
||Emergency Leaflet|||250||250|
||||2,858|557||3,415|
||TOTAL FUNDS||457,960|(11,819)||446,141|
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||||Incoming|Resources|Gains and|Movement|
|---|---|---|---|---|---|---|
||||resources|expended|losses|in funds|
|Umestricted
funds|||||||
|General fund|||75,692|(153,196)|65,128|(12,376)|
|Restricted fimds|||||||
|Bryant Ltd (Family Support)||||(2,615)||(2,615)|
|Orchard Therapeutics|(Family Support)||2,000|(1,500)||500|
|Orchard Therapeutics|(Newsletter||||||
|sponsorship)
Emergency
Leaflet|||5,000
400|(2,578)
~150)||2,422
250|
||||7,400|(6,843)||557|
|TOTAL FUNDS|||83,092|(160,039)|65,128|(11,819)|
|Comparatives
for movement||in fimds|||||
|||||Net|Transfers||
|||||movement|between|At|
||||At 1vb19|in funds|funds|31.3.20|
|Unrestricted
funds|||||||
|General fund|||138,573|(71,021)|15,550|83,102|
|Jeans for Genes support|||372,000|||372,000|
||||510,573|(71,021)|15,550|455,102|
|Restricted funds|||||||
|Family Conference|||15,050||(15,050)||
|Nursing
Services|||500||(500)||
|Bryant Ltd (Family Support)||||2,858||2,858|
||||15,550|2,858|(15,550)|2,858|
|TOTAL FUNDS|||526,123|(68,163)||457,960|
||Incoming|Resources|Gains and|Movement|
|---|---|---|---|---|
||resources|expended|losses|in funds|
|Umestricted
funds|||||
|General fund|111,797|(154,414)|(28,404)|(71,021)|
|Restricted funds|||||
|Bryant Ltd (Family Support)|5,000|(2,142)||2,858|
|TOTAL FUNDS|116,797|(156,556)|~28,404)|(68,163)|
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