Trustees’ Annual Report
For the period
27 June 2021 to 26 June 2022
Reference and Administration details
Charity – Foundation for Prader-Willi Research UK Also known as FPWR UK
Registered charity number 1141923
Address 43 Buttershaw Drive Buttershaw Bradford BD6 3RY
Trustees
Catherine Shaw – Chairperson Lin Edwards – Treasurer
Structure, governance and management
Governing Document – Trust Deed
Charity constituted as a trust
Trustees are appointed by existing trustees
Objectives and activities
The objectives of the charity are to advance the education of the public in general (and particularly amongst scientists) on the subject of Prader-Willi Syndrome and to promote research for the public benefit in all aspects of that subject and to publish the useful results.
The main activities undertaken for public benefit included the following fundraisers Go Orange fundraising Christmas Hamper Raffle
Move it May campaign Bonus Ball Scratch Cards Macarena Plank Challenge Virtual Lands End-John O’Groats Total Warrior One Small Step Sponsored Walk Event Mud Run Challenge Wing Walk 10k runs Fundraising Afternoon Teas Online fundraising (Amazon Smile, Easy Fundraising etc) 80[th] Birthday Bike Challenge Various Running events Personal Donations – Birthdays/funerals etc Wirral KFA Charity fundraising
All of the above events were undertaken with the sole goal of funding and promoting research into Prader-Willi Syndrome
In setting our objective and planning our fundraising activities, our trustees have given serious consideration to the Charity Commission’s general guidance on public benefit.
Achievements and performance
In the 2021 – 2022 financial year FPWR UK contributed to 2 research projects totally £70,000
Donna Lehman PhD at The University of Texas Health Science Centre. A total of £10,000 was contributed during this financial year to add to the £10,000 that was contributed to this project during 2220/2021 financial year. The total cost of this research was $89,100 and was looking at How the epitranscriptomic signature of active AGRP neurons disrupted in PWS.
Elena Bochukova Dphil at The University of London. A total of £60,000 was contributed towards the $108,000 study looking Genetic Determinants of Behavioral, Physical and Physiological Characteristics of PWS.
Financial review
FPWR UK holds in reserve a minimum of £3000 solely for funding future fundraising events, as it does not have any regular ongoing commitments. The sum to be kept in reserve is assessed year on year.
FPWR UK has no funds materially deficit
Declaration
The trustees declare that they have approved the trustees’ report above
Signed on behalf of the charity’s trustees
C Shaw
Catherine Shaw Chairperson 23 April 2023
FOUNDATION FOR
PRADER-WILLI REASERCH
UNITED KINGDOM
ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
Registered Charity 1141923
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
We the Management Committee are responsible for the preparation of the financial statements for the year ended 26 June 2022 set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.
We have supplied all accounting records, documentation and information including full explanations for this purpose.
………………………………………………….
Dated
TREASURER
Page 4
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
| Independent Examiners Report | 1 |
|---|---|
| Income & Expenditure | 2 |
| Balance Sheet | 2 |
| Notes to the Accounts | 3 |
| Declaration | 4 |
| ANNEX | |
| Annual Report |
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
I have been requested to report on the accounts of the Charity for the year ended 26 June 2022.
Respective responsibilities of Trustees and Examiner
As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.
Basis of Independent Examiners Report
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts.
Independent Examiners Statement
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that in any material respect the requirements:-
to keep accounting records in accordance with section 41 of the Act: and
to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act
have not been met: or
2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.
LYNDA ELIZABETH LEBETER
Date 08 March 2023
Independent Examiner
Willow House 20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH
Page 1
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM
BALANCE SHEET ACCOUNTS FOR THE YEAR TO 26 JUNE 2021
| 2022 ACCUMULATED FUND Accumulated Surplus at 27 June 2020 39,895 Surplus/Deficit Income Over Expenditure 18,276 - TOTAL 21,619 REPRESENTED BY Cash at Bank and In Hand 21,619 Sundry Debtors - Sundry Creditors - 21,619 INCOME Grants & Donations Grants - Donations 916 916 Fee Income Fee Income 35,898 Fundraising Events 19,657 Other 3,768 59,323 Investment Income Bank Interest - TOTAL INCOME 60,239 EXPENDITURE Direct Charitable Expenditure Repairs & Renewals - Rent 1,694 Salaries 322 Research Donations 70,000 Miscellaneous small items - Insurance 432 Advertising 62 72,511 Other Expenditure Stationery & Postage 3,138 Miscellaneous administrative costs 376 Fundraising Costs 2,489 6,004 TOTAL EXPENDITURE 78,515 Excess/(Deficit) Income Over Expenditure 18,276 - 2022 INCOME AND EXPENDITURE ACCOUNT ACCOUNTS FOR THE YEAR TO 26 JUNE 2022 |
2022 ACCUMULATED FUND Accumulated Surplus at 27 June 2020 39,895 Surplus/Deficit Income Over Expenditure 18,276 - TOTAL 21,619 REPRESENTED BY Cash at Bank and In Hand 21,619 Sundry Debtors - Sundry Creditors - 21,619 INCOME Grants & Donations Grants - Donations 916 916 Fee Income Fee Income 35,898 Fundraising Events 19,657 Other 3,768 59,323 Investment Income Bank Interest - TOTAL INCOME 60,239 EXPENDITURE Direct Charitable Expenditure Repairs & Renewals - Rent 1,694 Salaries 322 Research Donations 70,000 Miscellaneous small items - Insurance 432 Advertising 62 72,511 Other Expenditure Stationery & Postage 3,138 Miscellaneous administrative costs 376 Fundraising Costs 2,489 6,004 TOTAL EXPENDITURE 78,515 Excess/(Deficit) Income Over Expenditure 18,276 - 2022 INCOME AND EXPENDITURE ACCOUNT ACCOUNTS FOR THE YEAR TO 26 JUNE 2022 |
2022 39,895 18,276 - |
2021 26,274 13,621 39,895 39,895 - - 39,895 - 3,015 3,015 27,523 2,609 20 30,152 2 33,169 - 1,436 2,484 10,000 95 420 1,580 16,015 2,288 83 1,162 3,533 19,548 13,621 2021 |
2021 26,274 13,621 |
|---|---|---|---|---|
| 21,619 | 39,895 | |||
| 21,619 - - |
39,895 - - |
|||
| 21,619 | 39,895 | |||
| 916 59,323 - |
3,015 30,152 2 |
|||
| - 1,694 322 70,000 - 432 62 |
- 1,436 2,484 10,000 95 420 1,580 |
|||
| 60,239 | 33,169 | |||
| 72,511 6,004 |
16,015 3,533 |
|||
| 3,138 376 2,489 |
2,288 83 1,162 |
|||
| 78,515 | 19,548 | |||
| 18,276 - |
13,621 |
Page 2
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
1 STATEMENT OF ACCOUNTING POLICIES
The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.
2 Debtors
| Sundry Debtors 3 Creditors Other Creditors 4 Cash at Bank and in Hand Cash at Bank and in Hand |
2022 2021 £ £ - - |
|---|---|
| - - |
|
| 2022 2021 £ £ - - |
|
| - - |
|
| 2022 2021 £ £ 21,619 39,895 |
|
| 21,619 39,895 |
Page 3
FOUNDATION FOR
PRADER-WILLI REASERCH
UNITED KINGDOM
ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
Registered Charity 1141923
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
We the Management Committee are responsible for the preparation of the financial statements for the year ended 26 June 2022 set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.
We have supplied all accounting records, documentation and information including full explanations for this purpose.
………………………………………………….
Dated
TREASURER
Page 4
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
| Independent Examiners Report | 1 |
|---|---|
| Income & Expenditure | 2 |
| Balance Sheet | 2 |
| Notes to the Accounts | 3 |
| Declaration | 4 |
| ANNEX | |
| Annual Report |
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
I have been requested to report on the accounts of the Charity for the year ended 26 June 2022.
Respective responsibilities of Trustees and Examiner
As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.
Basis of Independent Examiners Report
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts.
Independent Examiners Statement
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that in any material respect the requirements:-
to keep accounting records in accordance with section 41 of the Act: and
to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act
have not been met: or
2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.
LYNDA ELIZABETH LEBETER
Date 08 March 2023
Independent Examiner
Willow House 20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH
Page 1
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM
BALANCE SHEET ACCOUNTS FOR THE YEAR TO 26 JUNE 2021
| 2022 ACCUMULATED FUND Accumulated Surplus at 27 June 2020 39,895 Surplus/Deficit Income Over Expenditure 18,276 - TOTAL 21,619 REPRESENTED BY Cash at Bank and In Hand 21,619 Sundry Debtors - Sundry Creditors - 21,619 INCOME Grants & Donations Grants - Donations 916 916 Fee Income Fee Income 35,898 Fundraising Events 19,657 Other 3,768 59,323 Investment Income Bank Interest - TOTAL INCOME 60,239 EXPENDITURE Direct Charitable Expenditure Repairs & Renewals - Rent 1,694 Salaries 322 Research Donations 70,000 Miscellaneous small items - Insurance 432 Advertising 62 72,511 Other Expenditure Stationery & Postage 3,138 Miscellaneous administrative costs 376 Fundraising Costs 2,489 6,004 TOTAL EXPENDITURE 78,515 Excess/(Deficit) Income Over Expenditure 18,276 - 2022 INCOME AND EXPENDITURE ACCOUNT ACCOUNTS FOR THE YEAR TO 26 JUNE 2022 |
2022 ACCUMULATED FUND Accumulated Surplus at 27 June 2020 39,895 Surplus/Deficit Income Over Expenditure 18,276 - TOTAL 21,619 REPRESENTED BY Cash at Bank and In Hand 21,619 Sundry Debtors - Sundry Creditors - 21,619 INCOME Grants & Donations Grants - Donations 916 916 Fee Income Fee Income 35,898 Fundraising Events 19,657 Other 3,768 59,323 Investment Income Bank Interest - TOTAL INCOME 60,239 EXPENDITURE Direct Charitable Expenditure Repairs & Renewals - Rent 1,694 Salaries 322 Research Donations 70,000 Miscellaneous small items - Insurance 432 Advertising 62 72,511 Other Expenditure Stationery & Postage 3,138 Miscellaneous administrative costs 376 Fundraising Costs 2,489 6,004 TOTAL EXPENDITURE 78,515 Excess/(Deficit) Income Over Expenditure 18,276 - 2022 INCOME AND EXPENDITURE ACCOUNT ACCOUNTS FOR THE YEAR TO 26 JUNE 2022 |
2022 39,895 18,276 - |
2021 26,274 13,621 39,895 39,895 - - 39,895 - 3,015 3,015 27,523 2,609 20 30,152 2 33,169 - 1,436 2,484 10,000 95 420 1,580 16,015 2,288 83 1,162 3,533 19,548 13,621 2021 |
2021 26,274 13,621 |
|---|---|---|---|---|
| 21,619 | 39,895 | |||
| 21,619 - - |
39,895 - - |
|||
| 21,619 | 39,895 | |||
| 916 59,323 - |
3,015 30,152 2 |
|||
| - 1,694 322 70,000 - 432 62 |
- 1,436 2,484 10,000 95 420 1,580 |
|||
| 60,239 | 33,169 | |||
| 72,511 6,004 |
16,015 3,533 |
|||
| 3,138 376 2,489 |
2,288 83 1,162 |
|||
| 78,515 | 19,548 | |||
| 18,276 - |
13,621 |
Page 2
FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022
1 STATEMENT OF ACCOUNTING POLICIES
The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.
2 Debtors
| Sundry Debtors 3 Creditors Other Creditors 4 Cash at Bank and in Hand Cash at Bank and in Hand |
2022 2021 £ £ - - |
|---|---|
| - - |
|
| 2022 2021 £ £ - - |
|
| - - |
|
| 2022 2021 £ £ 21,619 39,895 |
|
| 21,619 39,895 |
Page 3