## Trustees’ Annual Report
For the period
27 June 2021 to 26 June 2022
## Reference and Administration details
Charity – Foundation for Prader-Willi Research UK Also known as FPWR UK
Registered charity number 1141923
Address 43 Buttershaw Drive Buttershaw Bradford BD6 3RY
Trustees
Catherine Shaw – Chairperson Lin Edwards – Treasurer
Structure, governance and management
Governing Document – Trust Deed
Charity constituted as a trust
Trustees are appointed by existing trustees
## Objectives and activities
The objectives of the charity are to advance the education of the public in general (and particularly amongst scientists) on the subject of Prader-Willi Syndrome and to promote research for the public benefit in all aspects of that subject and to publish the useful results.
The main activities undertaken for public benefit included the following fundraisers Go Orange fundraising Christmas Hamper Raffle
Move it May campaign Bonus Ball Scratch Cards Macarena Plank Challenge Virtual Lands End-John O’Groats Total Warrior One Small Step Sponsored Walk Event Mud Run Challenge Wing Walk 10k runs Fundraising Afternoon Teas Online fundraising (Amazon Smile, Easy Fundraising etc) 80[th] Birthday Bike Challenge Various Running events Personal Donations – Birthdays/funerals etc Wirral KFA Charity fundraising
All of the above events were undertaken with the sole goal of funding and promoting research into Prader-Willi Syndrome
In setting our objective and planning our fundraising activities, our trustees have given serious consideration to the Charity Commission’s general guidance on public benefit.
## Achievements and performance
In the 2021 – 2022 financial year FPWR UK contributed to 2 research projects totally £70,000
Donna Lehman PhD at The University of Texas Health Science Centre. A total of £10,000 was contributed during this financial year to add to the £10,000 that was contributed to this project during 2220/2021 financial year. The total cost of this research was $89,100 and was looking at How the epitranscriptomic signature of active AGRP neurons disrupted in PWS.
Elena Bochukova Dphil at The University of London. A total of £60,000 was contributed towards the $108,000 study looking Genetic Determinants of Behavioral, Physical and Physiological Characteristics of PWS.
## Financial review
FPWR UK holds in reserve a minimum of £3000 solely for funding future fundraising events, as it does not have any regular ongoing commitments. The sum to be kept in reserve is assessed year on year.
FPWR UK has no funds materially deficit
## Declaration
The trustees declare that they have approved the trustees’ report above
Signed on behalf of the charity’s trustees
## C Shaw
Catherine Shaw Chairperson 23 April 2023
## **FOUNDATION FOR**
## **PRADER-WILLI REASERCH**
## **UNITED KINGDOM**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
**Registered Charity 1141923**
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
We the Management Committee are responsible for the preparation of the financial statements for the **year ended 26 June 2022** set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.
We have supplied all accounting records, documentation and information including full explanations for this purpose.
………………………………………………….
Dated
## **TREASURER**
Page 4
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
|Independent Examiners Report|1|
|---|---|
|Income & Expenditure|2|
|Balance Sheet|2|
|Notes to the Accounts|3|
|Declaration|4|
|**ANNEX**||
|Annual Report||
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
I have been requested to report on the accounts of the Charity for the **year ended 26 June 2022.**
## **Respective responsibilities of Trustees and Examiner**
As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.
## **Basis of Independent Examiners Report**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts.
## **Independent Examiners Statement**
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that in any material respect the requirements:-
to keep accounting records in accordance with section 41 of the Act: and
to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act
have not been met: or
2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.
## **LYNDA ELIZABETH LEBETER**
Date **08 March 2023**
## **Independent Examiner**
Willow House 20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH
Page 1
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM**
## **BALANCE SHEET ACCOUNTS FOR THE YEAR TO 26 JUNE 2021**
|**2022**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2020
39,895
Surplus/Deficit Income Over Expenditure
18,276
-
**TOTAL**
21,619
**REPRESENTED BY**
Cash at Bank and In Hand
21,619
Sundry Debtors
-
Sundry Creditors
-
21,619
**INCOME**
**Grants & Donations**
Grants
-
Donations
916
916
**Fee Income**
Fee Income
35,898
Fundraising Events
19,657
Other
3,768
59,323
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
60,239
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,694
Salaries
322
Research Donations
70,000
Miscellaneous small items
-
Insurance
432
Advertising
62
72,511
**Other Expenditure**
Stationery & Postage
3,138
Miscellaneous administrative costs
376
Fundraising Costs
2,489
6,004
**TOTAL EXPENDITURE**
78,515
**Excess/(Deficit) Income Over Expenditure**
18,276
-
**2022**
**INCOME AND EXPENDITURE ACCOUNT**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**|**2022**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2020
39,895
Surplus/Deficit Income Over Expenditure
18,276
-
**TOTAL**
21,619
**REPRESENTED BY**
Cash at Bank and In Hand
21,619
Sundry Debtors
-
Sundry Creditors
-
21,619
**INCOME**
**Grants & Donations**
Grants
-
Donations
916
916
**Fee Income**
Fee Income
35,898
Fundraising Events
19,657
Other
3,768
59,323
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
60,239
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,694
Salaries
322
Research Donations
70,000
Miscellaneous small items
-
Insurance
432
Advertising
62
72,511
**Other Expenditure**
Stationery & Postage
3,138
Miscellaneous administrative costs
376
Fundraising Costs
2,489
6,004
**TOTAL EXPENDITURE**
78,515
**Excess/(Deficit) Income Over Expenditure**
18,276
-
**2022**
**INCOME AND EXPENDITURE ACCOUNT**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**|**2022**
39,895
18,276
-|**2021**
26,274
13,621
39,895
39,895
-
-
39,895
-
3,015
3,015
27,523
2,609
20
30,152
2
33,169
-
1,436
2,484
10,000
95
420
1,580
16,015
2,288
83
1,162
3,533
19,548
13,621
**2021**|**2021**
26,274
13,621|
|---|---|---|---|---|
|||21,619||39,895|
|||21,619
-
-||39,895
-
-|
|||21,619||39,895|
|||916
59,323
-||3,015
30,152
2|
||-
1,694
322
70,000
-
432
62||-
1,436
2,484
10,000
95
420
1,580||
|||60,239||33,169|
|||72,511
6,004||16,015
3,533|
||3,138
376
2,489||2,288
83
1,162||
||||||
|||78,515||19,548|
|||18,276
-||13,621|
Page 2
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
## **1 STATEMENT OF ACCOUNTING POLICIES**
The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.
## **2 Debtors**
|Sundry Debtors
**3 Creditors**
Other Creditors
**4 Cash at Bank and in Hand**
Cash at Bank and in Hand|**2022**
**2021**
**£**
**£**
-
-|
|---|---|
||-
-|
||**2022**
**2021**
**£**
**£**
-
-|
||-
-|
||**2022**
**2021**
**£**
**£**
21,619
39,895|
||21,619
39,895|
Page 3
## **FOUNDATION FOR**
## **PRADER-WILLI REASERCH**
## **UNITED KINGDOM**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
**Registered Charity 1141923**
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
We the Management Committee are responsible for the preparation of the financial statements for the **year ended 26 June 2022** set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.
We have supplied all accounting records, documentation and information including full explanations for this purpose.
………………………………………………….
Dated
## **TREASURER**
Page 4
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
|Independent Examiners Report|1|
|---|---|
|Income & Expenditure|2|
|Balance Sheet|2|
|Notes to the Accounts|3|
|Declaration|4|
|**ANNEX**||
|Annual Report||
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
I have been requested to report on the accounts of the Charity for the **year ended 26 June 2022.**
## **Respective responsibilities of Trustees and Examiner**
As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.
## **Basis of Independent Examiners Report**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts.
## **Independent Examiners Statement**
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that in any material respect the requirements:-
to keep accounting records in accordance with section 41 of the Act: and
to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act
have not been met: or
2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.
## **LYNDA ELIZABETH LEBETER**
Date **08 March 2023**
## **Independent Examiner**
Willow House 20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH
Page 1
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM**
## **BALANCE SHEET ACCOUNTS FOR THE YEAR TO 26 JUNE 2021**
|**2022**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2020
39,895
Surplus/Deficit Income Over Expenditure
18,276
-
**TOTAL**
21,619
**REPRESENTED BY**
Cash at Bank and In Hand
21,619
Sundry Debtors
-
Sundry Creditors
-
21,619
**INCOME**
**Grants & Donations**
Grants
-
Donations
916
916
**Fee Income**
Fee Income
35,898
Fundraising Events
19,657
Other
3,768
59,323
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
60,239
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,694
Salaries
322
Research Donations
70,000
Miscellaneous small items
-
Insurance
432
Advertising
62
72,511
**Other Expenditure**
Stationery & Postage
3,138
Miscellaneous administrative costs
376
Fundraising Costs
2,489
6,004
**TOTAL EXPENDITURE**
78,515
**Excess/(Deficit) Income Over Expenditure**
18,276
-
**2022**
**INCOME AND EXPENDITURE ACCOUNT**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**|**2022**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2020
39,895
Surplus/Deficit Income Over Expenditure
18,276
-
**TOTAL**
21,619
**REPRESENTED BY**
Cash at Bank and In Hand
21,619
Sundry Debtors
-
Sundry Creditors
-
21,619
**INCOME**
**Grants & Donations**
Grants
-
Donations
916
916
**Fee Income**
Fee Income
35,898
Fundraising Events
19,657
Other
3,768
59,323
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
60,239
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,694
Salaries
322
Research Donations
70,000
Miscellaneous small items
-
Insurance
432
Advertising
62
72,511
**Other Expenditure**
Stationery & Postage
3,138
Miscellaneous administrative costs
376
Fundraising Costs
2,489
6,004
**TOTAL EXPENDITURE**
78,515
**Excess/(Deficit) Income Over Expenditure**
18,276
-
**2022**
**INCOME AND EXPENDITURE ACCOUNT**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**|**2022**
39,895
18,276
-|**2021**
26,274
13,621
39,895
39,895
-
-
39,895
-
3,015
3,015
27,523
2,609
20
30,152
2
33,169
-
1,436
2,484
10,000
95
420
1,580
16,015
2,288
83
1,162
3,533
19,548
13,621
**2021**|**2021**
26,274
13,621|
|---|---|---|---|---|
|||21,619||39,895|
|||21,619
-
-||39,895
-
-|
|||21,619||39,895|
|||916
59,323
-||3,015
30,152
2|
||-
1,694
322
70,000
-
432
62||-
1,436
2,484
10,000
95
420
1,580||
|||60,239||33,169|
|||72,511
6,004||16,015
3,533|
||3,138
376
2,489||2,288
83
1,162||
||||||
|||78,515||19,548|
|||18,276
-||13,621|
Page 2
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2022**
## **1 STATEMENT OF ACCOUNTING POLICIES**
The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.
## **2 Debtors**
|Sundry Debtors
**3 Creditors**
Other Creditors
**4 Cash at Bank and in Hand**
Cash at Bank and in Hand|**2022**
**2021**
**£**
**£**
-
-|
|---|---|
||-
-|
||**2022**
**2021**
**£**
**£**
-
-|
||-
-|
||**2022**
**2021**
**£**
**£**
21,619
39,895|
||21,619
39,895|
Page 3