2021-03-31-accounts

			Unrestricted	Restricted	2021 Total	2020 Total
			funds	funds	funds	funds
		Notes
INCOME AND ENDOWIVIENTS	FROW(
Donations and legacies		2	144,990	12,000	156,990	90,528
Other trading activities		3	513,430		513,430	912,424
Investment income		4	808		808	113
Total				12,000	671,228	1„003,065
EXPENDITURE QN
Raising funds		5	377,848
Charitable activities
Awareness and education			210,244		221,T75	244,363
Relief			81,665		81,665	81„803
Grants awarded			207,482		207.482	99,431
				11,531		1,043,061
NET INCOIVIEf (EXPENDITURE)			(218,011j	469	(217,542j
RECONCIUATION OF FUNDS
Total funds brought forward			277,005		292,251	332,247
TOTAL FUNDS CARRIED FORWARD			58,994	15,715		292.251

			Unrestricted	Restricted	2021 Total	2020 Total
			funds	funds	funds	funds
		Notes
FIXEDASSETS
Investments
CURRENT ASSETS
Debtors		14	15,819		15,819	93,4T4
Cash at bank			20&,T50	15,'715	224„465	293,844
				15,715	240,284	3&7,318
CREDITORS
Amounts falling due within	one year	'i5	(165,5T5}		(165,575}	(95,068}
NET CURRENT ASSETS				15,T15	T4.709	292,251
TOTAL ASSETS LESSCURRENT
LIABIUTIES				15,715	T4,709	292,251
NET ASSETS				15,715		292,251
FUNDS					58,994	277,005
Unrestricted funds					15,715	15,246
Restdcted funds
TOTAL FUNDS CARRIED	FORWARD				T4„709	292,251

				2021 K	20206
			Notes
Cash flows from operating		activities
Cash generated from operations				0,18	11,563
Net cash used in operating	activities			0,18
Cash flows from investing	activities
Sale oftangible flxed assets				(1)	(3)
Sale of6xed asset Investments				1
Interest received				808	113
Net cash prodded by investing		activities		808	110
Change in cash and cash
equivalents in the repmting		period		(69,379)	(11,453)
Cash and cash equivalents		at the
beginning ofthe reporting		period		293,844	305,297
Cash and cash equivalents		at the
end ofthe reporting period				224,465	393.844
NETASSETS				74,709	292250

			2021 E	2020 E
Net expenditure for the reporting
period (as per the Statement of			(217,542)	(39,996)
Financial Activitiesj
Adjustments for:
Loss on disposal of6xed assets				5
Interest received			(808)	(113)
Movement in subsidiary	company	balance	20,866	(5,219)
Decrease in debtors			56,789	117„538
Increase/ (decrease )in	creditors		70,507	(83,778)
Net cash used in operations				~33.6637

. ANALYSIS OF C	HANCES IN NET FU	NDS
	At 1.4 20	Cash flow	At 31.3.21
Net cash
Cash at bank	293.844	~69.379
	293,844	~[69.379
Total	293,844	~69.379

	2021	2020
	F	K
Dorratiorrs	156,990	90,528

3. OT	H ER TRAD I N	G ACTIVITIES
		2021	2020
		K
Charitable	actiVities	513,430	912,424

					2021	2020
					6	6
Jeans for Genes l3ay					223,915	392,783
Staffcosts					112,052	195,511
Promotional		items			41,731	26,555
Corporate	partnerships.		ijoensing	and sponsorship	150	2,615
						617,464

6. CH	AP ITABLE AC	TIVITIES CO	STS
			Grant
			funding of	Support costs
		Oirect costs	actiVities (see note 7t	(see note 8j	Totals
			K	K.
Awareness	and education	102,369		119„406	221,775
Relief				81,665	81„665
Grants awarded			207,482		207,482
		102,369	207,482	201,071

							2021	2020
								K
Dingley's Promise							3,416
FOP Friends							3,416
Jessie May							3,416
Kleefstra Syndrome							3„416
Newlife (Foundation for Disabled					Children)		3,416	5,000
Norrie Disease Foundation								5,000
The Sandcastle Trust								5,000
Zoes Place Baby hospice								4„877
Nystagmus Network								4,850
Neuromuscular Centre								1„000
The 1P36Family Trust								500
Kabuki UK								5,00a
Microphthalmia Anophthalmia				and Coloboma Support				5,000
BBSUK								4„900
Williams Syndrome Foundation								5,000
Huntingtons Disease Association								5,000
PWSA								4„957
Fanconi Hope								5,000
Albinism Fellowship								3,00Q
Glasgow Children's Hospital			Charity					1,000
Headlines The Craniofacial		Support				Group		5,aao
Annabelle's Challenge								3,250
The Haemosphilia Society								5,000
PMSF UK								5,000
Max Appeal								2„56Q
Cure EB								3,000
Teddington Trust								5,000
Immunodeficiency UK							123„095
48XXYYFamily Support Group				UK			3,416
Acrodysostosis Support							3,416
AKU Society							3,41T
Child Growth Foundation							3,417
Down Syndrome Training	and		Support Service Ltd				3,417
The Fragile XSociety							3,417
Local families with bleeding		disorders					3,417
My Aware							3,417
The Neurofibromatosis Association							3,41T
Ring20 Research and Support				UK CIO			3,41T
Scottish Huntington's Association							3,417
SIBS							3„417
The Ataxia Telangiectasia		Society					3,41T
Muscle Help Foundation							3,417
Rainbow Trust Children's	Charity						3,41T
Tuberous Sclerosis Association							3,417
Zoe's Place Trust re Coventry							3,417
Zoe's Place Trust re Liverpool							3,41T
							205,095

8. SU	PP	ORT COSTS
				Governance
			Management	costs	Totals
			K	E	6
Awareness	and	education	105,548	13,858	118,406
Relief			81,665		81,665
			187,213	13,858	201,071

				2020
				K
Auditors'	remuneration			25,200
Deficit on	disposal of	fixed assets		5
Auditors'	remuneration	-audit		5,500
Auditors"	remuneration	-other	services	3,000
Previous	auditors' remuneration		- audit services	16,700

	2021	2020
VIages and salaries	270,789	32T,399
Social security costs	15„778	32,738
Other pension costs	12,698	22.873
	299,265	383,010

		Unrestricted	Restricted	Total
		fund	funds	funds
			E	E
INCOME AND ENDOWNMENTS	FROM
Donations and legacies		80„328	10+00	90,528
Other trading actiwlies		912,424		912„424
Investment income		113		113
Total		992,865	10,200	1,003„065
EXENDITURE ON
Raising funds		617,464
Charitable activities
Awareness and education		242„694	1,669	244,363
Relief		81„803		81,803
Grants avvarded		99,431		99,431
Total		1„041,392	1,669	1,043,061
NET INCOMEI (EXPENDITURE)		(48,527)	8„531	P9„996)
Transfers between funds		58.283	~558.283
Net movement in funds		9,756	(49,752)	(39,996)
RECONCIUATION OF FUNDS
Total funds brought forward		267,249	64,998	332,247
TOTAL FUNDS CARRIED FORWARD		277,005	15,246	292,251

14.DE	BTORS: AMOUNT	S FALLINC	DUE
		2021	2020
		E	E
Trade debtors			15,164
Amounts owed by group undertakings			20,866
Other debtors
VAT		15,819	32,389
Prepayments	and accrued income		25,021
		15,819

		2021	2020
		F
Trade creditors		34,T11	68,T10
Social security and other taxes		2,168	T,645
Other creditors		125,421	2,299
Accruals and deferred	income	3,2T5	16,414
		1655T5	95,068

16. M	O	VEMENT	IN FUNDS
				Net
				movement	At
			At 1.420	in funds	31321
					6
Unrestricted		funds
General funds			277,005	(218,011)	58,994
Restricted	funds
PID UK			8,531	(8,531)
Roald l3ahl's		MCC	6715	-	6715
GDUK Helpline				9,000	9,000
			15746	469	15,715
TOTAL FUNDS			292251	~17.5421	74.709

Net m	ovement in	funds, include	d in th	e abo
		incoming	Resources	Movement
		resources	expended	in funds
			F	6
Unrestricted	funds
Generalfunds		659~8	(877+39)	(218,011)
Restricted funds
PID UK		3,000	(11,531)	(8„531)
GDUK Heipline		9,000		9„000
		12„000	(11,531)
TOTAL FUNDS		071220	~880 770	~2175421

			Net	Transfers
			movement	hehveen	At
		At 14.19	in funds	funds	31.320
		6		6	E
Unrestricted	funds
General funds		267,249	(48„527)	58+83	277,005
Restricted funds
PID UK		43,843	8,531	(43,843)	8,531
Symposium		14„440		(14.440)
Roald l3ahl's	MCC	6,715			6,715
		64,998	8,531	(58.283)	15,246
TOTAL FUNDS		332347	~139.000		292,251

		Incoming	Resources	Movement
		resources	expended	in funds
		F.	E	8
Unrestricted	funds
General funds		992,885	(1,041.3921	(3(8,82T1
Restricted funds
PID UK		10,200	(1,8991	8„531
TOTAL FUNDS		1.003.006	~1.003.001	~30996