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||||Unrestricted|Restricted|2021 Total|2020 Total|
|---|---|---|---|---|---|---|
||||funds|funds|funds|funds|
|||Notes|||||
|INCOME AND ENDOWIVIENTS|FROW(||||||
|Donations
and legacies||2|144,990|12,000|156,990|90,528|
|Other trading activities||3|513,430||513,430|912,424|
|Investment
income||4|808||808|113|
|Total||||12,000|671,228|1„003,065|
|EXPENDITURE QN|||||||
|Raising funds||5|377,848||||
|Charitable
activities|||||||
|Awareness
and education|||210,244||221,T75|244,363|
|Relief|||81,665||81,665|81„803|
|Grants awarded|||207,482||207.482|99,431|
|||||11,531||1,043,061|
|NET INCOIVIEf (EXPENDITURE)|||(218,011j|469|(217,542j||
|RECONCIUATION
OF FUNDS|||||||
|Total funds brought forward|||277,005||292,251|332,247|
|TOTAL FUNDS CARRIED FORWARD|||58,994|15,715||292.251|
##
||||Unrestricted|Restricted|2021 Total|2020 Total|
|---|---|---|---|---|---|---|
||||funds|funds|funds|funds|
|||Notes|||||
|FIXEDASSETS|||||||
|Investments|||||||
|CURRENT ASSETS|||||||
|Debtors||14|15,819||15,819|93,4T4|
|Cash at bank|||20&,T50|15,'715|224„465|293,844|
|||||15,715|240,284|3&7,318|
|CREDITORS|||||||
|Amounts
falling due within|one year|'i5|(165,5T5}||(165,575}|(95,068}|
|NET CURRENT ASSETS||||15,T15|T4.709|292,251|
|TOTAL ASSETS LESSCURRENT|||||||
|LIABIUTIES||||15,715|T4,709|292,251|
|NET ASSETS||||15,715||292,251|
|FUNDS|||||58,994|277,005|
|Unrestricted
funds|||||15,715|15,246|
|Restdcted funds|||||||
|TOTAL FUNDS CARRIED|FORWARD||||T4„709|292,251|
##
##
|||||2021 K|20206|
|---|---|---|---|---|---|
||||Notes|||
|Cash flows from operating||activities||||
|Cash generated
from operations||||0,18|11,563|
|Net cash used in operating|activities|||0,18||
|Cash flows from investing|activities|||||
|Sale oftangible flxed assets||||(1)|(3)|
|Sale of6xed asset Investments||||1||
|Interest received||||808|113|
|Net cash prodded
by investing||activities||808|110|
|Change
in cash and cash||||||
|equivalents
in the repmting||period||(69,379)|(11,453)|
|Cash and cash equivalents||at the||||
|beginning
ofthe reporting||period||293,844|305,297|
|Cash and cash equivalents||at the||||
|end ofthe reporting
period||||224,465|393.844|
|NETASSETS||||74,709|292250|
##
||||2021 E|2020 E|
|---|---|---|---|---|
|Net expenditure
for the reporting|||||
|period (as per the Statement of|||(217,542)|(39,996)|
|Financial Activitiesj|||||
|Adjustments
for:|||||
|Loss on disposal of6xed assets||||5|
|Interest received|||(808)|(113)|
|Movement
in subsidiary|company|balance|20,866|(5,219)|
|Decrease
in debtors|||56,789|117„538|
|Increase/ (decrease )in|creditors||70,507|(83,778)|
|Net cash used in operations||||~33.6637|
##
|. ANALYSIS OF C|HANCES
IN NET FU|NDS||
|---|---|---|---|
||At 1.4 20|Cash flow|At
31.3.21|
|Net cash||||
|Cash at bank|293.844|~69.379||
||293,844|~[69.379||
|Total|293,844|~69.379||
##
##
##
##
##
##
##
##
##
##
##
||2021|2020|
|---|---|---|
||F|K|
|Dorratiorrs|156,990|90,528|
|3. OT|H ER TRAD
I N|G ACTIVITIES||
|---|---|---|---|
|||2021|2020|
|||K||
|Charitable|actiVities|513,430|912,424|
##
##
##
||||||2021|2020|
|---|---|---|---|---|---|---|
||||||6|6|
|Jeans for Genes l3ay|||||223,915|392,783|
|Staffcosts|||||112,052|195,511|
|Promotional||items|||41,731|26,555|
|Corporate|partnerships.||ijoensing|and sponsorship|150|2,615|
|||||||617,464|
##
|6. CH|AP ITABLE AC|TIVITIES CO|STS|||
|---|---|---|---|---|---|
||||Grant|||
||||funding
of|Support
costs||
|||Oirect
costs|actiVities
(see note
7t|(see note
8j|Totals|
||||K|K.||
|Awareness|and education|102,369||119„406|221,775|
|Relief||||81,665|81„665|
|Grants awarded|||207,482||207,482|
|||102,369|207,482|201,071||
##
##
||||||||2021|2020|
|---|---|---|---|---|---|---|---|---|
|||||||||K|
|Dingley's
Promise|||||||3,416||
|FOP Friends|||||||3,416||
|Jessie May|||||||3,416||
|Kleefstra Syndrome|||||||3„416||
|Newlife (Foundation
for Disabled|||||Children)||3,416|5,000|
|Norrie Disease Foundation||||||||5,000|
|The Sandcastle Trust||||||||5,000|
|Zoes Place Baby hospice||||||||4„877|
|Nystagmus
Network||||||||4,850|
|Neuromuscular
Centre||||||||1„000|
|The 1P36Family Trust||||||||500|
|Kabuki UK||||||||5,00a|
|Microphthalmia
Anophthalmia||||and Coloboma Support||||5,000|
|BBSUK||||||||4„900|
|Williams
Syndrome
Foundation||||||||5,000|
|Huntingtons
Disease Association||||||||5,000|
|PWSA||||||||4„957|
|Fanconi Hope||||||||5,000|
|Albinism
Fellowship||||||||3,00Q|
|Glasgow Children's
Hospital|||Charity|||||1,000|
|Headlines
The Craniofacial||Support||||Group||5,aao|
|Annabelle's
Challenge||||||||3,250|
|The Haemosphilia
Society||||||||5,000|
|PMSF UK||||||||5,000|
|Max Appeal||||||||2„56Q|
|Cure EB||||||||3,000|
|Teddington
Trust||||||||5,000|
|Immunodeficiency
UK|||||||123„095||
|48XXYYFamily Support Group||||UK|||3,416||
|Acrodysostosis
Support|||||||3,416||
|AKU Society|||||||3,41T||
|Child Growth
Foundation|||||||3,417||
|Down Syndrome
Training|and||Support Service Ltd||||3,417||
|The Fragile XSociety|||||||3,417||
|Local families
with bleeding||disorders|||||3,417||
|My Aware|||||||3,417||
|The Neurofibromatosis
Association|||||||3,41T||
|Ring20 Research
and Support||||UK CIO|||3,41T||
|Scottish Huntington's
Association|||||||3,417||
|SIBS|||||||3„417||
|The Ataxia Telangiectasia||Society|||||3,41T||
|Muscle Help Foundation|||||||3,417||
|Rainbow Trust Children's|Charity||||||3,41T||
|Tuberous Sclerosis Association|||||||3,417||
|Zoe's Place Trust re Coventry|||||||3,417||
|Zoe's Place Trust re Liverpool|||||||3,41T||
||||||||205,095||
##
|8. SU|PP|ORT COSTS||||
|---|---|---|---|---|---|
|||||Governance||
||||Management|costs|Totals|
||||K|E|6|
|Awareness|and|education|105,548|13,858|118,406|
|Relief|||81,665||81,665|
||||187,213|13,858|201,071|
##
|||||2020|
|---|---|---|---|---|
|||||K|
|Auditors'|remuneration|||25,200|
|Deficit on|disposal
of|fixed assets||5|
|Auditors'|remuneration|-audit||5,500|
|Auditors"|remuneration|-other|services|3,000|
|Previous|auditors'
remuneration||- audit services|16,700|
##
##
||2021|2020|
|---|---|---|
|VIages and salaries|270,789|32T,399|
|Social security costs|15„778|32,738|
|Other pension costs|12,698|22.873|
||299,265|383,010|
##
|||Unrestricted|Restricted|Total|
|---|---|---|---|---|
|||fund|funds|funds|
||||E|E|
|INCOME AND ENDOWNMENTS|FROM||||
|Donations
and legacies||80„328|10+00|90,528|
|Other trading actiwlies||912,424||912„424|
|Investment
income||113||113|
|Total||992,865|10,200|1,003„065|
|EXENDITURE ON|||||
|Raising funds||617,464|||
|Charitable
activities|||||
|Awareness
and education||242„694|1,669|244,363|
|Relief||81„803||81,803|
|Grants
avvarded||99,431||99,431|
|Total||1„041,392|1,669|1,043,061|
|NET INCOMEI (EXPENDITURE)||(48,527)|8„531|P9„996)|
|Transfers between funds||58.283|~558.283||
|Net movement
in funds||9,756|(49,752)|(39,996)|
|RECONCIUATION
OF FUNDS|||||
|Total funds brought forward||267,249|64,998|332,247|
|TOTAL FUNDS CARRIED FORWARD||277,005|15,246|292,251|
##
|14.DE|BTORS: AMOUNT|S
FALLINC|DUE|
|---|---|---|---|
|||2021|2020|
|||E|E|
|Trade debtors|||15,164|
|Amounts
owed by group undertakings|||20,866|
|Other debtors||||
|VAT||15,819|32,389|
|Prepayments|and accrued income||25,021|
|||15,819||
##
##
##
|||2021|2020|
|---|---|---|---|
|||F||
|Trade creditors||34,T11|68,T10|
|Social security and other taxes||2,168|T,645|
|Other creditors||125,421|2,299|
|Accruals
and deferred|income|3,2T5|16,414|
|||1655T5|95,068|
##
|16. M|O|VEMENT|IN FUNDS|||
|---|---|---|---|---|---|
|||||Net||
|||||movement|At|
||||At 1.420|in funds|31321|
||||||6|
|Unrestricted||funds||||
|General funds|||277,005|(218,011)|58,994|
|Restricted|funds|||||
|PID UK|||8,531|(8,531)||
|Roald l3ahl's||MCC|6715|-|6715|
|GDUK Helpline||||9,000|9,000|
||||15746|469|15,715|
|TOTAL FUNDS|||292251|~17.5421|74.709|
##
|Net m|ovement
in|funds,
include|d
in th|e abo|
|---|---|---|---|---|
|||incoming|Resources|Movement|
|||resources|expended|in funds|
||||F|6|
|Unrestricted|funds||||
|Generalfunds||659~8|(877+39)|(218,011)|
|Restricted funds|||||
|PID UK||3,000|(11,531)|(8„531)|
|GDUK Heipline||9,000||9„000|
|||12„000|(11,531)||
|TOTAL FUNDS||071220|~880 770|~2175421|
||||Net|Transfers||
|---|---|---|---|---|---|
||||movement|hehveen|At|
|||At 14.19|in funds|funds|31.320|
|||6||6|E|
|Unrestricted|funds|||||
|General funds||267,249|(48„527)|58+83|277,005|
|Restricted funds||||||
|PID UK||43,843|8,531|(43,843)|8,531|
|Symposium||14„440||(14.440)||
|Roald l3ahl's|MCC|6,715|||6,715|
|||64,998|8,531|(58.283)|15,246|
|TOTAL FUNDS||332347|~139.000||292,251|
|||Incoming|Resources|Movement|
|---|---|---|---|---|
|||resources|expended|in funds|
|||F.|E|8|
|Unrestricted|funds||||
|General funds||992,885|(1,041.3921|(3(8,82T1|
|Restricted funds|||||
|PID UK||10,200|(1,8991|8„531|
|TOTAL FUNDS||1.003.006|~1.003.001|~30996|
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