Christopher'8 Smile Coz tid3 8 et cancer too Trustees, Report th for year ending 30 April 2023
Our vision is for every child diagnosed with childhood cancer to not only survive, but to reach adulthood enjoying a good quality of life. Charity Registration Number 1129906 Trustees Mr Kevin Capel Mrs Karen Capel Mr Denis Conroy Mrs Rosemary Conroy Princlpal Offlce io Ivy Drive Li8htwater Surrey GU18 5YZ Bankers HSBC plc 29 High Street Camberlev Surrey GU15 3RE Webslte www.christo herssmile.o Principal email address info christo herssmile.o
Trustees Report for year ending 30 April 2023 Introduction to Christopher's Smile In October 2006, Christopher Capel then aged 4 was diagnosed with Medulloblastoma, an aggressive paediatric brain tumour. Following 21 months battling the disease Christopher lost his fight for lrfe in June 2CK18, nine days before his 51Xth birthday. Christopher was the only child of Karen and Kevin Capel. Following their tragic loss. Karen and Kevin Capel wanted to help children with cancer in the future by funding research into new treatments for childhood cancer. Background to Christopherfs Smile: Chrlstopherfs Smile started in October 2(K)8 and was registered as a charty by the Charity Commission by a Declaration of Trust Deed dated ltrh May 2009. The charity raises fundin8 exclusively for paediatric cancer research wlth a bias towards the development and approval of genomic diagnostics for paediotric solid tumours. Christopherfs Smile has a fimi principle that every penny of a donation should be used for the cause for which it was given. The charity has continued with this principle for the financial year 2022- 2023. Aims and Objectlves After Christophels death, we wanted to make a difference for chlldren with cancer in the future. Although there are many charities that raise funds for different aspects of childhood cancer, we saw the only way of breaking this terrible cycle was to fund research. We had seen first hand the efflcacv and side effects of current treatments th In Chrlstopher and the other children in the Royal Marsden's Children's Oncolo8y ward. We learned that if a child surrfives, their life and that of their family is never the same again. It was these memories that led to our charitls vision: "Our vislon Is that every child diagnosed with Childhood cancer will not only 5urvfve but a¢h adulthood enjoying a good quality of life." This vislon has bèen translated into our chariivs objects as: l. Provlde funding to non-profft making searCh organisations that furthers research Into paediatric cancers. 2. Raise awane$S of the needs of non-profit making research organisations that further research into paediatric cancers. 3. Ralse aWanesS in the general population of the need for fundlng the research into paedlatrlc cancers. Christopherfs Smile is a target based organlsation. We made the decision to Set a fundraising tar8et in order for our supporters to know what their money is to be spent on. We also believe that charity's funds Should be spent or allocated the earliest oprM)rtunity-
Christopherfs Smile continues to hold the following set of values. When we stsrted the charty we decided to adhe to a set of principles which we believed in and which our donors would SpeCt.
Every penny of every donation would be used for the cause for which it was given. Costs should be kept to a minimum and we do as much ourselves as we can. Where we need to buy in products or expertise we would control costs vigorouslv. Every donor or supporter should be shown exactly where their donation has been spent. Build a relationship with donors and value every donation no matter how small. Ensure that funds are spent in the best way possible to get maximum benefit from them. We set these objectives for our first year and our aim is that they will remain in place while Christopherfs Smile is still needed to raise funds for childhood cancer research. Paediatric Oncology Artlvlties and Infiuentlal Factors May 2022 - Aprll 2023 This year has been the third year Whe Christopherfs Smile's activities have been influenced greatly by the Covid 19 pandemic. As the UK slowly exits from Covid 19 StrICtl0n$, the pandemic is likely to leave a legacy In a number of areas of fundraising actNity. Notably these are- A huge reduction in the use of cash and a greatertransition to Spending uslng cards or cashless systems such as Apple Payi Google Pay and Paypal. Face to face fundraising actiVitS have not existed during the pandemic and have not recovered partly as a legacy of the pandemic and also due to the current cost of living crisis. Whlle worklng from home is slowfy duCin& socialising both inside and outside of the workplace and involvement in charity sUPPOrt activrties is eXtrerne low compared to pre- pandemlc levels. A reappraisal of people's finances durin8 the pandemlc and the prioritisatlon of famlly spendlng durlng the current financial crisis resulting in fewer charity donatn$ especlally as charities became less visible durin8 the pandemic period. The factors above have meant a huge decline in income forchrtstopherfs Smlbe. Thls decline In income has meant a slower growth in our reser¥es. Our 'Liquld Biopsies for Chlldren. project finished at the end of Dember 2021 and while this project has resulted in MO evidence for Llquid Biopsies to be used in NHS Standard of Care, our high level objertive of includin8 brain tumours in this work was not successful. This was due to a number of fartors. the chief factor being the availability of cerebral spinal fluid for genomic analysis. Thi5 issue must be corrected before we as a charity will fund projects to 8ain enough evidence for Liquid Biopsies to be used in NHS Standard of Care for children with brain tumour5. Funding future Projects The trustees of Christopherfs Smile take their spOnsibl11t1e5 for the spending of donors, funding very seriously. We will not fund a project just to say we have a project in progress regardless of the benefits that the project initiators clairn. The trustees are still committed to the genomic analysis of brain tumour DNA in order to assist in the furtheran of treatments for paediatric brain tumours. Paediatric brain tumours kill more children than any other type of paediatric cancer. Our previouslv funded work on liquid biopsies for brain tumours has proved 2 thing5: the first is that cUrnt
mainstream technologies are not sensitNe enough to analyse the miniscule amounts of tumour DNA in the bloodstream and secondly that obtaining cerebral spinal fluid for analysis is beset with procedural and clinical hurdles. There is a ray of Ilght on the h0ri20n though. Long read sequencing offers far higher sensitNity than current panel sequencing and when we can responsibly proceed with a project utilising this exciting technology we will do so. We fully realise that we have not funded a project for some time but the trustees would rather wait and fund a project that has a chance of success which could provide clinicians with vitsl genomic data on a child's brain tumour without the need for invasive neurosurgery. This approath is backed by the trustees and if successful would provide a real step change in the way the most aggressive paediatric brain tumours could be analysed. Our aim is to provide cllnicians wtth the tumour genomic data in order for the most appropriate targeted drugs to be used to ochieve the best therapeutic effect.
Income for year ending 30th April 2023 £1387 Cost Offset £23798 £2947 Incomefrom events Donations Sponsorship Grants GiftAid Restykteddonotlons ond qrnntsspecffjcalfylorcort £405 Running Costs £1 Card trnnsaction fees £931 Cost of events £982 Net amount after costs £23797 £2016 Profitfrom events Net Donations Sponsorship Grants GIftAld £12021 Decrease in restricted and designated fvnds note £37834 Availablefor researchfvnding below Note: _ £IO(YJ was transferred from cost offset to research funding and £12(X)3 was released from amounts paid by solicitors. Please see the Notes to the accounts for fvll detsil.
Financial review Highlights Total reiptS were £28.132 wlth unrestricted net receipts of £26.745. Restricted funds mainly comprise donations from the trustees. donations from solicitors wlth time restrictions on them moving to unrestricted and interest receivable. Donations from the trustees and interest retrivable are used to cover the running costs of the charity. Designated funds are amounts donated to the charity for specific purposes. Amounts paid into the restricted funds exceed costs by £982 this year. When added to amounts brought fonvard from last year this 8Nes a balan of £15.701. Thi5 balance comprises £14.053 from solicitors and £1,648 other restricied income. Restricted costs have been running at around £600 in previous years although this year they were £405. It has therefore been decided to transfer £l,CKKI from restritted funds into unrestricted funds. An additional amount of £12.CKJ3 has also been transferred to unrestricted from balances received from solicitors leaving a balance of £2,698 included in restricted funds and this is fully described in the notes to the accounts. All clothing costs are included in restricted funds as most of the clothing bought is given to people who are competing In sponsored events to ralse money for the charity. Any sales are made are at cost and the reIpts are added to the Stricted funds bud8et. Total Funds Awdllable for Charltable Glvln8 Total funds available in unrestrirted funds as at 30 April were £468.138. GIftAld Glft Ald on sponsorship and donations totalled £2,229. Resetves pollry The reseryes policy of Christopherfs Smile Is to maintain a balance on unrestrittive funds to cover any commitments made by the charlty. As at 30 April 2023 the charity had no commitments. There will be a further submission to add a Liquid Biopsy test for all paediatric non CNS Icentral Nervous System which includes brain tumours at the next round of Genomic Medicine Service Test Directory updates. Publlcity and Social Media Christopherfs Smile has continued to use social media as a platform for communicating its activities to SUprterS. Christopherfs Smile ha5 a Facebook Page: htt vThvw.facebook.com Christo herssmile Christopherfs Smile also has an X account Ifornierly Twitter account): htt cozkids twitter.com
Statement of Public Benefit We continue to fund research into new treatments for childhood cancer. We malntaln that our research must benefit as many children diagnosed with cancer as Possible regardless of their race, nationality, sex or religion. For us all lives matter and we will ensure that our funded research and artivities benefft all children diagnosed with Canr. Trustee Message The trustees are increasingly frustrated at the speed of approval and implementation of the liquld biopsy tests for children. We will continue to campaign for change to ensure that implementations and ownershlp withln the NHS for implementstions do occur. Our objertlve In all our campaigning actNlties is to improve the outcomes for children diagnosed with cancer. The trustees of Christopherfs Smile are as committed as ever to enable the introduction of innovative dlagnostlcs and treatments for children diagnosed with cancer in line with our vision: "Our vision Is for every child diagnosed with childhood cancer to not only survive, but to reach adulthood enjoying a 8ood qualty of life." The trustees declare that they have approved the trustses, report above. Slgned on behalf of the charlty's trusto08. Mr Denls Conroy Treasurer Mrs Rosemary Conroy Trustee
CHARITY COMMISSION FOR ENGLAND ANO WALES chwl8t0pts Smll• 11296 Recei ts and ments accounts CC16a Forthe perlod from To 1st 2022 Joth Aprtl 2023 Section A Receipts and payments Unr¢$trfeted Restricted Deslgnated funth fund fund# toll E toth• n••rn•¢É IIKt n••r•4le io th• h•aw•t£ to tho nwYg•t£ Totsl funds Last year A1 R•e•l Donations onsorshi Fundraisin Cost offsets Gift Aid Interest 21 21. 36.644 1,748 2.187 Events l917 1947 710 l229 872 715 2,208 2,924 2Q715 28,132 44,851 A3P •nt• uid Bio Cost of fundraisin Adminislralion c051 Card and Transaction fee$ Bank char 44420 931 3S,329 events Sub total 49.352 05 49.757 SS,737 49.352 49.757 55,737 Net of rKolptsl(p•ym*ts) . AS Trnmfern betw¢on fund$ A8 Cash fund8 last y•ar •nd Cash funds this year end 21,625 10.886 13,(K13 4TT,74 468.138 13,iK13 2,698 470,836 492,461 2wogr20r8
Section B Statement of assets and liabilities at the end of the period Unrestricted fund to nMrgAt £ Restricted funds trt £ 0gsi9natgd funds to hMrMt£ D•tsl 81 Co8h fund• HS8C 130 C• Total cash funds 468,138 2.698 S(qr*d by OM orkn Iru8l•M an ol al Ihe tru8le68 Dgle of roval CoF4RO 24,1ts2J
Chri3+opher'3 Smile ec+z ki43 S ** cAn¢er too CHRISTOPHER'S SMILE FINANCIAL STA TEMENTS FOR THE YE4R ENDED 30APRIL 2023 NOTES l The financial stst¢m¢nts have been prepared using the rc¢eipts and payments basis for charities with gr05s income of less than £250,OIXI. 2 Th¢ movement in designated and restricted funds during the year were Balance BIF Receipts Payments Transfer to unrestricted Balance CIF Restricted Fund Donation5 by Trustees Interest Clothing Sales £715 £672 £0 Equipment purchases Administration costs Promotional items Bank charges £0 £326 £79 Phillip Ross Creditor Bonnett Creditor £2.287 £11,766 £0 £237 £11,766 £2,050 £0 Other Restricted £666 £1.387 £405 £i.000 £648 £14.719 £1,387 £405 £13,(X)3 £2,698 Desi8nated funds £0 £0 £0 £0 EO £0 £0 £0 All expenditure otherthan the costs of fundraising events and card and transaction fees are funded from the restricted fund. The restricted fund is funded by the trustees together with any interest received and the sale of any clothing which is sold at cost. io
Restricted Fund An amount of £2.287 was carried forward from last year tn reSirt of Residual Client Account Balances from Phillip Ross Solicitors During this financial year £237 was released from the totsl held as the six year time limit had been exceed. At 30 April £2,050 was held a5 restricted until the time it could be laImed has passed. An amount of £11,766 wa5 corned forward from last year in $pert of Residual Client Account Balances from 8onnetts Solicitors It was agree with Bonnetts that amounts under £l(Xl could be released after three months and amounts over £l(X) should be held for a year. Thi5 year £11.766 has been released to unrestricted At 30th April nothing was held was held as restricted Restricted costs We £405 this year due to the low level of expenditure reducin8 activities carried out by the charity. In previous yeats costs have been running around £600 the Trustees have decided to transfer £1. to unrestricted funds. The amount held in respect of the donations from Phillip Ross have been rin8-fend and are not effected by thls release. li
CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on tho accounts Section A Independent Examiner's Report Report to the trustoe61 Charyty mombors of I Chnstopherfs Smile | April 2023 1129906 On accounts for th• yoar ended , (If any) setouton pag•g11-11 I report to the trustees on my examlnation of the accounts of thè above charity Tru8V) for tha year ended R•8ponslbllltl•s and As the charity trustees of tho Trust. you are responslble for th8 preparatlon ba818 of roPt of the accounts in aOnCe wrth th8 r8quSrements of the Charities Act 2011 fthe Acr). I report in respect of my examinatbon of the Trust's accounts carried out under secuon 145 of thè 2011 Act and in carying out my examination, I havè followed the applicable Dlrections gNen by the Charity Commlsslon under Section 14515Xb) of the Act. I hav8 completed my examination. I confimi that no malerf81 matters have me to my attention ") in connection wilh the examination which gives me cause to believe that In, any mater181 respert accounllNJ records wero not kept In acc¢ydan¢8 wlth section 130 of the Act or the accounts do not accord wlth Ihe accountlng reo)rds Indendent examlnerfs statement I have no concems and have cx)m8 across no othor matters in connection with the examinalion to which attenb'on should be drawn In order to enable a proper understanding of 8cc4)unts to be reached. . Pleaso delete the woffts m the lyackels rfthey do nol apply. 3111012023 Name: Rashmikant Pandy8 Relevant professional qualificatlon(s) or body ', (rfany): Associaticm of Chartered Certified Accountants Addr•ss: 6 Watford Road HA6 3NR IER October 2018