Christopher'8 Smile coz kids 8 e+ concer too Trustees, Report th for the year ending 30 April 2022
Our vision is for every child diagnosed with childhood cancer to not only survive, but to reach adulthood enjoying a good quality of life. Charity Registration Number I1296 Trustees Mr Kevin Capel Mrs Karen Capel Mr Denis Conroy Mrs Rosemary Conroy Prlncipal Office 10 Ivy Drive Li8htwater Surrey GU18 5YZ Bankers HSBC plc 29 High Street Camberlev Surrev GU15 3RE Website www.christo herssmile.o Principal email address info christo herssmile.o -uk
Trustees Report for year ending 30 April 2022 Introduction to Christopherfs Smile In October 2006, Christopher Capel then aged 4 was diagnosed with Medulloblastoma. an aggressNe paediatric brain tumour. Following 21 months battling the disease Christopher lost his fi8ht for life in June 2(K18. nine day5 before his sixth birthday. Christopher was the only child of Karen and Kevin Capel. Following their tragic loss, Karen and Kevin Capel wanted to help chIldn with canr in the future by funding research into new treatsnents for childhood Canr. Background to Christopherfs Smile Christopherfs Smile started in October 2CM)8 and was registered as a charity by the Charity Commission by a Declaration of Trust Deed dated 10 May 2CM)9. The charity raises funding exclusively for paediatric cancer research with a bias towards the introdurtion of tar8eted therapies to replace the existing cytotoxic chemotherapy and radio therapy treatments currently used. Support for the charity continues to grow and the chartty is well known In North West Surrey. Christopherfs Smile has a fimi principle that every penny of a donation should be used for the cause for which it was given. The charity has continued with this principle for the financial year 2021 2022. Alms and Objectives After Christopherfs death, we wanted to make a difference for children with cancer in the future. Although there are many charities that raise fund5 for different aspects of childhood cancer we saw the only way of breaking this terrible cycle was to fund research. We had seen first hand the efficacy and side effects of current treatments both in Christopher and the other children in the Royal Marsden's Children's Oncology ward. We learned that if a child survlves, thelr Ilfe and that of their family is never the same again. It was these memories that led to our charity's vision: "Our vision is that every child diagnosed with childhood cancer wlll not only survfve but reach adulthood enjoying a good quality of life." This vlsion has been tranated into our charivs objects as. l. Provide funding to non profit making searCh organisations that further research into paediatric cancers. 2. Raise awareness of the needs of non profft making research organisations that further research into paediatric cancers 3. Raise awareness in the general population of the need for fundin8 the research into paediatric Canr$ Christopherfs Smile is a target based organisation. We made the decision to set a fundraising target in order for our supporters to know what their money is to be spent on. We also believe that a charit5 funds should be spent or allocated the earliest opportunty.
Christopherfs Smile continues to hold the following set of values. When we stsrted the charity we decided to adhere to a set of principles which we believed in and which our donors would respect.
Every penny of every donation would be used forthe cause forwhich it was 8Nen. Costs would kept to a minimum and do as much ourselves as we can. Where we need to buy in products or expertise we would control costs vigorously. Every donor or supporter should be shown exactly where their donation has been spent. Build a relationship with donors and value every donatlon no matter how Small. Ensure that funds are spent in the best way possible to get maximum benefft from them. We set these objectives for our first year and our aim is that they will remaln in place while Christophefs Smile is still needed to rdise funds for childhood cancer research. Paedlatric Oncology Activities and Influential Factors May 2021- Aprll 2022 Thls year has been the second year where Christopherfs Smile's actNtties have been influenced greatly by the Covid 19 pandemic. As the UK slowly exits from Covid 19 re5triction5, the pandemic is likely to leave a legacy in a number of areas of fundraisin8 activity. Notabty these are.. A huge reductlon In the use of cash and a greater transition to spendin8 usin8 cards or ca5hle5S Systems such as Apple Pay, Goo8le Pay and PayPal. Face to face fundraising actNities have not existed during the pandemic and wlll take time to resume due to people's relurtance to mix freely. Working from home has become an accepted practice and this has caused an almost elimination of socialisin8 both inside and outside of the workplace and any subsequent charity support actNities. A reappraisal of people's finances durlng the pandemic and the prloritisation of familv spending resulting in fewer charity donations especially as charities became less visible durin8 the pandemlc perlod. The factors above have meant a huge decline in income for Christopherfs Smile. This decline in income has meant a slower 8rowth in our reserves. Our 'Liquid Biopsies for Children. project finished at the end of December 2021 and while this project has resulted in more evidence for Liquid Biopsies to be used in NHS Standard of Care. our high level objective of Includlng braln tumours In thi5 work wa5 not successful. This was due to a number of factors, the chief fattor being the availability of cerebral spinal fluid for genomlc analysls. Thls Issue must be corrected before we as a charity will fund projects to gain enough eviden for Liquid Biopsies to be used in NHS Standard of ca for children with brain tumours. Fundln8 fure Projerts The trustees of Christopherfs Srnile take their responsibilities for the spending of donors. funding very seriously. We will not fund a project just to say we have a project in progress regardless of the benefits that the project initiators claim. The trustees are still commttted to the genomic analysis of brain tumour DNA in order to assist in the furtherance of treatments for paediatric brain tumours. Paediatric brain tumours kill more children than any other type of paediatric cancer and it 15 for thi5 reason we a prepared to fund future projects but only when the procedural and logistical issues
that have severely retarded progress in obtaining cerebral spinal fluid have been resolved. The trustees firmly support the view that the analysis of ctDNA from cerebral spinal fluid will be a revolution for some types of brain tumour that are currently inoperable. It is completely ironic that the genomic analysis technology exists as it is no different to that in place for other solid tumour liquid biopsies. The difficulties are entirety Pr(edural and logistical and we continue to talk to relevant parties to get these issues resofved. When this has been achieved. we will be prepared to fund a project but not before.
Income for year ending 30 April 2022 £16884 Cost Offset £25780 £2187 Incomefrom events Donations Sponsorship Grants GiftAid interes¢ qronts spedftolfylorcost offset £26 Running Costs £48 Card trnnsaction fees £134 Cost of events £16858 Net amount after costs £25732 £2053 Profitfrom events Net Donatlons Sponsorshlp Grnnts GIftAld £10980 Increase in restricted and designated fvnds note £33663 Availablefor researchfvnding Note: _ £3(KJO vms transferred from cost offset to research ftjnding and £2878 was released from amounts paid by solicitors. Please see the Notes to the accounts for full detsil.
Our Achievements Fundraising In the year May 2021 to April 2022 Christopherfs Srnile has directly raised funding only through direct donations: Dlrect donations Donations were received in a number of ways:
Direct donations either in person or by post Donations from organisations or compan$ Support from clubs and associations. Grants Made Liquid 8iopsies for Children Start date I"January 2019. Maximum Amount Committed £240,844 over 2 years. This grant will fund consumables for liquid biopsy tests. Manpower for the prolect is provided through a BRC funded ICR PhD student. It should be noted that the maximum amount committed will be under constant review and all opportunities for economies will be explored. No compromise on project quality will be made to reduce costs. Thls projett was delayed for I year during the Covld 19 pandemic whlch ha5 resulted in the agreed project spend to be spread over a 3 year period. It must be noted that Christopherfs Smile has not been charged with any additional costs for the project as our fundin8 cOVed DNA sequencin8 Costs only and these dld not change over the Ilfe cycle of the project. Financial review Highlights Total receipts were £44.851 with un$tr1rted net receipts of £27,967 Restrirted funds mainly comprise donations from the trustees. donations from solicitors wlth tlme restrictions on them moving to unrestricted and interest receivable. Donation5 from the trustees and interest re1vable are used to cover of the running costs of the charity. Designated funds are amounts donated to the charity for specific purposes. Amounts paid into the restricted funds exe costs by £16.858 this year. When added to amounts brought forward from last year this 8rves a balance of £20,597. This balance comprises £16,931 from solicitors and E3.666 other restricted income. Restricted costs have been running at around £600 in previou5 years although this year they were onty £26 due to reduction in costs. It has therefore been declded to transfer £3.CKX) from restricted funds into unrestritted fijnds. An additional amount of £2,878 has also been transferred to unrestricted from balanS received from solicitors leaving a
balance of £14,719 included in restricted funds and this is fully described in the notes to the accounts. All clothin8 Costs are induded in restricted funds as most of the clothing bought is gsven to people who are competing in sponsored events to raise money for the charity. Any leS are made are at cost and the receipts are added to the restricted funds budget. Total Funds Available for Charltable Glvln8 Total funds available in unrestricted funds as at 30 April were £477.742. From these funds £48,420 has already been committed to the ICR. Gift Ald Gift Aid on sponsorship and donations totalled £2.298 Reserves policy The reserves policy of Chrlstopherfs Smlle is to maintain a balance on unrestrictive funds to cover any commitments made by the charity. As at 30 April 2022 our commitments were £48,420 the balance on the unrestricted funds at 30 April 2022 of £477,742 fully covered this commitment. Liquid Biopsles for Chfildren Our latest project is Liquid Biopsies for Chiklren Dia8nosed with Cancer. This is a next step to our funding of the development of the NGS Panel Test. A liquid blopsy Is a genetSc test of circulatlng tumour DNA in a chlld's blood or <ebraI splnal fluid ICSFI. There has also been a submlssion to add a rtDNA sequencing test for Neuroblastoma to the Genomlc Medlcine servi Genomic Test Directory. Due to work that needs to be carried out to introduce the analysls of ctDNA Into the Genomic Laboratory Hubs there has been a delay in Implementin8 CtDNA tests into NHS Stsndard of Care. We hope ihis will be resofved as quickly as possible. There will be a further submission to add a Liquid Biopsy test for all paediatric non CNS (Central NeNous System which includes brain tumoursl tumours at ihe next round of Genomic Medlcine Service Test Dlfectory updates. Publicity and Soaal Media Christopherfs Smile has continued to use social media as a platfonn fi)r communicating Its activlties to supporters. Chrlstopherfs Smile has a Fatebook Page". htt www.fa book.com Christo herssmile Christopherfs Smile also has a TwFtter account= htt twitter.com cozkids
ststement of Public Benefit We continue to fund research into new treatments for childhood cancer. We maintain that our research must benefit as many children dia8nosed with cancer a5 possible regardless of their race, nationality, sex or religion. For us all lives matter and we will ensure that our funded research and activities benefit all children diagnosed with cancer. Trustee Message The trustees are again very proud of the achievements of the charity. We are mindful that to maximise the patient benefit from projects funded by Christopherfs Smile. Implementations need to occur as soon as practicably possible. We will continue to campaign for change to ensure that implementations and ownership within the NHS for implementations actually do occur. Our objective in all our campaigning activitie5 is to improve the outcomes for children diagnosed with cancer. The trustees of Christopherfs Smile are as committed as ever to enable the introductK*n of innovative diagnostlcs and treatments for children dia8nosed with cancer in line wlth our vision= "Our vision is for every child diagnosed with chlldhood cancer to not only survive, but to reach adulthood enjoying a good quality of life." Tha trustees declare that th•y hav• approved the trustoos. report abov6. Signed on behalf of the charity's tTUStees Mr Denls Conrov Treasurer 1411011£ Mrs Rosemary Conrov Trustee IglioliL
CHARITY COMMISSION FOR ENGLAND AND WALES ChrFstOprfS Smll• Receipts and payments accounts CC16a For the perlod late 1Jt 2021 To 30th Apfil 2022 Section A Receipts and payments Unre$iricQd funds R¢stricted funds D•sigrwtod funds Totsl fund• Last yoar A1 Recelpts Donations Grants onsorshi Fundraisin Cost off$els Clothin Gift Aid Interest 21.734 44.037 1.748 1187 Ev&n18 1,748 2,187 50 2,0 690 2.924 3,924 3.527 Sub ¢ot•l{Gross income forAR) 44.861 62,833 Total recelpts 27,987 16,884 44,851 52,833 A3Pa •nts Po$1 Doctorate Researcher at ICR uid Bi Pro Purchase of Other e ment Cost of fundraisin Adminislralion cost Promotional Items Clothin Card and Transaction fees Bank cha es $6.$29 ment for ICR uichases evenl$ SS.529 8J,312 134 134 Sub total SS.711 50,737 63.466 A4 Assot and Inve8tmwrt pureha8e¥. •90 tabl• Sub total aaz< 55,711 55,737 63,458 Net ofrn¢w'pW(p•yments) . AS Tran•fers behv••n fund8 A6 Cash fun(IB last ar end Cash funds thls end 16,8 5,878 3.739 14,719 10.886 10,625 5,878 499,608 477,742 503,347 492.461 513,972 503,347 0511112022
Section B Statement of assets and liabilities at the end of the period UnrBstrirttril lunds Re8tricted funds Dgsi9natgd funds lo noare•t £ Ctego D•tsllg B1 Ca8h fund8 14.719 $,074 HSBC rotsl ¢a8h fvnds 477.742 14,719 tyxMrt(}I Slgned by one or trust on boh8lfof al the truste81 Sh3nature Prlnl Nam& Dalè of roval 2sli .12 E COKJQO 10
Ghri8topher'8 Sffjile e02 tid3 8et ctsn¢er t¢0 CHRISTOPHER?S SMILE F]NANCL4L STA TEMENTS FOR THE YE4R ENDED 30APRJL 2022 NOTES l Th¢ financial stat¢m¢nts have been prepared using the receipts and payments basis for charities with 8mss income of less than £250.0(X). 2 The movement in designated and r¢strici¢d funds during the year were Balance BIF Receipts Payments Transfer to unrestricted Balance C/F Restrlcted Fund Donation5 by Trustees Interest Clothing Sales £50 £2,924 £0 Equipment purchases Administration costs Promotional items Bank charges £0 £0 £26 Phlllip Ross Credltor Bonnett Creditor £886 £2,135 £2.144 £11.766 £743 £2,135 £2,287 £11,766 Other Restrlcted £718 £2,974 £26 £3,000 £666 £3.739 £16.884 £26 £5,878 £14,719 Designated funds £0 £0 £0 £0 £0 £0 £0 £0 All expenditure other than the costs of fundraising events and card and transaction fees are funded from the restricted fund. The restricted fund is funded by the trustees together with any interest received and the sale of any clothin8 which is sold at cost. Page 11
Restricted Fund An amount of £886 was carried forward from last year in respert of Residual Client Account Balances from Phillip Ross Solicitors During the course of this year two additional donations were made by Phillip Ross Solicitors 3rd December we received £2.094 of which £985 was restricted and on the 29th April we recived E2.967 of whlch £1,159 was restricted During this financial year £743 was released from the total held as the six year time limit had been exceed. At 30 April £2,287 was held as restricted until the time it could be reclaimed has passed. An amount of £2,135 was carried forward from last year in SpeCt of Residual Client Account Balances from Bonnetts Solicitors Durlng the course of this year we received two additional donations from Bonnett5 Solicitors of Residual Client Account Balances that they had been unable to clear from their accounts. On 19th May we received £7,577 and on 5th August we received an additional £4,189 It was agree wlth Bonnetts that amounts under £ICKI could be released after three months and amounts over £l(KJ should be held for a year. This year £2.135 has been released to unrestrlcted At 30th April £11,766 was held a5 restricted Restricted costs were £26 this year due to the low level of expendlture reducing activities carrled out by the charity. In previous years costs have been running around £61X) the Trustees have decided to transfer £3.0(Kl to unrestricted funds. The amount held in respect of the donations from Phillip Ross and Bonnetts have been ring-fenced and are not effected by this release. Pa8e 12
CHARtrY COMMISSION , FOR ENGLAND AND WALES Independent examinerfs report on the accounts Section A Independent Examiner's Report Report to tho tftt0 mbers rrf Christopherfs Smile On accourt8 for th• yr 30 April 2022 Charity no Ilf any) 1129906 I repcrft to the trusttss on my examination of the a¢(x)unts of the above charity fthe Tntsf) for ts year ended Rg$pon8lbllltl•8 and $18 of r•port As IIK8 dMritys trustees, you are responsble for the preparation of tl accounts Sn accordance with th8 requirements of the Charitigs Act 2011 ('the Acr} I reE in respect of my examlnation of tha Trusfs accounts cathed out under sedlon 145 of the 2011 Act and in carying out my examlnation, I have followed all the applicable 'rectS given by ts Chadty Commlsslon under sectim 145(5Xb) of the Act. Ind•p•ndent tTr ch •xamlnerfs stat•m•nt undertake the y belng 8 qu appl listed bodyll. Dalete [ J if not applicabl8. nam8 of I have completed my examinatlon. l rnnfirn that rKJ materf81 matters have come to my attentlon in nnectIOn wlth the examinatK)n (olher than that dlsc103ed below ") which gives me cause lo believe that in, any materlal respect the accounting rec¥xds were not kept In acwrdance Iwth sectlon 130 of the Charltles Ac(. or th8 accounts did r1 acf))rd wlth the accounting records", or the accounts did not comply with the applicable requlremer conceming the form and content of accounts sel out in the Charit188 (AOUnts and Reports) Regulations 2008 olher than any requiremenl thal the accounts give a Yrue and fairf view which is not a matter considered as part of an independent examination. I h8ve no concerns and have come across no other matter6 in connèction th the examination to which attention should be drawn in this report in order to enable a proper understandir¥J of the accounts to be reached. . F¥e&se delete tha b•Drds in the lyackets rfthey do not apply. Slgned: Dat•: 111112022 Namo: Rashmikant Pandya Rolovant profossional l Fellow of the charte AssociatK)n of Certified Accountant$ qualificatlon(s) w body .; IER Oct 2018
(If any): Addross: i 6 Wattord Road Northwood HA8 3NR Section B Disclosure Only complete if the examiner needs to highlight material matters of concern {see CC32. Independent examln8lM)n of tharity accounts: directions and gKIan lor examiners). Gfvo here brl•f d•talls of any items that the examinor wishos to dlsclos•. IER Oct 2018