OpenCharities

Dravet Syndrome UK

The Idea League UK

Country
England & Wales
Charity number
1128289
Status
Registered
Registered
Feb. 26, 2009
Legal form
Trust
Area of benefit
Undefined. In Practice, National

Address

Address
PO Box 756
CHESTERFIELD
S43 9EB

Contact

Phone
01246 912 421
Email
[email protected]
Website
dravet.org.uk
Website screenshot

Activities

Support for children and adults suffering from Dravet syndrome and their families

Objects: 1) To Fund Research Into Dravet Syndrome And Other Related Genetic Sodium Channel Epilepsy's To Benefit Sufferers Of Dravet Syndrome And Their Families.2) To Advance The Education Of The Medical Community In The Subject Of Dravet Syndrome, Therefore Prompting Accurate And Early Diagnosis And Benefiting Sufferers Of Dravet Syndrome And Their Families.3) To Promote The Physical And Mental Health Of Sufferers Of Dravet Syndrome And Their Families Through The Provision Of Financial Assistance, Support, Education And Practical Advice.

Classification

How
Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England

Finances

Period end Income Expenditure Assets Employees
Jan. 31, 2025 £561,982 £796,545 £306,878 7
Jan. 31, 2024 £487,892 £436,435 — —
Jan. 31, 2023 £456,074 £371,118 — —
Jan. 31, 2022 £342,790 £364,519 — —
Jan. 31, 2021 £345,071 £305,812 — —

Trustees

Name Appointed
Galia Wilson-John (Chair) May 12, 2015
Alex Williams July 26, 2023
John David Rees Lloyd Feb. 1, 2019
Neil Williamson Sept. 1, 2020
Stephanie Smith June 26, 2024