OpenCharities

Dravet Syndrome UK

The Idea League UK

Country
England & Wales
Charity number
1128289
Status
Registered
Reporting
Up to date Last filed Aug. 27, 2026. Filing history
Registered
Feb. 26, 2009
Legal form
Trust

Address

Address
PO Box 756
Chesterfield
S43 9EB

Contact

Phone
01246 912421
Email
info@dravet.org.uk
Website
dravet.org.uk
Screenshot of the Dravet Syndrome UK website

Activities

Support for children and adults suffering from Dravet syndrome and their families

Objects: 1) To Fund Research Into Dravet Syndrome And Other Related Genetic Sodium Channel Epilepsy's To Benefit Sufferers Of Dravet Syndrome And Their Families.2) To Advance The Education Of The Medical Community In The Subject Of Dravet Syndrome, Therefore Prompting Accurate And Early Diagnosis And Benefiting Sufferers Of Dravet Syndrome And Their Families.3) To Promote The Physical And Mental Health Of Sufferers Of Dravet Syndrome And Their Families Through The Provision Of Financial Assistance, Support, Education And Practical Advice.

Classification

How
Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities

Geography

Area of benefit
Undefined. In Practice, National
Country
Northern Ireland, Scotland
Region
Throughout England

Finances

Period end Filed Income Expenditure Assets Employees
Jan. 31, 2026 Aug. 27, 2026On time £640,286 £735,372 £211,792 9
Jan. 31, 2025 July 25, 2025On time £561,982 £796,545 £306,878 7
Jan. 31, 2024 Nov. 27, 2024On time £487,892 £436,435 - -
Jan. 31, 2023 Oct. 5, 2023On time £456,074 £371,118 - -
Jan. 31, 2022 Oct. 31, 2022On time £342,790 £364,519 - -
Jan. 31, 2021 July 14, 2021 £345,071 £305,812 - -

Trustees

Name Appointed
Galia Wilson-John (Chair) May 12, 2015
Alex Williams July 26, 2023
John David Rees Lloyd Feb. 1, 2019
Neil Williamson Sept. 1, 2020
Stephanie Smith June 26, 2024