# DRAVET SYNDROME UK

## Details

- **Country:** England & Wales
- **Charity number:** 1128289
- **Other names:** THE IDEA LEAGUE UK
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Feb. 26, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1128289


## Contact

- **Address:** PO Box 756, CHESTERFIELD
- **Postcode:** S43 9EB
- **Phone:** 01246 912 421
- **Email:** info@dravet.org.uk
- **Website:** www.dravet.org.uk



## Activities

**Objects:** 1) TO FUND RESEARCH INTO DRAVET SYNDROME AND OTHER RELATED GENETIC SODIUM CHANNEL EPILEPSY'S TO BENEFIT SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.2) TO ADVANCE THE EDUCATION OF THE MEDICAL COMMUNITY IN THE SUBJECT OF DRAVET SYNDROME, THEREFORE PROMPTING ACCURATE AND EARLY DIAGNOSIS AND BENEFITING SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.3) TO PROMOTE THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE.

**Activities:** Support for children and adults suffering from Dravet syndrome and their families

**Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Jan. 31, 2025 | £561982 | £796545 | £306878 | 7 |
| Jan. 31, 2024 | £487892 | £436435 | — | — |
| Jan. 31, 2023 | £456074 | £371118 | — | — |
| Jan. 31, 2022 | £342790 | £364519 | — | — |
| Jan. 31, 2021 | £345071 | £305812 | — | — |



## Trustees

- **Galia Wilson-John** (Chair) — appointed May 12, 2015
- Alex Williams — appointed July 26, 2023
- John David Rees Lloyd — appointed Feb. 1, 2019
- Neil Williamson — appointed Sept. 1, 2020
- Stephanie Smith — appointed June 26, 2024