The Fragile X Society
- Country
- England & Wales
- Charity number
- 1127861
- Status
- Registered
- Reporting
- Up to date Last filed Sept. 21, 2026. Filing history
- Registered
- Feb. 3, 2009
- Legal form
- Charitable company
- Company number
- 06724061
Address
- Address
- Suite 5
The Chestnuts
4 Stortford Road
Great Dunmow
Great Du
Contact
- Phone
- 01371 875100
- info@fragilex.org.uk
- Website
fragilex.org.uk
Activities
Fragile X is a family of inherited genetic conditions, including Fragile X Syndrome. We provide information and practical guidance to support and empower individuals and families living with Fragile X We educate and inform public and professionals about Fragile X, to raise awareness and understanding and improve careWe encourage and publicise research into Fragile X
Objects: 3.1 To advance the health and well being of individuals affected by the genetic condition known as the Fragile X Syndrome and associated conditions3.2 To advance public education about the syndrome in order to help improve the environment, conditions and services offered to people with Fragile X and associated conditions, and their families.
Classification
- How
- Provides Advocacy/advice/information
- What
- Education/training, Disability
- Who
- People With Disabilities
Geography
- Area of benefit
- Undefined. In Practice National
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Filed | Income | Expenditure |
|---|---|---|---|
| Feb. 28, 2026 | Sept. 21, 2026On time | £252,094 | £176,152 |
| Feb. 28, 2025 | Oct. 6, 2025On time | £144,935 | £168,346 |
| Feb. 29, 2024 | Aug. 14, 2024On time | £133,582 | £147,224 |
| Feb. 28, 2023 | Oct. 24, 2023On time | £137,695 | £162,967 |
| Feb. 28, 2022 | June 30, 2022On time | £205,521 | £127,654 |
| Feb. 28, 2021 | Nov. 11, 2021 | £148,121 | £120,841 |
Trustees
| Name | Appointed |
|---|---|
| Steve Harris (Chair) | Sept. 22, 2020 |
| Andrew Jaques | Sept. 25, 2021 |
| Andy Clarke | Oct. 15, 2022 |
| Anne Eccleshall | Sept. 25, 2021 |
| Erin Williams | April 25, 2026 |
| Jonny Cobbold | June 1, 2024 |
| Lily Pattison | April 25, 2026 |
| Michelle Flynn | Oct. 12, 2025 |
| Molly Jaques | April 25, 2026 |
| Patricia Eleanor Grace Pattison | June 19, 2024 |
| Tim Eccleshall | Sept. 22, 2020 |