# THE FRAGILE X SOCIETY

## Details

- **Country:** England & Wales
- **Charity number:** 1127861
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Feb. 3, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1127861


## Contact

- **Address:** Suite 5, The Chestnuts, 4 Stortford Road, Great Dunmow
- **Postcode:** Great Du
- **Phone:** 01371875100
- **Email:** info@fragilex.org.uk
- **Website:** www.fragilex.org.uk



## Activities

**Objects:** 3.1 To advance the health and well being of individuals affected by the genetic condition known as the Fragile X Syndrome and associated conditions3.2 To advance public education about the syndrome in order to help improve the environment, conditions and services offered to people with Fragile X and associated conditions, and their families.

**Activities:** Fragile X is a family of inherited genetic conditions, including Fragile X Syndrome. We provide information and practical guidance to support and empower individuals and families living with Fragile X We educate and inform public and professionals about Fragile X, to raise awareness and understanding and improve careWe encourage and publicise research into Fragile X

**Area of benefit:** UNDEFINED. IN PRACTICE NATIONAL




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** Education/training, Disability
- **Who:** People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Feb. 28, 2025 | £144935 | £168346 | — | — |
| Feb. 29, 2024 | £133582 | £147224 | — | — |
| Feb. 28, 2023 | £137695 | £162967 | — | — |
| Feb. 28, 2022 | £205521 | £127654 | — | — |
| Feb. 28, 2021 | £148121 | £120841 | — | — |



## Trustees

- **Steve Harris** (Chair) — appointed Sept. 22, 2020
- Andrew Jaques — appointed Sept. 25, 2021
- Andy Clarke — appointed Oct. 15, 2022
- Anne Eccleshall — appointed Sept. 25, 2021
- Jonny Cobbold — appointed June 1, 2024
- Mary Martin — appointed Sept. 22, 2020
- Michelle Flynn — appointed Oct. 12, 2025
- Patricia Eleanor Grace Pattison — appointed June 19, 2024
- Tim Eccleshall — appointed Sept. 22, 2020