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==> picture [292 x 238] intentionally omitted <==
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| KF:Proof read Alicja's PhD - subsequently submitted and was |
KF:Proof read Alicja's PhD - subsequently submitted and was |
KF:Proof read Alicja's PhD - subsequently submitted and was |
accepted | accepted | - to produce | - to produce | documentation | documentation | and present at World Congress | and present at World Congress |
|---|---|---|---|---|---|---|---|---|---|---|
| SF:Saba and Ovie contacted re. update on Research project | - | confirmed | by Sheffield | Uni contracts | dept that start cate was 01.07.2022 | |||||
| which is within the application stipulations. Requested more |
regular | up dates. | ||||||||
| SF:organised VCRs and DVDs for lodge, acquired VCR/DVD |
combi | and | cabling | |||||||
| SF:collected board games for lodge | ||||||||||
| SF:liaised with Helen at Allerthorpe to post heating instructions |
in lodge | |||||||||
| SF:delivered TVstands and new smart TVs to NCCC Rai rooms |
||||||||||
| Second RAI room completed in Nottingham |
||||||||||
| SF:minutes for October 2022 AGM sent to trustees prior to |
AGM | |||||||||
| SF:Liaised with event co-ordinator in Kent to provide pins, leaflets and collection tins for fund |
raiser | |||||||||
| SF:leaflets to Birmingham | ||||||||||
| KF:further discussions with UCLH re paeds room |
||||||||||
| KF:discussion regarding national disparity in safety measures |
in place in | RAI rooms | ||||||||
| KF:BAETS meeting re. clinical trials for TC | ||||||||||
| KF:call with JW and MS re. Birmingham work - imminentKF: |
call with Jamie and Alicja | re. PhD - sugges | tto produce abstract for WTCC | |||||||
| and also use for chapter in UKM's book revision -'The Covid |
Effect' | |||||||||
| KF:June meeting planning -WTTC -with JW and MS |
||||||||||
| KF:cail with NT and MT re WTCC | ||||||||||
| KF:call with RBre.WTCC | ||||||||||
| KF:call with RBre. HUMA - BTCTto recruit patients to trial |
the | HUMA app for low | risk | patients post | 12 | months | ||||
| KF + AH: filming for Ho T trial | ||||||||||
| KF:Scottish TC meeting x2 | ||||||||||
| KF:Abstracts for World Congress | ||||||||||
| KF:facilitated recruitment ofpatients for HUMA app trial |
||||||||||
| KF: Meeting with KKre. planning for World Congress |
||||||||||
| KF:Co-ordinated meeting with Terry and patients re HUMA |
app | |||||||||
| KF; flyer, programme and regn form completed for TCWC |
||||||||||
| KF:NCRI meeting | ||||||||||
| KF:recruitment ofDG to assist in helpline |
||||||||||
| KF:HoT trila meeting | ||||||||||
| KF:cordinated with Alicja to present PhD paper at WTCC |
||||||||||
| SF:Liaised with Allerthorpe re. heating mafunction |
||||||||||
| SF:installation ofartwork and security lock for lodge |
||||||||||
| SF:installation of DVD/VCR combi for DVDs and VCRs for |
patients | use | at lodge | |||||||
| SF:catalogued childrens book and board games for patient |
use at lodge | |||||||||
| SF:BTCTinformation sent to new professional client in Buckinghamshire |
||||||||||
| SF:exploring QR code cards for dissemination to patients to |
facilitate mobile access to information | film | and website | |||||||
| KF:submission to Scottish Medicine Committee for Dabrafenib |
||||||||||
| KF:meeting to discuss viability of pt meeting alongside WTTC |
- deferred | due to poor patient response | ||||||||
| KF:with Grosvenor Interiors - x2 UCLH RAI rooms completed |
with gaming units and TVs |
|||||||||
| KF: HoT thai meeeting to discuss patient recruitment |
||||||||||
| SF:QR code cards available for national distribution KF:Zoom cali with BNMS to update LID-? Survey with BTF |
||||||||||
| KF:Zoom call to submit for DBTto Scottish Medicine | ||||||||||
| KF:Zoom call to discuss how ION results could impact HoT trial | ||||||||||
| KF:call with Scottish pharmacists regarding outome ofD8T submission |
-deferred | |||||||||
| KF: HoT trial meeting | ||||||||||
| KF; in association with Euan Preston - HoT trial film published |
online | |||||||||
| KF:radio 1 interview on TCawareness |
||||||||||
| KF:chapter for UKM book completed | ||||||||||
| KF:Zoom call re LID | ||||||||||
| KF: discussions with JW, JH re publication ofAlicja's PhD |
||||||||||
| KF:discussion with London Imperial nurses re. awareness |
day | |||||||||
| SF:revised leaflet printed to include QR codes for film and |
website | access, and also donation | platform | |||||||
| SF:protracted correspondence with 'Supported Giving' re doption oftheir platform |
for | patient | donations | and fund raising - QR codes | ||||||
| KF: loN results meeting | ||||||||||
| KF +AH: planning for patient meeting in October at Imperial |
College | Hospitals, London |
||||||||
| KF+AH: training meeting |
||||||||||
| KF:Zoom meeting with new CNS in Oxford |
||||||||||
| KF:article for local newspaper published |
||||||||||
| KF:co-ordinated press release of patient's story |
||||||||||
| KF:NCRI meeting | ||||||||||
| KF:meeting with TSG re. HoT trial |
||||||||||
| KF:meeting with RSM |
||||||||||
| KF:meeting to discuss implications of no RAI re loN |
||||||||||
| KF:BAETStrustees meeting | ||||||||||
| KF:co-ordinated providing lunch for patient meeting at Charing |
Cross, Maggies unit |
| TRUSTEES ANNUAL | TRUSTEES ANNUAL | TRUSTEES ANNUAL | TRUSTEES ANNUAL | TRUSTEES ANNUAL | REPORT | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| FOR | THE YEAR ENDED | 31ST | DECEMBER 2023 | ||||||||
| Summa | ofthe main activities and achievements | undertaken | for | the | ublic benefit in relation tothe ob' cts continued. .. | ||||||
| SF:responsible for dissemination of |
BTCT | information | material to medical | centres and patients | |||||||
| SF - corresponds with Allerthorpe Country |
Park regularly | with updates | to lodge bookings | ||||||||
| SF - liaises | with AH and patients to organise booking dates | ||||||||||
| SF - corresponds with clients to secure |
bookings | ||||||||||
| SF - administers donations for lodge |
bookings | ||||||||||
| SF - administers reciepts to donators |
|||||||||||
| SF - administers final year accounts and general charity |
procedures | ||||||||||
| SF:resonsible for 'Supported Giving' |
donation | platform | |||||||||
| Abbreviations: | |||||||||||
| KF | Kate Farnell | ||||||||||
| TSH | thyroid stimulating hormone |
||||||||||
| BAETS | British association ofendocrine | and | thy | roid surgeons | |||||||
| CNS | clinical nurse specialist | ||||||||||
| NICE | National Institute for Clinical |
Excellence | |||||||||
| NCCC | Newcastle Centre for Cancer Care |
||||||||||
| TCN | Thyroid Cancer Network | ||||||||||
| TC | thyroid cancer | ||||||||||
| UKM | Ufjal Maflick | ||||||||||
| RCP | royal college ofphysicians | ||||||||||
| HOT | hemi or total | ||||||||||
| EORTC | European Organisation for Research a |
nd Treatment of | Cancer | ||||||||
| UCLH | University College Hospitals, |
London | |||||||||
| CRUK | cancer research UK |
||||||||||
| NCRI | national clinical research |
institute | |||||||||
| RAI | radioactive iodine |
||||||||||
| LID | Low Iodine Diet | ||||||||||
| MS | Mark Strachan | ||||||||||
| PIL | Patient Information Leaflet |
||||||||||
| KN | Kate Newbold | ||||||||||
| DK | Dae Kim | ||||||||||
| ATC | anaptasticl advanced thyroid |
cancer | |||||||||
| BTA | British Thyroid Association | ||||||||||
| AH | Amy Horton | ||||||||||
| Pt. | Patient | ||||||||||
| BTCT | Butterfly Thyroid Cancer Trust | ||||||||||
| SCN | Scottish Cancer Network | ||||||||||
| RSM | Royal Society of Medicine | ||||||||||
| WTCC | World Thyroid Cancer Congress | ||||||||||
| JW | Jon Wadsley | ||||||||||
| AGM | Annual General Meeting |
||||||||||
| SF | Steven Farnell | ||||||||||
| NT | Neil Tolley | ||||||||||
| MT | Mike Tuttle | ||||||||||
| WTTC | World Thyroid Cancer Congress | ||||||||||
| RB | Richard Bliss | ||||||||||
| KK | Kate Kendali | ||||||||||
| DG | Dawn Golightly | ||||||||||
| TSG | Tumour Specific Group |
==> picture [122 x 82] intentionally omitted <==
| Statement offinancia | l affairs for the | ear to 31 | December 2023 | ||
|---|---|---|---|---|---|
| Note | Unrestncted | Restricted | ~Desi neted | Total | |
| lncomin Resources |
Funds | Funds | Funds | Funds | 2022 |
| Grants Donations Gift Aid Deposit account interest |
70,000 30?,707 1,315 2,742 |
70,000 307,707 1,315 2,742 |
70,000 68,147 905 181 |
||
| Total incomin Resources |
381,764 | 381,764 | 139,233 | ||
| ~Es enditcre | |||||
| Direct charitable expenditure |
|||||
| Payroll Professional fees |
66,960 31,049 |
66,960 31,049 |
66,960 30,766 |
||
| Telephone Postage and stationery insurance Advertising Motor 8 travelling costs Repairs and maintenance |
2,663 1,823 1,037 2,194 2,473 753 |
2,663 1,823 1,037 2,194 2,473 753 |
2,355 3,134 1,092 1,689 257 748 |
||
| Sundries Awards Grants 2 Holiday Lodge Costs Conferences |
1,736 36 6,045 102 |
7,706 | 1,736 36 7,706 6,045 102 |
1,440 1,066 6,693 2,839 |
|
| Phd Sponsorship 2 Accountancy |
7,930 420 |
7,930 420 |
15,860 390 |
||
| Profit on disposal ofasset Depreciation |
(415) 360 |
(415) 360 |
|||
| Total Ex enditure | 125,166 | 7,?06 | 132,872 | 135,289 | |
| Transfers between funds |
|||||
| Net Incoming/Outgoing Resources Total funds brought forward |
256,598 416,896 |
(7,706) 95,134 |
248,892 512,030 |
3,944 508,086 |
|
| Total funds carried forward | 673,494 | 87,428 | 760,922 | 512,030 |
| NOTE | 2022 | 2022 | ||||
|---|---|---|---|---|---|---|
| FIXEDASSETS | ||||||
| Land 8 buildings | 180,000 | 180,000 | ||||
| Fixtures 8 | equipment | 2,037 | ||||
| CURRENT | ASSETS | |||||
| Debtors | ||||||
| Bank Accounts | 5?8,288 | 331,435 | ||||
| Cash In Hand |
597 | 578,885 | 595 | 332,030 | ||
| 760,922 | 512,030 | |||||
| CURRENT | LIABILITIES | |||||
| NET ASSETS | 512,030 | |||||
| FUNDS | ||||||
| Restricted | Funds | |||||
| Unrestricted | Funds | 673,494 | 416,896 | |||
| Designated | funds | 8?,428 | 95,134 | |||
| 760,922 | 512,030 |
==> picture [224 x 8] intentionally omitted <==
==> picture [57 x 6] intentionally omitted <==
| Research | Grant - University | Grant - University | Grant - University | ofSheffield | ?,930 | |||||
|---|---|---|---|---|---|---|---|---|---|---|
| Improvements | to RAI rooms | 7,706 | ||||||||
| 15,636 | ||||||||||
| 3 | Tan ible |
Fixed Assets | ||||||||
| Fixtures 8 | ~Hoitda | Total | ||||||||
| EttEmtmmeenntt | LodcOee | |||||||||
| B/f | 180,000 | 180,000 | ||||||||
| Additions | during the period | 2397 | 2,397 | |||||||
| 2,397 | 180,000 | 182,397 | ||||||||
| Depreciation | for the year | 360 | 360 | |||||||
| Net book | value | at 31 December 2023 | 2,037 | 180,000 | 182,037 | |||||
| 4 | Funds | |||||||||
| Transfer | ||||||||||
| Opening | Incoming | between | Outgoing | Closing | ||||||
| balance | resources | funds | resources | balance | ||||||
| Unrestricted | funds | 416,896 | 381,764 | 125166 | 673,494 | |||||
| Restricted | funds | |||||||||
| Designated | Funds | a) | 95,134 | 7,706 | 87,428 |
==> picture [332 x 53] intentionally omitted <==