##
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##
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##
##
##
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##
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|KF:Proof read Alicja's PhD - subsequently
submitted
and was|KF:Proof read Alicja's PhD - subsequently
submitted
and was|KF:Proof read Alicja's PhD - subsequently
submitted
and was|accepted|accepted|- to produce|- to produce|documentation|documentation|and present at World Congress|and present at World Congress|
|---|---|---|---|---|---|---|---|---|---|---|
|SF:Saba and Ovie contacted re. update on Research project||-|confirmed||by Sheffield||Uni contracts||dept that start cate was 01.07.2022||
|which is within the application
stipulations.
Requested
more|regular|||up dates.|||||||
|SF:organised
VCRs and DVDs for lodge, acquired
VCR/DVD||combi||and|cabling||||||
|SF:collected board games for lodge|||||||||||
|SF:liaised with Helen at Allerthorpe
to post heating
instructions|||in lodge||||||||
|SF:delivered
TVstands and new smart TVs to NCCC Rai rooms|||||||||||
|Second RAI room completed
in Nottingham|||||||||||
|SF:minutes
for October 2022 AGM sent to trustees
prior to|AGM||||||||||
|SF:Liaised with event co-ordinator
in Kent to provide pins, leaflets and collection tins for fund||||||||raiser|||
|SF:leaflets to Birmingham|||||||||||
|KF:further discussions
with UCLH re paeds room|||||||||||
|KF:discussion
regarding
national
disparity
in safety measures|||in place in||RAI rooms||||||
|KF:BAETS meeting re. clinical trials for TC|||||||||||
|KF:call with JW and MS re. Birmingham
work - imminentKF:||call with Jamie and Alicja|||||re. PhD - sugges|||tto produce abstract for WTCC|
|and also use for chapter
in UKM's book revision -'The Covid||Effect'|||||||||
|KF:June meeting
planning
-WTTC -with JW and MS|||||||||||
|KF:cail with NT and MT re WTCC|||||||||||
|KF:call with RBre.WTCC|||||||||||
|KF:call with RBre. HUMA - BTCTto recruit patients
to trial|the||HUMA app for low|||risk|patients post||12|months|
|KF + AH: filming for Ho T trial|||||||||||
|KF:Scottish TC meeting x2|||||||||||
|KF:Abstracts for World Congress|||||||||||
|KF:facilitated
recruitment
ofpatients for HUMA app trial|||||||||||
|KF: Meeting
with KKre. planning
for World Congress|||||||||||
|KF:Co-ordinated
meeting
with Terry and patients re HUMA|app||||||||||
|KF; flyer, programme
and regn form completed
for TCWC|||||||||||
|KF:NCRI meeting|||||||||||
|KF:recruitment
ofDG to assist in helpline|||||||||||
|KF:HoT trila meeting|||||||||||
|KF:cordinated
with Alicja to present PhD paper at WTCC|||||||||||
|SF:Liaised with Allerthorpe
re. heating
mafunction|||||||||||
|SF:installation
ofartwork
and security lock for lodge|||||||||||
|SF:installation
of DVD/VCR combi for DVDs and VCRs for|patients|||use|at lodge||||||
|SF:catalogued
childrens
book and board games for patient|use at lodge||||||||||
|SF:BTCTinformation
sent to new professional
client in Buckinghamshire|||||||||||
|SF:exploring QR code cards for dissemination
to patients to||facilitate mobile access to information|||||||film|and website|
|KF:submission
to Scottish Medicine Committee
for Dabrafenib|||||||||||
|KF:meeting
to discuss viability of pt meeting
alongside
WTTC|||- deferred||due to poor patient response||||||
|KF:with Grosvenor
Interiors - x2 UCLH RAI rooms completed||with gaming
units and TVs|||||||||
|KF: HoT thai meeeting
to discuss patient recruitment|||||||||||
|SF:QR code cards available
for national
distribution
KF:Zoom cali with BNMS to update
LID-? Survey with BTF|||||||||||
|KF:Zoom call to submit for DBTto Scottish Medicine|||||||||||
|KF:Zoom call to discuss how ION results could impact HoT trial|||||||||||
|KF:call with Scottish pharmacists
regarding
outome ofD8T submission|||||-deferred||||||
|KF: HoT trial meeting|||||||||||
|KF; in association
with Euan Preston - HoT trial film published|||online||||||||
|KF:radio 1 interview
on TCawareness|||||||||||
|KF:chapter for UKM book completed|||||||||||
|KF:Zoom call re LID|||||||||||
|KF: discussions
with JW, JH re publication
ofAlicja's PhD|||||||||||
|KF:discussion
with London
Imperial nurses re. awareness|day||||||||||
|SF:revised leaflet printed
to include QR codes for film and|website|||access, and also donation||||platform|||
|SF:protracted
correspondence
with 'Supported
Giving' re doption oftheir platform||||||for|patient|donations||and fund raising - QR codes|
|KF: loN results meeting|||||||||||
|KF +AH: planning
for patient meeting
in October at Imperial|College|||Hospitals,
London|||||||
|KF+AH: training
meeting|||||||||||
|KF:Zoom meeting
with new CNS in Oxford|||||||||||
|KF:article for local newspaper
published|||||||||||
|KF:co-ordinated
press release of patient's
story|||||||||||
|KF:NCRI meeting|||||||||||
|KF:meeting
with TSG re. HoT trial|||||||||||
|KF:meeting
with RSM|||||||||||
|KF:meeting to discuss implications
of no RAI re loN|||||||||||
|KF:BAETStrustees meeting|||||||||||
|KF:co-ordinated
providing
lunch for patient meeting at Charing|||Cross, Maggies unit||||||||
##
|||||||TRUSTEES ANNUAL|TRUSTEES ANNUAL|TRUSTEES ANNUAL|TRUSTEES ANNUAL|TRUSTEES ANNUAL|REPORT|
|---|---|---|---|---|---|---|---|---|---|---|---|
||||FOR||THE YEAR ENDED||||31ST||DECEMBER 2023|
|Summa|ofthe main activities and achievements||||||undertaken||for|the|ublic benefit in relation tothe ob' cts continued. ..|
|SF:responsible
for dissemination
of||BTCT||information|||material to medical||||centres and patients|
|SF - corresponds
with Allerthorpe
Country||||Park regularly||||with updates||to lodge bookings||
|SF - liaises|with AH and patients to organise booking dates|||||||||||
|SF - corresponds
with clients to secure|||bookings|||||||||
|SF - administers
donations
for lodge||bookings||||||||||
|SF - administers
reciepts to donators||||||||||||
|SF - administers
final year accounts and general charity||||||||procedures||||
|SF:resonsible
for 'Supported
Giving'||donation|||platform|||||||
|Abbreviations:||||||||||||
|KF|Kate Farnell|||||||||||
|TSH|thyroid
stimulating
hormone|||||||||||
|BAETS|British association ofendocrine|||and|thy|roid surgeons||||||
|CNS|clinical nurse specialist|||||||||||
|NICE|National
Institute for Clinical||Excellence|||||||||
|NCCC|Newcastle
Centre for Cancer Care|||||||||||
|TCN|Thyroid Cancer Network|||||||||||
|TC|thyroid cancer|||||||||||
|UKM|Ufjal Maflick|||||||||||
|RCP|royal college ofphysicians|||||||||||
|HOT|hemi or total|||||||||||
|EORTC|European
Organisation
for Research a|||||nd Treatment of|||Cancer|||
|UCLH|University
College Hospitals,||London|||||||||
|CRUK|cancer research
UK|||||||||||
|NCRI|national
clinical research|institute||||||||||
|RAI|radioactive
iodine|||||||||||
|LID|Low Iodine Diet|||||||||||
|MS|Mark Strachan|||||||||||
|PIL|Patient Information
Leaflet|||||||||||
|KN|Kate Newbold|||||||||||
|DK|Dae Kim|||||||||||
|ATC|anaptasticl
advanced
thyroid||cancer|||||||||
|BTA|British Thyroid Association|||||||||||
|AH|Amy Horton|||||||||||
|Pt.|Patient|||||||||||
|BTCT|Butterfly Thyroid Cancer Trust|||||||||||
|SCN|Scottish Cancer Network|||||||||||
|RSM|Royal Society of Medicine|||||||||||
|WTCC|World Thyroid Cancer Congress|||||||||||
|JW|Jon Wadsley|||||||||||
|AGM|Annual
General
Meeting|||||||||||
|SF|Steven Farnell|||||||||||
|NT|Neil Tolley|||||||||||
|MT|Mike Tuttle|||||||||||
|WTTC|World Thyroid Cancer Congress|||||||||||
|RB|Richard Bliss|||||||||||
|KK|Kate Kendali|||||||||||
|DG|Dawn Golightly|||||||||||
|TSG|Tumour Specific Group|||||||||||
##
##
##
##
|Statement offinancia|l affairs for the|ear to 31|December 2023|||
|---|---|---|---|---|---|
|Note|Unrestncted|Restricted|~Desi neted|Total||
|lncomin
Resources|Funds|Funds|Funds|Funds|2022|
|Grants
Donations
Gift Aid
Deposit account interest|70,000
30?,707
1,315
2,742|||70,000
307,707
1,315
2,742|70,000
68,147
905
181|
|Total incomin
Resources|381,764|||381,764|139,233|
|~Es enditcre||||||
|Direct charitable
expenditure||||||
|Payroll
Professional
fees|66,960
31,049|||66,960
31,049|66,960
30,766|
|Telephone
Postage and stationery
insurance
Advertising
Motor 8 travelling
costs
Repairs and maintenance|2,663
1,823
1,037
2,194
2,473
753|||2,663
1,823
1,037
2,194
2,473
753|2,355
3,134
1,092
1,689
257
748|
|Sundries
Awards
Grants
2
Holiday Lodge Costs
Conferences|1,736
36
6,045
102||7,706|1,736
36
7,706
6,045
102|1,440
1,066
6,693
2,839|
|Phd Sponsorship
2
Accountancy|7,930
420|||7,930
420|15,860
390|
|Profit on disposal ofasset
Depreciation|(415)
360|||(415)
360||
|Total Ex enditure|125,166||7,?06|132,872|135,289|
|Transfers
between funds||||||
|Net Incoming/Outgoing
Resources
Total funds brought
forward|256,598
416,896||(7,706)
95,134|248,892
512,030|3,944
508,086|
|Total funds carried forward|673,494||87,428|760,922|512,030|
##
|||NOTE|||2022|2022|
|---|---|---|---|---|---|---|
|FIXEDASSETS|||||||
|Land 8 buildings||||180,000||180,000|
|Fixtures 8|equipment|||2,037|||
|CURRENT|ASSETS||||||
|Debtors|||||||
|Bank Accounts|||5?8,288||331,435||
|Cash
In Hand|||597|578,885|595|332,030|
|||||760,922||512,030|
|CURRENT|LIABILITIES||||||
|NET ASSETS||||||512,030|
|FUNDS|||||||
|Restricted|Funds||||||
|Unrestricted|Funds|||673,494||416,896|
|Designated|funds|||8?,428||95,134|
|||||760,922||512,030|
##
||Research|Grant - University|Grant - University|Grant - University|ofSheffield|||?,930|||
|---|---|---|---|---|---|---|---|---|---|---|
||Improvements|||to RAI rooms||||7,706|||
|||||||||15,636|||
|3|Tan
ible|Fixed Assets|||||||||
|||||||Fixtures 8|~Hoitda|Total|||
|||||||EttEmtmmeenntt|LodcOee||||
||B/f||||||180,000|180,000|||
||Additions|during the period||||2397||2,397|||
|||||||2,397|180,000|182,397|||
||Depreciation||for the year|||360||360|||
||Net book|value||at 31 December 2023||2,037|180,000|182,037|||
|4|Funds||||||||||
|||||||||Transfer|||
|||||||Opening|Incoming|between|Outgoing|Closing|
|||||||balance|resources|funds|resources|balance|
||Unrestricted|||funds||416,896|381,764||125166|673,494|
||Restricted||funds||||||||
||Designated||Funds||a)|95,134|||7,706|87,428|
##
##
##
##