Spinal Muscular Atrophy UK
Spinal Muscular Atrophy Support UK, The Jennifer Trust For Spinal Muscular Atrophy, Spinal Muscular Atrophy UK The Jennifer Trust
- Country
- England & Wales
- Charity number
- 1106815
- Status
- Registered
- Registered
- Nov. 17, 2004
- Legal form
- CIO
Address
- Address
- The Mansley Business Centre
Stratford Enterprise Park
Timothy's Bridge Road
Stratford-upon-Avon
CV37 9NQ
Contact
- Phone
- 01789 267520
- office@smauk.org.uk
- Website
smauk.org.uk
Activities
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
Objects: 1. The Relief Of People Living With Spinal Muscular Atrophy And Related Medical Conditions And To Raise The Public's Awareness Of Such Conditions.2. The Relief Of Persons Who Are In Need After Experiencing A Bereavement Or Loss Due To Spinal Muscular Atrophy.3. The Promotion Of Research Into The Causes And Treatment Of Spinal Muscular Atrophy.
Classification
- How
- Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- The Advancement Of Health Or Saving Of Lives, Disability
- Who
- People With Disabilities, Other Defined Groups
Geography
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £1,623,545 | £1,359,898 | £1,245,954 | 16 |
| March 31, 2024 | £1,263,853 | £937,860 | £982,307 | 17 |
| March 31, 2023 | £924,673 | £857,523 | £656,314 | 15 |
| March 31, 2022 | £839,420 | £715,466 | £589,164 | 12 |
| March 31, 2021 | £724,691 | £575,342 | £465,210 | 12 |
Trustees
| Name | Appointed |
|---|---|
| Dr Gordon Harvey (Chair) | Nov. 3, 2025 |
| Alistair Mark Emslie Smith | Nov. 26, 2020 |
| Ben Hugh Williams | Nov. 22, 2023 |
| Daniel Hardy William Worrall | Nov. 21, 2024 |
| Dr Anne Marie Childs | Nov. 26, 2020 |
| Dr Channa Hewamadduma | Oct. 15, 2025 |
| Dr Hassan Sobati | Nov. 21, 2024 |
| Jennie Elizabeth Sheehan Sheehan | Nov. 22, 2023 |
| Karin Yvette Edwards | Nov. 26, 2020 |
| Lauren Elizabeth Jane West | Nov. 26, 2020 |
| Maryann Madayag Aspinall | Nov. 22, 2023 |
| Robin Jackson | Sept. 1, 2025 |
| Srinivas Madipalli | Nov. 26, 2020 |
| Tracey Jane Bailey Burnley | Nov. 22, 2023 |
Nearby
- The Dibnah Foundation CIO 0.2 mi
- Plaiground Foundation 0.2 mi
- The Lawrance Foundation CIO 0.2 mi
- Friends Of Bishopton School 0.2 mi
- The Shakespearean Authorship Trust 0.2 mi