OpenCharities

Spinal Muscular Atrophy UK

Spinal Muscular Atrophy Support UK, The Jennifer Trust For Spinal Muscular Atrophy, Spinal Muscular Atrophy UK The Jennifer Trust

Country
England & Wales
Charity number
1106815
Status
Registered
Registered
Nov. 17, 2004
Legal form
CIO

Address

Address
Unit 9 Shottery Brook Office Park
Timothys Bridge Road
Stratford Enterprise Park
STRATFORD-UPON-AVON
Warwickshire
CV37 9NR

Contact

Activities

We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.

Classification

How
Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities, Other Defined Groups

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure Assets Employees
March 31, 2025 £1,623,545 £1,359,898 £1,245,954 16
March 31, 2024 £1,263,853 £937,860 £982,307 17
March 31, 2023 £924,673 £857,523 £656,314 15
March 31, 2022 £839,420 £715,466 £589,164 12
March 31, 2021 £724,691 £575,342 £465,210 12

Trustees

Name Appointed
Dr Gordon Harvey (Chair) Nov. 3, 2025
Alistair Mark Emslie Smith Nov. 26, 2020
Ben Hugh Williams Nov. 22, 2023
Daniel Hardy William Worrall Nov. 21, 2024
Dr Anne Marie Childs Nov. 26, 2020
Dr Channa Hewamadduma Oct. 15, 2025
Dr Hassan Sobati Nov. 21, 2024
Jennie Elizabeth Sheehan Sheehan Nov. 22, 2023
Karin Yvette Edwards Nov. 26, 2020
Lauren Elizabeth Jane West Nov. 26, 2020
Maryann Madayag Aspinall Nov. 22, 2023
Robin Jackson Sept. 1, 2025
Srinivas Madipalli Nov. 26, 2020
Tracey Jane Bailey Burnley Nov. 22, 2023