# Spinal Muscular Atrophy UK

## Details

- **Country:** England & Wales
- **Charity number:** 1106815
- **Other names:** SPINAL MUSCULAR ATROPHY SUPPORT UK, THE JENNIFER TRUST FOR SPINAL MUSCULAR ATROPHY, SPINAL MUSCULAR ATROPHY UK THE JENNIFER TRUST
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Nov. 17, 2004
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1106815


## Contact

- **Address:** Unit 9 Shottery Brook Office Park, Timothys Bridge Road, Stratford Enterprise Park, STRATFORD-UPON-AVON, Warwickshire
- **Postcode:** CV37 9NR
- **Phone:** 01789267520
- **Email:** office@smauk.org.uk
- **Website:** www.smauk.org.uk



## Activities

**Objects:** 1. THE RELIEF OF PEOPLE LIVING WITH SPINAL MUSCULAR ATROPHY AND RELATED MEDICAL CONDITIONS AND TO RAISE THE PUBLIC'S AWARENESS OF SUCH CONDITIONS.2. THE RELIEF OF PERSONS WHO ARE IN NEED AFTER EXPERIENCING A BEREAVEMENT OR LOSS DUE TO SPINAL MUSCULAR ATROPHY.3. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY.

**Activities:** We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.

**Area of benefit:** NOT DEFINED.




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities, Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £1623545 | £1359898 | £1245954 | 16 |
| March 31, 2024 | £1263853 | £937860 | £982307 | 17 |
| March 31, 2023 | £924673 | £857523 | £656314 | 15 |
| March 31, 2022 | £839420 | £715466 | £589164 | 12 |
| March 31, 2021 | £724691 | £575342 | £465210 | 12 |



## Trustees

- **Dr Gordon Harvey** (Chair) — appointed Nov. 3, 2025
- Alistair Mark Emslie Smith — appointed Nov. 26, 2020
- Ben Hugh Williams — appointed Nov. 22, 2023
- Daniel Hardy William Worrall — appointed Nov. 21, 2024
- Dr Anne Marie Childs — appointed Nov. 26, 2020
- Dr Channa Hewamadduma — appointed Oct. 15, 2025
- Dr Hassan Sobati — appointed Nov. 21, 2024
- Jennie Elizabeth Sheehan Sheehan — appointed Nov. 22, 2023
- Karin Yvette Edwards — appointed Nov. 26, 2020
- Lauren Elizabeth Jane West — appointed Nov. 26, 2020
- Maryann Madayag Aspinall — appointed Nov. 22, 2023
- Robin Jackson — appointed Sept. 1, 2025
- Srinivas Madipalli — appointed Nov. 26, 2020
- Tracey Jane Bailey Burnley — appointed Nov. 22, 2023