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2023-03-31-accounts

THE HEPATITIS C TRUST Working together to eliminate hepatitis C

ANNUAL REPORT & ACCOUNTS 2023

The Hepatitis C Trust Annual Report 2023

O U R M I S S I O N

THE HEPATITIS C TRUST IS DEDICATED TO ELIMINATING HEPATITIS C IN THE UK BY 2030

WORKING ALONGSIDE OUR PARTNERS, WE ARE COMMITTED TO ENSURING THAT NO ONE IS LEFT BEHIND ON THE ROAD TO ELIMINATION

CONTENT

TRUSTEES’ REPORT

Our mission 2
Our focus 4
Letter from the CEO & Trustees 6
Theyear in numbers 8
Financial overview 10
ACHIEVEMENTS AND PERFORMANCE
Leavingno one behind in the community 12
Leavingno one behind inprisons 16
Trainingto make sure no one is left behind 20
Support for the infected blood community 24
World Hepatitis Day2022 28
Keepinghepatitis C elimination on thepolitical agenda 30
Keepingthe hepatitis Cprofessional communityinformed and connected 34
Art On a Postcard 38
Governance and management 40
Financial review 42
INDEPENDENT AUDITOR’S REPORT
Financial statement 44

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03

OUR FOCUS

More than 20 years later, we have grown from a small organisation to one of more than 150 permanent staff and more than 150 peer volunteers. This includes large on the ground peer-to- peer programmes in both the community and prisons, working across 23 NHS Operational Delivery Networks (ODNs) and 128 prisons.

The Hepatitis C Trust is a charity dedicated to eliminating hepatitis C in the UK by 2030.

We champion the right of every person at risk of hepatitis C in the UK to receive effective testing, treatment and care.

We achieve this by empowering people with lived experience, influencing policy and practice, and working with healthcare and treatment services to deliver support and raise awareness about hepatitis C.

We remain a peer-led organisation, which means that the majority of our staff and volunteers have been affected by hepatitis C. Our combined lived experience ensures that the patient’s voice remains at the heart of everything we do.

The Hepatitis C Trust was founded in 2001 by four people who met while looking for ways to manage their condition. At that time, there was no effective treatment for hepatitis C and there was no central source for reliable information about the virus.

OUR STRATEGY

Our strategy is focused around the pillars of better prevention and more diagnosis and treatment for all. With an elimination deal in place with UK governments, and our peer programmes reaching across communities and prisons in the UK, we are currently working to identify and engage both those undiagnosed and those diagnosed but untreated.

Determined to do something, these founders formed the UK’s first and only dedicated hepatitis C charity.

“ We couldn’t do what we do without The Hepatitis C Trust and our peer volunteers. Through lived experience, they are able gain the patient’s trust and help them to engage with our service.”

WHAT IS HEPATITIS C?

Hepatitis C (HCV) is a virus passed via bloodto-blood contact that infects the liver. If left untreated, it can cause cirrhosis, liver cancer, and liver failure.

With treatment, 97% of patients are cured of the virus after just a few months.

EMMA ARNOLD, LEAD CLINICAL NURSE SPECIALIST, LEICESTER’S HOSPITALS

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The Hepatitis C Trust Annual Report 2023 | Trustees’ Report

F O R E W O R D

LETTER FROM THE CEO & TRUSTEES

As we reflect over the past year, we’re both proud of our achievements and enthused by the NHS England announcement that we’re set to reach the World Health Organization (WHO) elimination targets ahead of 2030. Alongside these encouraging outcomes, the UK applied to and was accepted by WHO to become a pilot elimination country, one of only 10 across the world.

Seeing COVID-19 restrictions subside this year and the reintroduction of face-to-face meetings and larger events has offered a new invigorated energy. Internally we have strengthened our core structure bringing in a new Head of Communications role which has allowed us to increase our social media visibility and develop an exciting new website.

Our focus on reaching those hardest to engage and ensuring no one is left behind has remained at the centre of our work, along with maintaining a high level of awareness raising and proactively driving harm reduction; particularly the availability of adequate needle and syringe provision for all.

Building on the reputation and success of our peer programme, new funding opportunities, including with NHS Cancer Alliances, have allowed the Community Peer Programme to continue to grow and expand its reach. This year we worked within or led on several new innovative programmes including Liver Surveillance, Emergency Department testing and a national South Asian programme.

Partnership working has once more been key to achieving our outcomes. An example of which has been our partnership work with drug services and pharmacies across England to support NHS England Needs Assessment, with over 10,000 people being tested within these services. A focused piece of work to demonstrate the rate of new HCV infections, this will need to be completed again next year as part of the WHO criteria for elimination.

Although continued restrictions posed some challenges across the prison estate, we still managed to maintain a high level of peer programme activities, including the delivery of High Intensity Test and Treat programmes across 19 prisons − testing on average 95% of each individual prison population. Our work within the wider criminal justice system has continued to reach beyond the prison gate with the prison peer programme expanding to the community including in approved premises and probation services.

We broadened our Information and Support services offer this year by holding regular online support groups for members of the infected blood community, alongside our national helpline.

It has been a challenge for our small but dedicated team to keep up with the volume of calls we receive, particularly from those impacted by the infected blood scandal. The publication of the second interim report, which focused on the framework for compensation, significantly increased the need for support.

To ensure best practice and for our resources to meet demand we have continued to invest in our incredible pool of volunteers through our training programmes. To date more than 33% of our new staff recruitment comes from our volunteer pool; something we’re very proud of.

We launched an exciting new work stream, HCT Research, at the beginning of the year. The Trust has long been an active partner in academic research into hepatitis C, as well as a key organisation in developing new models of diagnosis, treatment, and care. Our goal is to bring these parts of our work more closely together, strengthen them, and take a more active role in setting and delivering the hepatitis C research agenda. Our work has included both taking part and leading on core pieces of research including looking at the Community peer model how and why it works. Our submission of abstracts to conferences on our unique peer programmes has led to recognition and presentations by our staff team both local and globally.

We maintained our policy and parliamentary work across the devolved nations throughout the year. Engaging with ministers in Scotland, organising a Senedd (Welsh Parliament) drop-in event and providing briefings and Written Questions in support of parliamentary activity to keep hepatitis C elimination firmly on the agenda. We also hosted a World Hepatitis Day parliamentary reception, which brought together 120 people, including staff, NHS workers and others to meet with parliamentarians to celebrate all that has

been achieved so far in tackling hepatitis C, and to galvanise those involved to continue to work towards the target of eliminating hepatitis C by NHS England’s 2025 target.

With the prominent recognition of the elimination programme achievements, we worked in partnership with HCV Action to publish the report, ‘Taking the initiative: how England is eliminating hepatitis C’. The report explores the development of England’s hepatitis C elimination programme since 2019.

As we look forward to next year, which is the final year of NHS England’s five year elimination programme, we are mindful that there is still much to be done if we’re to reach elimination and ensure maintenance is in place once it’s achieved. We’re hopeful that there will be an extension to this unique programme which will allow the UK to not only reach elimination but to ensure ‘No one is left behind’.

We hope you enjoy reading the rest of our report, particularly the impact stories.

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The Hepatitis C Trust Annual Report 2023 | Trustees’ Report

THE YEAR IN NUMBERS

30,904 49,239 14 749 , 1,200

people in the community tested for hepatitis C

people engaged through hepatitis C awareness sessions or conversations in the community

people in prison tested for hepatitis C at High Intensity Test and Treat events

people supported to start treatment while in prison

116 contacts via the helpline 314

45 5,007

external blood-borne virus professional training events

peer volunteers completed induction training people attended the HCV Action conference in person and online

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The Hepatitis C Trust Annual Report 2023 | Trustees’ Report

FINANCIAL OVERVIEW

An overview of our total income and expenditure for this year, with a comparison to that of last year.

----- Start of picture text -----
TOTAL INCOME TOTAL EXPENDITURE
2021-22 2022-23 2021-22 2022-23
Donations £0.21M £0.31M Raising funds £0.17M £0.21M
Investments £336 £0.01M Charitable activities £4.24M £6.3M
Charitable activities £4.78M £6.97M Other income - -
Total £4.99M £7.3M Total £4.44M £6.52M
2022-23
2022-23
2021-22 2021-22
----- End of picture text -----

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Achievements and Performance

LEAVING NO ONE BEHIND IN THE COMMUNITY

2022-23 TARGET

To increase our reach to ensure no one is left behind, while working with partners to gather strong data to support elimination.

Our community peer programmes continue to build their reputation as a valued part of NHS care pathways.

INNOVATION

As a result of the success of our programmes, new opportunities arose from funders in 2022. This included NHS Cancer Alliances which support our growing liver cancer work, statutory government sources such as drug and alcohol service commissioners, and individual health boards in Wales.

The year saw further expansion of our staff teams and, although recruitment has been a challenge in some areas, we have managed to fill all posts. Our two new vans took to the open road delivering mobile clinics across Oxfordshire and Leicester and we also provided staff support to several other ODN van clinics. We have a dedicated van team working across North East and South East London to deliver early diagnosis of liver cancer screening programmes. Variations of this model are also being delivered in Wessex and Nottingham. Our South Asian Project team also expanded this year, with additional funding from MSD, enabling us to reach across England. Strong partnership working led to microelimination being achieved at various substance use services. Our team was key in delivering NHS England’s Needs Assessment where 10,000 patients were tested within these services. These same individuals will need to be found next year and tested again so that NHS England can demonstrate the rate of new infections as part of the WHO criteria for elimination.

These are welcome new avenues of work, for which our peer model has a proven record of achievement.

EMERGENCY DEPARTMENT TESTING

We played a key role in the establishment of optout blood-borne virus (BBV) testing in Emergency Departments (ED) across London. This has been a huge development. Now, almost all ED settings in London – as well as Manchester, Blackpool, and Sussex - test everyone requiring blood samples, whatever their reason for their ED visit. Almost 1,700 people were found who had either HIV, hepatitis B or hepatitis C in the first 10 months of this three-year programme.

people engaged through hepatitis C awareness sessions or conversations.

49,239 people engaged through
hepatitis C awareness sessions
or conversations.
30,904 people in the community tested
for hepatitis C this year.
3,240 individuals supported to access

individuals supported to access hepatitis C treatment.

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

S T O R Y O F I M P A C T

S T O R Y O F I M P A C T

BRINGING TREATMENT TO PEOPLE IN NORTH DEVON

Our work in North Devon has always faced

FROM REHAB TO EMPLOYMENT

a number of challenges, including poor public transport systems, staff vacancies at local hospitals and the limited capacity of drug and treatment services.

Our peer volunteer Kevin* found out that he had hepatitis C while he was in rehab for drug addiction.

We supported him through his treatment and once he was cured, he decided that he wanted to give something back to the Trust.

When we met Dave*, he told us that he knew that he had hepatitis C for a long time but had not been turning up to his hospital appointments.

Kevin was extremely motivated by the difference he could see his work was making in people’s lives.

We retested him to confirm the diagnosis and had a conversation with him about the hurdles he faced. From speaking to him, we knew that attending hospital appointments was an impractical option for him. This meant we had to think outside of the box to make sure he could complete treatment.

Having previously been in active addiction in the area where he was working, Kevin knew exactly where we needed to go to find people who needed testing.

After volunteering for 11 months, he applied for a peer job with the NHS.

We decided to bring treatment to Dave. We loaded a van with nurses and equipment and went to meet him. Dave was so grateful that we had addressed his challenges. He started treatment within two weeks and is now cured of the virus. He now hopes to join the team as a peer.

Kevin’s life has been totally turned around since he entered rehab. He loves the work he does and continues to make an invaluable contribution to the NHS team.

We now use this approach in other areas where we have struggled to find venues for testing, or where limited public transport makes treatment a challenge.

“ We decided to bring treatment to Dave.”

GOING THE EXTRA MILE: OUR SUPPORT FOR SAM

A local authority referral has since been accepted by a housing provider that delivers round the clock on-site support.

On a visit to A&E, a routine blood test was also

screened for hepatitis C. This test revealed that Sam* had hepatitis C.

Following several failed attempts to contact Sam by St. George’s Hepatology Department, he was referred to us.

Shortly after an initial medical assessment Sam was approved for treatment, although there were some concerns about his ability to comply with the treatment plan. The extent of Sam’s daily alcohol intake is such that no expectation could be placed on him to adhere to the medication regimen alone. It was decided that a peer would take guardianship of Sam’s medication and locate him in the community throughout the week to hand out the doses.

Sam lived at a London hotel that provides housing to local authority adult social services. Our staff and a nurse visited this hotel with the mobile outreach clinic and met with Sam to inform him of the test result.

Sadly, our team discovered that Sam was living in such abject conditions at the hotel that a safeguarding concern for self-neglect needed to be raised with the local authority. Sam gave consent for our staff to contact other organisations that were involved with his case. A meeting was set up with local authority adult social care and others to discuss Sam’s housing needs. Sam was then moved to more suitable temporary accommodation and a package of care was put in place that included daily visits from a care worker.

This was labour intensive work, more often than not resulting in multiple trips around the boroughs of London in a single day to locate Sam. The hard work ultimately paid off as Sam was able to complete the treatment – something which would have been almost impossible for him without support.

OUR 2023-24 PRIORITY

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Achievements and Performance

LEAVING NO ONE BEHIND IN PRISONS

2022-23 TARGET

To maintain our case-finding capacity, and increase our reach across the criminal justice system.

This year we maintained our peer work across 104 English prisons, as well as many prisons in Scotland and Wales. To do this we work in partnership with HM Prison and Probation Service, UKHSA, the NHS, health care providers and other charities. Together, we raise awareness, educate and test people at risk of hepatitis C and support those who need it through treatment.

to encourage testing and reduce stigma, alongside offering and delivering testing events across England. In addition, education awareness and testing took place in both immigration centres and forensic service settings.

This engagement enabled us to find 1,200 more cases of hepatitis C within the criminal justice setting, as well as raising awareness of the virus among people who historically may not have engaged in health care services.

We have continued to coordinate High-Intensity Test and Treat (HITT) programmes in individual prisons. These whole prison testing events offer all prisoners the opportunity to be tested for hepatitis C and, where available, other blood-borne viruses. This year, we supported just under 15,000 people across 19 prisons to be tested at HITT events, testing on average 95% of each individual prison population.

* The requirement for micro elimination is that 95% of people in the prison population have been tested within the last 12 months; that 90% of people who have tested positive have started treatment within the last 12 months; that a process is in place for a quarterly review of testing and treatment uptake; and that there is reception testing and direct outreach.

16 prisons have now reached and maintained micro elimination*, including one premises that holds over 1,200 people.

396 Hepatitis awareness training
sessions delivered for people
in prison and staf
14,749 people tested for hepatitis C
at HITT events
1,200 people supported to start
treatment while in prison

Supporting individual prisons to increase their hepatitis C reception testing has proven very successful this year, with 72% of prisoners agreeing to be tested on arrival.

Following our work with approved premises last year we widened our criminal justice reach within community settings. Building on existing partnership work with local probation services we delivered education and awareness raising

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

S T O R Y O F I M P A C T

S T O R Y O F I M P A C T

LUCY’S HEPATITIS C STORY

Lucy* was diagnosed with hepatitis C following a High Intensity Test and Treat (HITT) event at HMP Styal.

She was one of nine women who tested positive, all of whom were able to start treatment three days later.

Our Prison Peer Lead held a support clinic with all of the women. It was here where she met Lucy.

Lucy was from Skelmersdale. She began using drugs in her late teens, starting with amphetamines before moving on to heroin.

Having used IV drugs for eight years, Lucy said she had struggled to stay connected with the local drug services.

With only two weeks left of her sentence, we wanted to make sure that Lucy would be able to complete her treatment once she returned to Skelmersdale.

After talking Lucy through our Follow Me programme and the support The Hepatitis C Trust could offer her in the community, Lucy was pleased to stay in contact with us.

Since Lucy had tested positive, she knew it was really important that her partner get tested too. However, she confided with us that her partner would not attend any appointments at the local drug service for testing.

Our Prison Peer Lead made contact with our Community Coordinator for the Merseyside area, explaining the situation. Together, they arranged for the community team to visit Lucy’s home the day after she was released.

The community team completed a Dry Blood Spot Test (DBST) on Lucy’s partner and sent it off to the hospital for the results. The test came back positive and less than three weeks later he started

his own course of treatment.

Having built up a relationship with our Community Coordinator, Lucy helped two more of her friends get tested. One friend was also found to have hepatitis C and was supported onto treatment by our team.

SEAN’S PEER JOURNEY

It is always challenging to get prison peers involved in our work at high security prisons.

But Sean was a passionate advocate for hepatitis C awareness after being diagnosed and cured of the virus himself. He successfully completed peer mentoring training in a one-to-one session.

His prison recently went paperless so we were unable to provide Sean with any literature to pass out and security measures mean that he is not able to host any group sessions on his wing.

To get round these challenges, we worked with the prison to create a podcast which could be accessed via laptops in people’s cells.

Sean was able to tell his story on the podcast and share his experiences of homelessness, substance use and the criminal justice system.

OUR 2023-24 PRIORITY

He described how he felt being diagnosed with hepatitis C whilst in a high security prison and how lonely and scared he felt until he started treatment. He reassured listeners that they could be cured by taking a simple course of tablets.

This story really resonated with listeners and encouraged people to get tested ahead of our HITT event.

Sean is someone who always thinks outside the box and is full of ideas about other ways we can raise awareness despite security restrictions. He has really contributed to the work of our prisons team.

“ Having built up a relationship with our Community Coordinator, Lucy helped two more of her friends get tested.”

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Achievements and Performance

TRAINING TO MAKE SURE NO ONE IS LEFT BEHIND

2022-23 TARGET

To increase our reach to ensure no one is left behind, while working with partners to gather strong data to support elimination

We are proud to be a peer-led organisation; with around a third of our staff starting their journey with us via our volunteer programme.

This year we also recognised the urgent need to ensure our team on the ground is equipped with knowledge of first aid in case of a medical emergency. Our volunteers and staff meet with people who use drugs every day and sadly, the risk of overdose remains high in this community.

Personal experience of hepatitis C or drug use gives our volunteers a unique understanding of the wider issues that affect many of the people we support. This common ground helps patients to engage with us and overcome barriers to starting treatment.

In response to this need, staff from our training team are now qualified first aid trainers and have started to roll out a Level 3 emergency first aid at work programme to all staff and volunteers.

Every volunteer receives comprehensive training including a three-day residential training course and induction, regular line management meetings and ongoing support, and access to a range of accredited training courses.

We have also updated our safeguarding training to help build our staff and volunteers’ confidence in recognising when a patient is at risk. We have also appointed regional safeguarding officers across the Community and Prison programmes to support with this.

Around 65% of people who have volunteered with us have moved on to paid employment either within the Trust or further afield.

45 external BBV professional
training events
105 accreditations awarded to staf
and volunteers
116 new peer volunteers received
induction training

In recognition of all the hard work our volunteers do on behalf of the Trust, we organised two national volunteer away days. This involved coordinating over 100 volunteers to attend events in Brighton and Sheffield from all corners of the UK. The volunteers enjoyed overnight stays in hotels, an awards ceremony for qualifications obtained with the Trust, a quiz with prizes, sing a longs and other fun-filled activities.

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

S T O R Y O F I M P A C T

S T O R Y O F I M P A C T

DAMIAN’S PEER STORY

My family was pretty dysfunctional when I was

I started volunteering for the Trust about a year ago. I quickly felt welcomed, supported and held by the team. They helped me through my induction training with Archie and Liz. The induction training was really good and made me realise that my past experience of drug use and hepatitis C could help others. I started to feel I had something to offer which improved my low self-worth and confidence.

growing up. My dad had issues with gambling and my mum with prescription drugs, hoarding and shopping. I ended up going into care.

When I was nine, I had my first taste of alcohol. I smoked weed at 17 and then the progression of my addiction happened really quickly.

Within two years I was using heroin. I first injected at 19, sharing the equipment with those present. I don’t know how long I had hepatitis C but I found out I had it in 2009 after being admitted to hospital with breathing problems. I had interferon, cleared the virus and stopped injecting drugs. I continued to use alcohol and weed.

The whole experience with the Trust has been amazing and I feel blessed for having the opportunity. When I was told I was ready to apply for a paid role it made me feel very emotional. I finally felt that I was contributing and had something to give and it was something I love doing. Working for the Trust has aligned with my recovery and given me a purpose. It has helped integrate me back into society. I feel very lucky to be part of the team.

When I went into recovery 19 months ago, it was suggested I give something back.

“ I started to feel I had something to offer which improved my low self-worth and confidence.”

DEB’S TRAINING STORY

Like many people, I always struggled in a

classroom as a child and was worried about putting myself back into a learning environment. From day one, the Trust reassured us that we would be supported through any sort of training we took up with them. So many people who work at the Trust have been through the volunteer programme and have gone on to gain employment. This filled me with a confidence I never had before – if they could do it so could I.

One of the early qualifications I took up was called

Supporting Individuals with Learning Disabilities Level 2. The Trust training team brought a group of us together for a two-day induction to the qualification. They went through what we needed to do to pass the course and we all spoke about previous barriers we faced in education and ways we could overcome them.

OUR 2023-24 PRIORITY

Support from the Trust and the other volunteers over the two days helped me understand what was expected of me and improved my confidence. Knowing we had shared similar backgrounds in life and education meant we were able to motivate and support each other in a way that we’d never experienced in school.

After the induction, we continued to meet up with and speak to other volunteers in study groups. If one of us was stuck on something or beginning to lose motivation, someone else would be able to help. It was wonderful when we completed the qualification – I felt not only proud of myself but the others in the group too.

Now I’ve moved on to a Level 2 Diploma in Adult Care. This time I feel even more motivated and my self-belief continues to grow. Now I know I can do anything I put my mind to.

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Achievements and Performance

SUPPORT FOR THE INFECTED BLOOD COMMUNITY

2022-23 TARGET

To represent and support those infected and affected by infected blood, and widen our resource within this support.

As well as emotional support, we offer guidance to people making applications for financial support from the UK blood support schemes, which can be a complicated process to navigate.

Our helpline has been running since 2004 and has received around 63,000 contacts. It remains an essential resource for many people who have or have had hepatitis C, with the number of inquiries continuing to grow every year.

This year, we broadened the services we offer by holding regular online support groups for members of the infected blood community. The groups have been a great success and offer people a place to connect and share their thoughts and feelings around the impact of the Infected Blood Inquiry.

It has been a challenge for our small but dedicated team to keep up with the volume of calls, particularly from those impacted by the infected blood scandal. Training other office staff to support taking calls during busy periods has been an important way to adapt.

The helpline offers practical and emotional support to people who often feel like they have no place left to turn.

We continued to attend the hearings of the Inquiry in person to provide emotional support to people who were taking part. This included people who had been recently diagnosed or who were attending the Inquiry on their own.

For those from the ‘whole blood’ community (who contracted hepatitis C after receiving a blood transfusion), there are no other designated support or information services they can access. Many report finding their GPs uninformed about hepatitis C and rarely see their specialists to discuss any ongoing concerns. Unfortunately for many, other health problems are more likely to develop as a result of having a long-term infection, so their journey does not end when hepatitis C treatment is completed. We have found that people from this community often return to our helpline over many months, years and even decades as a result.

19 support group sessions held
for people afected by infected
blood
5,007 contacts via the helpline
23 hearings of the Infected Blood
Inquiry attended

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

S T O R Y O F I M P A C T

S T O R Y O F I M P A C T

ONLINE SUPPORT FOR THE INFECTED BLOOD COMMUNITY

The long-running Infected Blood Inquiry

Sir Robert Francis’ compensation framework, challenges faced by people who are a part of the England Infected Blood Support Scheme and the psychological impact of hepatitis C via infected blood.

continued to receive evidence over the course of 2022-23. Because of this, there was an increased need for emotional support for the community that had been impacted.

In addition to this, we continue to provide informal and friendly advice via the Contaminated Whole Blood UK Facebook group and its 550 members. Engaging with the community on social media has helped to build strong relationships and ensures that they have the most reliable and up to date information about the Inquiry.

In response, we began to schedule online support groups on a fortnightly basis. Groups are limited to 12 attendees so that everyone has the opportunity to share their thoughts and feelings. In all, 96 people whose lives had been impacted by the infected blood scandal attended the sessions over the year.

Once the group was established, it became clear that there were some subjects that people wanted to learn about or explore in more detail. We therefore decided to run occasional focus groups for the community centred around specific needs or interests. Topics in 2022 included the

The meetings are reassuring, keep you updated about the hearings, treatment, ongoing topics and you feel part of a group with other survivors and family members.”

HELPING PEOPLE ACCESS SUPPORT SCHEMES

Delilah* had been signposted to us by the

Infected Blood Inquiry team for guidance in making an application to one of the UK Blood Support Schemes.

We arranged for someone to visit Delilah’s home, get her on to treatment and get her cured of the virus.”

Since being diagnosed in 1991, Delilah had never spoken to anyone outside of her family about hepatitis C and was nervous about calling us. She felt reassured when our helpline staff said that they had their own experiences of the virus too.

Aside from the help we could practically offer her to ensure she would successfully access the UK Blood Support Scheme, we learnt that she had shunned all further medical care. She had declined the treatment that was available at the time of her diagnosis and disengaged from being further monitoring. Although Delilah was registered with a GP she told us that she had never been to see them.

We arranged for someone to visit her home, get her on to treatment and get her cured of the virus.

Delilah said: “Without the support and patience of The Hepatitis C Trust I would still be hiding away, the team gave me the confidence and help to do this, and I will always be grateful to them”.

By the time she spoke to us she had been living with hepatitis C for 40 years. We were able to answer all her questions and talk to her about the new treatments that were available. Although she was interested, her fear of doctors, medical treatments and disclosing her infection to anyone was still a major stumbling block.

OUR 2023-24 PRIORITY

SUPPORT GROUP PARTICIPANT

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

WORLD HEPATITIS DAY 2022 events held in partnership with services and charities 189 across the UK people engaged 4,019 people tested 1,741

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Achievements and Performance

KEEPING HEPATITIS C ELIMINATION ON THE POLITICAL AGENDA

2022-23 TARGET

To ensure continued parliamentary support for the hepatitis C elimination programme and the elimination targets, and to increase focus on strong prevention policies and preparation for the maintenance phase of elimination.

Keeping hepatitis C elimination on the political agenda is one of our most important priorities. We work tirelessly to ensure that action is being taken at government level so that the UK achieves its elimination targets.

Hepatitis C Parliamentary Champions Miles Briggs and Rhoda Grant. We supported MSPs to table Written Questions highlighting areas of concern for meeting the 2024 elimination target.

In Wales, we organised a Senedd (Welsh Parliament) drop in event, where we engaged with Members of the Senedd (MSs), held meetings with MSs and provided briefings and Written Questions in support of parliamentary activity. This led to the Welsh Government setting out a new plan for getting on track for hepatitis C elimination by 2030.

In England, we celebrated the progress that has been made as part of the hepatitis C elimination deal and galvanised support from MPs and decision makers at a World Hepatitis Day parliamentary reception.

We also successfully conducted meetings and hosted constituency visits for MPs including with Steve Brine, Chair of the Health and Social Care Committee. We supported a range of parliamentary activity by providing briefings for debates, supporting MPs to table Written Questions and submitting responses to parliamentary consultations.

We continued to lend our support to campaigners seeking justice for the infected blood scandal by providing briefings to MPs for a debate in Parliament on the issue.

politicians engaged with at oneto-one meetings and events.

26 15 120

In Scotland, we met with cross-party Members of the Scottish Parliament (MSPs) including Scottish Labour Party Leader Anas Sarwar and long-term

Parliamentary Questions tabled on hepatitis C.

attendees at our World Hepatitis Day parliamentary reception.

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

S T O R Y O F I M P A C T

PARLIAMENTARY RECEPTION

For World Hepatitis Day, we organised and

hosted a parliamentary reception in Westminster. The event brought together 120 people, including Hepatitis C Trust staff, NHS workers, other partner organisations and parliamentarians. We celebrated all that has been achieved so far in tackling hepatitis C and motivated all involved to continue working towards the target of eliminating the virus in England by 2025.

We were delighted to be joined by a cross-party group of politicians for the event, including Maggie Throup, the then Health Minister with responsibility for hepatitis C. Other MPs in attendance included: Dan Carden, Peter Dowd, Paulette Hamilton, Kate Hollern, Rachel Hopkins,

Diana Johnson, Naz Shah and Jeff Smith as well as Baroness Randerson.

The reception was hosted by Elliot Colburn MP and featured speeches from representatives from the World Health Organization and NHS England, as well as The Hepatitis C Trust.

The event helped to ensure hepatitis C remains a focus for parliamentarians, helping them to understand the specific challenges we face on the ground when working in their constituencies. Many MPs who attended went on to highlight hepatitis C in the House of Commons, table Written Questions and raise awareness via social media.

“ We’ve made great progress in tackling hep C in recent years but more needs to be done.”

MAGGIE THROUP MP

OUR 2023-24 PRIORITY

32

Achievements and Performance

KEEPING THE HEPATITIS C PROFESSIONAL COMMUNITY INFORMED AND CONNECTED

2022-23 TARGET

To support the hepatitis C professional community to achieve hepatitis C elimination across the UK by improving prevention, diagnosis and treatment, and to support a transition to new arrangements for hepatitis C services to ensure sustainable maintenance of elimination.

The vital role of HCV Action

elimination and for healthcare professionals to learn from each other.

To complement our patient-focused work, we also coordinate HCV Action, a network of more than 1,000 healthcare professionals with an interest in hepatitis C.

Our report, ‘Taking the initiative: how England is eliminating hepatitis C’, provided an overview of England’s hepatitis C elimination programme, documenting for the first time the various elimination initiatives that have helped England stay on track to achieve elimination by 2025.

HCV Action’s role as the voice of the hepatitis C professional community continued to strengthen in 2022-23. Our annual conference for hepatitis C professionals attracted its largest audience yet, with more than 100 attending in person and over 200 joining via live stream.

HCV Action’s ongoing core activity – including producing good practice case studies and monthly e-updates, gathering and distributing key resources, and providing updates via Twitter – help to ensure the hepatitis C professional community remains informed, inspired and connected throughout the year.

We also hosted three webinars for HCV Action members across the year, attracting larger audiences every time. These online sessions are a great way to keep momentum up as we near

314 people attended the annual
HCV Action conference in
person and online.
313 attendees across three HCV
Action webinars.
722 YouTube views of 2022-23 HCV
Action webinars and event
recordings.

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

S T O R Y O F I M P A C T

S T O R Y O F I M P A C T

TAKING THE INITIATIVE

In Spring 2023, we published our report,

The report outlines:

‘Taking the initiative: how England is eliminating hepatitis C’. The report explores the development of England’s hepatitis C elimination programme since 2019, providing an overview of the main elimination initiatives to find and treat those living with hepatitis C.

To gather the information required for the report, we undertook desk research and conducted interviews with key stakeholders, including representatives from NHS England, The Hepatitis C Trust and the pharmaceutical industry.

The report highlights that a new arrangement will be required to continue the work of at least some of these initiatives and keep up momentum towards the goal of elimination by 2025, and to ensure elimination is maintained in the long term.

Following publication, the report’s findings and recommendations were raised with government ministers in Written Parliamentary Questions by supportive parliamentarians.

“ A very important piece of work with a robust assessment of what we have achieved.”

NHS ENGLAND HEPATITIS C ELIMINATION PROGRAMME TEAM

HCV ACTION ANNUAL CONFERENCE

This year, we were delighted to host the annual

HCV Action conference in person for the first time since 2019. The event programme explored emerging areas of interest and best practice, including planning for maintaining elimination, network-tracing approaches to treatment and hepatitis C testing in emergency departments and probation services.

All the sessions were invaluable in helping me to understand the pieces of the jigsaw and how they fit together.”

To maximise the accessibility of the event, we also arranged for the event to be live streamed. The conference was attended by more than 100 people in person and the live stream attracted 214 views. 22 of the 23 hepatitis C Operational Delivery Networks (ODNs) had representation at the event.

CONFERENCE ATTENDEE

The return to an in person format helped to increase the interactivity of the day and we were pleased to hear from delegates that new connections established were followed up afterwards. The vast majority of respondents to our feedback survey said that the conference made them feel more informed about the elimination programme and about how hepatitis C services will transition in the coming years. Attendees also expressed how useful the conference was in learning from examples of best practice elsewhere that can be replicated in their own ODNs.

OUR 2023-24 PRIORITY

36

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

ART ON A POSTCARD

Art on a Postcard (AOAP) fundraises for The Hepatitis C Trust via charity auctions and the sale of merchandise on their online shop.

Established in 2014, AOAP was intended to be a one-off secret postcard auction, but it went so well it spawned a small industry.

Every AOAP auction features an impressive line-up of postcard-sized masterpieces which include works by Britain’s most renowned artists.

MINI AUCTIONS

AOAP held several mini auctions to fundraise for our work in 2022. These were great opportunities for AOAP to engage with and feature the work of up-and-coming artists. Held at various locations across London, AOAP was able to raise £23,000 from these events.

AUCTION FOR UKRAINE

In April 2022, war broke out in Ukraine. We decided that it would be appropriate to ask AOAP to donate the funds raised at an auction curated by India Rose James to support the work of the charity Choose Love, who were helping to support Ukrainian refugees. The auction raised £22,000.

SUMMER AUCTION 2022

Teaming up with The Other Art Fair, AOAP raised £45,000 at this auction. The sale featured works by National Portrait Gallery BP Portrait Award-

winner Ishbel Myerscough and Marina Abramović,

alongside emerging artists such as Jade Montserrat, Tosin Kalejaye and Ruairi Fallon.

WINTER AUCTION 2022

The annual winter auction was AOAP’s most successful event to date. Partnering with Dreweatts, almost 600 pieces of incredible artwork were donated to the online auction. Contributors included Grayson Perry CBE RA, Clayton Schiff, Caroline Wong and Gavin Turk. A private viewing of the artwork was also held in London ahead of the sale. The auction raised an incredible £96,000.

INTERNATIONAL WOMEN’S DAY AUCTION 2023

For its International Women’s Day Auction, AOAP invited seven female curators to organise a show featuring 25 women artists. The auction raised £41,000 with support from The Auction Collective and Fitzrovia Gallery who hosted the Private View.

ONLINE SHOP

The range on the AOAP website continued to grow, with art fans being able to order Christmas and greetings cards, prints, frames and box sets featuring popular designs from previous auctions on the website.

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

GOVERNANCE AND MANAGEMENT

OUR TRUSTEES

LEGAL ENTITY

The Trust was incorporated in England and Wales on 10 March 2004 (registration number 05069924) and gained charitable status on 10 June 2004 (charity number 1104279). On 1 September 2004 all the charitable activities, assets and liabilities from the original unincorporated charity, The Hepatitis C Trust (charity number 1083097), were transferred to this incorporated charity. On 1 October 2008 the charity registered in Scotland (charity number SCO39914). The current charity is governed by its Memorandum and Articles of Association.

CHARITABLE OBJECTS

The objects of the Trust, as set out in the Memorandum and Articles of Association are:

  1. The relief of persons suff ering from hepatitis C and the provision of support to such persons and their families;

  2. The advancement of education concerning hepatitis C; and

  3. Research into all aspects of hepatitis C including (but not limited to) the causes, detection, transmission, prevention and treatment of hepatitis C and the publication and dissemination of the useful results of all such research.

(those who served during the year and/or were responsible for the annual report)

The Hon David Macmillan (Chair)

Mr Simon Lincoln (Treasurer)

Sir Adrian Baillie

Dr M F Bassendine

Mr Peter Holt

Mr Edward Mead

Mr Charles Walsh

Mr John Jolly

OUR PATRONS

Ms Emilia Fox

Ms Sadie Frost Boy George Mr Andrew Loog Oldham The Lord Mancroft

Mr Alan McGee

Ms Justine Roddick

Mr Robbie Williams

RECRUITMENT AND APPOINTMENT OF TRUSTEES

The charity’s Trustees are also the company directors for the purposes of company law. Subsequent Trustees may be appointed by ordinary resolution. When vacancies occur new Trustees are recruited through a variety of means including advertising. The Trust wishes to have patients as a majority of its Board, which increases the challenge of finding suitable and willing Trustees. Potential Trustees have an initial meeting with the Chief Executive who explains the Trust’s philosophy and how it works in practice. They are then asked to attend a Board meeting to get a better understanding. Newly appointed Trustees are sent briefing information about The Trust and their role as a trustee. They are then asked to spend a day at the Trust’s London offices, meeting the staff and learning more about each project and in particular financial oversight.

KEY MANAGEMENT PERSONNEL

The Trustees have determined that the Chief Executive and the Senior Directors, together with the Trustees themselves, are the key management personnel. The Trustees are not remunerated and the pay of the Chief Executive and the Senior Directors has been set according to bands suggested by an independent consultant and by benchmarking against market rates.

RISK ASSESSMENT

The Trustees have prepared a risk assessment, examining the major risks which the charity faces and have set out the necessary steps that need to be taken to lessen any risks. This register is updated on a regular basis. The key risks and the actions to be taken to mitigate them in the latest risk assessment are set out in the table below.

CHIEF EXECUTIVE

Rachel Halford

40

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The Hepatitis C Trust Annual Report 2023 | Achievements and Performance

FINANCIAL REVIEW

FUNDING

Following the successful delivery of our ongoing peer programmes, we received further investment under the NHS elimination initiative this year. As such our income has, once more, continued to significantly increase, allowing us to maintain a secure financial position for the Trust. At £4,988,926 our income has significantly increased from that of the previous year £3,632,826, while our expenditure at £4,411,630 increased by £1,374,365. This increase in expenditure is in line with additional costs incurred through the implementation and running of our extended peer programme service delivery.

With the continued successful delivery of our peer programmes, we remain confident in our financial position. In relation to our raising funds, please see our costs in the financial statements at the back of the report, mainly in regard to income generation from Art on a Postcard (see page 22). We do not engage external professional fundraisers or commercial participators to carry out our fundraising activities and we do not engage in face-to-face or telephone fundraising. All our approaches to fundraising take account of the Code of Fundraising Practice issued by the Fundraising Regulator. We have received no complaints about our fundraising activities either during the financial year or subsequently.

RESERVE POLICY

The policy of the Trustees is to hold a reserve of three months’ costs, amounting to £1,470,543. Our total unrestricted reserves for this year are £1,190,834, this includes £307,424 which has been designated for future redundancy costs in line with the completion of NHS England’s funded elimination programme. Alongside this are our current restricted reserves of £678,792 to fund activities in the year 31 March 2023.

The Trustees are committed to raising core reserves through our fundraising strategy involving: broadening our base of possible trust funders by demonstrating that addressing hepatitis C has broader social benefits, not just positive health outcomes; engaging with corporate donors; expanding Art on a Postcard; moving our focus towards longer term statutory funding.

STATEMENT OF TRUSTEES’ RESPONSIBILITIES

The Trustees (who are also directors of The Hepatitis C Trust for the purposes of company law) are responsible for preparing The Trustees’ Report and the Financial Statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. In so far as the Trustees are aware:

Company law requires Trustees to prepare financial statements for each financial year which give a true and fair view of the state of the affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the Trustees are required to:

AUDITORS

Azets Audit Services (formerly Wilkins Kennedy Audit Services) have indicated their willingness to continue in office. A resolution proposing their re-appointment will be submitted at the Annual General Meeting.

SMALL COMPANY RULES

These accounts have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies and with the Statement of Recommended Practice, Accounting and Reporting by Charities (SORP FRS 102) issued in January 2015. This report was approved by the Board of Trustees and signed on its behalf by:

The Trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for

The Hon David Macmillan

22[nd] December 2023

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The Hepatitis C Trust Annual Report 2023 | Independent Auditor’s Report

F I N A N C I A L S T A T E M E N T

FINANCIAL STATEMENTS FOR THE YEAR ENDED

31 MARCH 2023

Registered in England and Wales Charity Number: 1104279

Registered in Scotland Charity Number: SCO39914

Registered Company Number: 5069924

INDEPENDENT AUDITORS’ REPORT TO THE MEMBERS OF THE HEPATITIS C TRUST

OPINION

We have audited the financial statements of The Hepatitis C Trust (the ‘charitable company’) for the year ended 31 March 2023 which comprise the Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion the financial statements: give a true and fair view of the state of the charitable company’s affairs as at 31 March 2023, and of its incoming resources and application of resources, including its income and expenditure, for the year then ended;

have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and

have been prepared in accordance with the requirements of the Companies Act 2006.

BASIS FOR OPINION

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

CONCLUSIONS RELATING TO GOING CONCERN

In auditing the financial statements, we have concluded that the trustees’ use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

OTHER INFORMATION

The other information comprises the information included in the trustees annual report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

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The Hepatitis C Trust Annual Report 2023 | Independent Auditor’s Report

INDEPENDENT AUDITORS’ REPORT TO THE MEMBERS OF THE HEPATITIS C TRUST

OPINIONS ON OTHER MATTERS PRESCRIBED BY THE COMPANIES ACT 2006

In our opinion, based on the work undertaken in the course of the audit:

MATTERS ON WHICH WE ARE REQUIRED TO REPORT BY EXCEPTION

In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the directors’ report.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 requires us to report to you if, in our opinion:

RESPONSIBILITIES OF TRUSTEES

As explained more fully in the trustees’ responsibilities statement, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

AUDITOR’S RESPONSIBILITIES FOR THE AUDIT OF THE FINANCIAL STATEMENTS

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud.

The specific procedures for this engagement and the extent to which these are capable of detecting irregularities, including fraud is detailed below:

Due to the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation.

A further description of our responsibilities is available on the Financial Reporting Council’s

website at: https://www.frc.org.uk/Our-Work/ Audit/Audit-and-assurance/Standards-andguidance/Standards-and-guidance-for-auditors/ Auditors-responsibilities-for-audit/Description-ofauditors-responsibilities-for-audit.aspx.

This description forms part of our auditor’s report.

USE OF OUR REPORT

This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed.

Lorraine Curtis ACA BFP FCCA

(Senior Statutory Auditor)

For and on behalf of Nordens Audit Limited

Statutory Auditor The Retreat 406 Roding Lane South Woodford Green Essex IG8 8EY

22[nd] December 2023

Nordens Audit Limited is eligible to act as an auditor in terms of section 1212 of the Companies Act 2006.

46

47

The Hepatitis C Trust Statement of Financial Activities

Incorporating an Income and Expenditure Account For the year ended 31 March 2023

Unrestricted
Note
Funds
£
Income from:
Donations
2
317,476
Investments
3
15,605
Charitable activities
4
3,201,983
Total
3,535,063
Expenditure on:
Raising funds
5
218,657
Charitable activities
6
2,528,497
Total
2,747,154
Net income for the year before
transfers
787,910
Transfers
12
206,215
Net income
994,124
Fund balances at 1 April 2022
12
1,190,834
Fund balances at 31 March 2023
12
2,184,958
Restricted
Funds
£
-
-
3,773,727
3,773,727
-
3,780,099
3,780,099
(6,732)
(206,215)
(212,587)
678,792
466,205
Total
2023
£
317,476
15,605
6,975,709
7,308,790
218,657
6,308,596
6,527,252
781,538
-
781,538
1,869,626
2,651,164
Total
2022
£
210,443
336
4,778,147
4,988,926
172,834
4,238,796
4,411,630
577,296
-
577,296
1,292,330
1,869,626

The Hepatitis C Trust Balance Sheet as at 31 March 2023

Note
Current Assets
Debtors
10
Cash at bank and in hand
Creditors: Amounts falling due
within one year
11
Net Current Assets
Total Net Assets
Funds
Unrestricted funds
12
Designated funds
12
Restricted funds
12
2023
£
2022
£
1,783,098
720,881
2,538,587
2,313,341
4,321,685
3,034,222
(1,670,521)
(1,164,595)
2,651,164
1,869,626
2,651,164
1,869,626
1,624,026
883,410
560,932
307,424
466,206
678,792
2,651,164
1,869,626

The accounts have been prepared in accordance with FRS 102.

These financial statements have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies.

The financial statements were approved by the Board of Trustees and authorised for issue on 22 December 2023 and signed on their behalf by:

………………………………………

Hon David Macmillan

Registered Company Number: 5069924

The notes on pages 48 to 61 form part of the financial statements.

All gains and losses arising in the year have been included in the Statement of Financial Activities and arise from continuing operations

The notes on pages 48 to 61 form part of the financial statements.

48

49

The Hepatitis C Trust Statement of Cash Flows For the year ended 31 March 2023

Notes
2023
£
Cash generated from operating activities:
Net cash provided by operating activities
see below
209,641
Cash flows from investing activities:
Interest income
3
15,605
Net cash provided by investing and operating activities
225,246
Change in cash and cash equivalents in the reporting period
Cash and cash equivalents at the beginning of the reporting period
2,313,341
Cash and cash equivalents at the end of the reporting
period
2,538,587
Reconciliation of net expenditure to net cash flow from operating activities
2023
.,
£
Net expenditure (as per the statement of
financial activities)
SOFA
781,538
Adjustments for:
Investment income
3
(15,605)
Increase in debtors
10
(1,062,217)
Increase in creditors
11
505,925
Net cash provided by operating activities
209,641
Analysis of cash and cash equivalents
2023
£
Cash in hand
2,538,587
Total cash and cash equivalents
**2,538,587 **
2022
£
697,932
336
698,268
1,615,073
2,313,341
2022
£
577,296
(336)
(145,498)
266,470
697,932
2022
£
2,313,341
2,313,341

1

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

Accounting Policies

Basis of Preparation

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland issued in October 2019, the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102), the Charities Act 2021, the Companies Act 2006 and UK Generally Accepted Accounting Practice.

The financial statements are prepared in sterling, which is the functional currency of the company. Monetary amounts in these financial statements are rounded to the nearest pound.

The financial statements are prepared under the historical cost concept.

The principle accounting policies adopted in the preparation of the financial statements are set out below.

Going Concern Basis

The trustees have assessed whether the use of the going concern basis is appropriate and have considered possible events or conditions that might cast significant doubt on the ability of the charity to continue as a going concern. The trustees have made this assessment for a period of at least one year from the date of approval of the financial statements. In particular the trustees have considered the charity’s forecasts and projections. After making enquiries the trustees have concluded that there is a reasonable expectation that the charity has sufficient resources to continue in operational existence for the foreseeable future. The charity therefore continues to adopt the going concern basis in preparing its financial statements.

Income

Income is recognised in the period to which it relates, when the criteria of entitlement, measurable and probable receipt are met.

Deferred income is income which is received in respect of a future accounting period and is deferred to that period.

Gifts in kind are valued and brought in as income and the appropriate resources expended, when the items are used/distributed. The values attributable to gifts in kind are an estimate of the gross value to the organisation, usually the market cost. Where this intangible income relates to project activities it is included as an activity in furtherance of the charity's objects.

Expenditure

Direct charitable expenditure comprises all expenditure relating to the activities carried out to achieve the objectives.

Governance costs include those costs incurred in the governance of the charity and are primarily associated with constitutional compliance and statutory requirements.

Expenditure is allocated directly to the expenditure headings as far as practically possible to reflect the activities of the charity. Support costs have been allocated to the activities based on employee time spent on that activity.

50

51

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

1. Accounting Policies (continued)

Expenditure is included in the Statement of Financial Activities on an accruals basis, inclusive of any VAT which cannot be recovered. Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably.

Fund accounting

Restricted funds are subject to restrictions imposed by the donor. These are accounted for separately from unrestricted funds and full details are given in note 12.

Unrestricted funds are those which are not subject to restrictions, and any surpluses may be applied in furtherance of any of the organisation's objectives.

Cash and Cash Equivalents

Cash and cash equivalents include cash at banks and in hand and short-term deposits with a maturity date of three months or less.

Debtors and creditors

Debtors and creditors receivable or payable within one year of the reporting date are carried at their transaction price. Debtors and creditors that are receivable or payable in more than one year and not subject to a market rate of interest are measured at the present value of the expected future receipts or payment discounted at a market rate of interest.

Pension

The charity operates a defined contribution stakeholder pension scheme. The assets of the scheme are held separately from the charity.

Critical accounting estimates and areas of judgement

The annual depreciation charge for property, plant and equipment is sensitive to change in useful economic life and residual values of assets. These are reassessed annually.

In the view of the trustees in applying the accounting policies adopted, no other judgements were required that have a significant effect on the amounts recognised in the financial statements nor do any estimates or assumptions made carry a significant risk of material adjustment in the next financial year.

2. Donations

Year to 31 March 2023

Donations Art on a Postcard

Year to 31 March 2022

Donations Art on a Postcard

3. Investment Income

Year to 31 March 2023 Bank interest Year to 31 March 2022 Bank interest

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

Unrestricted
Funds
2023
£
17,665
299,811
317,476
Unrestricted
Funds
2022
£
6,010
204,433
210,443
Unrestricted
Funds
2023
£
15,605
15,605
Unrestricted
Funds
2022
£
336
336
Restricted
funds
2023
£
-
-
-
Restricted
funds
2022
£
-
-
-
Restricted
funds
2023
£
-
-
Restricted
funds
2022
£
-
-
Total
2023
£
17,665
299,811
317,476
Total
2022
£
6,010
261,772
210,443
Total
2023
£
15,605
15,605
Total
2022
£
336
336

4. Income for Charitable Activities

Income for Charitable Activities
Year to 31 March 2023
Grants
4a
Year to 31 March 2022
Grants
4a
Unrestricted
Funds
2023
£
3,201,983
3,201,983
Unrestricted
Funds
2022
£
1,641,381
1,641,381
Restricted
funds
2023
£
3,773,727
3,773,727
Restricted
funds
2022
£
3,136,767
3,136,767
Total
2023
£
6,975,709
6,975,709
Total
2022
£
4,778,147
4,778,147

52

53

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

4a Grants

4a Grants (Continued)

Year to 31 March 2023
AbbVie Ltd
AbbVie Ltd (HCV Action)
Barts Health NHS Trust
Betsi Cadwaladr University Local Health Board
Birmingham and Solihull Mental Health NHS Foundation
Bournemouth Christchurch and Poole Council
Brighton and Sussex University Hospitals NHS Foundation Trust
Cambridge University Hospitals NHS Foundation Trust
Cheshire and Merseyside ODN
East Lancashire Hospitals NHS Trust
Gilead - Scotland Peer Project
Gilead - HCV Action & Parliamentary Work
Gilead HITT
Hull University Teaching Hospitals
Kings College Hospital
Leeds Teaching Hospitals NHS Trust
Mary Kinross Charitable Trust
Merseycare
MSD
MSD – HCV Action
NHS England
NHS England and NHS Improvement – East Midlands (H&J)
NHS Manchester
NHS Thames Valley
NHS Forth Valley
NHS West London – Imperial College NHS Trust
Nottingham University Hospitals NHS Trust
Other
Oxleas NHS Foundation Trust
Practice Plus Group Health and Rehabilitation Services Limited
Public Health Wales NHS Trust
Royal Surrey NHS Foundation Trust
Sheffield Teaching Hospitals NHS Foundation Trust (Peer Education)
Sheffield Teaching Hospitals NHS Foundation Trust (T&V)
South Tees Hospitals NHS Foundation
Spectrum
St George's University Hospitals NHS
The Newcastle upon Tyne Hospitals NHS Foundation Trust
University College London
University Hospital Southampton NHS Foundation Trust
University Hospitals Birmingham NHS Foundation Trust
University Hospitals Bristol & Weston NHS Foundation Trust
University Hospitals of Leicester NHS Trust
University Hospitals Plymouth NHS Trust
Unrestricted
Funds
2023
£
-
-
127,295
-
-
-
134,947
161,206
-
156,011
-
-
-
201,141
98,000
113,399
-
37,500
-
-
-
-
66,692
176,747
-
160,569
230,026
38,695
-
-
-
110,000
136,795
-
9,661
-
119,715
112,624
-
142,569
309,979
163,468
241,299
153,647
3,201,983
Restricted
funds
2023
£
675,000
25,000
-
98,276
25,361
2,000
-
-
39,759
-
47,755
42,500
130,000
-
-
39
38,000
-
944,715
75,000
390,521
105,009
-
-
5,000
-
34,786
24,077
50,000
301,557
2,940
-
-
306,440
-
259,992
-
-
150,000
-
-
-
-
-
3,773,727
Total
2023
£
675,000
25,000
127,295
98,276
25,361
2,000
134,947
161,206
39,759
156,011
47,755
42,500
130,000
201,141
98,000
113,438
38,000
37,500
944,715
75,000
390,521
105,009
66,692
176,747
5,000
160,569
264,812
62,772
50,000
301,557
2,940
110,000
136,795
306,440
9,661
259,992
119,715
112,624
150,000
142,569
309,979
163,468
241,299
153,647
6,975,709
Year to 31 March 2022
AbbVie Ltd
AbbVie Ltd (HCV Action)
Barts Health NHS Trust
Birmingham and Solihull Mental Health NHS Foundation
Bournemouth Christchurch and Poole Council
Brighton and Sussex University Hospitals NHS Foundation Trust
Cambridge University Hospitals NHS Foundation Trust
Coventry City Council
Crossroads Care South East London
East Lancashire Hospitals NHS Trust
Falkirk Council
Gilead - Scotland Peer Project
Gilead - HCV Action & Parliamentary Work
Gilead HITT
Hull University Teaching Hospitals
Kings College Hospital
Leeds Teaching Hospitals NHS Trust
MSD
NHS England and NHS Improvement – East Midlands (H&J)
NHS Thames Valley
NHS Forth Valley
NHS West London
NHS Tayside
Newcastle Track & Trace
Nottingham University Hospitals NHS Trust
Other
Oxleas NHS Foundation Trust
Pilgrim Trust
Practice Plus Group Health and Rehabilitation Services Limited
Public Health Wales NHS Trust
Royal Surrey NHS Foundation Trust
Royal Surrey NHS Foundation Trust (HITT)
Sheffield Teaching Hospitals NHS Foundation Trust (Peer
Programme)
Sheffield Teaching Hospitals NHS Foundation Trust(Training and
Volunteers)
St George's University Hospitals NHS
The National Health Service Commissioning Board (NHS England)
The Newcastle upon Tyne Hospitals NHS Foundation Trust
University Hospital Southampton NHS Foundation Trust
University Hospitals Birmingham NHS Foundation Trust
University Hospitals Bristol & Weston NHS Foundation Trust
University Hospitals of Leicester NHS Trust
University Hospitals Plymouth NHS Trust
Unrestricted
Funds
2022
£
-
-
80,000
-
-
85,000
76,142
15,000
-
80,000
-
-
-
-
40,000
80,000
78,867
-
-
70,000
-
79,431
-
9,000
103,569
4,834
-
-
-
500
83,000
-
60,000
-
78,429
-
8,873
59,431
280,000
66,227
121,077
82,000
1,641,380
Restricted
funds
2022
£
674,346
55,040
-
14,484
2,000
-
366
-
5,760
-
5,000
4,996
52,500
130,000
-
24,263
-
893,936
140,012
-
20,000
-
3,503
-
2,691
546
50,000
15,000
730,882
150,000
546
29,383
-
75,000
-
56,513
-
-
-
-
-
-
**3,136,767 **
Total
2022
£
674,346
55,040
80,000
14,484
2,000
85,000
76,508
15,000
5,760
80,000
5,000
4,996
52,500
130,000
40,000
104,263
78,867
893,936
140,012
70,000
20,000
79,431
3,503
9,000
106,260
5,380
50,000
15,000
730,882
150,500
83,546
29,383
60,000
75,000
78,429
56,513
8,873
59,431
280,000
66,227
121,077
82,000
4,778,147

54

55

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

7. Support Costs

5. Cost of Raising Funds

5.
Cost of Raising Funds
Year to 31 March 2023
Staff Costs
Direct Costs
Year to 31 March 2022
Staff Costs
Direct Costs
Unrestricted
Funds
2023
£
86,477
132,179
218,657
Unrestricted
Funds
2022
£
44,676
128,158
**172,834 **
Restricted
funds
2023
£
-
-
-
Restricted
funds
2022
£
-
-
-
Total
2023
£
86,477
132,179
218,657
Total
2022
£
44,676
128,158
**172,834 **
Staff costs
Staff training
Staff support costs
Rent, rates, light and heat
Travel and subsistence
Insurance
Office move
Office supplies and maintenance
Telephone
Computer Costs
Sundry costs
Legal and professional costs
Audit and accountancy
Bank charges
Total
2023
£
2,028
17,316
5,766
128,865
10,123
23,080
24,376
29,023
31,828
9,109
483
49,162
22,500
373
354,032
Total
2022
£
22,383
-
-
57,839
-
3,353
-
10,903
6,464
1,227
778
192
17,580
360
123,559

All support costs were proportionally allocated to funders according to operational delivery in the year to 31 March 2023.

6. Analysis of Charitable Expenditure by type

Year to 31 March 2023
Advocacy and Drug Services
HCV Action and Parliamentary Work
Helpline
National Volunteer & Trainer
NHS Health & Justice Prison Peers
Scotland Peer Project
Women's Prisons
World Hepatitis Day
Year to 31 March 2022
Advocacy and Drug Services
HCV Action and Parliamentary Work
Helpline
National Volunteer & Trainer
NHS Health & Justice Prison Peers
Scotland Peer Project
Women's Prisons
World Hepatitis Day
Staff
Cost
2023
£
3,225,289
-
16,586
82,212
977,302
32,795
101,898
-
4,436,083
Staff
Cost
2022
£
2,266,691
-
7,964
70,537
698,954
48,242
48,489
-
3,140,877
Direct
Cost
2023
£
899,694
131,884
2,698
89,867
347,192
12,373
30,826
3,947
1,518,481
Direct
Cost
2022
£
565,409
102,233
1,491
70,441
190,879
19,578
26,682
63
976,776
Support
Cost
2023
£
-
-
-
-
-
-
-
-
-
Support
Cost
2022
£
92,009
-
-
1,297
27,837
-
-
-
121,143
Total
2023
£
4,124,982
131,884
19,825
172,079
1,324,494
45,168
132,724
3,947
**5,954,564 **
Total
2022
£
2,924,109
102,233
9,455
142,275
917,670
67,820
75,171
63
4,238,796

8. Staff Costs

Wages and salaries
Social Security costs
Pension costs
Average number of employees during the year
Average number of volunteers during the year
One employee was paid in the range £60,000 to £69,999 in the year (2022: one).
2023
£
3,989,050
410,771
125,638
4,525,459
Number
124
150
2022
£
2,815,087
288,289
82,177
3,185,553
Number
94
134

Key management personnel include the Trustees, Chief Executive (and senior management reporting directly to the Chief Executive). The total employee benefits, including pension costs and employers national insurance contributions of the charity's key management personnel were £293,302 (2022: £282,125). Four employees (2022: four) were considered to be key management personnel during the year.

9. Trustees and related parties

No remuneration was paid to any trustee for services as a trustee and no expenses were reimbursed.

Trustees participated in the Art on a Post Card auction on an arms-length basis.

56

57

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

10. Debtors

Trade debtors
Other debtors
Prepayments
2023
£
1,758,326
24,772
-
1,783,098
2022
£
714,615
2,933
3,333
**720,881 **

11. Creditors: Amounts falling due within one year

Trade creditors
Tax and social security costs
Sundry creditors
Income received in advance
Accruals
2023
£
5,614
112,038
24,185
1,454,235
74,449
1,1670,521
2022
£
28,793
80,121
5,347
1,002,264
48,070
1,164,595

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

12. Statement of Funds (Continued)

. Statement of Funds (Continued)
Funds at
31 March
2021
£
Income
£
Unrestricted funds
468,076
1,852,159
Designated fund
-
-
468,076
1,852,159
Restricted funds
Advocacy and Drug Services
455,071
1,747,142
HCV Action & Parliamentary Work
37,046
107,540
National Volunteer & Training
74,990
80,760
NHS Health & Justice Prison Peers
247,636
1,095,614
Scotland Peer Project
-
33,499
Women's Prisons
9,511
72,212
824,254
3,136,767
1,292,330
4,988,926
Expenditure
£
Transfer
of funds
£
(1,297,903)
(138,922)
-
307,424
(1,297,903)
168,502
(1,808,558)
(60,969)
(102,233)
-
(142,275)
-
(917,670)
(141,854)
(67,820)
34,321
(75,171)
-
(3,113,727)
(168,502)
(4,411,630)
-
Funds at
31 March
2022
£
883,410
307,474
1,190,834
332,686
42,353
13,475
283,726
-
6,552
678,792
1,869,626

Income received in advance is funding for project work to be completed in the year 2023-24

12. Statement of Funds

Funds at
31 March
2022
£
Unrestricted funds
883,410
Designated fund
307,424
1,190,834
Restricted funds
Advocacy and Drug Services
332,686
HCV Action & Parliamentary Work
42,353
National Volunteer & Training
13,475
NHS Health & Justice Prison Peers
283,726
Scotland Peer Project
-
Women's Prisons
6,552
678,792
1,869,626
Income
£
3,535,063
-
3,535,063
1,775,458
142,500
306,440
1,373,804
52,755
122,771
3,773,728
7,308,791
Expenditure
£
(2,747,154)
-
(2,747,154)
(1,973,749)
(131,884)
(172,079)
(1,324,494)
(45,169)
(132,724)
(3,780,099)
(6,527,253)
Transfer
of funds
£
(47,293)
253,508
206,215
(47,700)
-
-
(161,916)
-
3,401
(206,215)
-
Funds at
31 March
2023
£
1,624,026
560,932
2,184,958
86,695
52,969
147,836
171,120
7,586
-
466,206
2,651,164

Designated Fund

The Trustees have agreed to designate funds for future redundancies in line with the completion of NHS England’s elimination programme

A transfer of £209,616 (2022: £202,823) was made from the restricted fund to the unrestricted funds to cover budgeted core spending provided for within the agreed budget.

A transfer of £3,401 (2022: £34,321) was made from unrestricted funds to restricted funds for the overspend on a restricted project that will not be reimbursed next financial year.

58

59

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

The Hepatitis C Trust Notes to the Financial Statements For the year ended 31 March 2023

13. nalysis of Net A ssets b etw een Funds

12. Statement of Funds (continued)

Restricted Funds

The nature and purpose of each of the funds is as follows:

dv ocacy and Drug Serv ices: includes peer-to�peer education and awareness programmes, delivering key messages about hepatitis C prevention, diagnosis, treatment and care to people attending community drug services, hostels and homeless shelter; this includes a bespoke South Asian peer programme. Staff training is carried out within all the programmes and is delivered to those staff working in services with people who are at a high risk of hepatitis C. We also have a mobile outreach programme which provides testing and raises awareness, especially amongst high prevalence communities and populations that are difficult to reach, such as the homeless

HCV A ction : a very useful vehicle for collecting and disseminating best practice in hepatitis C care and treatment, and for supporting Hepatitis C as the patient voice.

ear to 31 March 2023
Current assets
Current liabilities
ear to 31 March 2022
Current assets
Current liabilities
Unrestricted
Funds
2023
£
2,048,006
(1,164,596)
883,410
Unrestricted
Funds
2022
£
2,048,006
(1,164,596)
883,410
Designated
Funds
2023
£
307,424
-
30 ,424
Designated
Funds
2022
£
307,424
-
30 ,424
Restricted
Funds
2023
£
678,792
-
6 6, 92
Restricted
Funds
2022
£
678,792
-
6 6, 92
Total
2023
£
3,034,222
(1,164,596)
1,869,626
Total
2022
£
3,034,222
(1,164,596)
1,869,626

National V olunteer and Training Serv ice:

The National team operate through two strands:

  1. The delivery and oversight of core mandatory training and development of our staff including induction. Hepatitis C training to professionals and other service providers.

  2. The delivery of The Hepatitis C Trust volunteering programme which includes supporting our volunteers across different areas of our work and ensuring that all are provided with opportunity to access training and development to both support them in their roles and further their employment opportunities.

NHS Health and Justice Prison Peers: The Hepatitis C Trust engages in peer-to-peer and awareness raising activities across UK prisons in order to: 1) Provide information about hepatitis C to those at risk an who are often hard to engage 2) Encourage and support people in prisons to get tested and to access treatment and care 3) Train people in prison to become Hepatitis C peers.

14. perating L ease Commitments

perating lease which expire:
ess than 1 year
Within 2-5 years
E uipment
2023
£
2022
£
-
-
3,096
3,096
9,288
12,384
and and uildings
2023
£
2022
£
-
14,104
91,250
-
91,2 0
14,104
and and uildings
2023
£
2022
£
-
14,104
91,250
-
91,2 0
14,104
14,104

Scotland Peer Project: Peer-to-peer awareness and education project that provides key messages about hepatitis C prevention, diagnosis treatment and care to people attending recovery cafés, homeless hostels,shelters as well as people in prison. Our Voices group brings together people affected by hepatitis C,building their knowledge and awareness and supporting them in having their voices heard.

Women’s Prisons: Women specific hepatitis C peer programme working across the female prison estate educating, raising awareness, changing the conversation, reducing stigma and supporting women to get tested and treated.

60

61

THANK YOU

We would like to take this opportunity to thank our funders, from individual donors to large statutory and trust funders, with who we would not be able to achieve the work we have reported on this year. We greatly appreciate their commitment to our cause and the resources they provide in order for us to reach our goals.

We would like, in particular, to thank:

AbbVie Ltd Barts Health NHS Trust Birmingham and Solihull Mental Health NHS Foundation Bournemouth Christchurch and Poole Council Brighton and Sussex University Hospitals NHS Foundation Trust Cambridge University Hospitals NHS Foundation Trust Coventry City Council Crossroads Care South East London East Lancashire Hospitals NHS Trust Falkirk Council Gilead Hull University Teaching Hospitals Kings College Hospital Leeds Teaching Hospitals NHS Trust MSD NHS England and NHS Improvement – East Midlands (H & J) NHS Thames Valley NHS Forth Valley NHS West London NHS Tayside Newcastle Track and Trace Nottingham University Hospitals NHS Trust Oxleas NHS Foundation Trust Pilgrims Trust Practice Plus Group Health and Rehabilitation Services Limited Public Health Wales NHS Trust Royal Surrey NHS Foundation Trust Sheffield Teaching Hospitals NHS Foundation Trust St George’s University Hospitals NHS The National Health Service Commissioning Board (NHS England) The Newcastle upon Tyne Hospitals NHS Foundation Trust University Hospital Southampton NHS Foundation Trust University Hospitals Birmingham NHS Foundation Trust University Hospitals Bristol & Weston NHS Foundation Trust University Hospitals of Leicester NHS Trust University Hospitals Plymouth NHS Trust

62

THE HEPATITIS C TRUST Working together to eliminate hepatitis C

Registered in England and Wales Charity Number: 1104279

Registered in Scotland Charity Number: SCO39914

Registered Company Number: 5069924

72 Weston Street London SE1 3QG

hepctrust.org.uk

© The Hepatitis C Trust | Annual Report & Accounts 2023