THE HEPATITIS C TRUST Working together to eliminate hepatits C
OUR MISSION
The Hepatitis C Trust, finding and supporting those living with, affected by or at risk of hepatitis C. On a mission with our partners to eliminate hepatitis C from the UK by 2030, leaving no one behind.
CONTENTS
| Trustees’ report | ||
|---|---|---|
| Our focus | 44 | |
| Letter from the CEO & Trustees | 66 | |
| Financial overview | 10 | |
| Achievements and performance | ||
| Leaving no one in the community behind | 14 | |
| Leaving no one in prisons behind | 16 | |
| Training to ensure no one is left behind | 20 | |
| Supporting those affected by infected blood blood | products | 24 |
| World Hepatitis Day | 28 | |
| Keeping hepatitis C on the political agenda | 30 | |
| Connecting the hepatitis C professional community | 34 | |
| Fundraising: art supporting hepatitis C elimination | 38 | |
| Governance and management | 40 | |
| Financial review | 41 | |
| **Independent Auditor’s Report ** | 40 | |
| Financial statement | 42 |
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Our focus
OUR FOCUS
our employees and volunteers have lived experience of hepatitis C. We know that we will not achieve elimination unless we look at the area of reinfection and harm reduction. This is an area of increasing importance in our work.
We are on track to eliminate the
hepatitis C virus fom the UK, but there is still a lot more work to be done.
we will not achieve elimination unless we Our vision look at the area of reinfection and harm reduction. This is an area of increasing is to stop
importance in our work. people
Our strategy dying from Our strategy is focused around the pillars of better prevention and more diagnosis hepatitis C and treatment for all. With an elimination deal in place with UK governments, and and
our peer programmes reaching across eliminate it communities and prisons in the UK, we
are currently working to identify and from the UK engage both those undiagnosed and those diagnosed but untreated. by 2030
Globally, there are roughly 1.5 million new infections of hepatitis C, a potentially cancer-causing virus, each year, and currently an estimated 3.2 million adolescents and children with chronic hepatitis C infection. The Hepatitis C Trust are part of a global initiative to eliminate hepatitis C by 2030.
We are the only organisation in the UK set up solely with the objective to eliminate hepatitis C.
We have been operational since 2001, and in this time have grown from a small organisation of two people to one of 93 permanent staff and 150 peer volunteers – this includes large on the ground peer-topeer programmes in both the community and prisons, working across 23 NHS Operational Delivery Networks (ODNs) and 128 prisons. We are a patient-led and patient run organisation; a majority of
“People prefer to speak to someone who has lived experience, someone who knows what it’s like to be where they are.”
Jim, Peer Support Worker
Hepatitis C is a blood-borne virus that predominantly infects liver cells. This can result in infl ammation and signifi cant damage to the liver. It can also aff ect the liver’s ability to perform its essential functions. Although it has always been regarded as a liver disease, recent research has shown that the hepatitis C virus (HCV) aff ects a number of other areas of the body. These can include the digestive system, the lymphatic system, the immune system and the brain.
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Trustees’ and CEO message
Trustees’ and CEO message
MESSAGE FROM THE TRUSTEES’ AND CEO
This year The Hepatitis C Trust celebrated 20 years as an organisation. Looking back on our defining moments and accomplishments we are excited and proud at how much we have achieved.
Over the past 20 years we have grown from a team of two to a team of 93 employees and 150 volunteers, working across the UK in both prisons and the community. We have seen the treatment for hepatitis C move from interferon and ribavirin in 1999/2001, a lengthy and difficult treatment with a low success rate, to the use of directacting antiviral (DAA) treatments providing a simple and effective cure with a 97% success rate.
As a key player in ensuring the cause of hepatitis C has been taken up at a global level, we have also been extremely pleased to see the global and UK government commitments towards the elimination of hepatitis C made in more recent years. There is a lot to celebrate. However, the Trust’s focus is still firmly fixed on the years ahead and the importance of seeing that those hardest to engage are reached, while maintaining a high level of awareness around the causes of hepatitis C transmission to prevent new infections from arising and maintain elimination once it’s been reached.
This year we maintained our focus within a landscape still dominated by Covid-19; in the remaining restrictions and shutdowns early in the year, and then in recovery from the impact later on.
During the pandemic our peer services, particularly in the community, adapted well to picking up gaps in hepatitis C service delivery on behalf of the NHS and third sector partners. This led to our having greater autonomy and innovation in terms of service delivery and the activities we were able to deliver – evidencing the great value our peer programme provides. This heightened recognition has been reflected in the continued growth of our staff team, and an increasing number of peer staff and new volunteers. The introduction of a National Volunteer Manager role has provided a more robust structure for all new volunteers and a pathway to education, securing qualifications and often employment.
Partnership working has remained central to how we work, with us having entered many new programme activities, including providing support to both cancer screening and A & E testing initiatives. Work across the UK prison estate has been difficult with prison staff shortages and the continued impact of Covid-19. Our national peer team has managed to maintain a strong presence and the national High Intensity Test and Treat (HITT) prison programme was able to be re-established, with us taking part in a high number of HITTs with our health and criminal justice partners.
Across the devolved nations we maintained our parliamentary and policy work, engaging with ministers in Scotland, garnering support and keeping hepatitis C elimination on the agenda. In Wales we engaged in a hepatitis C roundtable meeting with Members of the Senedd and subsequently contributed to a consensus
statement. A particular highlight and success was the launch of an initiative to link MPs to the community work of our local peer teams, so they could gain firsthand experience of our hepatitis C work on the ground to inspire them to take up our cause.
With harm prevention and reinfection high on our agenda, in partnership with HCV Action, we published a new report Reframing Reinfections . The report highlighted that the key issues identified at the root of reinfection reflect the most critical challenges faced by the UK hepatitis C elimination programme as a whole.
Our information and support service has continued to provide much needed support to those infected and affected by the infected blood scandal. This year we got the opportunity to present our own detailed witness statement, drawing on over 18 years’ experience of support to those affected and infected. Having the opportunity to represent the individual voices of those who sit outside the established infected blood groups was very important to us.
It is incredible that an organisation set up as a place where people with hepatitis C could turn to get friendly and accessible information and support, at a time when neither of these were available, has grown to accomplish so much. However, there is still much more for us to do: finding those that are yet to be diagnosed, ensuring that the right data systems are in place to verify national hepatitis C prevalence, and making sure when we reach elimination that it can be maintained.
We look forward to the day that we can close our doors because hepatitis C has been eliminated and we are no longer needed.
We hope you enjoy the rest of the report.
Thank you
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The year in numbers
THE YEAR IN NUMBERS 2,202 1,197 Metropolitan Police Officers trained staff working in community services trained in hepatitis C awareness in hepatitis C awareness 142 peer volunteers completed induction training 1000 19,919 people in prison supported people in the community tested for hepatitis C through treatment this year 31,167 individual interventions provided to people with hepatitis C in the community 26,845 13,631
individual interventions provided to people with hepatitis C in the community 26,845 people in prison engaged through hepatitis C awareness outreach sessions
people in prison tested through HITTs*
*High Intensity Test and Treat (HITTs) are whole prison testing events
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Financial overview
Financial overview
FINANCIAL OVERVIEW
AN OVERVIEW OF OUR TOTAL INCOME AND EXPENDITURE FOR THIS YEAR, WITH A COMPARISON TO THAT OF LAST YEAR.
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Total
Income
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2020-21 2021-22
Donations £0.27M £0.21M
Investments £151 £336
Charitable activities £3.34M £4.78M
Rental Income £0.02M -
Total £3.63M £4.99M
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Total Expenditure
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2020-21 2021-22
Raising Funds £0.21M £0.17M
Charitable Activities £2.8M £4.24M
Other Income £0.02M -
Total £3.04M £4.44M
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More in-depth details can be found in our financial report available on pages 42-61. Amounts below £0.01M do not show in the pie charts, but are available in the table.
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Leaving no one in the community behind
LEAVING NO ONE IN THE COMMUNITY BEHIND
2020-21 target
Increase our case fi nding capacity and play a role in supporting the NHS England hepatitis C elimination programme, while working with partners to better understand reinfection.
‘As part of the reinfection work we have found nine confi rmed positives linked to one person across three diff erent households.’
INCREASING OUR REACH
This year was generally viewed as a recovery year by many of the community services we work with, with testing numbers and client footfall having fallen signifi cantly as a result of Covid-19. NHS clinics were also recovering to pre-pandemic levels.
our community peer team continues to grow. We have created regional deputy manager roles to respond to this growth.
We increased our focus on ethnic minority groups this year, delivering a South Asian targeted hepatitis C campaign in partnership with NHS Reading and a new national South Asian programme. We also completed some focused awareness within Eastern European populations, such as testing within an Eastern European supermarket in Lincolnshire.
COMMUNITY PEER ROLES IN NHS CLINICAL ACTIVITIES
The number of clinical activities our community peers were able to perform on behalf of our NHS partners increased signifi cantly this year - a development on the greater autonomy aff orded them while picking up service delivery gaps during Covid-19.
The expansion of our staff team has enabled us to network with more organisations, establishing clinics in homeless centres; drug and alcohol services; housing associations/hostels; street worker charities and voluntary organisations.
Our peers now complete the NHS street worker charities and voluntary paperwork required for patients to be organisations. presented for treatment consideration. ‘This is They also operate various diagnostic New programmes our peers are equipment on behalf of the NHS, testament to involved in this year: including Fibroscan tests to assess an increased patient liver damage and Cepheid • Specifi c peers to support pharmacy machine testing for rapid RNA results. working testing This is testament to an increased working • Probation and approved premises relationship between our peers and NHS relationship testing between our clinical teams, and importantly has had a • Cancer screening mobile clinics big impact on how quickly we have been testing peers and able to get patients seen and treated. • A & E department testing NHS clinical GROWTH teams.’ With requests from ODNs for additional
With requests from ODNs for additional Trust staff to support existing work, and new initiatives funded by NHS England,
19,919 people in the community tested for hepatitis C this year
31,167 individual interventions provided to people with hepatitis C
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Leaving no one in the community behind
Leaving no one in the community behind
STORY OF IMPACT
SUPPORTING TOM INTO TREATMENT
Tom was diagnosed with the hepatitis C virus (HCV) in 2004, but didn’t engage in treatment. His diagnosis was confi rmed in May 2019 when he was tested for HCV at Change Grow Live (CGL), a substance misuse service, but again he declined a referral to the local ODN. Despite discussions with his CGL care-coordinator, he continued to decline treatment. In March 2021, Tom agreed to talk to someone who had themselves completed HCV treatment and was referred to one of our peer support workers.
Tom continued to decline a referral to his ODN despite our peer support, but agreed for our peers to stay in contact with him. Our peers continued to regularly call and text Tom over the next eight months, off ering care, consistency and understanding.
In November 2021, Tom agreed to a joint meeting with our peer workers, CGL and the local hepatology nurse - with the understanding that there would be no commitment for him to start treatment. At the meeting Tom was reassured and agreed to have all the relevant tests, knowing that he remained in control and would be able to confi rm if and when he would be ready to start treatment.
Our peers continued to support and motivate Tom, and in February 2022 he commenced an eight week course of hepatitis C treatment. Tom has since completed his end of treatment test which showed that he is RNA negative. He is very grateful for the support he received.
Hepatitis C testing
MAKING PROGRESS WITH THE BIRMINGHAM CEPHEID PROJECT
The Birmingham Cepheid project continues to impact positively on the ability of our peers to test and treat people quickly.
Since Covid-19 we have worked increasingly closely in delivering NHS services. Our peers now use Birmingham NHS’s Cepheid machine, which tests for rapid RNA results. By delivering results within one hour of testing, it allows us to get patients started on pan genotypic medication within two weeks of testing.
OUR BIRMINGHAM OUTCOMES THIS YEAR:
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596 people tested
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225 people antibody positive
This work has been presented at numerous conferences, such as the International conference on Hepatitis Care in Substance Users, the British Association for the Study of the Liver, and the Institute of Biomedical Science Congress.
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128 people RNA positive
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117 treatment starts
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61 Sustained Virologic Response (SVR) 12 weeks aft er treatment
Zoe, Peer Support Worker
OTHER NOTABLE ACHIEVEMENTS
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Seft on & Coventry peers being commissioned by local authorities
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Supporting children in hepatitis C paediatric care at Birmingham Hospital
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Kent mobile testing van
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‘Deliveroo’ testing on your doorstep in Sussex
STORY OF IMPACT COMMUNITY SUBSTANCE MISUSE SERVICE VIEW
Our services works closely with The Hepatitis C Trust, and have the wonderful peer support worker Zoe with us each week. Zoe supports our work in hostels and other community recovery hubs to promote testing and help people engage in hepatitis C treatment.
Zoe attends appointments with our service users and supports them in preparing to begin treatment. We recently had a male service user who was identifi ed as HCV positive, but kept disengaging from his Opioid Substitution Treatment (OST) programme. He found it diffi cult to attend his prescribing reviews as his life was too chaotic to allow for him to be compliant with his HCV treatment. Zoe collected him from his accommodation to bring him to his prescribing review to get him started back on OST, so he could begin his HCV treatment.
Zoe has also off ered a Deliveroo-inspired testing service where she has taken a testing kit to someone’s house, dropping it off and picking it up once completed. Zoe and her colleague Dawn also support staff who are unsure about testing, providing a bit of a refresher, or rebuilding their confi dence.
Zoe attends a lot of our meetings to talk about HCV testing, treatment and available support. She also joins regular meetings with the HCV nurse and ourselves to support those who are positive into treatment and to target testing.
‘The possibilities are endless, and we are lucky to have Zoe.’
Community substance misuse service provider
OUR 2022-23 PRIORITY
To increase our reach to ensure no one is left behind, while working with partners to gather strong data to support elimination.
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Leaving no one in prisons behind
LEAVING NO ONE IN PRISONS BEHIND
2020-21 target
Increase our case fi nding capacity and play a role in supporting the NHS England hepatitis C elimination programme.
‘We delivered 19 High Intensity Test and Treat programmes, contributing to 35 prisons reaching micro elimination.’
‘We worked in 93 prisons across England, re-establishing our core activities and interventions.’
EXTENDING OUR REACH
High Intensity Test and Treat (HITTs) initiatives producing collaborative working with full prison buy-in from residents and staff , leading to successful whole prison testing and access to a treatment pathway. HITTs not only allow us to fi nd newly diagnosed cases, but also those re-infected, which is paramount if we are to reach elimination and deliver targeted harm prevention work.
Our work across the prison estate
continued to be aff ected by Covid-19 this year. Access to individual prisons fl uctuated according to outbreaks. Our national network of prison peers did, however, maintain a strong presence and continue to raise awareness of hepatitis C, supporting people both into testing and treatment.
We worked in 93 prisons across England,
re-establishing our core activities and interventions following Covid-19 prison lock downs. This included peer workshops; Hepatitis Awareness Training (HAT), to both residents and staff ; oneto-one support for the newly diagnosed; and the running of testing campaigns.
We delivered 19 HITT events with our partners. These contributed to 35 prisons reaching micro elimination*, 14 of which have since maintained this.
*The requirement for micro elimination is that 95% of people in the prison population have been tested within the last 12 months; that 90% of people who have tested positive have started treatment within the last 12 months; that a process is in place for a quarterly review of testing and treatment uptake; and that there is reception testing and direct outreach.
Our highlights include the expansion of our prison peer programme to both Scotland and Wales. The full implementation of our from prison to the community Follow Me programme, creating a successful treatment pathway for people transitioning from prison to the community, or vice versa, preventing them from becoming lost to follow up.
26,845 people in prison engaged through outreach sessions
1,000 people in prison supported through treatment
572 referrals made through our prison Follow Me programme
13,631 people in prison tested in HITTs this year
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Leaving no one in prisons behind
Leaving no one in prisons behind
STORY OF IMPACT
PETER’S PEER JOURNEY
In early 2021 we began working with Peter* in HMP Dartmoor. He attended one of our Hepatitis Awareness Training sessions and showed a keen interest in becoming a volunteer peer worker.
We spoke to him about the recruitment process and he applied. During our risk assessment with staff at HMP Dartmoor, they told us Peter might not be suitable as they felt he didn’t engage well with offi cers. Applying our own recruitment criteria we deemed him to be low risk, and following a conversation with the substance misuse team in Dartmoor agreed that with careful monitoring this would present an opportunity for Peter to have a responsible role and make a diff erence.
Peter fi tted the criteria of a typical ‘revolving door’ resident, who we thought was showing a real willingness to change. We used this opportunity not only to train him, but also to support him in moving away from a ‘revolving door’ cycle, and from the stigma of being ‘one of those men that’s never going to change’.
As part of our peer training we coach people in how to deliver a life story with hepatitis C key messages–Peter really excelled at this. He had a powerful story to share, which helped break down hepatitis C associated stigma for others. Over time he began to deliver interventions on the wing and became the go-to person for support. Despite a few issues in the early days, prison offi cers started to notice a change in Peter’s behaviour and through him became more educated about hepatitis C.
Peter was released into the Plymouth area just over three months ago. Our community workers met him immediately on his release, and he is now training to become a Trust community peer volunteer.
*Name changed to protect identity
‘As part of our peer training we coach people in how to deliver a life story with hepatitis key
messages - Peter really excelled at this.’
A prison HITT team
‘We tested 95% of the prison population at HMP Holme House.’
STORY OF IMPACT
HIGH INTENSITY TEST AND TREAT AT HMP HOLME HOUSE
HMP Holme House is a large Category C prison with around 1,170 prisoners. The conversation to carry out a HITT there started six months prior to the event.
The Trust held pre-planning meetings with local ODN representatives, HMP Holme House prison staff , Drug and Alcohol Recovery Team (DART) and healthcare managers, and put a plan of action in place. We already had a strong relationship with the non-clinical and clinical DART team at the prison, and our Peer Lead and team had been making regular visits to deliver peer stories; provide staff with Hepatitis C Awareness Training; and to identify and train prison peers.
We had four Trust peer workers, four ODN nurses, four prison nurses, DART workers and prison offi cers in the HITT team. The HITT was scheduled to last fi ve to seven days, but with such a great team on board it was completed in just four. In the fi rst two days we tested over 500 prisoners with Dry Blood Spot Tests, and in total we tested 95% of the whole prison population at HMP Holme House.
For those who tested positive, treatment starts were fi ve to seven days aft er the HITT. Our prison peer team checked in regularly with these new patients to off er support throughout their treatment.
These collaborative, intensive testing events are really eff ective at microeliminating hepatitis C from prison communities, allowing us to reach those oft en hardest to access within the community. They also provide a great opportunity to reduce stigma, to provide both hepatitis C education and advice to people in prison and to prison staff , and to prove what we can achieve when we all work together in our drive to eliminate hepatitis C.
OUR 2022-23 PRIORITY
To maintain our case fi nding capacity, and increase our reach across the criminal justice system.
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Training to ensure no one is left behind
TRAINING TO ENSURE NO ONE IS LEFT BEHIND
2020-21 target
Increase our case fi nding capacity and play a role in supporting the NHS England hepatitis C elimination programme, while working with partners to better understand reinfection and further our harm prevention work.
‘Most of the people who work for the Trust have lived experience of hepatitis C.’
‘Our training is integral to our work, who we are, and how we’ve built ourselves as an organisation.’
TRAINING TO CHANGE LIVES
We are strong advocates of using the personal experience of the patient to overcome barriers to getting people tested, diagnosed and treated.
us to help them move forwards positively with their lives. For some of our peers it will be their fi rst job. These are oft en vulnerable people who might have felt ostracised by wider society. The active roles they take on as peers supporting others in the community helps to provide them with a sense of purpose, and for them to feel part of society.
Our story as an organisation began with two hepatitis C patient founders, today we have 93 permanent members of staff and 150 peer volunteers. Most of the people who work for the Trust have lived experience of hepatitis C. Many begin their journey as a volunteer peer support worker having already cleared hepatitis C. Others decide to become a volunteer peer support worker aft er being supported through the treatment pathway themselves by one of our peers — many volunteers go on to become permanent members of our team.
Peers are trained to perform regulated activities and are essential in supporting the NHS in all its targets towards elimination.
Alongside this, we are also the main provider for Hepatitis Awareness Training in the UK. We train staff in prisons, drug services, homeless services, the police and probation services, as well as immigration centres and approved premises.
This is only made possible through the training we provide. Our training is integral to our work, who we are, and how we’ve built ourselves as an organisation.
Our training department went through substantial change this year, with the addition of a senior trainer and a national peer volunteer manager. This led to our developing new monitoring systems and carrying out a review of the training packages we deliver across all our programmes.
Our peer induction and training programme sits alongside our staff training and development programmes. We support peers to gain experience and qualifi cations throughout their time with
1,197 Metropolitan Police Offi cers trained in hepatitis C awareness
2,202 community service provider staff trained in hepatitis C awareness
142 new peer volunteers received induction training
34 peer volunteers enrolled in educational study programmes
4 prison peer volunteers currently enrolled in education programmes
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Training to ensure no one is left behind
Training to ensure no one is left behind
STORY OF IMPACT
MY PEER TRAINING KATE
I considered myself to have a relatively normal home life. Then there was my parents’ divorce and the loss of my grandparents. This was when I started using alcohol and drugs.
I moved on to using drugs in a risky manner - injecting. At the time I didn’t take into consideration hepatitis C or any other BBVs.
Living in a women’s refuge, I was trying to come off drugs and I had it in the back of my mind that I’d been at risk. It was the TV programme It’s a Sin about the HIV/AIDs crisis that got me thinking about getting tested. A drugs worker who had previously been a peer at The Hepatitis C Trust got their Peer Support Lead to give me an antibody test. It came back positive, which was pretty overwhelming.
I was interested in becoming a volunteer myself, so I started volunteering as a peer with the Trust. I enjoy loads of things about being a peer. For a start the team are fantastic and supportive of each other. No judgements, they allow you to be yourself and start making plans for the future.
I did online training and morning check-ins during Covid, connecting with people from all over. I then did face-to-face training in Sunderland. I had a little blip with drugs, but when I turned up again everybody cheered and said Kate’s back. I don’t think I’ll ever forget the feeling I got. The Trust made me feel like I didn’t need to feel shame, that I was welcome, and that I had support. It has given me something to look forward to–where else would I get the opportunity to use my lived experience to move forward and help others.
Aft er 15 months of volunteering, I became an employee of the Trust. I’m now a Peer Support Lead with my own area. The Trust has literally given me the opportunity to turn my life around and to help others.
“I really struggled with a classroom environment as I left school not being able to read and write. Over the years I’ve been improving my literacy, but I feel I’ve made the most improvement having studying days with my fellow peers. Getting feedback when we’re out testing has also really helped build my self-confi dence.” Kate
‘Where else would I get the opportunity to use my lived experience to move forward and help others.’
STORY OF IMPACT
BECOMING A PEER: MICHAEL’S STORY
I was fi rst informed I had HCV in 1996 while in prison. This was done by having a piece of paper shoved under my cell door.
It wasn’t until 2021, when I was in a hostel, that I was approached by The Hepatitis C Trust peer worker Philippe Bonnet, who off ered to test me again. The Trust’s Paddy Burke then arranged for me to fi nally access treatment on the ODN bus in Birmingham City centre.
He continued to call regularly to make sure I was alright. I eventually came out of rehab and went to get my SVR 12 test. Harm reduction advice was explained to me in detail and how not to get re-infected, particularly with sharing potentially contaminated water. I found the information really informative and it defi nitely stopped me sharing any injecting equipment.
When Paddy asked if I wanted to become a peer, I couldn’t believe someone wanted me to do something positive for them. I said yes, went through training and have been out weekly with the Trust since. I really enjoy helping others when it comes to HCV, spreading the message about the importance of being tested and treated. I could be in Ghana or anywhere in the world, and I would still knock on doors informing people about this virus.
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All our staff meet/receive national minimum standards training relating to core skills in Health and Social Care.
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Our peer volunteers all receive a training induction which includes components on communication skills, data regulations, equality & diversity, safeguarding vulnerable adults, health & safety and managing time & wellbeing. Volunteers can also access the same vocational training as contracted staff .
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12 staff are currently enrolled in accredited Health & Social Care training, with three staff having already successfully completed it.
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We rolled out a Teacher Training Level 3 qualifi cation; 13 staff enrolled and 10 have successfully completed that qualifi cation.
OUR 2022-23 PRIORITY
To increase our reach to ensure no one is left behind, while working with partners to gather strong data to support elimination.
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Supporting those aff ected by infected blood and blood products
SUPPORTING THOSE AFFECTED BY INFECTED BLOOD AND BLOOD PRODUCTS
2020-21 target
Continue to represent and support those infected and affected by issues related to Infected blood, and act as an expert resource to the Infected Blood Inquiry.
‘It is estimated that someone is dying every 3 – 4 days as a result of having received infected blood before 1 September 1991, over 400 people since the Inquiry started.’
REPRESENTING THE VOICES OF THOSE AFFECTED
The need for someone to take responsibility for the NHS administering infected blood and blood products in the 1970s and 80s, and to pay compensation, has never been more important. Some of those aff ected have been campaigning for over 30 years for this to happen.
stories are recently diagnosed, or have been greatly stigmatised and would otherwise be reluctant to take part.
We also provide support and guidance to those making applications for fi nancial support from the UK blood support schemes, which can be a time consuming and complicated process to navigate, especially for the elderly and those with physical and mental health problems as a result of their infection. In some cases we are making people aware of these schemes for the fi rst time.
The Infected Blood Inquiry hearings formally began in July 2018, and are still running today. Hundreds of testimonies have been heard from those infected or aff ected, government bodies, patient-led campaign groups, former and current Ministers, medical professionals, charities, The NHS Blood and Transplant Service and a wide range of researchers and other professionals.
This year we got the opportunity to present our own detailed witness statement, drawing on over 18 years’ experience of supporting those aff ected and infected – since our helpline fi rst launched in July 2004. It was hugely important for us to represent the voices of those who sit outside the infected blood groups; people who haven’t necessarily been in contact with the Inquiry before, and who may not have accessed support elsewhere. It gave us the opportunity to talk about some of the issues and complexities these people have struggled with, so their voices could be heard.
The Infected Blood Inquiry: The Memorial
We continue to provide direct support to those infected and aff ected (bereaved partners, grieving parents and other family members) at the Inquiry hearings. Most of those we support to tell their
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Supporting those aff ected by infected blood and blood products
Supporting those aff ected by infected blood and blood products
STORY OF IMPACT
OUR WITNESS STATEMENT Samantha May, Helpline Information and Support Service Manager
I joined the helpline when it fi rst launched in July 2004. In September 2021, on behalf of the Trust, I got the opportunity to submit The Hepatitis C Trust’s witness statement to the Infected Blood Inquiry.
Having spent years supporting the infected blood community to submit their statements, it was time to submit ours. It was a great opportunity to raise all the issues we have observed since the helpline fi rst opened in 2004, representing the voices of those who have contacted the helpline, answering questions put forward by the Inquiry team and the legal teams of both the government and those aff ected by infected blood. The statement took us almost a year to complete and ran to 60 pages.
My response to the question of whether people had been informed about the risk of HCV at the time, was that I couldn’t recall a single caller who said they were given information from medical staff about the potential risk of HCV, or indeed any other blood borne viruses, in blood/blood products before they were administered. I also told the Inquiry that only a handful of our callers were offi cially identifi ed in the NHS lookback, which asked people to come forward for testing if they’d had blood transfusions.
‘Thank you…You in one sense represent The Hepatitis C Trust, and you might like to know that long before people found comfort, or a sense of being listened to in respect here, what I have picked up in witness statements, is that a lot of people have had great support from The Hepatitis C Trust, from the helpline in particular, because it has been their point of contact. They speak of, I think universally, in glowing terms of The Hepatitis C Trust. And in this Inquiry, speaking universally well of something is something to be valued and remarked upon. So thank you again for refl ecting that in what you have said.’
Sir Brian Langstaff , Chair of the Infected Blood Inquiry, March 2022
Samantha May submits the Trust’s witness statement
‘It was a great opportunity to raise all the issues we have observed since the helpline fi rst opened in 2004.’
OUR HELPLINE INFORMATION AND SUPPORT SERVICE
Our helpline received 3,112 contacts through telephone calls, emails, letters and social media this year, an increase of 340 on the previous year. A total of 1,597 of these were related to queries around the Inquiry, the blood support schemes, compensation, support with health concerns, and for guidance on being tested in light of a blood transfusion decades ago.
‘Thank you for all you do, you are always there to speak to and you always make time for everyone, nothing’s ever too large or small in all the years I’ve spoken to you and there’s never any judgment.’
STORY OF IMPACT ONLINE SUPPORT FOR THE INFECTED BLOOD COMMUNITY
In early 2021, we identifi ed the need for an online support group for the infected blood community: a friendly, confi dential and supportive platform for members to come together and keep up-to-date on Inquiry developments, the payment schemes and the proposed compensation framework.
Throughout this year we have worked with the support of Contaminated Whole Blood UK to shape this new forum. The support group successfully launched in March 2022 as a fortnightly meeting, hosted by members of our helpline team with additional support from Michelle Tolley from Contaminated Whole Blood UK. It was very well received.
We plan to continue to build on this success in the future, providing an ongoing forum and support for people as the Inquiry begins to wind down at the end of this year, and aft er it concludes.
‘I was a person who felt alone, lost, and emotionally drained, until I found the group. As we are victims from all over the UK, meeting up is impossible. Supporting each other, knowing that others are going through the same journey, feeling like we are a community, and together we can address any concerns. I cannot think of a better group with genuine support from The Hepatitis C Trust team.’
Support group participant, March 2022
OUR 2022-23 PRIORITY
To continue to represent and support those infected and aff ected by infected blood, and widen our resource within this support.
Helpline caller
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27
WORLD HEPATITIS DAY: CELEBRATING 10 YEARS SINCE OFFICIAL LAUNCH
Our challenge this year, to travel the 24,901 mile circumference of the world by walking, running, cycling, swimming, rowing, wheel chairing and any other means of personal physical travel. We achieved 27,871 miles, exceeding our goal by 2,970 miles.
Held on 28 July, World Hepatitis Day is a World Health Organization (WHO) global public health day. For those working to eliminate hepatitis C it’s a great opportunity to raise collective awareness about the risks of hepatitis C and to push for increased testing and treatment.
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Report Section
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Annual Repors & Accounts 2022
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Keeping hepatitis C on the political agenda
KEEPING HEPATITIS C ELIMINATION ON THE POLITICAL AGENDA
2020-21 target
To ensure hepatitis C stays fi rmly on the agenda of UK governments/policy makers.
‘We have a strong record of keeping Hepatitis C elimination on the political agenda.’
‘We successfully secured statements of support... from leading politicians.’
BRINGING PARLIAMENTARIANS ON BOARD
We have a strong record of keeping hepatitis C elimination on the political agenda of UK governments to ensure action is being taken at a parliamentary level to support the elimination drive.
In Scotland, we met with Scottish Public Health Minister Maree Todd to discuss Scotland’s progress towards elimination, securing commitments to hepatitis C elimination in the manifestos of the Scottish National Party, Scottish Labour Party and Scottish Green Party ahead of the 2021 Scottish Parliament elections. In Wales, as a fi rst step to getting Hepatitis C back on the political agenda following the Covid-19 pandemic, we engaged in a hepatitis C roundtable meeting with Members of the Senedd and subsequently contributed to a consensus statement.
By engaging more parliamentarians in this we can ensure there is commitment to the NHS England elimination deal among parliamentarians, and an awareness of the remaining challenges to be overcome in achieving elimination.
In 2021/22, we successfully expanded our base of parliamentary supporters to an additional nine parliamentarians. Through meetings and constituency visits we brought these parliamentarians up-to-date on our work and policy suggestions, and in turn they undertook activities to support our agenda, including the tabling of Parliamentary Questions and letters to Government ministers.
We successfully secured statements of support and social media activity on World Hepatitis Day from leading politicians, including: the Mayor of London Sadiq Khan, UK Government Public Health Minister Jo Churchill, Scottish Public Health Minister Maree Todd and First Minister of Wales Mark Drakeford.
9 Additional parliamentarians engaged to support the Trust
3 Scottish political parties took up our call to commit to hepatitis C elimination in their election manifestos
11 Parliamentary Questions tabled on hepatitis C by engaged politicians
10 political leaders provided a statement of support for World Hepatitis Day
6 briefi ngs and parliamentary consultation responses produced by the Trust
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Keeping hepatitis C on the political agenda
A STORY OF IMPACT
VISITS TO OUR PROJECTS
In September 2021 we launched an initiative to link MPs to the community work of our local peer teams, so they could gain fi rst-hand experience of our hepatitis C work on the ground to inspire them to take up our cause.
In November our parliamentary team joined with our South West London Peer Coordinator and the Lead Hepatology Pharmacist at St George’s Hospital to meet with Elliot Colburn MP for Carshalton and Wallington in Sutton, for a visit to Sutton Night Watch Shelter. Sutton Night Watch Shelter was set up to support and raise awareness for homeless people within the London Borough of Sutton and is used by our local peer team to fi nd and treat people aff ected by Hepatitis C.
As a member of the All-Party Parliamentary Group on HIV and AIDS, which produced a report in 2021 calling for wider testing for blood-borne viruses, we were particularly keen to engage Colburn. During his visit he was able to observe some of the similarities between HIV/AIDS and hepatitis C in terms of stigma and overlaps on infection, and the need for testing. We were also able to explore with him how coordination with council street teams, probation and police services, as well as targeted work in high-prevalence communities could be priorities in Sutton.
Since his visit Colburn has become a strong supporter of the Trust in Parliament, sending a letter to Public Health Minister Maggie Throup underlining the importance of hepatitis C elimination and the impact of hepatitis C on people aff ected locally in Sutton. He has also submitted Written Parliamentary Questions to coincide with the launch of our Reframing Reinfection report and will be sponsoring our next year’s World Hepatitis Day parliamentary reception.
‘Since his visit Elliot Colburn MP has become a strong supporter of the Trust in parliament.’
OUR 2022-23 PRIORITY
To ensure continued parliamentary support for the hepatitis C elimination programme, while making sure hepatitis C harm reduction features in debates around drug policy, public health and infected blood.
“It’s vital that hepatitis C remains a health priority with a dedicated roadmap.” Elliot Colburn MP.
32
Keeping the hepatitis C professional community informed and connected
KEEPING THE HEPATITIS C PROFESSIONAL COMMUNITY INFORMED AND CONNECTED
2020-21 target
To support the hepatitis C professional community to achieve and maintain hepatitis C elimination.
‘Each year we conduct surveys of ODNs and HCV Action network members.’
‘We work hard to provide a central source of information for Operational Delivery Networks (ODNs) and the wider hepatitis C professional community.’
HCV ACTION PLAYING A PIVOTAL ROLE
As we move closer to elimination it is more important than ever that the hepatitis C professional community share information and keep one another informed in hepatitis C best practice - through this we can collectively achieve our elimination goal.
included some particularly useful insights into ODN’s expectations of when elimination will be achieved, and plans for the transition of hepatitis C services to a role maintaining elimination once achieved.
Our annual webinar series continues to provide an opportunity for professionals to collectively explore key issues of emerging relevance to the hepatitis C community. Participants leave these sessions feeling better informed about what they or their team need to do, or can do, to support hepatitis C elimination.
As the coordinator of HCV Action, a network of hepatitis C professionals, we work hard to provide a central source of information on the hepatitis C elimination programme for Operational Delivery Networks (ODNs) and the wider hepatitis C professional community. A role recognised this year by the NHS England hepatitis C elimination programme team when they chose to use HCV Action as their primary channel for communicating updates to ODNs and other relevant stakeholders.
We are particularly proud of our work this year on the joint HCV Action and The Hepatitis C Trust 2022 report on hepatitis C reinfections. The report provides a crucial contribution to a national understanding of the prevalence of, and factors behind, hepatitis C reinfections, and the steps needed to prevent further reinfections. The demand for this report has been high, with excellent feedback.
Each year we conduct surveys of ODNs and HCV Action network members to produce insights into the status of elimination eff orts across the country. The fi ndings of our 2021 ODN survey
7 webinars organised and hosted by HCV Action to inform and inspire 486 hepatitis C professional attendees across HCV Action webinars 644 subsequent views of online recordings of HCV Action webinars 478 views of two HCV Action good practice case studies 1,383 views of the Reframing Reinfection report
19 ODNs responded to HCV Action’s ODN survey
35
Keeping the hepatitis C professional community informed and connected
Keeping the hepatitis C professional community informed and connected
A STORY OF IMPACT
CONNECTING HEPATITIS C PROFESSIONAL STAKEHOLDERS
Three years aft er the fi rst HCV Action hepatitis C ODN Stakeholder event, it is now seen to be the annual event for hepatitis C professionals to develop understanding and share perspectives on the nationwide hepatitis C elimination programme.
We held this year’s event across the month of November, with a series of webinars to discuss developments, share best practice and identify solutions to shared challenges.
Over 120 people attended the main half-day webinar, which featured national-level updates from the NHS England Hepatitis C Elimination Programme team, the UK Health Security Agency and HCV Action Chair Professor Stephen Ryder presenting the fi ndings of our survey of ODNs. Other talks included a patient/peer perspective, a refl ection on 20 years of The Hepatitis C Trust, and updates on three of the elimination initiatives operating as part of the elimination programme (the Primary Care Patient Search Identifi cation tool, the peer-to-peer support programme, testing and treatment in drug services).
Three subsequent webinars focused on specifi c areas of hepatitis C care, which included hepatitis C in the criminal justice system, hepatitis C in community pharmacies and hepatitis C reinfections & harm prevention.
“Enjoyable and inspiring. Reminded me of some things we’re already doing well, as well as a good prod in some areas where we can still improve.” Event participant, 2021
‘The annual event for hepatitis C professionals to develop understanding and share perspectives.’
“A good overview of where we were, where we are, and the collaborative nature of the next steps.”
Event participant, 2021
‘The report highlighted that the key issues identifi ed at the root of reinfection refl ect the most critical challenges faced by the UK hepatitis C elimination
programme as a whole.’
STORY OF IMPACT REFRAMING REINFECTION
Our Reframing Reinfection report, produced this year as a joint initiative with HCV Action and The Hepatitis C Trust, looked at the relatively under-examined topic of hepatitis C reinfections, to further understand the scale of the problem, the factors that infl uence reinfections, and what can be done to prevent them.
The report research involved a project to analyse existing literature on hepatitis C reinfections; conducting a survey of expert professionals; hosting focus groups and interviews with relevant experts and patients.
Our fi ndings were that reinfection is seen both as a positive and a negative sign. Positive in as far it shows services are reaching, testing and diagnosing the right people, and then diagnosing them again. But negative in that it is also a sign that opportunities for prevention are being missed in current treatment pathways. The report fi ndings highlighted that the key issues identifi ed at the root of reinfection refl ect the most critical challenges faced by the UK hepatitis C elimination programme as a whole, and that ongoing reinfections suggest there are unknown groups who are not being found, and who are transmitting hepatitis C. These fi ndings may mean that the road to elimination is longer than some have currently predicted.
The report sets out fi ve key recommendations to address reinfections and progress towards sustainable elimination.
-
Strengthen HCV prevention and harm reduction services
-
Use hepatitis C treatment opportunities to address wider needs of mental health, housing, addiction, and more
-
Increased, consistent testing
-
Support people with complex needs who are not currently in services
-
Ensure robust data and surveillance of fi rst infections and reinfections is collected
Following publication, the issues covered were also raised with Government ministers in Written Parliamentary Questions.
OUR 2022-23 PRIORITY
To support the hepatitis C professional community to achieve hepatitis C elimination across the UK by improving prevention, diagnosis and treatment of hepatitis C, and to ensure sustainable maintenance of elimination through a transition to new arrangements for hepatitis C services.
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37
Art on a Postcard
ART ON A POSTCARD
2021 SUMMER AUCTION
Established in 2014, our Art on a Postcard initiative continues to successfully raise money for the work of The Hepatitis C Trust through art auctions and a burgeoning print shop. This year we moved towards holding more curated auctions, allowing us to refresh the circulation of artists we use, and in some cases bring in artists who might usually be out of our reach.
We had a superb line up for our 2021 summer auction. Our partners Dreweatts and GowithYamo helped us produce a wonderful auction, which raised £70,000 for the Trust with work donated by Anish Kapoor, Jordan Wolfson, Shezad Dawood, Hush, Rana Begum and many more.
2021 WINTER AUCTION
Our annual winter auction returned bigger and better than before – it was the largest auction we had held with over 500 lots. Our partners The Auction Collective and GowithYamo helped us produce this fantastic auction which raised £68,000 for the Trust, with incredible work donated by Hurvin Anderson, Mick Rooney, Catherine Repko, Deborah Batt, Andrew Salgado and many more.
INTERNATIONAL WOMEN’S DAY 2022
SPRING HAS SPRUNG, CURATED BY JEALOUS GALLERY
We were thrilled to celebrate International Women’s Day with a line-up of over 200 female identifying artists. The money raised went towards the Trust’s work in expanding our women’s hepatitis C prison work beyond the prison walls into probation services and women’s centres. As part of this show we also took part in the Power of Women (POW) event in Margate, and hosted a talk at The Turner Gallery refl ecting on how women’s creativity isn’t valued in the same way as men’s.
Our spring 2021 exhibition saw 20 artists from Jealous Gallery kindly donate their artworks for our fi rst Art on a Postcard hosted auction. The exhibition was packed full of all the idiosyncrasies we love about Jealous, with playful artwork and a sense of humour imbued with optimism.
SHE CURATES X AOAP
We were delighted to engage the curating skills of Mollie E Barnes aka She Curates to produce a mini auction as part of The Hepatitis C Trust’s 20 year celebrations. An independent curator based in the south of England, Mollie is keen to address the gender and equality disparity in the art world. She founded She Curates in 2020 as a platform to champion the voices and stories of women and queer artists around the world.
PRINT SALES
We had several successful print releases, with a sell-out Helen Bead print in winter, followed by another Caroline Coon print in March on 2022.
Clockwise from top left picture: Helen Beard - Dancer, Phindile Mamba - My Husband Exhausts Me, Alan Fears - The Big Wow, Anja Carr - Soup (pig), Hurvin Anderson - Turtle Bay, Mark Peppé - Detail of Ingres’ portrait of Madam Frédéric Reiset, Pippa Blake - Little Amal. Centre picture: Allison Gildersleeve - Untitled 3.
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39
Governance and management
Financial Review
GOVERNANCE AND MANAGEMENT
Mr Peter Holt how it works in practice. They are Mr Edward Mead then asked to attend a Board meeting Mr Charles Walsh to get a better understanding. Newly Mr John Jolly appointed Trustees are sent briefing information about The Trust and their OUR PATRONS role as a trustee. They are then asked The Marchioness of Bute to spend a day at the Trust’s London Ms Emilia Fox offices, meeting the staff and learning Ms Sadie Frost more about each project and in Boy George particular financial oversight.
LEGAL ENTITY
The Trust was incorporated in England and Wales on 10 March 2004 (registration number 05069924) and gained charitable status on 10 June 2004 (charity number 1104279). On 1 September 2004 all the charitable activities, assets and liabilities from the original unincorporated charity, The Hepatitis C Trust (charity number 1083097), were transferred to this incorporated charity. On 1 October 2008 the charity registered in Scotland (charity number SCO39914). The current charity is governed by its Memorandum and Articles of Association.
The Marchioness of Bute Ms Emilia Fox Ms Sadie Frost Boy George Mr Andrew Loog Oldham The Lord Mancroft Mr Alan McGee Ms Justine Roddick Mr Robbie Williams
KEY MANAGEMENT PERSONNEL
The Trustees have determined that the Chief Executive and the Senior Directors, together with the Trustees themselves, are the key management personnel. The Trustees are not remunerated and the pay of the Chief Executive and the Senior Directors has been set according to bands suggested by an independent consultant and by benchmarking against market rates.
CHIEF EXECUTIVE
Rachel Halford
RECRUITMENT AND
CHARITABLE OBJECTS
APPOINTMENT OF TRUSTEES
The Trust was incorporated in England and Wales on 10 March 2004 (registration number 05069924) and gained charitable status on 10 June 2004 (charity number 1104279). On 1 September 2004 all the charitable activities, assets and liabilities from the original unincorporated charity, The Hepatitis C Trust (charity number 1083097), were transferred to this incorporated charity. On 1 October 2008 the charity registered in Scotland (charity number SCO39914). The current charity is governed by its Memorandum and Articles of Association
The charity’s Trustees are also the company directors for the purposes of company law. Subsequent Trustees may be appointed by ordinary resolution. When vacancies occur new Trustees are recruited through a variety of means including advertising. The Trust wishes to have patients as a majority of its Board, which increases the challenge of finding suitable and willing Trustees. Potential Trustees have an initial meeting with the Chief Executive who explains the Trust’s philosophy and
RISK ASSESSEMENT
The Trustees have prepared a risk assessment, examining the major risks which the charity faces and have set out the necessary steps that need to be taken to lessen any risks. This register is updated on a regular basis. The key risks and the actions to be taken to mitigate them in the latest risk assessment are set out in the table below.
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KEY RISKS MITIGATING ACTION
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OUR TRUSTEES
| KEY RISKS | MITIGATING ACTION |
|---|---|
| Resurgence of Covid-19 or a Covid like pandemic |
Implement Covid/pandemic strategies and procedures |
| Insufcient reserves | New fundraising strategy to broaden funding base |
| Failures/errors in planning | More resources devoted to planning/ forecasting |
| Adversepublicity | Media crisis planning |
(those who served during the year and/or were responsible for the annual report) The Hon David Macmillan (Chair) Mr Simon Lincoln (Treasurer) Sir Adrian Baillie Dr M F Bassendine
Rana Begum
FINANCIAL REVIEW
FUNDING
RESERVE POLICY
Following the successful delivery of our ongoing peer programmes, we received further investment under the NHS elimination initiative this year. As such our income has, once more, continued to significantly increase, allowing us to maintain a secure financial position for the Trust. At £4,988,926 our income has significantly increased from that of the previous year £3,632,826, while our expenditure at £4,411,630 increased by £1,374,365. This increase in expenditure is in line with additional costs incurred through the implementation and running of our extended peer programme service delivery.
The policy of the Trustees is to hold a reserve of three months’ costs, amounting to £1,470,543. Our total unrestricted reserves for this year are £1,190,834, this includes £307,424 which has been designated for future redundancy costs in line with the completion of NHS England’s funded elimination programme. Alongside this are our current restricted reserves of £678,792 to fund activities in the year 31 March 2023.
The Trustees are committed to raising core reserves through our fundraising strategy involving: broadening our base of possible trust funders by demonstrating that addressing hepatitis C has broader social benefits, not just positive health outcomes; engaging with corporate donors; expanding Art on a Postcard; moving our focus towards longer term statutory funding.
With the continued successful delivery of our peer programmes, we remain confident in our financial position. In relation to our raising funds, please see our costs in the financial statements at the back of the report, mainly in regard to income generation from Art on a Postcard (see page 22). We do not engage external professional fundraisers or commercial participators to carry out our fundraising activities and we do not engage in face-to-face or telephone fundraising. All our approaches to fundraising take account of the Code of Fundraising Practice issued by the Fundraising Regulator. We have received no complaints about our fundraising activities either during the financial year or subsequently.
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41
STATEMENT OF TRUSTEES’ RESPONSIBILITIES
The Trustees (who are also directors of The Hepatitis C Trust for the purposes of company law) are responsible for preparing The Trustees’ Report and the Financial Statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
Company law requires Trustees to prepare financial statements for each financial year which give a true and fair view of the state of the affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the Trustees are required to:
-
select suitable accounting policies and then apply them consistently;
-
observe the methods and principles in the Charities SORP 2015 (FRS 102);
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make judgements and estimates that are reasonable and prudent;
-
state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements;
-
There is no relevant audit information of which the charitable company’s auditor is unaware; and
-
the Trustees have taken all steps that they ought to have taken to make themselves aware of any relevant audit information and to establish that the auditor is aware of that information.
AUDITORS
Azets Audit Services (formerly Wilkins Kennedy Audit Services) have indicated their willingness to continue in office. A resolution proposing their re-appointment will be submitted at the Annual General Meeting.
SMALL COMPANY RULES
These accounts have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies and with the Statement of Recommended Practice, Accounting and Reporting by Charities (SORP FRS 102) issued in January 2015.
This report was approved by the Board of Trustees and signed on its behalf by:
INDEPENDENT AUDITOR’S REPORT
………………………………………………………………
-
prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in business.
-
The Hon David Macmillan Date 22[nd] 12 2022
The Trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. In so far as the Trustees are aware:
42
Independent auditor’s report
THE HEPATITIS C TRUST FINANCIAL STATEMENTS
For the year ended 31 March 2022
Registered in England and Wales Charity Number: 1104279 Registered in Scotland Charity Number: SCO39914 Registered Company Number: 5069924
INDEPENDENT AUDITOR’S REPORT TO THE MEMBERS OF THE HEPATITIS C TRUST
CONCLUSIONS RELATING TO GOING CONCERN
OPINION
In auditing the financial statements, we have concluded that the trustees’ use of the going concern basis of accounting in the preparation of the financial statements is appropriate.
We have audited the financial statements of The Hepatitis C Trust (the ‘charitable company’) for the year ended 31 March 2022 which comprise the Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).
Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.
Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.
In our opinion the financial statements:
- Give a true and fair view of the state of the charitable company’s affairs as at 31 March 2022, and of its incoming resources and application of resources, including its income and expenditure, for the year then ended;
OTHER INFORMATION
The other information comprises the information included in the trustees annual report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.
-
Have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and
-
Have been prepared in accordance with the requirements of the Companies Act 2006.
BASIS FOR OPINION
Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.
We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.
We have nothing to report in this regard.
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44
Financial Statements
Independent auditor’s report
OPINIONS ON OTHER MATTERS PRESCRIBED BY THE COMPANIES ACT 2006
In our opinion, based on the work undertaken in the course of the audit:
-
the information given in the trustees’ report (incorporating the directors’ report) for the financial year for which the financial statements are prepared is consistent with the financial statements; and
-
the directors’ report has been prepared in accordance with applicable legal requirements.
MATTERS ON WHICH WE ARE REQUIRED TO REPORT BY EXCEPTION
In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the directors’ report.
We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 requires us to report to you if, in our opinion:
-
Adequate accounting records have not been kept, or returns adequate for our audit have not been received from branches not visited by us; or
-
the financial statements are not in agreement with the accounting records and returns; or
-
certain disclosures of directors’ remuneration specified by law are not made; or
-
we have not received all the information and explanations we require for our audit; or
-
the trustees were not entitled to prepare the financial statements in accordance with the small companies’ regime and take advantage of the small companies’ exemptions in preparing the directors’ report and from the requirement to prepare a strategic report.
RESPONSIBILITIES OF TRUSTEES
As explained more fully in the trustees’ responsibilities statement, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial
statements that are free from material misstatement, whether due to fraud or error.
In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.
AUDITOR’S RESPONSIBILITIES FOR THE AUDIT OF THE FINANCIAL STATEMENTS
Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.
-
Irregularities, including fraud, are instances of noncompliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The specific procedures for this engagement and the extent to which these are capable of detecting irregularities, including fraud is detailed below:
-
Enquiry of management and those charged with governance around actual and potential litigation and claims as well as actual, suspected and alleged fraud;
-
Reviewing minutes of meetings of those charged with governance;
-
Assessing the extent of compliance with the laws and regulations considered to have a direct material effect on the financial statements or the operations of the company through enquiry and inspection;
-
Reviewing financial statement disclosures and testing to supporting documentation to assess compliance with applicable laws and regulations;
-
Performing audit work over the risk of management bias and override of controls, including testing of journal entries and other adjustments for appropriateness, evaluating the business rationale of significant transactions outside the normal course of business and reviewing accounting estimates for indicators of potential bias.
Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation.
A further description of our responsibilities is available on the Financial Reporting Council’s website at: https:// www.frc.org.uk/Our-Work/Audit/Audit-and-assurance/ Standards-and-guidance/Standards-and-guidance-forauditors/Auditors-responsibilities-for-audit/Descriptionof-auditors-responsibilities-for-audit.aspx. This description forms part of our auditor’s report.
USE OF OUR REPORT
This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed.
John Howard FCA (Senior Statutory Auditor)
For and on behalf of Azets Audit Services Statutory Auditor 2nd Floor, Regis House 45 King William Street London
EC4R 9AN
………………………………………………………………
Date 22[nd] 12 2022
Azets Audit Services is eligible to act as an auditor in terms of section 1212 of the Companies Act 2006.
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47
Balance Sheet as at 31st March 2022
Statement of financial activities:
incorporating an income and expenditure account for year ended 31 March 2022
| Unrestricted Note Funds £ Income from: Donations 2 210,443 Investments 3 336 Charitable activities 4 1,641,380 Rental income - Total 1,852,159 Expenditure on: Raising funds 5 172,834 Charitable activities 6 1,125,069 Other - Total 1,297,903 Net income for the year before transfers 554,256 Transfers 13 168,502 Net income 722,758 Fund balances at 1st April 2021 13 468,076 Fund balances at 31st March 2022 13 1,190,834 |
Restricted Funds £ - - 3,136,767 - 3,136,767 - 3,113,727 - 3,113,727 23,040 (168,502) (145,462) 824,254 678,792 |
Total 2022 £ 210,443 336 4,778,147 - 4,988,926 172,834 4,238,796 - 4,411,630 577,296 - 577,296 1,292,330 1,869,626 |
Total 2021 £ 273,195 151 3,339,178 20,302 |
|---|---|---|---|
| 3,632,826 | |||
| 210,094 2,806,869 20,302 |
|||
| 3,037,265 | |||
| 595,561 - |
|||
| 595,561 696,769 |
|||
| 1,292,330 |
All gains and losses arising in the year have been included in the Statement of Financial Activities and arise from continuing operations.
| Note Fixed Assets Tangible assets 10 Current Assets Debtors 11 Cash at bank and in hand Creditors: Amounts falling due within one year 12 Net Current Assets Total Net Assets Funds Unrestricted funds 13 Designated funds 13 Restricted funds 13 |
2022 2022 2021 2021 £ £ £ £ - - 720,881 575,383 2,313,341 1,615,073 3,034,222 2,190,456 (1,164,596) (898,126) 1,869,626 1,292,330 1,869,626 1,292,330 883,410 468,076 307,424 - 678,792 824,254 1,869,626 1,292,330 |
2022 2022 2021 2021 £ £ £ £ - - 720,881 575,383 2,313,341 1,615,073 3,034,222 2,190,456 (1,164,596) (898,126) 1,869,626 1,292,330 1,869,626 1,292,330 883,410 468,076 307,424 - 678,792 824,254 1,869,626 1,292,330 |
|---|---|---|
| 1,292,330 | ||
| 468,076 - 824,254 |
||
| 1,292,330 |
The accounts have been prepared in accordance with FRS 102.
These financial statements have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies.
The financial statements were approved by the Board of Trustees and authorised for issue on 22[nd] December, 2022 and signed on their behalf by:
……………………………………… Hon David Macmillan
The notes on pages 51 to 61 form part of the financial statements.
The notes on pages 51 to 61 form part of the financial statements.
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49
Statement of cash flows for the year ended 31 March 2022
| Notes Cash (used in)/generated from operating activities: Net cash (used in)/provided by operating activities see below Cash flows from investing activities: Interest income 3 Purchase of property, plant and equipment 10 Net cash (used in)/provided by investing and operating activities Change in cash and cash equivalents in the reporting period Cash and cash equivalents at the beginning of the reporting period Cash and cash equivalents at the end of the reporting period |
2022 £ 697,932 336 - 698,268 1,615,073 2,313,341 |
2021 £ 1,217,001 151 - |
|---|---|---|
| 1,217,152 | ||
| 397,921 | ||
| 1,615,073 |
Reconciliation of net expenditure to net cash flow from operating activities
| ., Net expenditure (as per the statement of financial activities) SOFA Adjustments for: Depreciation charges 10 Investment income 3 (Increase)in debtors 11 Increase in creditors 12 Net cash (used in)/provided by operating activities |
2022 £ 577,296 - (336) (145,498) 266,470 697,932 |
2021 £ 595,561 - (151) (202,468) 824,059 |
|---|---|---|
| 1,217,001 |
| Analysis of cash and cash equivalents Cash in hand Total cash and cash equivalents |
2022 £ 2,313,341 2,313,341 |
2021 £ 1,615,073 |
|---|---|---|
| 1,615,073 |
1. ACCOUNTING POLICIES
Basis of Preparation
Income
The fi nancial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland issued in October 2019, the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102), the Charities Act 2021, the Companies Act 2006 and UK Generally Accepted Accounting Practice.
Income is recognised in the period to which it relates, when the criteria of entitlement, measurable and probable receipt are met.
Deferred income is income which is received in respect of a future accounting period and is deferred to that period.
Gift s in kind are valued and brought in as income and the appropriate resources expended, when the items are used/ distributed. The values attributable to gift s in kind are an estimate of the gross value to the organisation, usually the market cost. Where this intangible income relates to project activities it is included as an activity in furtherance of the charity’s objects.
The fi nancial statements are prepared in sterling, which is the functional currency of the company. Monetary amounts in these fi nancial statements are rounded to the nearest pound.
Expenditure
The fi nancial statements are prepared under the historical cost concept.
Direct charitable expenditure comprises all expenditure relating to the activities carried out to achieve the objectives.
The principle accounting policies adopted in the preparation of the fi nancial statements are set out below.
Governance costs include those costs incurred in the governance of the charity and are primarily associated with constitutional compliance and statutory requirements.
Going Concern Basis
The trustees have assessed whether the use of the going concern basis is appropriate and have considered possible events or conditions that might cast signifi cant doubt on the ability of the charity to continue as a going concern. The trustees have made this assessment for a period of at least one year from the date of approval of the fi nancial statements. In particular the trustees have considered the charity’s forecasts and projections. Aft er making enquiries the trustees have concluded that there is a reasonable expectation that the charity has suffi cient resources to continue in operational existence for the foreseeable future. The charity therefore continues to adopt the going concern basis in preparing its fi nancial statements.
Expenditure is allocated directly to the expenditure headings as far as practically possible to refl ect the activities of the charity. Support costs have been allocated to the activities based on employee time spent on that activity.
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51
2. Donations
1. ACCOUNTING POLICIES (continued)
Expenditure is included in the Statement of Financial Activities on an accruals basis, inclusive of any VAT which cannot be recovered. Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably.
Fund accounting
Restricted funds are subject to restrictions imposed by the donor. These are accounted for separately from unrestricted funds and full details are given in note 13.
Unrestricted funds are those which are not subject to restrictions, and any surpluses may be applied in furtherance of any of the organisation’s objectives.
Cash and Cash equivalents
Cash and cash equivalents include cash at banks and in hand and short term deposits with a maturity date of three months or less.
Debtors and creditors
Debtors and creditors receivable or payable within one year of the reporting date are carried at their transaction price. Debtors and creditors that are receivable or payable in more than one year and not subject to a market rate of interest are measured at the present value of the expected future receipts or payment discounted at a market rate of interest.
• Computer and Straight Line over Office Equipment 4 years • Property Over the length of Improvements the lease • Motor Vehicles Straight Line over 4 years
Pension
The charity operates a defined contribution stakeholder pension scheme. The assets of the scheme are held separately from the charity.
Critical accounting estimates and areas of judgement
The annual depreciation charge for property, plant and equipment is sensitive to change in useful economic life and residual values of assets. These are reassessed annually.
In the view of the trustees in applying the accounting policies adopted, no other judgements were required that have a significant effect on the amounts recognised in the financial statements nor do any estimates or assumptions made carry a significant risk of material adjustment in the next financial year.
| Unrestricted Funds 2022 £ 6,010 204,433 210,443 Unrestricted Funds 2021 £ 11,423 261,772 273,195 |
Restricted funds 2022 £ - - - Restricted funds 2021 £ - - - - |
Total 2022 £ |
|---|---|---|
| 6,010 |
||
| 204,433 210,443 Total 2021 £ 11,423 261,772 273,195 6,010 |
Year to 31 March 2022 Donations Art on a Postcard
Year to 31 March 2021 Donations Art on a Postcard
3 Investment Income
| Year to 31 March 2022 Bank interest Year to 31 March 2021 Bank interest |
Unrestricted Funds 2022 £ 336 336 Unrestricted Funds 2021 £ 151 151 |
Restricted funds 2022 £ - - Restricted funds 2021 £ - - |
Total 2022 £ 336 336 Total 20201 £ 151 151 |
|---|---|---|---|
Tangible Fixed Assets and Depreciation
Tangible fixed assets costing less than £500 are not capitalised and are written off in the year of purchase. Depreciation is provided so as to write off the cost of the fixed assets over their estimated useful lives at the following annual rates:
4. Income for charitable activities
| Year to 31 March 2022 Grants 4a Year to 31 March 2021 Grants 4a |
Unrestricted Funds 2022 £ 1,641,380 1,641,380 Unrestricted Funds 2021 £ 400,506 |
Restricted funds 2022 £ 3,136,767 3,136,767 Restricted funds 2021 £ 2,938,672 |
Total 2022 £ 4,778,147 |
|
|---|---|---|---|---|
| 4,778,147 | ||||
| Total 2021 £ 3,339,178 |
||||
| 400,506 | ||||
| 2,398,672 | ||||
| 3,339,178 | ||||
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53
4a Grants
| Year to 31 March 2022 AbbVie Ltd AbbVie Ltd (HCV Action) Barts Health NHS Trust Birmingham and Solihull Mental Health NHS Foundation Bournemouth Christchurch and Poole Council Brighton and Sussex University Hospitals NHS Foundation Trust Cambridge University Hospitals NHS Foundation Trust Coventry City Council Crossroads Care South East London East Lancashire Hospitals NHS Trust Falkirk Council Gilead - Scotland Peer Project Gilead - HCV Action & Parliamentary Work Gilead HITT Hull University Teaching Hospitals Kings College Hospital Leeds Teaching Hospitals NHS Trust MSD NHS England and NHS Improvement – East Midlands (H&J) NHS Thames Valley NHS Forth Valley NHS West London NHS Tayside Newcastle Track & Trace Nottingham University Hospitals NHS Trust Other Oxleas NHS Foundation Trust Pilgrim Trust Practice Plus Group Health and Rehabilitation Services Limited Public Health Wales NHS Trust Royal Surrey NHS Foundation Trust Royal Surrey NHS Foundation Trust (HITT) Sheffield Teaching Hospitals NHS Foundation Trust (Peer Programme) Sheffield Teaching Hospitals NHS Foundation Trust (Training and Volunteers) St George's University Hospitals NHS The National Health Service Commissioning Board (NHS England) The Newcastle upon Tyne Hospitals NHS Foundation Trust University Hospital Southampton NHS Foundation Trust University Hospitals Birmingham NHS Foundation Trust University Hospitals Bristol & Weston NHS Foundation Trust University Hospitals of Leicester NHS Trust University Hospitals Plymouth NHS Trust |
Unrestricted Funds 2022 £ - - 80,000 - - 85,000 76,142 15,000 - 80,000 - - - - 40,000 80,000 78,867 - - 70,000 - 79,431 - 9,000 103,569 4,834 - - - 500 83,000 - 60,000 - 78,429 - 8,873 59,431 280,000 66,227 121,077 82,000 1,641,380 |
Restricted funds 2022 £ 674,346 55,040 - 14,484 2,000 - 366 - 5,760 - 5,000 4,996 52,500 130,000 - 24,263 - 893,936 140,012 - 20,000 - 3,503 - 2,691 546 50,000 15,000 730,882 150,000 546 29,383 - 75,000 - 56,513 - - - - - - 3,136,767 |
Total 2022 £ 674,346 55,040 80,000 14,484 2,000 85,000 76,508 15,000 5,760 80,000 5,000 4,996 52,500 130,000 40,000 104,263 78,867 893,936 140,012 70,000 20,000 79,431 3,503 9,000 106,260 5,380 50,000 15,000 730,882 150,500 83,546 29,383 60,000 75,000 78,429 56,513 8,873 59,431 280,000 66,227 121,077 82,000 |
|---|---|---|---|
| 4,778,147 |
4a Grants (Continued)
| Year to 31 March 2021 AbbVie Ltd AbbVie Ltd (HCV Action) Brighton and Sussex University Hospitals NHS Foundation Trust Cambridge University Hospitals NHS Foundation Trust Care UK/Practice Plus Group Health and Rehabilitation Services Limited DWP Enigma Consultancy Coaching Ltd Frontier NX Limited Gilead - HCV Action & Parliamentary Work Gilead HITT Kings College Hospital Leeds Teaching Hospitals NHS Trust MSD MSD (HCV Action) NHS England and NHS Improvement – East Midlands (H&J) NHS England Health & Justice Materials NHS Health and Justice Midlands (Peer Programme) NHS Forth Valley Nottingham University Hospitals NHS Trust Other Oxford University Hospitals NHS Foundation Trust Pilgrim Trust Royal Surrey NHS Foundation Trust Sheffield Teaching Hospitals NHS Foundation Trust (Peer Programme) Sheffield Teaching Hospitals NHS Foundation Trust (Training and Volunteers) St George's University Hospitals NHS University College London Hospital University Hospital Southampton NHS Foundation Trust University Hospitals Bristol & Weston NHS Foundation Trust University Hospitals of Leicester NHS Trust |
Unrestricted Funds 2021 £ - - 25,000 1,022 - 3,440 845 - - - 53,000 42,320 - - - - - - 4,669 2,990 10,000 - 10,000 103,809 - 45,000 - 20,000 25,000 53,411 400,506 |
Restricted funds 2021 £ 456,250 25,000 - - 665,512 - - 2,000 37,500 130,680 51,000 - 1,068,200 57,865 23,500 100,000 67,500 20,000 - 1,165 - 7,500 - - 75,000 - 150,000 - - - 2,938,672 |
Total 2021 £ 456,250 25,000 25,000 1,022 665,512 3,440 845 2,000 37,500 130,680 104,000 42,320 1,068,200 57,865 23,500 100,000 67,500 20,000 4,669 4,155 10,000 7,500 10,000 103,809 75,000 45,000 150,000 20,000 25,000 53,411 |
|---|---|---|---|
| 3,339,178 |
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55
5. Cost of Raising Funds
| Year to 31 March 2022 Staffcosts Directcosts Year to 31 March 2021 Staffcosts Directcosts |
Unrestricted Funds 2022 £ 44,676 128,158 172,834 Unrestricted Funds 2021 £ 87,405 122,689 210,094 |
Restricted funds 2022 £ - - - Restricted funds 2021 £ - - - |
Total 2022 £ 44,676 128,158 |
|---|---|---|---|
| 172,834 | |||
| Total 2021 £ 87,405 122,689 |
|||
| 210,094 |
7. Support Costs
| 7. Support Costs | ||
|---|---|---|
| Total | Total | |
| 2022 | 2021 | |
| £ | £ | |
| Staff costs | 22,383 | 10,697 |
| Rent, rates, light and heat | 57,839 | 81,945 |
| Travel and subsistence | - | 585 |
| Insurance | 3,353 | 2,050 |
| Office supplies and maintenance | 10,903 | 5,881 |
| Telephone | 6,464 | 1,900 |
| Computercosts | 1,227 | 1,148 |
| Sundry costs | 778 | 1,110 |
| Legal and professional costs | 192 | 13 |
| Audit and accountancy | 17,580 | 17,870 |
| Bank charges | 424 | 360 |
| 121,143 | 123,559 |
During 2021 other expenses in the SOFA are made up of Rent £20,302 paid by HCT and reimbursed by WHA.
8. Staff costs
6. Analysis of Charitable Expenditure by type
| Year to 31 March 2022 Advocacy anddrugservices HCV Action andparliamentarywork Helpline Nationalvolunteer &trainer NHS Health & Justiceprisonpeers Scotlandpeerproject Women'sprisons World Hepatitis Day Year to 31 March 2021 Advocacy anddrugservices HCV Action andparliamentarywork Nationalvolunteer &trainer NHS Health & Justicematerials NHS Health & Justiceprisonpeers Scotlandpeerproject Women'sprisons World Hepatitis Day |
Staff Cost 2022 £ 2,266,691 - 7,964 70,537 698,954 48,242 48,489 - 3,140,877 Staff Cost 2021 £ 1,470,442 - - - 646,545 56,548 17,127 - 2,190,662 |
Direct Cost 2022 £ 565,409 102,233 1,491 70,441 190,879 19,578 26,682 63 976,776 Direct Cost 2021 £ 252,039 85,320 10 53,386 103,906 6,808 7,373 4,108 512,950 |
Support Cost 2022 £ 92,009 - - 1,297 27,837 - - - 121,143 Support Cost 2021 £ 103,257 - - - - - - - 103,257 |
Total 2022 £ 2,924,109 102,233 9,455 142,275 917,670 67,820 75,171 63 |
|---|---|---|---|---|
| 4,238,796 | ||||
| Total 2021 £ 1,825,738 85,320 10 53,386 750,451 63,356 24,500 4,108 |
||||
| 2,806,869 |
| 8. Staffcosts | ||
|---|---|---|
| 2022 | 2021 | |
| £ | £ | |
| Wages and salaries | 2,815,087 | 2,031,055 |
| Socialsecurity costs | 288,289 | 203,645 |
| Pension costs | 82,177 | 43,367 |
| 3,185,553 | 2,278,067 | |
| Number | Number | |
| Average number of employees during the year | 94 | 63 |
| Average number of volunteers during the year | 134 | 100 |
| One employee was paid in the range £60,000 to £69,999 in the year (2021: one). |
Key management personnel include the Trustees, Chief Executive (and senior management reporting directly to the Chief Executive). The total employee benefits, including pension costs and employers national insurance contributions of the charity's key management personnel were £282,125(2021: £227,735). Four employees (2021: four) were considered to be key management personnel during the year.
9. Trustees and related parties
No remuneration was paid to any trustee for services as a trustee and no expenses were reimbursed. Trustees participated in the Art on a Post Card auction on an arms-length basis.
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10. Fixed Assets
All fixed assets are held for use by the charity.
| Cost At 1 April 2021 Additions At 31 March 2022 Depreciation At 1 April 2021 Charge for the year At 31 March 2022 Net Book Value At 31 March 2022 At 31 March 2021 |
Motor Vehicles £ 35,746 - 35,746 35,746 - 35,746 - - |
Computer and Office Equipment £ 58,402 - 58,402 58,402 - 58,402 - - |
Property Improvements £ 29,820 - 29,820 29,820 - 29,820 - - |
Total £ 123,968 - |
|---|---|---|---|---|
| 123,968 | ||||
| 123,968 - |
||||
| 123,968 | ||||
| - | ||||
| - |
11. Debtors
| Trade debtors Other debtors Prepayments |
2022 £ 714,615 2,933 3,333 720,881 |
2021 £ 568,249 2,850 4,284 |
|---|---|---|
| 575,383 |
12. Creditors: Amounts falling due within one year
| Trade creditors Tax and social security costs Sundry creditors Income received in advance Accruals |
2022 £ 28,793 80,121 5,347 1,002,264 48,070 1,164,595 |
2021 £ 8,709 58,744 3,206 733,094 94,373 |
|---|---|---|
| 898,126 |
Income received in advance is funding for project work to be completed in the year 2022-23
| Unrestricted funds Designated fund Restricted funds Advocacy and Drug Services HCV Action & Parliamentary Work National Volunteer & Training NHS Health & Justice Prison Peers Scotland Peer Project Women's Prisons Unrestricted funds Restricted funds Advocacy and Drug Services HCV Action and Parliamentary Work National Volunteer & Training NHS Health & Justice Prison Peers Scotland Peer Project Women's Prisons 13. Statement of Funds |
Funds at 31 March 2021 £ 468,076 - 468,076 455,071 37,046 74,990 247,636 - 9,511 824,254 1,292,330 Funds at 31 March 2020 £ 197,345 409,798 - - 63,125 - 26,501 499,424 696,769 |
Income £ 1,852,159 - 1,852,159 1,747,142 107,540 80,760 1,095,614 33,499 72,212 3,136,767 4,988,926 Income £ 694,154 1,725,449 122,366 75,000 988,347 20,000 7,510 2,938,672 3,632,826 |
Expenditure £ (1,297,903) - (1,297,903) (1,808,558) (102,233) (142,275) (917,670) (67,820) (75,171) (3,113,727) (4,411,630) Expenditure £ (430,402) (1,629,841) (85,320) (10) (803,836) (63,356) (24,500) (2,606,863) (3,037,265) |
Transfer of funds £ (138,922) 307,424 168,502 (60,969) - - (141,854) 34,321 - (168,502) - Transfer of funds £ 6,979 (50,335) - - - 43,356 - (6,979) - |
Funds at 31 March 2022 £ 883,410 307,474 |
||
|---|---|---|---|---|---|---|---|
| 1,190,834 | |||||||
| 332,686 42,353 13,475 283,726 - 6,552 |
|||||||
| 678,792 | |||||||
| 1,869,626 | |||||||
| Funds at 31 March 2021 £ 468,076 455,071 37,046 74,990 247,636 - 9,511 824,254 1,292,330 |
|||||||
Designated Fund
The Trustees have agreed to designate funds for future redundancies in line with the completion of NHS England’s elimination programme
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13. STATEMENT OF FUNDS (continued)
A transfer of £202,823 (2021: £50,335) was made from the restricted fund to the unrestricted funds to cover budgeted core spending provided for within the agreed budget
National Volunteer and Training Service:
The National team operate through two strands:
The delivery and oversight of core mandatory training and development of our staff including induction. Hepatitis C training to professionals and other service providers
A transfer of £34,321 (2021: £43,356) was made from unrestricted funds to restricted funds for the overspend on a restricted project that will not be reimbursed next financial year.
The delivery of the Hepatitis C Trust volunteering programme which includes supporting our volunteers across different areas of our work and ensuring that all are provided with opportunity to access training and development to both support them in their roles and further their employment opportunities.
Restricted Funds
The nature and purpose of each of the funds is as follows:
NHS Health and Justice Prison Peers: The Hepatitis C Trust engages in peer-to-peer and awareness raising activities across UK prisons in order to: 1) Provide information about hepatitis C to those at risk and who are often hard to engage 2) Encourage and support people in prisons to get tested and to access treatment and care 3) Train people in prison to become Hepatitis C peers.
Advocacy and Drug Services: includes peer-to peer education and awareness programmes, delivering key messages about hepatitis C prevention, diagnosis, treatment and care to people attending community drug services, hostels and homeless shelter; this includes a bespoke South Asian peer programme. Staff training is carried out within all the programmes and is delivered to those staff working in services with people who are at a high risk of hepatitis C. We also have a mobile outreach programme which provides testing and raises awareness, especially amongst high prevalence communities and populations that are difficult to reach, such as the homeless
Scotland Peer Project: Peer-to-peer awareness and education project that provides key messages about hepatitis C prevention, diagnosis treatment and care to people attending recovery cafes, homeless hostels, shelters as well as people in prison. Our Voices group brings together people affected by hepatitis C, building their knowledge and awareness and supporting them in having their voices heard.
HCV Action: a very useful vehicle for collecting and disseminating best practice in hepatitis C care and treatment, and for supporting Hepatitis C as the patient voice.
Women’s Prisons: Women specific hepatitis C peer programme working across the female prison estate educating, raising awareness, changing the conversation, reducing stigma and supporting women to get tested and treated.
14. Analysis of Net Assets between Funds
| Year to 31 March 2022 Unrestricted Funds 2022 £ Fixed assets - Current assets 2,048,006 Current liabilities (1,164,596) 883,410 Year to 31 March 2021 Fixed assets Current assets Current liabilities |
Designated Funds 2022 £ - 307,424 - 307,424 Unrestricted Funds 2021 £ - 1,366,202 (898,126) 468,076 |
Restricted Funds 2022 £ - 678,792 - |
Total 2022 £ - 3,034,222 (1,164,596) |
||
|---|---|---|---|---|---|
| 676,792 | 1,869,626 | ||||
| Restricted funds 2021 £ - 824,254 - 824,254 |
Total 2021 £ - 2,190,456 (898,126) 1,292,330 |
||||
15. Operating Lease Commitments
| Operating lease which expire: Less than 1 year Within 2-5 years |
Equipment 2022 £ 2021 £ 3,096 3,239 9,288 12,955 12,384 16,194 |
Land and buildings 2022 £ 2021 £ 14,104 13,204 - - 14,104 13,204 |
Land and buildings 2022 £ 2021 £ 14,104 13,204 - - 14,104 13,204 |
|---|---|---|---|
| 13,204 |
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THANK YOU
We would like to take this opportunity to thank our funders, from individual donors to large statutory and trust funders, with who we would not be able to achieve the work we have reported on this year. We greatly appreciate their commitment to our cause and the resources they provide in order for us to reach our goals.
We would like, in particular, to thank:
AbbVie Ltd
Barts Health NHS Trust Birmingham and Solihull Mental Health NHS Foundation Bournemouth Christchurch and Poole Council Brighton and Sussex University Hospitals NHS Foundation Trust Cambridge University Hospitals NHS Foundation Trust Coventry City Council Crossroads Care South East London East Lancashire Hospitals NHS Trust Falkirk Council Gilead Hull University Teaching Hospitals Kings College Hospital Leeds Teaching Hospitals NHS Trust MSD NHS England and NHS Improvement – East Midlands (H & J) NHS Thames Valley NHS Forth Valley NHS West London NHS Tayside Newcastle Track and Trace Nottingham University Hospitals NHS Trust Oxleas NHS Foundation Trust Pilgrims Trust Practice Plus Group Health and Rehabilitation Services Limited Public Health Wales NHS Trust Royal Surrey NHS Foundation Trust Sheffield Teaching Hospitals NHS Foundation Trust St George’s University Hospitals NHS The National Health Service Commissioning Board (NHS England) The Newcastle upon Tyne Hospitals NHS Foundation Trust University Hospital Southampton NHS Foundation Trust University Hospitals Birmingham NHS Foundation Trust University Hospitals Bristol & Weston NHS Foundation Trust University Hospitals of Leicester NHS Trust University Hospitals Plymouth NHS Trust
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27 Crosby Row London SE1 3YD 020 7089 6221 www.hepctrust.org.uk
Registered in England and Wales Charity Number: 1104279 Registered in Scotland Charity Number: SCO39914 Registered Company Number: 5069924 © The Hepatitis C Trust