Sussex ME/CFS Society
Chair’s Annual Report 2021/22
Our organisation remains one of the most successful regional ME/CFS charities in the UK. We have during the last twelve months continued to inform, support and represent our membership through newsletters, information lines, town contacts, website, Egroup and regular meetings.
The society’s work across the area continues to be overseen by our Management Committee working with our medical advisors and volunteers.
The NHS regional steering groups that we sit on in Sussex and Kent oversee the continual development of the Local Multidisciplinary Teams that are providing confirmation diagnosis, symptom control and appropriate management strategies at several locations. We are supporting the services and working with the steering groups and attend regular meetings with the CCG and specialist services reps. We also have linkage with the British Assocciation of Clinicians in ME/CFS (BACME). We continue to be involved in the overseeing of the local NHS Services.
We work with national organisations including and cooperate with the NHS Expert Patient Programmes and a network of Yoga teachers across the counties that are improving the lives of those affected by ME/CFS.
Working with the Brighton & Sussex Medical School we have run a survey about the experiences over two years of those affected by the Chronic Fatigue Syndrome – ME across the region. This is the first professionally run comprehensive study of its type and the findings are being seriously viewed by service providers and users alike.
We are planning to hold a South East ME/CFS Conference that will attract medical professionals and patients who will hear presentations from top specialists and researchers from our area.
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CHARITY (OMft41SSION Independent examiner's report on the accounts Section A Independent Examinerfs Report Report to the tyustees £uss£% c6s /? On accounts for the year ended Charity no I (rf any) Set out on pages I report to the trustees on my examination of the accounts of the above charityllhe Trust'l for the year ended Responslbllltles and basls of report As the charity's trustees, you are responsible for the preparation of the accounts in accordance with the requirements of Ihe Charities Act 2011 {"the Act.). I report in respect of my examination of the Trust's accounts carried out under sertion 145 of the 2011 Acl and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145{5)Ib) of the Act. Independent examiner's statement I have completed my examination. I confimi that no material matters have come lo my ettenlion in connection with the examination (other Ih8n that disclosed below ') which gives me Gause to believe that in, any rna18rial respect.. Ihe accounting records were not kepl in accordance with section 130 of the Charrties Act; Of Ihe accounts did not accord wth the acGounling records", or the accounts did nol comply with the applicable requirements concerning the form and contenl of accoun15 set out in the Charities (Accounts and Reports) Regulalions 2008 other than any requirement thal the accounts give 8 'true aiid fair. view which is not a matter considered as part of an independent examination. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a Pfoper vnderslanding of the accounts to be reached. Please delete the words in Ihe brackets rf they do nol apply. Slgned: Date: Name: V¥v G SL¥IT) Relevant professional qualificationls) or body i CLK PrCCO L IER Oct 2018