## **Sussex ME/CFS Society** 

## **Chair’s Annual Report 2021/22** 

Our  organisation  remains  one  of  the  most  successful regional ME/CFS charities in the UK. We have during the last  twelve  months  continued  to  inform,  support  and represent our membership through newsletters, information  lines,  town  contacts,  website,  Egroup  and regular meetings. 

The  society’s  work  across  the  area  continues  to  be overseen by our  Management Committee working with our medical advisors and volunteers. 

The NHS regional steering groups that we sit on in Sussex and Kent oversee the continual development of the Local Multidisciplinary Teams  that  are providing confirmation diagnosis, symptom control and appropriate management strategies  at  several  locations.  We  are  supporting  the services and working with the steering groups and attend regular  meetings  with  the  CCG  and  specialist  services reps. We also have linkage with the British Assocciation of Clinicians in ME/CFS (BACME). We continue to be involved in the overseeing of the local NHS Services. 

We work with national organisations including and cooperate with the NHS Expert Patient Programmes and a network  of  Yoga  teachers  across  the  counties  that  are improving the lives of those affected by ME/CFS. 

Working with the Brighton & Sussex Medical School we have run a survey about the experiences over two years of those  affected  by  the  Chronic  Fatigue  Syndrome  –  ME across  the  region.  This  is  the  first  professionally  run comprehensive study of its type and the findings are being seriously viewed by service providers and users alike. 

We are planning to hold a South East ME/CFS Conference that will attract medical professionals and patients who will hear presentations from top specialists and researchers from our area. 



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CHARITY (OMft41SSION
Independent examiner's report on the
accounts
Section A
Independent Examinerfs Report
Report to the tyustees
£uss£%
c6s /?
On accounts for the year
ended
Charity no I
(rf any)
Set out on pages
I report to the trustees on my examination of the accounts of the above
charityllhe Trust'l for the year ended
Responslbllltles and
basls of report
As the charity's trustees, you are responsible for the preparation of the
accounts in accordance with the requirements of Ihe Charities Act 2011
{"the Act.).
I report in respect of my examination of the Trust's accounts carried out
under sertion 145 of the 2011 Acl and in carrying out my examination, I
have followed all the applicable Directions given by the Charity Commission
under section 145{5)Ib) of the Act.
Independent
examiner's statement
I have completed my examination. I confimi that no material matters have
come lo my ettenlion in connection with the examination (other Ih8n that
disclosed below ') which gives me Gause to believe that in, any rna18rial
respect..
Ihe accounting records were not kepl in accordance with section 130
of the Charrties Act; Of
Ihe accounts did not accord wth the acGounling records", or
the accounts did nol comply with the applicable requirements
concerning the form and contenl of accoun15 set out in the Charities
(Accounts and Reports) Regulalions 2008 other than any requirement
thal the accounts give 8 'true aiid fair. view which is not a matter
considered as part of an independent examination.
I have no concerns and have come across no other matters in connection
with the examination to which attention should be drawn in this report in
order to enable a Pfoper vnderslanding of the accounts to be reached.
Please delete the words in Ihe brackets rf they do nol apply.
Slgned:
Date:
Name:
V¥v
G SL¥IT)
Relevant professional
qualificationls) or body i CLK PrCCO L
IER
Oct 2018