OpenCharities

Cystinosis Foundation Of The UK

Cystinosis Foundation - UK And Eire, Cystinosis Support Foundation Of The UK And Eire

Country
England & Wales
Charity number
1074885
Status
Registered
Registered
March 26, 1999
Legal form
Other

Address

Address
Cystinosis Foundation UK
Unit 81304
PO Box 15113
Birmingham
B2 2NJ

Activities

To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general

Objects: To Relieve Persons Suffering From Cystinosis And Members Of Their Immediate Families Who Are Necessitous Circumstances In Particular By The Provision Of Information And Financial Support And By Raising Public Awareness Of The Disorder.

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
What
The Advancement Of Health Or Saving Of Lives
Who
Children/young People, People With Disabilities, Other Defined Groups

Geography

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £34,431 £19,238
March 31, 2024 £21,084 £16,033
March 31, 2023 £45,281 £115,891
March 31, 2022 £21,443 £5,664
March 31, 2021 £20,278 £10,844

Trustees

Name Appointed
William George Newman (Chair) Feb. 23, 2020
Alexandra Innes Hutchison Feb. 23, 2020
Bradley Pearson March 18, 2026
David Nigel Benford
Karthikeyan Ekambaram Feb. 23, 2020
Kirsty Avril Biss March 25, 2025
Thomas Ian Kenning Feb. 23, 2014
Thomas Stuart-Black Kelly March 25, 2025