{"country": "England & Wales", "charity_number": "1074885", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1074885", "name": "CYSTINOSIS FOUNDATION OF THE UK", "known_as": null, "other_names": [{"name": "CYSTINOSIS FOUNDATION - UK AND EIRE", "name_type": "Previous name"}, {"name": "CYSTINOSIS SUPPORT FOUNDATION OF THE UK AND EIRE", "name_type": "Previous name"}], "status": "Registered", "date_registered": "1999-03-26", "date_removed": null, "legal_form": "Other", "area_of_benefit": "NOT DEFINED", "address": "Cystinosis Foundation UK, Unit 81304, PO Box 15113, Birmingham", "postcode": "B2 2NJ", "phone": "07976272064", "email": "advice@cystinosis.org.uk", "website": "www.cystinosis.org.uk", "lat": 52.496093, "lng": -1.894579, "activities": "To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding  more about metabolic disorders in general", "purposes": null, "what_charity_does": null, "charitable_objects": "TO RELIEVE PERSONS SUFFERING FROM CYSTINOSIS AND MEMBERS OF THEIR IMMEDIATE FAMILIES WHO ARE NECESSITOUS CIRCUMSTANCES IN PARTICULAR BY THE PROVISION OF INFORMATION AND FINANCIAL SUPPORT AND BY RAISING PUBLIC AWARENESS OF THE DISORDER.", "classifications": [{"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "How", "code": 310, "description": "Other Charitable Activities"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}, {"type": "Who", "code": 206, "description": "Other Defined Groups"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 34431, "latest_expenditure": 19238, "fin_period_start": "2024-04-01", "fin_period_end": "2025-03-31", "financial_years": [{"start": "2024-04-01", "end": "2025-03-31", "income": 34431, "expenditure": 19238, "assets": null, "funds": null, "num_employees": null, "accounts_url": "https://files.opencharities.uk/ew/1074885/2025-03-31-accounts.pdf", "accounts_md_url": null}, {"start": "2023-04-01", "end": "2024-03-31", "income": 21084, "expenditure": 16033, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2022-04-01", "end": "2023-03-31", "income": 45281, "expenditure": 115891, "assets": null, "funds": null, "num_employees": null, "accounts_url": "https://files.opencharities.uk/ew/1074885/2023-03-31-accounts.pdf", "accounts_md_url": null}, {"start": "2021-04-01", "end": "2022-03-31", "income": 21443, "expenditure": 5664, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2020-04-01", "end": "2021-03-31", "income": 20278, "expenditure": 10844, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}], "documents": [], "trustees": [{"name": "William George Newman", "chair": true, "appointment": "2020-02-23"}, {"name": "Alexandra Innes Hutchison", "chair": false, "appointment": "2020-02-23"}, {"name": "Bradley Pearson", "chair": false, "appointment": "2026-03-18"}, {"name": "David Nigel Benford", "chair": false, "appointment": null}, {"name": "Karthikeyan Ekambaram", "chair": false, "appointment": "2020-02-23"}, {"name": "Kirsty Avril Biss", "chair": false, "appointment": "2025-03-25"}, {"name": "Thomas Ian Kenning", "chair": false, "appointment": "2014-02-23"}, {"name": "Thomas Stuart-Black Kelly", "chair": false, "appointment": "2025-03-25"}]}