2024-03-31-accounts - Kawasaki Fund

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Trustees Report 2023 - 2024

THE KAWASAKI FUND (Registered Charity No. 1064518)

The Kawasaki Fund was set up to raise awareness within the medical profession and among parents of very young children of so-called Kawasaki disease. This is an illness that almost always only affects babies and toddlers under the age of five and which presents itself initially as similar to a severe case of influenza. However, if undiagnosed (and thus untreated) in its earlier stages, it can spread to the heart and leave behind aneurisms that may burst at any time as the victim reaches maturity. Some medical practitioners consider the long-term effects of having suffered from Kawasaki disease to be a primary cause of sudden death from otherwise unexplained catastrophic and sometimes lethal heart failure among children and young adults. While Kawasaki disease has been the subject of more research over recent decades, there is still much needed to be done to establish its cause, to find more effective treatments for it and, ultimately, to develop a vaccine against it.

In addition to raising awareness the charity provides a telephone support service for families whose child has a suspected case of Kawasaki Disease. This often leads to a referral to a paediatric specialist for a second opinion and access to an ultrasound examination for speedy diagnosis of cases that might otherwise be missed or subject to unconscionable delay by GPs or Accident & Emergency Departments.

In some extreme instances, the charity awards grants of up to £500 to families whose child’s exposure to Kawasaki Disease has resulted in considerable financial hardship owing to lost income while parents are focussing on their child’s treatment and recovery.

Apart from donations from the public and various charitable foundations, the charity’s income has arisen through sharing an awarded property with small enterprises and other charities. Although this has greatly increased the charity’s revenue stream in recent years, it has also necessitated extra expenditure to maintain and secure the property. In addition, the charity’s trustees, volunteers and staff have been required to commit considerably more time than was previously the case to dealing with the manifest and manifold issues arising from the complexity of managing a large property some distance from the charity’s original base in Essex.

In pursuing the charity’s primary objective of raising awareness of Kawasaki Disease among the population in general and the medical community and parents of under-fives in particular, the trustees have commissioned research into the disease’s cause, effective treatment and the identification and monitoring of any long-term cardiovascular-related consequences for its victims.

A silver lining of the recent COVID-19 pandemic was that parents were especially observant of, and concerned by, ’flu-like symptoms manifested by their children – and, especially, infants. As we now know, very few of this demographic were susceptible to the pandemic: but some infants, who otherwise might not have been, were diagnosed with Kawasaki Disease. This undoubtedly raised awareness of the disease at the time: and the trustees have taken the opportunity to send information in the form of specific leaflets to GP practices up and down the country.

Building upon the work initiated last year, and with the assistance of a succession of medically trained interns, the charity has engaged with the Rady Children’s Health organisation in Southern California, which has the

facility to research diseases that affect children, including Kawasaki Disease. The Kawasaki Fund trustees are actively seeking to find answers to basic questions such as: how the disease originated; whether there is any inherited gene that increases the likelihood of susceptibility to it; what new medications may be available either to prevent or to treat it; how to cure its victims; whether there are any individual or combinations of medicines for those living with its more pernicious after effects; and what raw data exists (or can be extrapolated) to show how prevalent the victims of Kawasaki Disease have been and continue to be in the wider youth community.

Nevertheless, having the answers is only useful if people know the questions to ask. The trustees continue to promote awareness of Kawasaki Disease through events attended by the public, by engaging with social media outlets, and by sending information to GPs. It is a daunting task to reach the public consciousness, but that is exactly what the Kawasaki Fund was established to do.

Registered Number: 01064518

KAWASAKI FUND

Period of accounts

Start date: 01 April 2023

End date: 31 March 2024

KAWASAKI FUND Contents Page For the year ended 31 March 2024

Report of the Trustees	3
Income statement	4
Statement of financial position	5
Detailed Income Statement	7

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KAWASAKI FUND

REPORT OF THE TRUSTEES

For the Year Ended 31 MARCH 2023

The trustees present their report with the financial statements of the charity for the year ended 31 March 2023. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.

REFERENCE AND ADMINISTRATIVE DETAILS

Registered Charity number 1064518

Principal address

88 NETHERWOOD ROAD LONDON W14 0BQ

Trustees

Ian Collin Sinclaire Lyan Tamaz Samkharadze Petar Minkov

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KAWASAKI FUND Income Statement For the year ended 31 March 2024

Turnover Cost of raw materials and consumables Staff costs Depreciations and other amounts written off assets Other charges Profit/(Loss) for the financial year	2024 £ 73,635 (1,041) (20,925) (635) (24,093) 26,941	2023 £ 84,110 (2,248) (16,975) (794) (24,557)
		39,536

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KAWASAKI FUND Statement of Financial Position As at 31 March 2024

Fixed assets Current assets Creditors: amount falling due within one year Net current assets Total assets less current liabilities Net assets Capital and reserves	£ 200,330 (2,932)	2024 £ 2,541 197,398 199,939 199,939 199,939	£ 180,600 (10,778)	2023 £ 3,176 169,822

				172,998
				172,998

				172,998

NOTES TO THE ACCOUNTS

ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 J anuary 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.

Taxation

The charity is exempt from tax on its charitable activities.

TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 31 March 2023 nor for the year ended 31 March 2022.

The financial statements were approved by the Board of Trustees and authorised for issue on ............................................. and were signed on its behalf by:

............................................. I C S Lyan - Trustee

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KAWASAKI FUND Detailed Income Statement For the year ended 31 March 2024

0 331 710	1,550 0 698	2023 £ 11,757 72,353
		84,110 (2,248)
55 1,300 784	0 0 499
		81,862 (499)
14,988 331 5,606 3,697 885 2,896 227 0 189 45 635 234 656 0 1,005 0 406 3,417	16,800 4 171 6,660 115 0 747 179 973 6 794 0 0 202 459 45 75 2,654

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KAWASAKI FUND Detailed Income Statement For the year ended 31 March 2024

Gift Accomodations Office Expenses Software Costs Waste management Set up Costs Motor Expenses Council Tax Utility Costs uniform Costs Subscriptions Printing Costs Membership Costs Operating profit Profit/(Loss) on ordinary activities before taxation Profit/Loss for the financial year	0 0 337 0 1,354 0 0 9 5,623 151 733 22 68	(43,514) 26,941 26,941 26,941	57 5,829 1,800 381 0 3,800 76 0 0 0 0 0 0	(41,827)

				39,536
				39,536
				39,536

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Independent examiner's report on the accounts

Section A Independent Examiner’s Report

Report to the trustees KAWASAKI FUND

On accounts for the year 31 March 2024 Charity no 1064518 ended (if any) Set out on pages (remember to include the page numbers of additional sheets) I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 31 / 03 / 2023 . Responsibilities and As the charity's trustees, you are responsible for the preparation of the basis of report accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent [The charity’s gross income exceeded £250,000 and I am qualified to examiner's statement undertake the examination by being a qualified member of [insert name of applicable listed body]]. Delete [ ] if not applicable.

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination (other than that disclosed below *) which gives me cause to believe that in, any material respect:

the accounting records were not kept in accordance with section 130 of the Charities Act; or
the accounts did not accord with the accounting records; or
the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Please delete the words in the brackets if they do not apply.

Signed: Date: 15 May 2025 Name: Lutfi Talib Relevant professional CA, CPA, FCCA qualification(s) or body

Oct 2018

IER

(if any):

Address: 31-32 High Street, Wellingborough NN8 4HL

Section B Disclosure

Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).

Give here brief details of any items that the examiner wishes to disclose .

Oct 2018

IER