## **Trustees Report 2023 - 2024** THE KAWASAKI FUND (Registered Charity No. 1064518) The Kawasaki Fund was set up to raise awareness within the medical profession and among parents of very young children of so-called Kawasaki disease. This is an illness that almost always only affects babies and toddlers under the age of five and which presents itself initially as similar to a severe case of influenza. However, if undiagnosed (and thus untreated) in its earlier stages, it can spread to the heart and leave behind aneurisms that may burst at any time as the victim reaches maturity. Some medical practitioners consider the long-term effects of having suffered from Kawasaki disease to be a primary cause of sudden death from otherwise unexplained catastrophic and sometimes lethal heart failure among children and young adults. While Kawasaki disease has been the subject of more research over recent decades, there is still much needed to be done to establish its cause, to find more effective treatments for it and, ultimately, to develop a vaccine against it. In addition to raising awareness the charity provides a telephone support service for families whose child has a suspected case of Kawasaki Disease. This often leads to a referral to a paediatric specialist for a second opinion and access to an ultrasound examination for speedy diagnosis of cases that might otherwise be missed or subject to unconscionable delay by GPs or Accident & Emergency Departments. In some extreme instances, the charity awards grants of up to £500 to families whose child’s exposure to Kawasaki Disease has resulted in considerable financial hardship owing to lost income while parents are focussing on their child’s treatment and recovery. Apart from donations from the public and various charitable foundations, the charity’s income has arisen through sharing an awarded property with small enterprises and other charities. Although this has greatly increased the charity’s revenue stream in recent years, it has also necessitated extra expenditure to maintain and secure the property. In addition, the charity’s trustees, volunteers and staff have been required to commit considerably more time than was previously the case to dealing with the manifest and manifold issues arising from the complexity of managing a large property some distance from the charity’s original base in Essex. In pursuing the charity’s primary objective of raising awareness of Kawasaki Disease among the population in general and the medical community and parents of under-fives in particular, the trustees have commissioned research into the disease’s cause, effective treatment and the identification and monitoring of any long-term cardiovascular-related consequences for its victims. A silver lining of the recent COVID-19 pandemic was that parents were especially observant of, and concerned by, ’flu-like symptoms manifested by their children – and, especially, infants. As we now know, very few of this demographic were susceptible to the pandemic: but some infants, who otherwise might not have been, were diagnosed with Kawasaki Disease. This undoubtedly raised awareness of the disease at the time: and the trustees have taken the opportunity to send information in the form of specific leaflets to GP practices up and down the country. Building upon the work initiated last year, and with the assistance of a succession of medically trained interns, the charity has engaged with the Rady Children’s Health organisation in Southern California, which has the facility to research diseases that affect children, including Kawasaki Disease. The Kawasaki Fund trustees are actively seeking to find answers to basic questions such as: how the disease originated; whether there is any inherited gene that increases the likelihood of susceptibility to it; what new medications may be available either to prevent or to treat it; how to cure its victims; whether there are any individual or combinations of medicines for those living with its more pernicious after effects; and what raw data exists (or can be extrapolated) to show how prevalent the victims of Kawasaki Disease have been and continue to be in the wider youth community. Nevertheless, having the answers is only useful if people know the questions to ask. The trustees continue to promote awareness of Kawasaki Disease through events attended by the public, by engaging with social media outlets, and by sending information to GPs. It is a daunting task to reach the public consciousness, but that is exactly what the Kawasaki Fund was established to do. Registered Number: 01064518 ## KAWASAKI FUND ## **Period of accounts** **Start date:** 01 April 2023 **End date:** 31 March 2024 KAWASAKI FUND Contents Page For the year ended 31 March 2024 |Report of the Trustees|3| |---|---| |Income statement|4| |Statement of financial position|5| |Detailed Income Statement|7| 2 of 8 ## KAWASAKI FUND ## REPORT OF THE TRUSTEES For the Year Ended 31 MARCH 2023 The trustees present their report with the financial statements of the charity for the year ended 31 March 2023. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019). ## STRUCTURE, GOVERNANCE AND MANAGEMENT ## Governing document The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity. ## REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number 1064518 ## Principal address 88 NETHERWOOD ROAD LONDON W14 0BQ ## Trustees Ian Collin Sinclaire Lyan Tamaz Samkharadze Petar Minkov 3 of 8 ## KAWASAKI FUND Income Statement For the year ended 31 March 2024 |Turnover
Cost of raw materials and consumables
Staff costs
Depreciations and other amounts written off assets
Other charges
**Profit/(Loss) for the financial year**|**2024**
**£**
73,635
(1,041)
(20,925)
(635)
(24,093)
**26,941**|**2023**
**£**
84,110
(2,248)
(16,975)
(794)
(24,557)| |---|---|---| |||**39,536**| 4 of 8 ## KAWASAKI FUND Statement of Financial Position As at 31 March 2024 |Fixed assets
Current assets
Creditors: amount falling due
within one year
**Net current assets**
**Total assets less current**
**liabilities**
**Net assets**
**Capital and reserves**|**£**
200,330
(2,932)|**2024**
**£ **
2,541


**197,398**
**199,939**
**199,939**
**199,939**|**£**
180,600
(10,778)|**2023**
**£**
3,176


**169,822**| |---|---|---|---|---| |||||| |||||**172,998**| |||||**172,998**| |||||| |||||**172,998**| ## **NOTES TO THE ACCOUNTS** ## **ACCOUNTING POLICIES** ## Basis of preparing the financial statements The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 J anuary 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention. ## Taxation The charity is exempt from tax on its charitable activities. ## TRUSTEES' REMUNERATION AND BENEFITS There were no trustees' remuneration or other benefits for the year ended 31 March 2023 nor for the year ended 31 March 2022. The financial statements were approved by the Board of Trustees and authorised for issue on ............................................. and were signed on its behalf by: ............................................. I C S Lyan - Trustee 5 of 8 ## KAWASAKI FUND Detailed Income Statement For the year ended 31 March 2024 |**Turnover**
Donation
Income from Office Workspace
**Cost of sales**
Sub-Contract Cost
Other Direct Costs
Charitable activities
Gross profit
**Selling and distribution costs**
Courier Service
Vehicle Hire
Website Costs
**Administrative expenses**
Wages & Salaries
Staff Welfare
Temporary Staff & Recruitment
Accountancy Fees
Legal and Professional Fees (Allowable)
Cleaning of Premises
Petrol and Oil
Motor Licenses and Insurances
General Travel Expenses
Bank Charges
Depreciation Charge: Plant & Machinery
Advertising
General Insurance
Stationery & Postage
Telephone, Fax & Internet
Sundry Expenses
IT Costs
Food & Subsistence|0
331
710|**2024**
**£**
9,922
63,713
**73,635**



(1,041)
**72,594**



(2,139)

















|


1,550
0
698|**2023**
**£**
11,757
72,353| |---|---|---|---|---| |||||**84,110**
(2,248)| ||55
1,300
784||
0
0
499|| |||||**81,862**
(499)| ||14,988
331
5,606
3,697
885
2,896
227
0
189
45
635
234
656
0
1,005
0
406
3,417||16,800
4
171
6,660
115
0
747
179
973
6
794
0
0
202
459
45
75
2,654|| 7 of 8 ## KAWASAKI FUND Detailed Income Statement For the year ended 31 March 2024 |Gift
Accomodations
Office Expenses
Software Costs
Waste management
Set up Costs
Motor Expenses
Council Tax
Utility Costs
uniform Costs
Subscriptions
Printing Costs
Membership Costs
Operating profit
**Profit/(Loss) on ordinary activities before**
**taxation**
**Profit/Loss for the financial year**|0
0
337
0
1,354
0
0
9
5,623
151
733
22
68|












(43,514)
**26,941**
**26,941**
**26,941**|57
5,829
1,800
381
0
3,800
76
0
0
0
0
0
0|(41,827)| |---|---|---|---|---| |||||| |||||**39,536**| |||||**39,536**| |||||**39,536**| 8 of 8 ## **Independent examiner's report on the accounts** **Section A Independent Examiner’s Report** **Report to the trustees KAWASAKI FUND** **On accounts for the year** 31 March 2024 **Charity no** 1064518 **ended (if any) Set out on pages** (remember to include the page numbers of additional sheets) I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended **31 / 03 / 2023** . **Responsibilities and** As the charity's trustees, you are responsible for the preparation of the **basis of report** accounts in accordance with the requirements of the Charities Act 2011 (“the Act”). I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. **Independent** [The charity’s gross income exceeded £250,000 and I am qualified to **examiner's statement** undertake the examination by being a qualified member of [insert name of applicable listed body]]. _Delete_ [ ] _if not applicable._ I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination (other than that disclosed below *) which gives me cause to believe that in, any material respect: - the accounting records were not kept in accordance with section 130 of the Charities Act; or - the accounts did not accord with the accounting records; or - the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. * _Please delete the words in the brackets if they do not apply._ **Signed: Date:** 15 May 2025 **Name:** Lutfi Talib **Relevant professional** CA, CPA, FCCA **qualification(s) or body** **Oct 2018** 1 **IER** ## **(if any):** **Address:** 31-32 High Street, Wellingborough NN8 4HL ## **Section B Disclosure** Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners). **Give here brief details of any items that the examiner wishes to disclose** . **Oct 2018** 2 **IER**