OpenCharities

Dancing Eye Syndrome Support Trust

Country
England & Wales
Charity number
1060181
Status
Registered
Registered
Jan. 16, 1997
Legal form
Trust
Area of benefit
Not Defined

Address

Address
98 Brookhill Street
Stapleford
NOTTINGHAM
NG9 7GG

Activities

The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.

Objects: 1) For The Relief Of Persons Affected By Dancing Eye Syndrome And The Assistance Of Their Family And Dependants. 2) To Advance The Education Of The Medical Profession And The General Public On The Subject Of Dancing Eye Syndrome And Its Implications For The Family And Dependants Of Persons Affected By Dancing Eye Syndrome. 3) To Promote Research Into The Management Of Dancing Eye Syndrome And To Publish The Useful Results Thereof And To Support Organisations Promoting Research Into Dancing Eye Syndrome.

Classification

How
Provides Advocacy/advice/information
What
Disability
Who
Children/young People, People With Disabilities

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Aug. 31, 2024 £10,161 £15,059
Aug. 31, 2023 £9,916 £14,789
Aug. 31, 2022 £3,151 £8,785
Aug. 31, 2021 £3,172 £2,317
Aug. 31, 2020 £3,888 £3,340

Trustees

Name Appointed
Joanne Sarah Brazier (Chair) May 28, 2022
Dr Ming Lim Feb. 18, 2012
Ian Arden Grummitt May 28, 2016
Janet Compston
Linda Allaway May 25, 2019
Morag Macleod
Nichola Ejaz May 24, 2014
Rachel Hallcup May 28, 2016
Vennetta Rheanne Mansell May 25, 2019