# DANCING EYE SYNDROME SUPPORT TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1060181
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Jan. 16, 1997
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1060181


## Contact

- **Address:** 98 Brookhill Street, Stapleford, NOTTINGHAM
- **Postcode:** NG9 7GG
- **Phone:** 07931968343
- **Email:** support@dancingeyes.org.uk
- **Website:** www.dancingeyes.org.uk



## Activities

**Objects:** 1) FOR THE RELIEF OF PERSONS AFFECTED BY DANCING EYE SYNDROME AND THE ASSISTANCE OF THEIR FAMILY AND DEPENDANTS.  2) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF DANCING EYE SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY AND DEPENDANTS OF PERSONS AFFECTED BY DANCING EYE SYNDROME.  3) TO PROMOTE RESEARCH INTO THE MANAGEMENT OF DANCING EYE SYNDROME AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO DANCING EYE SYNDROME.

**Activities:** The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Aug. 31, 2024 | £10161 | £15059 | — | — |
| Aug. 31, 2023 | £9916 | £14789 | — | — |
| Aug. 31, 2022 | £3151 | £8785 | — | — |
| Aug. 31, 2021 | £3172 | £2317 | — | — |
| Aug. 31, 2020 | £3888 | £3340 | — | — |



## Trustees

- **Joanne Sarah Brazier** (Chair) — appointed May 28, 2022
- Dr Ming Lim — appointed Feb. 18, 2012
- Ian Arden Grummitt — appointed May 28, 2016
- Janet Compston
- Linda Allaway — appointed May 25, 2019
- Morag Macleod
- Nichola Ejaz — appointed May 24, 2014
- Rachel Hallcup — appointed May 28, 2016
- Vennetta Rheanne Mansell — appointed May 25, 2019