OpenCharities

CdLS Foundation UK & Ireland

Cornelia De Lange Syndrome Foundation UK, CD L S Foundation

Country
England & Wales
Charity number
1054033
Status
Registered
Reporting
Up to date Last filed June 18, 2026. Filing history
Registered
March 25, 1996
Legal form
Other

Address

Address
C D L S Foundation
PO Box 8368
Ripley
DE5 4DA

Contact

Phone
01375 376439
Email
info@cdls.org.uk
Website
cdls.org.uk
Screenshot of the CdLS Foundation UK & Ireland website

Activities

Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.

Objects: To Ensure Early And Accurate Diagnosis Of Cdls Throughout The World To Promote Research And To Enable Families Friends And Professionals To Make An Informed Decision And Plan For The Affected Person's Present And Future

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities

Geography

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Dec. 31, 2025 June 18, 2026On time £53,629 £47,139
Dec. 31, 2024 Sept. 18, 2025On time £49,256 £46,292
Dec. 31, 2023 Sept. 19, 2024On time £61,959 £63,874
Dec. 31, 2022 May 17, 2023On time £51,735 £54,234
Dec. 31, 2021 May 20, 2022On time £45,243 £33,220
Dec. 31, 2020 June 30, 2021 £58,972 £33,812

Trustees

Name Appointed
Bjorn Harris April 27, 2022
Charles Blockley Oct. 29, 2017
David Axtell Oct. 14, 2012
Dr Bethany Pang Jan. 22, 2025
Faye Kett Oct. 14, 2012
Jack Young June 27, 2019
Kim Wildborne Sept. 16, 2024
Ryan Saunders May 4, 2013
Sara Peaford-Smith May 1, 2016