OpenCharities

CdLS Foundation UK & Ireland

Cornelia De Lange Syndrome Foundation UK, CD L S Foundation

Country
England & Wales
Charity number
1054033
Status
Registered
Registered
March 25, 1996
Legal form
Other
Area of benefit
Not Defined

Address

Address
C D L S Foundation
PO Box 8368
RIPLEY
DE5 4DA

Contact

Activities

Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.

Objects: To Ensure Early And Accurate Diagnosis Of Cdls Throughout The World To Promote Research And To Enable Families Friends And Professionals To Make An Informed Decision And Plan For The Affected Person's Present And Future

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £49,256 £46,292
Dec. 31, 2023 £61,959 £63,874
Dec. 31, 2022 £51,735 £54,234
Dec. 31, 2021 £45,243 £33,220
Dec. 31, 2020 £58,972 £33,812

Trustees

Name Appointed
Bjorn Harris April 27, 2022
Charles Blockley Oct. 29, 2017
David Axtell Oct. 14, 2012
Faye Kett Oct. 14, 2012
Jack Young June 27, 2019
Kim Wildborne Sept. 16, 2024
Ryan Saunders May 4, 2013
Sara Peaford-Smith May 1, 2016