# CdLS Foundation UK &amp; Ireland

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1054033
- **Other names:** CORNELIA DE LANGE SYNDROME FOUNDATION UK, CD L S FOUNDATION
- **Status:** Registered
- **Legal form:** Other
- **Registered:** March 25, 1996
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1054033


## Contact

- **Address:** C D L S Foundation, PO Box 8368, RIPLEY
- **Postcode:** DE5 4DA
- **Phone:** 01375 376439
- **Email:** info@cdls.org.uk
- **Website:** www.cdls.org.uk



## Activities

**Objects:** TO ENSURE EARLY AND ACCURATE DIAGNOSIS OF CDLS THROUGHOUT THE WORLD TO PROMOTE RESEARCH AND TO ENABLE FAMILIES FRIENDS AND PROFESSIONALS TO MAKE AN INFORMED DECISION AND PLAN FOR THE AFFECTED PERSON&#x27;S PRESENT AND FUTURE

**Activities:** Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings &amp; research.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Bjorn Harris |  | April 27, 2022 |
| CHARLES BLOCKLEY |  | Oct. 29, 2017 |
| DAVID AXTELL |  | Oct. 14, 2012 |
| Dr Bethany Pang |  | Jan. 22, 2025 |
| FAYE KETT |  | Oct. 14, 2012 |
| Jack Young |  | June 27, 2019 |
| Kim Wildborne |  | Sept. 16, 2024 |
| Ryan Saunders |  | May 4, 2013 |
| Sara Peaford-Smith |  | May 1, 2016 |




