OpenCharities

Primary Ciliary Dyskinesia Support UK

Pcd Family Support Group, Primary Ciliary Dyskinesia (Pcd) Family Support Group, Pcd Support UK

Country
England & Wales
Charity number
1049931
Status
Registered
Reporting
Up to date Last filed Oct. 31, 2025. Filing history
Registered
Oct. 17, 1995
Legal form
Other

Address

Address
3 Laggan Road
Maidenhead
Berkshire
SL6 7JY

Activities

1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

Objects: 1) The Relief Of Persons Affected By Primary Ciliary Dyskinesia And Allied Conditions. 2) To Advance Medical Research Into The Cause, Cure, Prevention Or Relief Of Such Conditions Provided That The Useful Results Of The Research Shall Be Published.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities

Geography

Country
Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Dec. 31, 2024 Oct. 31, 2025On time £66,445 £41,020
Dec. 31, 2023 Oct. 1, 2024On time £20,511 £51,272
Dec. 31, 2022 May 17, 2023On time £36,913 £25,308
Dec. 31, 2021 March 24, 2022On time £54,967 £16,949
Dec. 31, 2020 Sept. 7, 2021On time £33,209 £9,759

Trustees

Name Appointed
Katie Dexter (Chair) Jan. 1, 2021
Abdullah Ihsan June 27, 2020
Gary Tipping
Myra Tipping