# PRIMARY CILIARY DYSKINESIA SUPPORT UK

## Details

- **Country:** England & Wales
- **Charity number:** 1049931
- **Other names:** PCD FAMILY SUPPORT GROUP, PRIMARY CILIARY DYSKINESIA (PCD) FAMILY SUPPORT GROUP, PCD SUPPORT UK
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Oct. 17, 1995
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1049931


## Contact

- **Address:** 3 Laggan Road, MAIDENHEAD, Berkshire
- **Postcode:** SL6 7JY
- **Phone:** 000000000000
- **Email:** chair@pcdsupport.org.uk
- **Website:** www.pcdsupport.org.uk



## Activities

**Objects:** 1) THE RELIEF OF PERSONS AFFECTED BY PRIMARY CILIARY DYSKINESIA AND ALLIED CONDITIONS.  2) TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH CONDITIONS PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.

**Activities:** 1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Areas of operation

- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £66445 | £41020 | — | — |
| Dec. 31, 2023 | £20511 | £51272 | — | — |
| Dec. 31, 2022 | £36913 | £25308 | — | — |
| Dec. 31, 2021 | £54967 | £16949 | — | — |
| Dec. 31, 2020 | £33209 | £9759 | — | — |



## Trustees

- **Katie Dexter** (Chair) — appointed Jan. 1, 2021
- Abdullah Ihsan — appointed June 27, 2020
- Gary Tipping
- Myra Tipping