OpenCharities

Bardet - Biedl Syndrome UK

Laurence-Moon-Bardet-Biedl Society, Bardet-Biedl Syndrome UK, Lmbbs

Country
England & Wales
Charity number
1027384
Status
Removed
Registered
Oct. 19, 1993
Removed
Dec. 23, 2020
Legal form
Other

Activities

ANNUAL FAMILY CONFERENCE, INCLUDING CHILDREN'S ACTIVITIES THROUGHOUT THE WEEKEND. PLUS PROFESSIONAL SPEAKERS, AND A CHANCE FOR FAMILIES AND THOSE WITH BBS TO GAIN INFORMATION AND SUPPORT THROUGHOUT THE WEEKEND AND THE YEAR.FUNDRAISING THROUGHTOUT THE YEAR.SUPPORTING FAMILIES AND THOSE WITH BBS WITH AN UP TO DATE WEB PAGE, PLUS INFORMATION LEAFLETS, NEWLETTERS, AND HELPLINE.

Objects: A) To Preserve And Protect The Health And Promote The Welfare Of Persons Suffering From Laurence-Moon-Bardet-Biedl Syndrome And Their Families. B) To Advance The Education Of The Medical And Educational Professions And The General Public On The Subject Of Laurence-Moon-Bardet-Biedl Syndrome And Its Implications For The Family.

Classification

How
Provides Advocacy/advice/information
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2020 - -
Dec. 31, 2019 £101,078 £104,976
Dec. 31, 2018 £97,945 £63,298
Dec. 31, 2017 £51,217 £40,238
Dec. 31, 2016 £63,940 £30,813
Dec. 31, 2015 £59,796 £61,311