# BARDET - BIEDL SYNDROME UK

## Details

- **Country:** England & Wales
- **Charity number:** 1027384
- **Other names:** LAURENCE-MOON-BARDET-BIEDL SOCIETY, BARDET-BIEDL SYNDROME UK, LMBBS
- **Status:** Removed
- **Legal form:** Other
- **Registered:** Oct. 19, 1993
- **Removed:** Dec. 23, 2020
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1027384



## Activities

**Objects:** A)  TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE WELFARE OF PERSONS SUFFERING FROM LAURENCE-MOON-BARDET-BIEDL SYNDROME AND THEIR FAMILIES. B)  TO ADVANCE THE EDUCATION OF THE MEDICAL AND EDUCATIONAL PROFESSIONS AND THE GENERAL PUBLIC ON THE SUBJECT OF LAURENCE-MOON-BARDET-BIEDL SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY.

**Activities:** ANNUAL FAMILY CONFERENCE, INCLUDING CHILDREN'S ACTIVITIES THROUGHOUT THE WEEKEND.  PLUS PROFESSIONAL SPEAKERS, AND A CHANCE FOR FAMILIES AND THOSE WITH BBS TO GAIN INFORMATION AND SUPPORT THROUGHOUT THE WEEKEND AND THE YEAR.FUNDRAISING THROUGHTOUT THE YEAR.SUPPORTING FAMILIES AND THOSE WITH BBS WITH AN UP TO DATE WEB PAGE, PLUS INFORMATION LEAFLETS, NEWLETTERS, AND HELPLINE.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees | Accounts |
|---|---|---|---|---|---|
| Dec. 31, 2020 |  -  |  -  |  -  |  -  |  |
| Dec. 31, 2019 | £101078 | £104976 |  -  |  -  |  |
| Dec. 31, 2018 | £97945 | £63298 |  -  |  -  |  |
| Dec. 31, 2017 | £51217 | £40238 |  -  |  -  |  |
| Dec. 31, 2016 | £63940 | £30813 |  -  |  -  |  |
| Dec. 31, 2015 | £59796 | £61311 |  -  |  -  |  |