2025-03-31-accounts

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Trustees' Annual Report for the period

From To

Period start date Period end date 1[st] April 2024 31[st] March 2025

Section A Reference and administration details ee

Charity name Galactosaemia Support Group ~~PO~~

Other names charity is known by

Registered charity number (if any) ~~[LT~~ 1020167 Charity's principal address 757 Manchester Road Stocksbridge Sheffield

Postcode S36 1DQ

Names of the charity trustees who manage the charity

Trustee name Office (if any)

Dates acted if not for whole year

Name of person (or body) entitled to appoint trustee (if any)

1 Karen Ford Chairman 2 Sue Bevington CEO
3 Stuart Ford
4 Rachel Watts Treasure
5 Robert Watts
6 Dr Laura Bevington Secretary
Website Co-
7[Michael Bevington] ordinator
8 Laura Wilcock

9[Andrew Wilcock] Fundraising Coordinator

10 Charlotte burn

12 13 14 15

19 20

Names of the trustees for the charity, if any, (for example, any custodian trustees)

March 2012

TAR

Names and addresses of advisers (Optional information)

Type of Name Address adviser

Name of chief executive or names of senior staff members (Optional information)

Susan Bevingtion

Section B Structure, governance and management

Description of the charity’s trusts

The charity is governed by its Constitution, dated 24 October 1992 as Type of governing document amended 14 March 1993. The charity constitutes an unincorporated (eg. trust deed, constitution) charity. Trust How the charity is constituted

(eg. trust, association, company)

The honorary officers are re-elected on an annual basis at the annual Trustee selection methods general meeting usually held in the autumn, unfortunately due to Covid (eg. appointed by, elected by) restrictions this didn’t take place this year.

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

policies and procedures adopted for the induction and training of trustees;
the charity’s organisational structure and any wider network with which the charity works;

The trustees actively review the major risks which the charity may face on a regular basis and believe that maintaining reserves at current levels, combined with an annual review of the controls over key financial systems, will provide sufficient resources in the event of adverse conditions.

The trustees have also examined other operational and business risks faced by the charity and confirm that they have established systems to mitigate the significant risks.

relationship with any related parties;
trustees’ consideration of major risks and the system and procedures to manage them.

Section C Objectives and activities

March 2012

TAR

1) To alleviate the suffering and promote the relief and care of persons suffering from the metabolic disease known as "Galactosaemia", 2) To advance education concerning this disease, Summary of the objects of the charity set out in its governing 3) To engage in any charitable activities which may lessen the suffering of document such people and ancillary thereto, to protect and preserve the health of their families, friends and carers. Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

Additional details of objectives and activities (Optional information)

March 2012

TAR

The principal policies adopted in order to achieve the objectives and aims are as follows:

1) To create a positive supportive network of parents, families and professionals in order to share experiences and to give emotional support and information regarding the benefit if dietary control.

You may choose to include further statements, where relevant, about:

2) To promote awareness of the disease within the medical and teaching professions and within the food and pharmaceutical industries by means of direct communication.

Policy on grant making; 3) To raise funds specifically for financing research into the disease
policy programme related investment;
Contribution made by volunteers.

Section D Achievements and performance

March 2012

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Section D Achievements and performance

Summary of the main achievements of the charity during the year	The trustee’s continue to spread the word and promote the GSG. The committee have continued to hold the committee meetings via Zoom, this has helped the trustees save time on travelling and reduces the GSG carbon footprint. The committee were busy organising the GSG weekend away at Kimmel Bay, North Wales. The cost of attending the conference was subsidised by the GSG to allow as many people as possible to attend. This year we had a record number of families joining us. Following another generous donation from Nutricia, the GSG have decided to again subsidise every GSG family member’s accommodation as a thank you for your continued support. The weekend was a success and inclusive to all who attended, we held a laser tag session enjoyed by the young and older children. Play sessions were enjoyed by the very young children this also allowed new families to meet other parents. The evenings were spent meeting with old friends and making new ones. We had lots of low galactose goodies for everyone to try and played quizzes. Everyone had fun. The social media platforms continue to grow and are a good source of support and information for our members. As a committee we have talked about updating the GSG website, making it more user friendly especially for neurodivergent individuals, Barclays bank have assisted in helping set up a new website for the GSG, we can’t wait for its launch. Louise, the GSG dietitian continues to promote the GSG through her blog, attending national and international dietetic meetings/conferences. Once again Louise attended and spoke at the European Galactosemia Society conference. S continues to be a prominent, active member of the GalNat (galactosaemia Network for Professionals). We also did more cheese testing, once again discovering and allowing more choice in the galactosaemia diet. Some members talked to a research company looking at new ways to help people with galactosaemia and new drugs for the future.

Section E Financial review

March 2012

TAR

Brief statement of the charity’s policy on reserves

It is the policy of the trustees to maintain unrestricted funds at a level sufficient to finance not less than twelve months of unrestricted expenditure and that this level of reserves is held throughout the year.

Details of any funds materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

the charity’s principal sources of funds (including any fundraising);
how expenditure has supported the key objectives of the charity;

The charity receives no funding from Government or other grant making organisations. The principal source of income was from various donations received and by individual fundraising activities undertaken by members, their friends and families. Members of the executive committee and others, including professionals, give their time voluntarily to the charity and often bear some of the incidental postage, stationery and travelling expenditure personally. We should like to thank all who supported our charity either financially or otherwise, whatever the size of the contribution. Income received is first utilised against the principal objectives and the running costs of the charity.

 Investment policy and Total unrestricted income during the year amounted to £19,629. objectives including any Resources expended on charitable activities amounted to £21,893. The ethical investment policy group received £14,802 through donations, and £5,006 from adopted. subscriptions.

a Section F Other optional information

Full membership is open to families of children suffering from Galactosaemia. Associate membership is open to individuals of 18 years and over and other voluntary or non-profit distributing organisations. The number of members registered at the beginning and end of the year was as follows:

Full members 206 Galactosaemics 221 Overseas members 14 Friends 6 Professional members 22

Section G Declaration a

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Karen Ford ~~ee ee~~ Position (eg Secretary, Chairman Chair, etc) ~~ee ee~~ Date 02/02/2026 ~~|~~

March 2012

TAR

Galactosaemia Support Group 1020167 Receipts and payments accounts CC16a For the period 1st April 2024 31st March 2025 To from ~~ee ee ee ee~~

Section A Receipts and payments

			Unrestricted funds	Restricted funds	Endowment funds	Total funds	Last year
			to the nearest £	to the nearest £	to the nearest £	to the nearest £	to the nearest £
A1 Receipts
Donations			20,876	-	-	20,876	8,185
Subscriptions			5,327	-	-	5,327	5,006
Fundraising			13,510	-	-	13,510	5,264
Other income			237	-	-	237	814
Interest on deposit account			453	-	-	453	360
				-	-	-	-
			-	-	-	-	-
			-	-	-	-	-
*Sub total*(Gross income for AR)	(Gross income for AR)	(Gross income for AR)	40,403	-	-	40,403	19,629
- - - - - - - - - Sub total - - - - - Total receipts 40,403 - - 40,403 19,629 A2 Asset and investment sales, (see table). ~~———_———~~
A3 Payments
Wages including NI Ers			11,842	-	-	11,842	10,264
Meeting expenses			6,652	-	-	6,652	6,455
Dietician's fees and expenses			6,475	-	-	6,475	1,539
Postage, printing, telephone and office			151	-	-	151	1,779
Accountancy			918	-	-	918	1,044
Sundryexpenses			252	-	-	252	746
Bank charges			308	-	-	308	66
				-	-	-	-
			-	-	-	-	-
**Sub total **			26,599	-	-	26,599	21,893
- - - - - - - - Sub total - - - - - Total payments 26,599 - - 26,599 21,893 A4 Asset and investment purchases, (see table) ~~—————~~
Net of receipts/(payments) 13,803 - - 13,803 - 2,264 A5 Transfers between funds - - - - - A6 Cash funds last year end 34,161 - - 34,161 36,425 Cash funds this year end 47,965 - - 47,965 34,161 ~~===_S=>==>~~

Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period
Categories B1 Cash funds B2 Other monetary assets B3 Investment assets B5 Liabilities B4 Assets retained for the charity’s own use	Details Cash at bank Petty cash Details Details Details Details PAYE due Accrual for accountancy + payroll *Total cash funds* (agree balances with receipts and payments account(s))	to nearest £ 47,886 79 - 47,965 OK to nearest £ - - - - - - Unrestricted Unrestricted Unrestricted funds Unrestricted funds Fund to which asset belongs Fund to which asset belongs Fund to which liability relates	to nearest £ - - - - OK to nearest £ - - - - - - Cost (optional) - - - - - Cost (optional) - - - - - - - - - 158 900 - - - Restricted funds Restricted funds Amount due (optional)	to nearest £ Endowment funds


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				OK
				to nearest £ Endowment funds
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				Current value (optional)
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				Current value (optional)
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				When due (optional)
	PAYE due	Unrestricted	158
	Accrual for accountancy + payroll	Unrestricted	900
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			-

Signed by one or two trustees on behalf of all the trustees

Signature

Date of Print Name approval

Galactosaemia Support Group 1020167 Receipts and payments accounts CC16a For the period 1st April 2024 31st March 2025 To from ~~ee ee ee ee~~

Section A Receipts and payments

			Unrestricted funds	Restricted funds	Endowment funds	Total funds	Last year
			to the nearest £	to the nearest £	to the nearest £	to the nearest £	to the nearest £
A1 Receipts
Donations			20,876	-	-	20,876	8,185
Subscriptions			5,327	-	-	5,327	5,006
Fundraising			13,510	-	-	13,510	5,264
Other income			237	-	-	237	814
Interest on deposit account			453	-	-	453	360
				-	-	-	-
			-	-	-	-	-
			-	-	-	-	-
*Sub total*(Gross income for AR)	(Gross income for AR)	(Gross income for AR)	40,403	-	-	40,403	19,629
- - - - - - - - - Sub total - - - - - Total receipts 40,403 - - 40,403 19,629 A2 Asset and investment sales, (see table). ~~———_———~~
A3 Payments
Wages including NI Ers			11,842	-	-	11,842	10,264
Meeting expenses			6,652	-	-	6,652	6,455
Dietician's fees and expenses			6,475	-	-	6,475	1,539
Postage, printing, telephone and office			151	-	-	151	1,779
Accountancy			918	-	-	918	1,044
Sundryexpenses			252	-	-	252	746
Bank charges			308	-	-	308	66
				-	-	-	-
			-	-	-	-	-
**Sub total **			26,599	-	-	26,599	21,893
- - - - - - - - Sub total - - - - - Total payments 26,599 - - 26,599 21,893 A4 Asset and investment purchases, (see table) ~~—————~~
Net of receipts/(payments) 13,803 - - 13,803 - 2,264 A5 Transfers between funds - - - - - A6 Cash funds last year end 34,161 - - 34,161 36,425 Cash funds this year end 47,965 - - 47,965 34,161 ~~===_S=>==>~~

Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period
Categories B1 Cash funds B2 Other monetary assets B3 Investment assets B5 Liabilities B4 Assets retained for the charity’s own use	Details Cash at bank Petty cash Details Details Details Details PAYE due Accrual for accountancy + payroll *Total cash funds* (agree balances with receipts and payments account(s))	to nearest £ 47,886 79 - 47,965 OK to nearest £ - - - - - - Unrestricted Unrestricted Unrestricted funds Unrestricted funds Fund to which asset belongs Fund to which asset belongs Fund to which liability relates	to nearest £ - - - - OK to nearest £ - - - - - - Cost (optional) - - - - - Cost (optional) - - - - - - - - - 158 900 - - - Restricted funds Restricted funds Amount due (optional)	to nearest £ Endowment funds


				-
				-
				OK
				to nearest £ Endowment funds
				-
				-
				-
				-
				-
				-
				Current value (optional)
				-
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				Current value (optional)
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				When due (optional)
	PAYE due	Unrestricted	158
	Accrual for accountancy + payroll	Unrestricted	900
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			-

Signed by one or two trustees on behalf of all the trustees

Signature

Date of Print Name approval

Section A Reference and administration details ~~ee~~

Names of the charity trustees who manage the charity

Names and addresses of advisers (Optional information)

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Additional governance issues (Optional information)

Section D Achievements and performance

Section E Financial review

Brief statement of the charity’s policy on reserves

Details of any funds materially in deficit

Further financial review details (Optional information)

~~a~~ Section F Other optional information

Section G Declaration ~~a~~

Section A Receipts and payments

Section A Receipts and payments

Section A Reference and administration details ee

a Section F Other optional information

Section G Declaration a