**Trustees' Annual Report for the period** **From To** Period start date Period end date 1[st] April 2024 31[st] March 2025 ## Section A Reference and administration details ~~ee~~ **Charity name** Galactosaemia Support Group ~~PO~~ **Other names charity is known by** > **Registered charity number (if any)** ~~[LT~~ 1020167 **Charity's principal address** 757 Manchester Road Stocksbridge Sheffield **Postcode** S36 1DQ ## **Names of the charity trustees who manage the charity** **Trustee name Office (if any)** **Dates acted if not for whole year** **Name of person (or body) entitled to appoint trustee (if any)** - 1 Karen Ford Chairman 2 Sue Bevington CEO - 3 Stuart Ford - 4 Rachel Watts Treasure - 5 Robert Watts - 6 Dr Laura Bevington Secretary - Website Co- - 7[Michael Bevington] ordinator - 8 Laura Wilcock 9[Andrew Wilcock] Fundraising Coordinator - 10 Charlotte burn 12 13 14 15 16 17 18 19 20 **Names of the trustees for the charity, if any, (for example, any custodian trustees)** March **2012** **TAR** 1 ## **Names and addresses of advisers (Optional information)** **Type of Name Address adviser** ## **Name of chief executive or names of senior staff members (Optional information)** Susan Bevingtion ## **Section B Structure, governance and management** ## **Description of the charity’s trusts** The charity is governed by its Constitution, dated 24 October 1992 as Type of governing document amended 14 March 1993. The charity constitutes an unincorporated (eg. trust deed, constitution) charity. Trust How the charity is constituted - (eg. trust, association, company) The honorary officers are re-elected on an annual basis at the annual Trustee selection methods general meeting usually held in the autumn, unfortunately due to Covid (eg. appointed by, elected by) restrictions this didn’t take place this year. ## **Additional governance issues (Optional information)** You **may choose** to include additional information, where relevant, about: - policies and procedures adopted for the induction and training of trustees; - the charity’s organisational structure and any wider network with which the charity works; The trustees actively review the major risks which the charity may face on a regular basis and believe that maintaining reserves at current levels, combined with an annual review of the controls over key financial systems, will provide sufficient resources in the event of adverse conditions. The trustees have also examined other operational and business risks faced by the charity and confirm that they have established systems to mitigate the significant risks. - relationship with any related parties; - trustees’ consideration of major risks and the system and procedures to manage them. **Section C Objectives and activities** March **2012** **TAR** 2 1) To alleviate the suffering and promote the relief and care of persons suffering from the metabolic disease known as "Galactosaemia", 2) To advance education concerning this disease, **Summary of the objects of the charity set out in its governing** 3) To engage in any charitable activities which may lessen the suffering of **document** such people and ancillary thereto, to protect and preserve the health of their families, friends and carers. **Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** **Additional details of objectives and activities (Optional information)** March **2012** **TAR** 3 The principal policies adopted in order to achieve the objectives and aims are as follows: 1) To create a positive supportive network of parents, families and professionals in order to share experiences and to give emotional support and information regarding the benefit if dietary control. You **may choose** to include further statements, where relevant, about: 2) To promote awareness of the disease within the medical and teaching professions and within the food and pharmaceutical industries by means of direct communication. - Policy on grant making; 3) To raise funds specifically for financing research into the disease - policy programme related investment; - Contribution made by volunteers. ## Section D Achievements and performance March **2012** **TAR** 4 Section D Achievements and performance |**Summary of the main**
**achievements of the charity**
**during the year**|The trustee’s continue to spread the word and promote the GSG. The
committee have continued to hold the committee meetings via Zoom, this
has helped the trustees save time on travelling and reduces the GSG
carbon footprint.
The committee were busy organising the GSG weekend away at Kimmel
Bay, North Wales. The cost of attending the conference was subsidised
by the GSG to allow as many people as possible to attend. This year we
had a record number of families joining us.
Following another generous
donation from Nutricia, the GSG have decided to again subsidise
every GSG family member’s accommodation as a thank you for your
continued support.
The weekend was a success and inclusive to all who attended, we held a
laser tag session enjoyed by the young and older children. Play sessions
were enjoyed by the very young children this also allowed new families to
meet other parents.
The evenings were spent meeting with old friends and making new ones.
We had lots of low galactose goodies for everyone to try and played
quizzes. Everyone had fun.
The social media platforms continue to grow and are a good source of
support and information for our members. As a committee we have talked
about updating the GSG website, making it more user friendly especially
for neurodivergent individuals, Barclays bank have assisted in helping set
up a new website for the GSG, we can’t wait for its launch.
Louise, the GSG dietitian continues to promote the GSG through her
blog, attending national and international dietetic meetings/conferences.
Once again Louise attended and spoke at the European Galactosemia
Society conference. S continues to be a prominent, active member of the
GalNat (galactosaemia Network for Professionals).
We also did more cheese testing, once again discovering and allowing
more choice in the galactosaemia diet.
Some members talked to a research company looking at new ways to
help people with galactosaemia and new drugs for the future.|| |---|---|---| ## **Section E Financial review** March **2012** **TAR** 5 ## **Brief statement of the charity’s policy on reserves** It is the policy of the trustees to maintain unrestricted funds at a level sufficient to finance not less than twelve months of unrestricted expenditure and that this level of reserves is held throughout the year. ## **Details of any funds materially in deficit** ## **Further financial review details (Optional information)** You **may choose** to include additional information, where relevant about: - the charity’s principal sources of funds (including any fundraising); - how expenditure has supported the key objectives of the charity; The charity receives no funding from Government or other grant making organisations. The principal source of income was from various donations received and by individual fundraising activities undertaken by members, their friends and families. Members of the executive committee and others, including professionals, give their time voluntarily to the charity and often bear some of the incidental postage, stationery and travelling expenditure personally. We should like to thank all who supported our charity either financially or otherwise, whatever the size of the contribution. Income received is first utilised against the principal objectives and the running costs of the charity.  Investment policy and Total unrestricted income during the year amounted to £19,629. objectives including any Resources expended on charitable activities amounted to £21,893. The ethical investment policy group received £14,802 through donations, and £5,006 from adopted. subscriptions. ## ~~a~~ **Section F Other optional information** Full membership is open to families of children suffering from Galactosaemia. Associate membership is open to individuals of 18 years and over and other voluntary or non-profit distributing organisations. The number of members registered at the beginning and end of the year was as follows: Full members 206 Galactosaemics 221 Overseas members 14 Friends 6 Professional members 22 ## **Section G Declaration** ~~a~~ **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s) Full name(s)** Karen Ford ~~ee ee~~ **Position (eg Secretary,** Chairman **Chair, etc)** ~~ee ee~~ **Date** 02/02/2026 ~~|~~ March **2012** **TAR** 6 **Galactosaemia Support Group 1020167 Receipts and payments accounts CC16a For the period** 1st April 2024 31st March 2025 **To from** ~~ee ee ee ee~~ ## **Section A Receipts and payments** ||||**Unrestricted**
**funds**||**Restricted**
**funds**||**Endowment**
**funds**||**Total funds**||**Last year**| |---|---|---|---|---|---|---|---|---|---|---|---| ||||**to the nearest £**||**to the nearest £**||**to the nearest £**||**to the nearest £**||**to the nearest £**| |**A1 Receipts**|||||||||||| |Donations|||**20,876**||**-**||**-**||**20,876**||**8,185**| |Subscriptions|||**5,327**||**-**||**-**||**5,327**||**5,006**| |Fundraising|||**13,510**||**-**||**-**||**13,510**||**5,264**| |Other income|||**237**||**-**||**-**||**237**||**814**| |Interest on deposit account|||**453**||**-**||**-**||**453**||**360**| ||||||**-**||**-**||**-**||**-**| ||||**-**||**-**||**-**||**-**||**-**| ||||**-**||**-**||**-**||**-**||**-**| |**_Sub total_**_(Gross income for AR)_|_(Gross income for AR)_|_(Gross income for AR)_|**40,403**||**-**||**-**||**40,403**||**19,629**| |**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**_Sub total_ -**
**-**
**-**
**-**
**-**
**_Total receipts_ 40,403**
**-**
**-**
**40,403**
**19,629**
**A2 Asset and investment sales,**
**(see table).**
~~———_———~~|||||||||||| |**A3 Payments**|||||||||||| |Wages including NI Ers|||**11,842**||**-**||**-**||**11,842**||**10,264**| |Meeting expenses|||**6,652**||**-**||**-**||**6,652**||**6,455**| |Dietician's fees and expenses|||**6,475**||**-**||**-**||**6,475**||**1,539**| |Postage, printing, telephone and office|||**151**||**-**||**-**||**151**||**1,779**| |Accountancy|||**918**||**-**||**-**||**918**||**1,044**| |Sundryexpenses|||**252**||**-**||**-**||**252**||**746**| |Bank charges|||**308**||**-**||**-**||**308**||**66**| ||||||**-**||**-**||**-**||**-**| ||||**-**||**-**||**-**||**-**||**-**| |**_Sub total_ **|||**26,599**||**-**||**-**||**26,599**||**21,893**| |**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**_Sub total_ -**
**-**
**-**
**-**
**-**
**_Total payments_ 26,599**
**-**
**-**
**26,599**
**21,893**
**A4 Asset and investment**
**purchases, (see table)**
~~—————~~|||||||||||| |**_Net of receipts/(payments)_ 13,803**
**-**
**-**
**13,803**
**- 2,264**
**A5 Transfers between funds**
**-**
**-**
**-**
**-**
**-**
**A6 Cash funds last year end**
**34,161**
**-**
**-**
**34,161**
**36,425**
**_Cash funds this year end_ 47,965**
**-**
**-**
**47,965**
**34,161**
~~===_S=>==>~~|||||||||||| |**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|| |---|---|---|---|---| |**Categories**
**B1 Cash funds**
**B2 Other monetary assets**
**B3 Investment assets**
**B5 Liabilities**
**B4 Assets retained for the**
**charity’s own use**|**Details**
Cash at bank
Petty cash
**Details**
**Details**
**Details**
**Details**
PAYE due
Accrual for accountancy + payroll
**_Total cash funds_**
(agree balances with receipts and payments
account(s))|**to nearest £**
**47,886**
**79**
**-**
**47,965**
OK
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
Unrestricted
Unrestricted
**Unrestricted**
**funds**
**Unrestricted**
**funds**
**Fund to which**
**asset belongs**
**Fund to which**
**asset belongs**
**Fund to which**
**liability relates**|**to nearest £**
**-**
**-**
**-**
**-**
OK
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**158**
**900**
**-**
**-**
**-**
**Restricted**
**funds**
**Restricted**
**funds**
**Amount due**
**(optional)**|**to nearest £**
**Endowment**
**funds**| |||||| |||||| |||||**-**| |||||**-**| |||||OK| |||||**to nearest £**
**Endowment**
**funds**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**Current value**
**(optional)**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**Current value**
**(optional)**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**When due**
**(optional)**| ||PAYE due|Unrestricted|**158**|| ||Accrual for accountancy + payroll|Unrestricted|**900**|| ||||**-**|| ||||**-**|| ||||**-**|| Signed by one or two trustees on behalf of all the trustees Signature Date of Print Name approval **Galactosaemia Support Group 1020167 Receipts and payments accounts CC16a For the period** 1st April 2024 31st March 2025 **To from** ~~ee ee ee ee~~ ## **Section A Receipts and payments** ||||**Unrestricted**
**funds**||**Restricted**
**funds**||**Endowment**
**funds**||**Total funds**||**Last year**| |---|---|---|---|---|---|---|---|---|---|---|---| ||||**to the nearest £**||**to the nearest £**||**to the nearest £**||**to the nearest £**||**to the nearest £**| |**A1 Receipts**|||||||||||| |Donations|||**20,876**||**-**||**-**||**20,876**||**8,185**| |Subscriptions|||**5,327**||**-**||**-**||**5,327**||**5,006**| |Fundraising|||**13,510**||**-**||**-**||**13,510**||**5,264**| |Other income|||**237**||**-**||**-**||**237**||**814**| |Interest on deposit account|||**453**||**-**||**-**||**453**||**360**| ||||||**-**||**-**||**-**||**-**| ||||**-**||**-**||**-**||**-**||**-**| ||||**-**||**-**||**-**||**-**||**-**| |**_Sub total_**_(Gross income for AR)_|_(Gross income for AR)_|_(Gross income for AR)_|**40,403**||**-**||**-**||**40,403**||**19,629**| |**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**_Sub total_ -**
**-**
**-**
**-**
**-**
**_Total receipts_ 40,403**
**-**
**-**
**40,403**
**19,629**
**A2 Asset and investment sales,**
**(see table).**
~~———_———~~|||||||||||| |**A3 Payments**|||||||||||| |Wages including NI Ers|||**11,842**||**-**||**-**||**11,842**||**10,264**| |Meeting expenses|||**6,652**||**-**||**-**||**6,652**||**6,455**| |Dietician's fees and expenses|||**6,475**||**-**||**-**||**6,475**||**1,539**| |Postage, printing, telephone and office|||**151**||**-**||**-**||**151**||**1,779**| |Accountancy|||**918**||**-**||**-**||**918**||**1,044**| |Sundryexpenses|||**252**||**-**||**-**||**252**||**746**| |Bank charges|||**308**||**-**||**-**||**308**||**66**| ||||||**-**||**-**||**-**||**-**| ||||**-**||**-**||**-**||**-**||**-**| |**_Sub total_ **|||**26,599**||**-**||**-**||**26,599**||**21,893**| |**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**_Sub total_ -**
**-**
**-**
**-**
**-**
**_Total payments_ 26,599**
**-**
**-**
**26,599**
**21,893**
**A4 Asset and investment**
**purchases, (see table)**
~~—————~~|||||||||||| |**_Net of receipts/(payments)_ 13,803**
**-**
**-**
**13,803**
**- 2,264**
**A5 Transfers between funds**
**-**
**-**
**-**
**-**
**-**
**A6 Cash funds last year end**
**34,161**
**-**
**-**
**34,161**
**36,425**
**_Cash funds this year end_ 47,965**
**-**
**-**
**47,965**
**34,161**
~~===_S=>==>~~|||||||||||| |**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|| |---|---|---|---|---| |**Categories**
**B1 Cash funds**
**B2 Other monetary assets**
**B3 Investment assets**
**B5 Liabilities**
**B4 Assets retained for the**
**charity’s own use**|**Details**
Cash at bank
Petty cash
**Details**
**Details**
**Details**
**Details**
PAYE due
Accrual for accountancy + payroll
**_Total cash funds_**
(agree balances with receipts and payments
account(s))|**to nearest £**
**47,886**
**79**
**-**
**47,965**
OK
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
Unrestricted
Unrestricted
**Unrestricted**
**funds**
**Unrestricted**
**funds**
**Fund to which**
**asset belongs**
**Fund to which**
**asset belongs**
**Fund to which**
**liability relates**|**to nearest £**
**-**
**-**
**-**
**-**
OK
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**158**
**900**
**-**
**-**
**-**
**Restricted**
**funds**
**Restricted**
**funds**
**Amount due**
**(optional)**|**to nearest £**
**Endowment**
**funds**| |||||| |||||| |||||**-**| |||||**-**| |||||OK| |||||**to nearest £**
**Endowment**
**funds**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**Current value**
**(optional)**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**Current value**
**(optional)**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**When due**
**(optional)**| ||PAYE due|Unrestricted|**158**|| ||Accrual for accountancy + payroll|Unrestricted|**900**|| ||||**-**|| ||||**-**|| ||||**-**|| Signed by one or two trustees on behalf of all the trustees Signature Date of Print Name approval