The Osteopetrosis Support Trust
O S T
- Country
- England & Wales
- Charity number
- 1013052
- Status
- Registered
- Registered
- July 21, 1992
- Legal form
- Trust
- Area of benefit
- Not Defined
Address
- Address
- Blue Haze
Notch Road
Winstone
CIRENCESTER
GL7 7JU
Contact
- Phone
- 01285821051
- [email protected]
- Website
Www.osteopetrosis-support-trust.org.uk
Activities
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
Objects: 1.The Relief Of Sickness Of Persons Suffering From Osteopetrosis. 2.The Relief Of Poverty Amongst Persons Suffering From Osteopetrosis And Their Families Who Are In Need.
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities, Other Defined Groups
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| April 5, 2025 | £75 | £382 |
| April 5, 2024 | £716 | £1,360 |
| April 5, 2023 | £34 | £729 |
| April 5, 2022 | £175 | £710 |
| April 5, 2021 | £163 | £360 |
Trustees
| Name | Appointed |
|---|---|
| Wendy Jayne Wilson (Chair) | Aug. 25, 2015 |
| ALISON Pope | |
| Alexander Wilson | Jan. 20, 2020 |
| Michelle Edser | Jan. 26, 2022 |
| Sarah Sullivan | Aug. 25, 2015 |
| Tracey Ann Cubbage |
Nearby
- Sir Thomas Glen-Coats Charitable Trust 0.0 mi
- Winstone Village Hall 0.8 mi
- The Mills Equus Trust 0.9 mi
- Duntisbourne Abbots Village Hall 1.2 mi
- The Magic Bean Company 1.4 mi