# THE OSTEOPETROSIS SUPPORT TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1013052
- **Other names:** O S T
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** July 21, 1992
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1013052


## Contact

- **Address:** Blue Haze, Notch Road, Winstone, CIRENCESTER
- **Postcode:** GL7 7JU
- **Phone:** 01285821051
- **Email:** info@osteopetrosis-support-trust.org.uk
- **Website:** Www.osteopetrosis-support-trust.org.uk



## Activities

**Objects:** 1.THE RELIEF OF SICKNESS OF PERSONS SUFFERING FROM OSTEOPETROSIS. 2.THE RELIEF OF POVERTY AMONGST PERSONS SUFFERING FROM OSTEOPETROSIS AND THEIR FAMILIES WHO ARE IN NEED.

**Activities:** OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, Other Defined Groups



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 5, 2025 | £75 | £382 | — | — |
| April 5, 2024 | £716 | £1360 | — | — |
| April 5, 2023 | £34 | £729 | — | — |
| April 5, 2022 | £175 | £710 | — | — |
| April 5, 2021 | £163 | £360 | — | — |



## Trustees

- **Wendy Jayne Wilson** (Chair) — appointed Aug. 25, 2015
- ALISON Pope
- Alexander Wilson — appointed Jan. 20, 2020
- Michelle Edser — appointed Jan. 26, 2022
- Sarah Sullivan — appointed Aug. 25, 2015
- TRACEY ANN CUBBAGE