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← Cardiac Risk in the Young

2025-05-31-accounts

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Report and financial statements for the year ended May 31st 2025

Contents

Executive Summary

Statement from CRY's Chairman Paul Quarterman

The year 2024–2025 has been one of strong progress and growing impact for Cardiac Risk in the Young. CRY delivered 352 cardiac screening days, screening 31,295 young people across the UK. This continued growth reflects both the increasing demand for our services and the extraordinary commitment of CRY’s staff, clinicians, volunteers, fundraisers and supporters.

This year also saw a change in the leadership of the Board of Trustees. I am honoured to take on the role

of Chair and would like to thank my predecessor, Hugh Mulcahey, for his dedication and the positive impact of his leadership on CRY’s work.

CRY achieved record income of £5.04 million, with free reserves now meeting the charity’s reserve policy, providing greater resilience as we plan for the future. Alongside this, CRY’s research continues to influence clinical practice internationally, while demand for our bereavement support services remains high, underscoring both the devastating impact of young sudden cardiac death and the importance of CRY’s work.

On behalf of the Board, I thank everyone who supports CRY. Together, we remain committed to saving young lives and supporting families when they need us most.

Executive Summary Dr Steven Cox, Chief Executive

The year ended 31 May 2025 has been one of meaningful progress for Cardiac Risk in the Young (CRY). Driven by the charity’s core mission to prevent young sudden cardiac <i death through awareness, screening, research and support we have delivered a record number of lifesaving services while strengthening CRY’s foundations for the future.

Screening Milestones

CRY delivered 352 screening days over the past year, reaching 31,295 young people across the UK. These heart checks continue to identify those with hidden cardiac conditions who might otherwise be unaware of their risk. Screening remains at the heart of our work and our hope: early diagnosis can lead to early intervention, saving lives and changing futures for young people and their families. We continue our efforts to expand our reach and streamline our processes through research and increasing medical expertise.

Financial Growth

This year we achieved a record £5.04 million in income, thanks to extraordinary support from individuals, community fundraisers, trusts, and partners. With 85% of our expenditure focused on charitable activities, CRY continues to invest where it matters most—on the frontline of screening, research, awareness and support. Our reserves are now at target levels, reflecting improved financial resilience and enabling us to plan confidently ahead.

Research excellence

CRY’s research continues to illuminate the causes, prevalence, and outcomes of inherited cardiac conditions. Under the expert leadership of Professors Sanjay Sharma, Michael Papadakis and Mary Sheppard, CRY-supported studies are shaping clinical

understanding and practice internationally. This work remains central to our goal of preventing young sudden cardiac death and supporting clinicians with evidence that makes a difference.

Supporting Families and Young People

We provided specialist bereavement support through our trained peer network and held national remembrance events that bring comfort and community to those touched by tragedy. Through the myheart network, we also continue to stand alongside young people living with diagnosed cardiac conditions, helping them find information, connection and optimism for the future.

Awareness and Advocacy

A significant number of CRY’s fundraisers focus on supporting screening which enables CRY to run a national screening programme throughout the UK. In order to expand and respond to the high demand for our screening services, we will require more funding for research fellows. This calls for an increase in core funding or donations specifically designated for research.

Our public campaigns such as Raising Awareness Week, Heart Month and the 12-A-Week Challenge, have helped bring the issue of young sudden cardiac death into wider view. We continue to advocate with policymakers for a national strategy to prevent these deaths, reflecting our belief that every young life matters and every family deserve the chance of prevention.

Looking Ahead

As we build on this year’s achievements, our priorities remain clear: to strengthen our Centres of Excellence, expand screening capacity, grow research fellowships, enhance support services and deepen awareness of young cardiac risk. Alongside these priorities, we are laying the foundations for innovative digital and AIenabled approaches that will help significantly extend the reach and sustainability of our clinical expertise and further strengthen screening and prevention. With the ongoing dedication of our trustees, volunteers, staff, donors and clinical partners, CRY will continue striving to save young lives and support families long into the future.

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

Legal Structure and Goverernance

The Trustees present their annual report and audited financial statements of the company for the year ended 31 MAY 2025.

Structure, Governance and Management

Governing Document

Cardiac Risk in the Young was incorporated on 3 May 1995 as a company limited by guarantee and is governed by its Memorandum and Articles of Association. The company was subsequently registered as a charity with the Charity Commission and is also known by its initials – CRY. CRY was registered with the Scottish Charity Regulator on June 1st 2023.

Reference and Administrative Details

Company Registration Number: 3052985

Registered Charity Numbers: 1050845 & SC052581 Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD Principal Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD Bankers: Lloyds Bank Plc, High Street, Epsom, Surrey, KT19 8AT

Appointment of Trustees

The charity or the Trustees may appoint a person who is willing to act to be a Trustee either to fill a casual vacancy or as an additional Trustee. As set out in the Articles of Association the board appoints the chair of the Trustees.

Trustee induction and training

New Trustees are briefed on their legal obligations under charity and company law, the content of the Memorandum and Articles of Association, the Trustee board and decision-making processes, the business plan and recent financial performance of the charity. Their induction involves the meeting of key employees and other Trustees. Trustees are encouraged to attend appropriate external training events.

Organisation

Auditors: BGM Helmores Ltd, Emperor’s Gate, 114a Cromwell Road, Kensington, London, SW7 4AG Trustees: Paul Quarterman (Chairman) Louise Brooker-Carey (served until her death on 27th February 2025) James Brown Monique Choudhuri (resigned on 25th November 2024) Dr Nicholas Jones Atul Mehta (appointed on 9th December 2024) Dr Jayesh Makan Jonathan Miller (appointed on 9th December 2024) Hugh Mulcahey (resigned on 9th December 2024) Paedar O’Donnell (resigned on 26th September 2024) Rachel Russell (appointed on 9th October 2025) Rebecca Trewinnard (resigned on 26th September 2024) Chief Executive: Dr Steven Cox

The board of Trustees administers the charity. The board meets four times a year. A Chief Executive is appointed by the Trustees to manage the day-to-day operations of the charity. To facilitate effective operations, the Chief Executive has delegated authority for operational matters including development, finance, employment, public relations and fundraising.

Audit Committee

The Audit Committee is comprised of Hugh Mulcahey (CRY Trustee) (resigned on 9th December 2024), Peadar O’Donnell (CRY Trustee) (resigned on 26th September 2024), Rebecca Trewinnard (CRY Trustee) (resigned on 26th September 2024), James Brown (CRY Trustee) (appointed 26th September 2024), Paul Quarterman (CRY Trustee), Jonathan Miller (appointed on 9th December 2024), Atul Mehta (appointed on 9th December 2024), and Dr Steven Cox (CRY Chief Executive). The Committee meets at least four times a year. The Committee helps to ensure that sound financial policies and internal controls are in place by providing a formal mechanism for reviewing matters of corporate governance and risk management together with external audits.

Research Committee

The Research Committee is comprised of Paul Quarterman (CRY Trustee), Hugh Mulcahey (CRY Trustee) (resigned on 9th December 2024), Dr Jayesh Makan and Dr Steven Cox (CRY Chief Executive). The Committee oversees CRY’s research strategy.

Related parties

Professors Sanjay Sharma and Michael Papadakis, CRY's Consultant Cardiologists, who are based at University of London and St George’s Hospital, oversee the CRY research programme plus the clinical aspects of the CRY cardiac screening programme. All services provided by Professor Sharma and Professor Papadakis are on a voluntary basis.

Professor Mary Sheppard, CRY’s Expert Cardiac Pathologist, who is based at University of London, oversees the CRY Centre for Cardiac Pathology. Professor Sheppard is part funded by the Pathology research grant to the CRY Centre for Cardiac Pathology.

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About CRY

At Cardiac Risk in the Young (CRY), our mission is to prevent sudden cardiac deaths in young people through free heart screenings, life-saving research and raising awareness – whilst also offering specialist bereavement support to affected families. Central to this mission is addressing Sudden Arrhythmic Death Syndrome (SADS) — a silent condition in which a seemingly healthy young person dies suddenly from an undiagnosed heart rhythm abnormality, often linked to a congenital issue. Our commitment to scientific research and a realistic understanding of the limitations of current medical practice has enabled us to show that Young Sudden Cardiac Death (YSCD) is one of the UK’s leading causes of death in young people, tragically claiming at least 12 young lives every week. Every screening test performed, every family supported, and every campaign launched brings us closer to a future where no young person dies needlessly from an undiagnosed heart condition. As we reflect on the past year’s achievements and look ahead, our resolve remains clear: to protect young hearts and reduce the devastating impact of YSCD.

is fundamental in bringing specialist services to local communities. This makes screening accessible to people across the United Kingdom, with CRY offering screening from the Orkney Islands to Cornwall, and from the East Coast of England to the West Coast of Wales, as well as Northern Ireland.

In the past year, we held:

• 30 screening days in Scotland, including 6 in the Scottish Isles (Orkney 2, Shetland 2, Isle of Lewis 2)

Operating a National Screening Programme

Young Sudden Cardiac Death is unimaginably devastating, to young people, their families, and communities, but it can be preventable. Systematic screening programmes are essential to establish the prevalence of cardiac conditions in young people. The goal of a screening programme is to detect a heart condition, or its risk factors early, enabling preventative or therapeutic interventions to be implemented before the disease progresses. In the case of cardiac conditions, the aim is to put in place treatments and lifestyle changes that will minimise the risk of a sudden cardiac death. In some cases, the condition can be cured with the risk of sudden cardiac death removed. CRY operates screening programmes for the general public (between the ages of 14 and 35), sports clubs and teams across the UK

.

Cardiac Screening

The CRY screening programme aims to detect underlying heart conditions in young people aged 14 to 35, helping to prevent sudden cardiac death. It involves a simple, non-invasive process, including a health questionnaire and electrocardiogram (ECG), which continues to be the most cost-effective way of testing large numbers of young people. For those with abnormal or inconclusive ECG results, echocardiogram tests are conducted on the same day. These tests can identify conditions that may increase the risk of cardiac issues during exercise or everyday life.

The screenings are typically conducted across the country at community events, schools, universities, sports clubs and CRY’s national screening centre, providing vital early detection and peace of mind to young people and their families. The costs of screening are covered by CRY, including using funds raised by families of people who have had someone die of a sudden cadiac death. Following the tragic loss of a young person, families often raise funds specifically for screening, ensuring that the heartbreak they experienced can help potentially save the life of another young person.

World-leading Research

CRY funds vital medical research through Research Fellowship grants covering a wide range of areas from fast-track screening to post-mortem pathology. These grants support the development of specialist knowledge of sports cardiology. The field-gathered data in CRY's screening programme is analysed and reported in peer reviewed journals.

This research is crucial for providing essential information on the understanding of cardiac conditions, with findings being used to guide better preventative care for young people at risk.

CRY Research Fellows

CRY Research Fellows have considerable expertise in the athlete’s heart, cardiomyopathies and ion channel diseases, significantly expanding the pool of specialist doctors in this complicated field of medicine. Fellows play an instrumental role in the CRY Inherited Cardiovascular Conditions Clinics within the NHS and with the field work conducted in CRY’s screening programme. Each Fellow also pursues a specific area of research.CRY has funded 3 full-time Research Fellows during all or part of the year:

• Dr Nirmitha Jayaratne (pictured right below) started her grant in November 2022 under the supervision of Professor Sanjay Sharma and Dr Sabiha Gati.

Reach and Impact

Tens of thousands of young people are screened every year all around the UK thanks to the dedication of CRY’s supporters who enable us to run a National Screening Programme saving as many young lives as possible.

This financial year, CRY had 352 screening days and screened 31,295 young people. CRY’s mobile screening

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Impact of CRY’s Research

CRY’s screening programme continues to surpass all expectations and has fed into crucial research for the benefit of all involved in this field. Among our pioneering achievements:

CRY was the first to identify the upper limits of wall thickness and cavity size in British athletes.

First organisation in the world to characterise cardiac dimensions in adolescent athletes – knowing how to differentiate pathology from physiology is vital for diagnosis.

First organisation to characterise ECG changes in athletes in a document that is now the blueprint for the Sports Cardiology Section of the European Society of Cardiology.

In addition to advancing diagnosis, CRY’s research has also been pivotal in identifying the prevalence of conditions such as hypertrophic cardiomyopathy (HCM) in athletes. This includes recently identifying conditions, such as Long QT, as more common than HCM.

CRY’s research is published in top-tier, peer-reviewed journals, and our screening guidelines are now recognised both nationally and internationally. With current international cardiac screening guidelines being based on data from a Caucasian population in the Veneto region of Italy, CRY’s research is crucial in emphasizing the importance of establishing "normal" cardiac parameters for diverse ethnic groups. Our findings are now guiding international screening recommendations when applied to these groups. Being part of the CRY screening programme is more than just identifying individuals at risk. It means participating in a national research programme that is transforming how we approach cardiac health in young people.

Conferences

CRY also seeks to share the outcomes of its research more widely, including through scientific conferences, including hosting our own conference in September 2024.

British Cardiovascular Society Conference – 3 - 5 June 2024

The largest cardiology conference in the UK highlighted the impact of CRY’s research. Former CRY Research Fellow Dr Raghav Bhatia - who has presented CRY Research in the “Best of the Best” award category three years running - took runner-up for his incredible research work. This recognition reflects the quality of research being produced by the CRY research team, reinforcing our position at the forefront of research into young sudden cardiac death.

European Association of Preventative Cardiology (EAPC) / American College of Cardiology (ACC) Sports Cardiology Course, hosted by Cardiac Risk in the Young (CRY) & Cleveland Clinic London - 3

September 2024

Almost 300 delegates attended an intense, informative and interactive event, held in Central London, sharing the very latest developments in sports cardiology as part of the EAPC Sports Cardiology Course, on its 10th anniversary. For the first time, CRY and EAPC, an association of the ESC, joined forces with the American College of Cardiology Foundation to bring a truly international flavour to the course. In a strategic move, CRY’s annual International Medical Conference—typically held in October—was rescheduled to follow directly after the 2024 European Society of Cardiology (ESC) Congress (also held in London). This allowed delegates to extend their stay and build on

momentum from ESC, creating one of CRY’s most successful in-person research events to date. The format delivered a ‘packed programme’ of presentations on key aspects of sports Cardiology practice, discussion and interactive sessions. Details of the full agenda and speakers can be found here

Chief Executive of CRY, Dr Steven Cox; explains:

“The fact that ‘every cardiologist was in town’ across the weekend of 30 August to 2 September, led us to rearrange and restructure our annual research conference – it just made perfect sense to reduce travel times and costs and ‘keep the conversation going’ after an amazing ESC meeting in London. As such, we welcomed one of our biggest ‘in person’ events ever (with many other delegates joining us online) and it was just incredible to have such a global ‘cardiology community’ making up our audience, from so many different countries across Europe and the rest of the world, plus a large contingent from the US, thanks to our new collaboration with the American College of Cardiology Foundation.

“The feedback from delegates and speakers alike has been unanimously positive and has reassured all of us involved in the organisation of this event that we ‘got intright’ in terms of the timings, themes and overall tone.

diagnosed with a potentially life-threatening inherited or congenital cardiac condition.

British Journal of Cardiology article: 30 years of supporting families and preventing young sudden cardiac deaths – 1 April 2025

“Sports cardiology – alongside our mission of achieving a greater understanding of the causes and risk factors of young sudden cardiac death in the general population – is at the core of CRY’s research portfolio. It’s vital that those involved in furthering developments in the ways athletes are screened, monitored and [when necessary] treated can come together to share knowledge and international guidelines. As a UK-based research organisation, CRY was delighted to organise and host this pioneering event, and we look forward to working with the EAPC team again in the future.”

To mark CRY’s 30th anniversary, the British Journal of Cardiology published a feature highlighting CRY’s impact over the past three decades. The piece explores CRY’s role in transforming cardiac screening, research, and bereavement support, and introduces a new series on sudden cardiac death, featuring contributions from UK and international experts.

Professor Sanjay Sharma comments on CRY’s involvement and support for the British Society of Echocardiography’s (BSE) new guideline on echocardiographic assessment of young athletes – 4 April 2025

The agenda comprised 3 key ‘umbrella’ sessions, with 14

expert-led presentations delivered during the day.

CRY’s myheart network and Research Fellows attend

the AICC conference – 12 November 2024

A new echocardiography guideline, co-authored by CRY physiologists, Research Fellows, and senior cardiologists, outlines best practices for identifying structural heart conditions in athletes. The guideline reflects decades of CRY-led research into the ‘athlete’s heart’ and marks a major step forward in improving and standardising cardiac assessment in sport, helping to identify risks early and

CRY attended the Association for Inherited Cardiac Conditions (AICC) Conference to promote our myheart network, which supports young people living with inherited or congenital cardiac conditions. CRY’s myheart coordinator, Kanika Bhateja attended the conference share insights into how the initiative provides personalised save young lives. support, and information to individuals who have been

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Support

CRY is committed to supporting individuals and families affected by young sudden cardiac death (YSCD) and those living with a diagnosed cardiac condition. Our support services encompass both medical and emotional care, ensuring families are not alone following a tragedy and young people receive guidance as they navigate life with a heart condition.

Following the sudden and unexpected death of a young person, families often face overwhelming grief, confusion, and uncertainty. CRY provides specialist cardiac information written by experts in the field, specifically for families or a non-medical community. Following a young sudden cardiac death, it is vital that all first-degree relatives are referred to Inherited Cardiac Conditions specialists for clinical testing. CRY can help with advising the family about seeing a cardiologist who specialises in these conditions and offers direct medical support via the specialist Centre for Cardiac Pathology and Centre for Inherited Cardiovascular Conditions at St George’s Hospital, London.

Emotional Support

Many grieving families and friends contact CRY asking if there are others they could talk to who have suffered similar tragedies. To support those who have lost a loved one to a young sudden cardiac death, CRY has established an all-encompassing bereavement support system, including:

Telephone bereavement support

A select group of 29 trained Bereavement Supporters - volunteers who have themselves experienced a similar tragedy. Our Bereavement Supporters have all completed CRY’s two-year Counselling Skills and Theory course so that they can support others through their loss in a safe and empathetic way.

Between 1 June 2024 and 31 May 2025, CRY Bereavement Supporters accepted 52 new referrals, representing a 38% increase compared to the previous year. Support was provided to bereaved mums, dads, siblings, partners, and grandparents.

“No matter how much professional help is available, sometimes the most meaningful support comes from someone who has truly been there.”

In-person community events

CRY offers opportunities for bereaved families to meet and reflect together at events such as The Heart of London Bridges Walk and The Heart of Durham Walk. These annual gatherings foster a sense of connection and remembrance.

Private networks through Facebook groups for bereaved:

Bereavement resources

CRY provides free information packs for newly bereaved families - available in digital and printed formats - and has published a series of grief booklets that speak to the unique experiences of different family members and friends:

• Sibling Grief

Supporting those affected: myheart Network

CRY’s myheart network is a support community specifically for young people who have been diagnosed with cardiac condition. The network was developed as a support system that increases effective coping and decreases social isolation for young people who have been diagnosed with a cardiac condition. It was created based on feedback from young people who found that the existing support groups were not effective in helping them deal with issues such as having an ICD fitted or undergoing ablation surgery.

We hold two national myheart meetings annually, offering members the opportunity to participate in 'Question and Answer' sessions with a specialist cardiologist, and share experiences with other young people who have been diagnosed with a cardiac condition. This year’s meetings were:

• October 2024 (Virtual via Zoom): 6 attendees joined a session led by CRY cardiologist Dr Sabiha Gati.

The myheart website contains medical information, personal stories from young people who are living with a cardiac condition, and video Q&As with myheart’s Consultant Cardiologist, Professor Michael Papadakis. The private myheart Facebook group provides a secure space exclusively for young people living with cardiac conditions.

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Raising Awareness of Cardiac Risk in the Young

CRY remains committed to raising awareness of cardiac risk in young people, ensuring that the public, healthcare professionals, and the sporting community understand the symptoms, implications, and importance of early detection. We aim to make the public aware of courses of action that can help to minimise their risk, including the choice to be screened at one of CRY's screening clinics. The medical community will benefit from access to the specialist services we offer to facilitate diagnosing these conditions, as well as how to best manage these patients. And elite athletes can access specialist cardiac services available at the CRY Centre for Sports Cardiology, as well as the importance of screening athletic populations.

For such a large-scale issue as young sudden cardiac deaths, it is essential that policymakers are well informed of the latest research as well as the implications these findings have on public policy. For this reason CRY and our supporters, work hard to raise awareness in parliament as well. Cardiac Risk in the Young (CRY), our mission is

Faculty of Sport and Exercise Medicine UK collaborates with CRY - 11 June 2024

CRY partnered with the Faculty of Sport and Exercise Medicine UK (FSEM) to highlight the need for cardiac screening for all young people, as well as the CRY screening programme. We believe all young people should have the opportunity to have their heart tested and were pleased to produce a policy recommendation which highlights the importance of family history and the red flag symptoms to be aware of, as well as where any young people can go to get tested (www.testmyheart. org.uk). The document can be accessed on the British Association of Sports and Exercise Medicine (BASEM) website. We would encourage organisations to share it with their members to highlight the key issues relating to young sudden cardiac death and how to help promote

screening.

Two years of the Heart of West London Partnership – 13 August 2024

We were delighted to celebrate the Heart of West London (HoWL) partnership at an evening reception held at the Gtech Community Stadium, the home of Brentford FC who originally pioneered this inspiring partnership. The event marked two years since the launch of the initiative, looking back on the successes so far as well as exploring future ambitions. It also saw the welcome introduction of a new corporate partner; MatchWornShirt. Representatives

of CRY joined an expert speaker panel alongside other charity partners – and had the opportunity to say a few words about CRY’s work and the importance of cardiac screening.

CRY Representative and supporter Suzanne Rowan, spoke movingly about what it means to have so much continued support from Brentford FC in memory of her husband Robert, who was working at the club as Technical Director at the time of his sudden death in 2018. Consultant Cardiologist (and former CRY Research Fellow) Dr Sabiha Gati delivered a fascinating presentation about the research project currently being funded through the partnership.

The event was then rounded off with a well-deserved “Special Recognition” for Nity Raj (General Counsel at Brentford FC and Trustee of Brentford FC Community Sports Trust) to officially acknowledge and applaud everything he has done to bring together all those involved, as well as his ongoing efforts to champion the HoWL - an initiative which CRY is very proud to be a part of!

Raising Awareness Week – 23 November to 1 December 2024

Now in its fourth year, the 12 A Week Challenge saw supporters across the UK walk, run, cycle, swim, hike, and ride 12 miles to represent the 12 young people who die each week from young sudden cardiac death. The CRY Great Cake Bake, now in its 14th year, was another highlight of the week with 36 events taking place. Supporters hosted bake sales at schools, universities,

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workplaces, and in their communities, helping raise awareness and funds for CRY’s vital work. It was inspiring to also see many supporters actively promoting on social media, sharing, liking and boosting our posts to raise awareness of CRY’s important work.

ISS2024 Congress on sudden cardiac death in sports and recreation – 14 December 2024

Professors Sanjay Sharma, Marco Guazzi (Italy) and Dr Steven Cox were invited as international speakers at the “Meet the Experts” session during the Serbian Association of Sports Cardiology congress in Belgrade. The presentation highlighted CRY’s work in preventing young sudden cardiac death, the evolution of its screening and support programmes since 1995, and the ongoing challenges in the field.

Celebrating Sunrise Radio’s support for Cardiac Risk

in the Young – 10 January 2025

CRY marked five years of partnership with Sunrise Radio, a vital media ally in reaching British Asian communities. The station’s commitment to promoting CRY’s mission has helped raise awareness across diverse ethnic

groups. Young sudden cardiac death is indiscriminate – it takes young people, at the prime of their lives, from every community and ethnic background across the UK. It is our duty to ensure we continue to have a strong voice in the British Asian community. The support of the entire Sunrise team, coupled with Tony Lit’s generosity and vision, allows us to do this and we are all extremely grateful for this support over the past 5 years.

Premiership League match Brentford FC v Manchester

City – 14 January 2025

Brentford FC took on Manchester City at home in a match dedicated to the work of the Heart of West London (HoWL) initiative. CRY CEO, Dr Steve Cox, took part in a pitch-side interview before the match, talking about CRY’s work and the HoWL initiative, alongside CRY Research Fellow Dr Sabiha Gati. We feel very privileged that Brentford chose this game against Manchester City, at the start of our 30th anniversary year, to highlight and raise awareness that hidden heart conditions continue to claim the lives of 12 young people every week in the UK. CRY has had a long relationship with Brentford FC, going back to when CRY patron Andy Scott was at the club and a cardiac screening session was held at their ground in 2009 in memory of

young fan, Tom Clabburn. The ongoing partnership took a new level of momentum in 2018, following the sudden death of Robert Rowan, the club’s Technical Director, who tragically died in his sleep aged just 28.

Meeting with the Parliamentary Under Secretary of State at the Department of Health and Social Care –

27 January 2025

CRY Supporter Gill Ayling and her husband Steve met with the Parliamentary Under-Secretary of State at the Department of Health and Social Care, Andrew Gwynne in London on January 27, to discuss their campaigning for heart screenings to be offered to all young people in the UK. CRY CEO Dr Steven Cox, along with Professor Mary Sheppard and the Director of Screening for Public Health England, Professor Ann Mackie, were also in attendance. Prior to this meeting, Dr Steven Cox was interviewed alongside Gill by ITV Calendar News.

Heart Month – throughout February 2025

This year we were pleased to announce a new campaign as part of Heart Month: Charity Heroes. The campaign aimed to highlight and thank exceptional individuals

connected to CRY. It was fantastic to see so many of our amazing supporters highlighted for their efforts, from fundraising events, to screening days. CRY has always been driven forward by our amazing supporters. Their dedication and inspiring fundraising have remained the foundation of CRY’s ability to achieve all that it has over the past 30 years. In addition CRY partnered with Total Active Hub to encourage supporters to move 100km during February, boosting activity levels whilst supporting CRY.

Women in Cardiology – 11 February to 4 March 2025

Starting on International Women in Science Day (February 11) until International Women’s Day (March 8) we highlighted the incredible women working to save young lives through CRY’s cardiac screening and research programme. Throughout the campaign, we shared their stories about what inspired them to pursue cardiology and what being part of CRY meant to them across social media and on the CRY website.

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Social Media

CRY websites

CRY continues to strategically strengthen its digital presence across key platforms including Facebook, X (formerly Twitter), Instagram, TikTok, LinkedIn, Threads, and YouTube. By expanding and integrating these channels into a unified social media strategy, we aim to increase visibility, deepen engagement, and reach new audiences. To ensure our messaging remains impactful and responsive to trends we utilise SproutSocial - a comprehensive social media management tool that enables us to monitor performance, analyse audience behaviour, and refine our communications.

CRY’s in-house content team create eye-catching graphics, informative infographics, and engaging short-form videos to educate, inspire, and drive impact across our media. We continuously evaluate platform performance and allocate resources to the most effective channels for each audience segment, ensuring our messaging is targeted and efficient.

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• Total number of visitors to testmyheart.org.uk website was 225,897.

Challenges and advocacy

As our online presence continues to grow, so do the challenges of navigating an increasingly polarised social media environment. One significant concern is the spread of misinformation — particularly from the antivax movement — which has contributed to confusion around sudden cardiac deaths. CRY remains committed to providing accurate, evidence-based information, advocating for cardiac screenings, and raising awareness of young sudden cardiac death through all available digital channels.

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Core Fundraising Events

PLEASE NOTE: The figures detailed below are based on the total amount raised throughout the duration of each event. Due to the process of collecting sponsorship and donations, these final totals raised can often span more than one financial year and so do not reflect the figures that are presented in the audited accounts. awareness – whilst also offering specialist bereavement support to affected

12-A-Week Challenge 2024

12-A-Week Challenge took place during Raising Awareness Week, running from the 23rd of November to the 1st of December 2024. A total of £19,776 has been raised to date by 111 participants who clocked up miles through various activities, including walking, running, horse riding, swimming, hiking, cycling, and jogging. See the full write-up here - www.c-r-y.org.uk/12-a-weekchallenge-write-up-2024/

Trust donations

In this financial year CRY received 83 donations from Charitable Trusts and Foundations totalling £308,955. In total £84,460 went towards Ringfenced Memorial Funds, £109,000 was ringfenced for certain projects / items and £115,495 went to core funding. We are grateful to every Trust and Foundation for their continued confidence in our work and their commitment to our mission.

Fundraising Regulator requirements

CRY Great Cake Bake 2024

CRY Heart of London Bridges Walk 2024

Now in its 18th year, the Bridges Walk remains one of CRY’s most meaningful and widely attended events. We have continued

to offer a virtual option for the walk known as ‘My Walk For CRY’, so that our supporters who are unable to join us in London are still able to feel part of the day. 1,134 people registered to participate, with 1,092 walkers at Southwark Park, raising a total of £43,991.03. A moving

tribute wall displayed 208 photos and messages both in the park and online, turning CRY’s homepage into a space of remembrance for 24 hours. The day featured speeches by Professor Sanjay Sharma and Dr Steven Cox. A minute silence was observed before the walkers set off at 11am. See the full write-up here – www.c-r-y.org. uk/hlbw-write-up-2024/

AJ Bell Great North Run 2024

The 2024 event was another big success for CRY. Despite it being a very rainy day, 67 CRY runners took part in the event, raising a massive £46,993. See the full write-up here - www.c-r-y.org.uk/great-northrun-write-up-2024/

CRY Heart of Durham Walk 2024

The 15th CRY Heart of Durham Walk took place on Sunday 6th October 2024, starting at Durham Amateur Rowing Club. 256 supporters registered to take part in the event: 254 joining us in Durham and 2 supporters joining virtually and €E doing the walk in Australia, raising a total of £9,481.15. The Durham Walk homepage turned into a digital message wall on the day, displaying photos and messages that had been submitted. See the full write-up here – www.c-r-y.org.uk/durham-walk-writeup-2024/

Royal Parks Half Marathon 2024

The Royal Parks Half Marathon is London’s original half marathon. Over 16,000 runners took part in the 2023 event on Sunday 8th October. 8 CRY Runners took part in the event raising £6,120.00 to date.

On Friday 29th November, CRY’s 13th annual Great Cake Bake was held as part of Raising Awareness Week. 36 amazing supporters got baking and raised an incredible £8,938.36! It has been so wonderful to see supporters’ creations as they raised funds and awareness by baking for their offices, schools, neighbours, friends and family. Special thanks go to the Avenue Cookery School, the Cookery School at Little Portland Street, Chloe’s Cakes and Oppo for providing prizes for our winners of the Great Cake Bake competitions. For the full CRY Great Cake Bake 2024 write up, please follow this link: www.c-r-y.org. uk/cake-bake-write-up-2024/

London Landmarks Half Marathon 2025

34 CRY runners were cheered on by a spirited CRY squad, complete with cowbells, whistles, and mascots. The creative costumes were a particular highlight— everything from iconic landmarks to a gorilla, an elephant, and of course, y our very own Echo taking part in the Mascot Dash! A total of £26,522 to date. See the full Y J write-up here - www.c-r-y.org. uk/london-landmarks-writeup-2025/

TCS London Marathon 2025

90 CRY runners braved one of the hottest and most record-breaking London Marathons ever. The team has raised an incredible total of £246,294. See the full write-up here - www.c-r-y. org.uk/london-marathonwrite-up-2025/

As members of the Fundraising Regulator, CRY is committed to having a complaints procedure in place. During the period of this annual report, we received no fundraising complaints.

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CRY on Television and Radio

Over the past year, CRY has maintained a strong media presence across national and regional platforms. We continued, and are grateful for, our partnership with Sunrise Radio, leveraging this platform to reach the British Asian community, a key demographic for their awareness campaigns.

CRY’s media presence has also extended to numerous national and regional television and radio pieces, where CRY representatives provided insights into their research and screening programs, stressing the urgency of early detection of heart conditions in young people. This outreach plays a vital role in educating and maintaining public awareness about the risks and the life-saving impact of CRY's screening efforts, driving forward our mission to save young lives, inform public health policy, and encourage more young people to get their hearts tested.

Television and radio interviews throughout the year included:

July 2024

ITV News crew attend screening organised by CRY

attended the event following the sudden death of their 17-year-old cousin, Mary. Gill and her husband Steve have been fundraising for CRY screening since the tragic death of their son, Nathan, in 2019. The vital awareness raised by CRY supporters like Gill, means that more young people in the UK will find out about CRY’s aims and have the choice to have their heart screened.

Supporter Gill Ayling – July 17

A TV crew from ITV’s flagship news programme in the death of their son, Nathan, in 2019. The vital awareness Northeast, ‘Calendar’ attended a screening organised raised by CRY supporters like Gill, means that more by CRY supporter Gill Ayling. The piece was broadcast young people in the UK will find out about CRY’s aims on July 17th with a follow up and have the choice to have their heart screened. article also featured across local media, BBC Midlands & ITV Central attend CRY screening - : highlighting the screening event the first screening in memory of Anthony Lane in July. - More than 100 young people were screened at of three The story was covered by BBC Midlands, ITV Central and sisters, multiple local news outlets.

BBC Midlands & ITV Central attend CRY screening

who

September 2024

ITN News feature on the need for greater training in ECG interpretation focusing on the story of Clarissa Nicholls – September 22

CRY supporter Hilary Nicholls and Cardiologist Professor Michael Papadakis appeared in an ITN News feature highlighting the need for specialist ECG interpretation and the potential of AI to improve diagnosis. The segment aired across seven regional bulletins and was featured on

BBC Radio Hereford and Worcester & BBC Online - September 27

CRY supporter Andrea Joyce spoke on BBC Radio Hereford & Worcester about cardiac screening and her fundraising in memory of her son Kieran. Since 2019, the Kieran Joyce Memorial Fund has raised over £100,000, funding screenings for 700+ young people -15 of whom required further tests or treatment. One was Ella Bowen, sister of footballer Jarrod Bowen, who underwent surgery following her screening. The Bowen family also donated a signed match shirt, raising £5,500 to fund another screening day.

October 2024

BBC Radio Cambridge interview for cardiac screening

weekend - October 17

CRY supporter Hilary Nicholls, Jess Reeve, and Izzy Winter were interviewed on BBC Radio Cambridge during a two-day screening event at the University of Cambridge, held in memory of Clarissa Nicholls, who died from Arrhythmogenic Cardiomyopathy in 2023. Their campaign, “Clarissa’s Campaign for Cambridge Hearts,”

aims to fund a permanent university screening service to help prevent future tragedies.

November 2024

Professor Sanjay Sharma featured on Sunrise Radio - November 28

CRY Cardiologist Professor Sanjay Sharma appeared on Sunrise Radio to launch coverage of Raising Awareness Week. He discussed CRY’s milestone of screening over 300,000 young people and highlighted the importance of early cardiac screening. Thanks to Sunrise Radio for supporting CRY’s awareness efforts throughout the week.

January 2025

ITV News Granada featured a piece on the recent campaigning activity of two CRY Supporters – January 3

CRY supporters Donna Parker and Lesley Mease were featured on ITV Granada, sharing their fundraising and awareness efforts in memory of their children, Vicky Parker and Wilson Shepherd, who died within weeks of

ITN’s website.

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each other. Their story, which highlighted the importance of heart screening, was also covered by several local news outlets, helping raise awareness of CRY’s work.

ITN broadcast reporting on the Symposium at the Italian Embassy - January 29

CRY supporter Hilary Nicholls and Lord Stuart Polak hosted a symposium at the Italian Embassy on UK and Italian cardiac screening programmes. UK speakers included Professor Sanjay Sharma, Dr Gherardo Finocchiaro, and Dr Nabeel Sheikh. The event was covered by ITV News, with a report by journalist Lauren Hall broadcast across multiple regional programmes. A follow-up ITV News piece also featured footage from a CRY screening in Cambridge, funded by Clarissa’s Campaign 4 Cambridge Hearts.

February 2025

BBC Breakfast featured interviews with CRY Supporters, Research Fellows and Doctors after CRY’s screening waiting list hit 100,000 people – February 4

New figures released in early 2025 revealed that demand for CRY’s UK-wide cardiac screening programme has surpassed capacity, with over 105,000 young people on the waiting list. BBC Breakfast aired a feature highlighting this issue, including interviews with CRY supporters Paul & Ellen Clabburn, Debbie Dixon, and Hilary Nicholls, as well as expert insight from Professor Aneil Malhotra. A follow-up report was broadcast later that day.

Times Radio – February 7

CRY supporters Hilary Nicholls and Ailsa Gray, whose fiancé Mike Harper died during the Bristol Half Marathon, were interviewed live on Times Radio by Cathy Newman, following coverage on BBC Breakfast. The story was also picked up by BBC Hereford & Worcester, including a live interview with CRY supporter Andrea Joyce. These interviews helped raise awareness of CRY’s screening programme and its wider mission to prevent young

sudden cardiac death.

BBC Radio Oxford – February 12

Former CRY research fellow, Dr Tracey Keteepe-Arachi was interviewed by BBC Radio Oxford, discussing the importance of cardiac screening in young people.

BBC Radio 5 and Sports Agent Podcast – February 13

CRY supporter Joe McEwan was interviewed live on BBC Radio Five Live as he completed a 130-day, 3,000km trek across New Zealand, raising awareness after surviving a cardiac arrest and being diagnosed with Brugada Syndrome. Joe also appeared on Gabby Logan’s podcast The Sports Agent, discussing his recovery, CRY’s screening programme, and his fundraising journey.

BBC Radio West Midlands – February 28

CRY supporter Kulbir Nagra was interviewed on BBC Radio West Midlands ahead of his family’s heart screening weekend, raising awareness of young sudden cardiac death (YSCD) and CRY’s screening programme. The Nagra family has funded screenings for over 1,000 young people in memory of Pardeep Nagra. A follow-up interview later in the show further highlighted their impact and commitment to CRY’s mission.

March 2025

The Sun: CRY Supporter Nicky Parris wins The Sun ‘Mum Idol’ Competition – March 31

CRY Supporter, Nicky Parris, has raised over £50,000 and organised a CRY screening day in memory of her son, Daniel Parris, who tragically died in 2021. Nicky was nominated for, and won, The Sun’s ‘Mum Idol’ competition for her fundraising work for CRY and the Daniel Parris Foundation. The Sun featured an article with Nicky discussing her fundraising efforts in order to hold a CRY screening day in Daniel’s memory, and her aim to have defibrillators placed in all Police vehicles.

April 2025

BBC Radio Cumbria - April 29

CRY Consultant Cardiologist Professor Aneil Malhotra was invited to talk about the importance of cardiac screening and CRY’s UK-wide screening programme, in the context of two local mums - Lesley Mease and Donna Parker, who will be funding their first screening later this summer in memory of their children.

BBC Radio Gloucester - April 30

Dr Tracey Keteepe-Arachi was invited to talk about the importance of cardiac screening and CRY’s UK-wide screening programme, in the context of a screening taking place that day at the University of Gloucestershire and jointly funded by CRY supporters, Geoff and Linda Goodwin in memory of their son, Ashley.

May 2025

ITV Calendar and BBC Look North - May 9

Dr Steven Cox took part in two local news interviews as part of the media coverage around the fundraising and awareness work of bereaved mum, Monica Chatterton who is pledging to bring CRY screening to NE Lincolnshire in memory of her daughter Josephine who died 26 years ago.

ITV Calendar – May 21

A heart screening event organised by CRY supporters Gill and Stephen Ayling received widespread media attention — including a powerful feature on ITV Calendar’s early evening news (Wednesday 21st May). The segment included an interview with CRY cardiologist Dr Veronika Azidou, highlighting the importance of early detection.

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CRY in Print Media

There were 740 articles on CRY published in print media, including 32 articles in national newspapers.

June 2024 - 46 Articles

Mirror. “Keen footballer, 23, collapsed and died at home after condition went undetected” – CRY was mentioned in an article about Debbie Dixon, who launched the Aaron Dixon Memorial Fund in conjunction with the charity following the sudden death of her son Aaron due to an undetected heart condition. Her efforts have helped fund cardiac screenings for thousands of young people.

Daily Mail . “My agony at the day my daughter, 20, went for a hike on holiday in the South of France – and the terrible twist of fate that meant she never came back” – CRY was mentioned in an article about Hilary Nicholls, whose daughter Clarissa died from a sudden cardiac arrest due to an undiagnosed heart condition. Hilary has since campaigned with CRY to raise awareness and extend cardiac screening for young people, including launching Clarissa’s Campaign for Cambridge Hearts.

July - 34 Articles

Mirror . “‘My best friend died suddenly and now I'm urging people to get this free test’” – CRY was mentioned in a piece featuring Katie Mary, who is raising awareness about cardiac screening following the sudden death of her best friend from an undiagnosed heart condition. She promotes CRY’s free heart screenings for young people and is fundraising through the Heart of London Bridges Walk in memory of her friend.

August - 39 Articles

September - 67 Articles

October - 51 Articles

November - 41 Articles

Mirror. “Fit and healthy young dad, 33, dies of rare syndrome after waking up in a 'panic’” – CRY was mentioned in an article about Greg Carr, who died suddenly from Sudden Adult Death Syndrome. His family is now working with CRY to raise awareness of sudden cardiac death and has set up a memorial fund with the charity, alongside local fundraising events in his memory.

December - 47 Articles

The Times . “Nick Isiekwe: Fit, fierce and back from openheart surgery” – CRY was mentioned in an interview with Saracens and England rugby player Nick Isiekwe, who shared how a heart condition discovered through CRY-led screening led to life-saving surgery. He now advocates for awareness around cardiac health in young athletes and continues to support CRY’s mission.

January 2025 - 61 Articles

Daily Mail & The Scottish Sun. “Schoolboy, 15, died playing football just weeks after he complained of shortness of breath, inquest hears” – CRY was mentioned in coverage of Jake Lawler’s death from a rare genetic heart condition while playing football.

February - 57 Articles

Daily Express. “Countdown star Rachel Riley issues urgent health warning after heartbreaking news” – CRY was mentioned in an interview with Rachel Riley, who spoke about the sudden death of her friend from an undiagnosed heart condition. She highlighted CRY’s free cardiac screening programme for young people and urged others to take control of their health and get tested.

March - 83 Articles

The Sun on Sunday & The Scottish Sun . “Daniel would be so proud… I want his death to help others says our brave Mum Idol winner who raised £50k in son’s memory” – CRY was mentioned in a feature about Nicky Parris, who lost her 23-year-old son Daniel to sudden cardiac death. Since his death, she has raised nearly £50,000 for CRY, funding screenings, defibrillators for police cars, and awareness campaigns. Her efforts earned her the title of Mum Idol 2025.

April - 120 Articles

May - 95 Articles

The Sun. “Boy, 15, collapsed and died during football game at school just days after doctors wrongly diagnosed him with asthma” – CRY was mentioned in another article about Jake Lawler, who died from a genetic heart condition misdiagnosed as asthma.

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Our Centres of Excellence

CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Healthcare NHS Trust

Cardiology at City St George’s, University of London, the Centre ensures that families affected by a sudden cardiac death are seen quickly after referral.

In 1995, St George's became the first hospital in the UK to establish a family screening clinic for young sudden cardiac death, thanks to CRY's donation of an echocardiogram machine. Offering services for affected families, competitive athletes and the general population, The CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George's, embodies three essential features of CRY’s mission to eliminate young (aged 35 and under) sudden cardiac death.

The Centre operates as a ‘one-stop shop,’ conducting all comprehensive screening tests in one day for young people and offering the opportunity to family members to be seen together even if travelling from different parts of the country. This unique service is made possible by CRY’s funding of the specialist doctors and support staff.

Sports Cardiology at St George’s Healthcare NHS Trust

CRY Centre for Inherited Cardiovascular Conditions

The Centre for Inherited Cardiovascular Conditions is also home to The CRY Centre for Sports Cardiology (CRY CSC), the leading referral hub for elite athletes whose results can often mimic underlying conditions and they can easily be misdiagnosed, making it essential for them to be assessed by an expert cardiologist. CRY CSC specializes in interpreting these differences accurately, ensuring that athletes receive the correct diagnosis and guidance. As a leader in sports cardiology research, the centre studies how exercise impacts the heart, particularly in young people, refining screening guidelines and advising on safe exercise practices for those with cardiac conditions. This expertise enables many young athletes to continue their sports careers safely while maintaining both their physical and mental wellbeing.

Led by CRY’s consultant cardiologists, Professor Sanjay Sharma, Professor of Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital, London, and Professor Michael Papadakis, Professor of

Fund, the Centre is led by Professor Mary Sheppard, a renowned cardiac pathologist with a dedicated team funded by CRY.

When the cause of death of a person aged 35 years or under is ‘unascertained’, the Centre offers a free, fasttrack diagnostic service. On average,the examination and report are completed within two weeks, providing critical answers for bereaved families. Outside this highly specialist centre, it can take up to 2 years for an expert investigation to be conducted. The importance of correct pathology cannot be overstated as it gives families the opportunity to understand what caused the death as well as assisting in informing the correct clinical pathway for first degree blood relatives, helping to quantify the risk posed to other family members. When expert pathology is not conducted, the family could be offered inappropriate clinical tests and there is potential for false reassurance.

The Centre also plays a crucial role in advancing research into young sudden cardiac death, with important findings that can help move forward our mission to prevent further

deaths. In this financial year, CRY continued to fund the staff that support Professor Sheppard at the centre, these being an administrator and two clinical technicians, as well as a PhD fellowship.Research —_ * % 7)

CRY Centre for Cardiac Pathology

The CRY Centre for Cardiac Pathology (CRY CCP) is an international cardiac referral centre and the leading centre in the UK. Established with a generous donation from the Howard and Sebastian English Memorial

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There have been some first screenings this year in memory of:

Mobile Screenings

The first public events this year were held on the 1st and 2nd of June in memory of Charlotte Adams in Maldon, in memory of Matthew Seymour in Bishopton, and in Memory of Aaron Dixon in Carrington.

7 NU ants ni leew eva @) == - - Anthony Lane, Daniel Parris, Nathan Blake, Ben Peters, Freya Davidson, Peter Hinchliffe, Cameron Slater, Jasper : wwAUS sree< S a 2 \iiisedJoWtinereqgssib: elqoeqbrs SIai iz6el Bnuoy ts 8 / i aes “ cores WR) kc oe / af,“ fi4 ~fi a Bryan Cook, Richard Ponting, Calum Mackintosh, Jono Stead, Sam Polledri, Christopher Cowe, Jude Harvey, " ‘reedYOenciionen sib bezongestonyelqoeg ynuoy Bnuoy anoitibnoo /‘ s ffps : Ha iy~i i fine iii: fa= te: é Steffani Broughton, Clarissa Nicholls, Mark Hudson. R 4SN ROB90dns10cr264 besyrinsenoebYepee oa ee laze e " 3 rf F fect F) iji —,Z <! ae,NO ‘ “esynw04 AAP NS » : : 7 fr a Chl] bel ote| ai6} TERRAEM. Ww\ —4 a re=e ae Sate =!fk a Pe ia et r iii C5: This year we had events held in memory of: r\WLORR Bel SS | BRASVARA\ NY) PP’¢ ~in , = beauaod lw bnuA IshomeMey #100 =e = | = WOA kt PARAS ea). ee rae 5 nny fii % CURRANLe ees eeYY AN. \ .\ / Mmraphrf ie ‘ ii N\A | Seer Us nobnod \o je0H aeeesfo on art,Aa ii esa] Adam Green (2), Adnan Deumic (2), Aiden Joyce (2), 7 \Ne\ Ae Re\5 Eatsae ANY.\ A \e BoasMIsW eoubing, x08 a Fe - - =a Alan Bain (2), Amy Osborne (2), Alex Reid (2), Alden ENN at aweek » SAN — [) gay J) a Fj — Sing eae ee XY \5 re \h B. EGOOM rea) i= 4 ay pe ee5 afr een = Price (2), Andrew Key (2), Andrew Macleod (2), Anthony AXAAAS RY,Seek) Yeasim it ‘ew>. SAL amotqmyettiwrva00toiigarttsobON = = Fa = ~ — 2 H ~~ eo ee — -: = f* r F ) 7 a Fitzgerald (2), Anthony Lake (1), Ashley Goodwin (1), - > yp! 2 ¥/ —= 2 ifad G ou F “i /. 4— = : Ben Daniels (2), Ben Birch (1), Ben Hammond (2), Ben >a« = Smith (2), Bethany Mycroft (1), Calum Mackintosh (1), Cameron Slater (1), Charlie Craig (1), Chloe Waddell (2), Christian Thunhurst (1), Christopher Cowe (2), Christopher and Steven Phillips (1), Clayton Olson (2), y ; Hill NT| Craig Rawlinson (1), Dale Tennent-Butler (2), Daniel Parris (1), David Brown (1), David Hill (2), David Moss Wi (1), David White (1), Dean Mason (2), Freya Davidson 4&) I | | H]ANAT| ] • 4 days of screening were funded in memory of Martyn Luckett (1), Hamish Ross (2), Harry Faulkner (2), Jack Maddams WW - Giving young peopie the of

Adam Green (2), Adnan Deumic (2), Aiden Joyce (2), Alan Bain (2), Amy Osborne (2), Alex Reid (2), Alden Price (2), Andrew Key (2), Andrew Macleod (2), Anthony Fitzgerald (2), Anthony Lake (1), Ashley Goodwin (1), Ben Daniels (2), Ben Birch (1), Ben Hammond (2), Ben Smith (2), Bethany Mycroft (1), Calum Mackintosh (1), Cameron Slater (1), Charlie Craig (1), Chloe Waddell (2), Christian Thunhurst (1), Christopher Cowe (2), Christopher and Steven Phillips (1), Clayton Olson (2), Craig Rawlinson (1), Dale Tennent-Butler (2), Daniel Parris (1), David Brown (1), David Hill (2), David Moss (1), David White (1), Dean Mason (2), Freya Davidson (1), Hamish Ross (2), Harry Faulkner (2), Jack Maddams (1), Jack Thomas (2), Jake Anthony Pickford (1), James Murgatroyd (2), James Nicholas (1), James Patterson (2), Joanne Fotheringham (2), John Pirie (2), Jono Stead (2), Jordan Burndred (1), Kayleigh Griffiths (1), Kieran Joyce (2), Kyle Hancock (1), Lewis Marsh (2), Mark Hancock (2), Mark Hudson (1), Matthew Hesmondhalgh (2), Matthew Gore (1), Matthew Seymour (2), Michael Land (1), Nathan Butler (2), Neil Ward (2), Oliver Griffin (1), Pardeep Nagra (1), Peter Hinchliffe (2), Philip Standing (1), Richard Ponting (1), Richard Waight (1), Ryan Tilley (1), Sam Polledri (1), Sam Wright (2), Shamil Hamid (1), Stevie Wiggins (1), Stewart Howard (2), Therese Field (2), Thomas Hardman (1), Tom Clabburn and Claire Prosser (1), and Yasmin Caldera (1).

Faulkner, C a m p i o n School was funded in Memory of James Patterson and Kings Langley School in Memory of Dale TennentButler.

2 screening days were funded by Ben Aldred myheart Fund.

CRY’s school screening continues to be an important factor in making these services readily available to young people. This year we screened:

Screening equipment

This year we had 1 GE Healthcare Vivid iQ ECHO machine donated in Memory of Thomas Hardman.

Eton College, Emanuel School London, Royal Grammar School High Wycombe, Wellington College, Chislehurst and Sidcup Grammar School, Sedbergh School Cumbria, Millfield School, Canford School, Bryanston school, Aylesbury Grammar School, Shiplake College, Reed’s School Cobham, Moreton School Shropshire, Chesham Grammar School, Gresham’s School Norfolk, Malvern College, Cranleigh School, Tonbridge School, City of Freemans School, Hope Valley College, Harrow school and Charterhouse School Godalming.

Cardiac screening at CRY National Screening Centre

Once again there were 4 days of screening on the Isle of Man, where hundreds of people were screened by CRY for the charity Craig’s Heartstrong Foundation, which raised money for screening in memory of Craig Lunt.

Regular screening events are taking place at the CRY National Screening Centre in Leatherhead. The first screening in this financial year was held on 8th June 2024. A total of 17 screening events were held at the CRY Head Offices in Leatherhead; 3 days were funded in memory of Matthew Cragg, 2 days in memory of Adnan Deumic, 1 day in memory of Rory Embling and 1 day in memory of David Brown. 10 days of screening were held part funded by Trusts; 6 days were funded by Garfield Weston Foundation, 1 day was funded by Westfield Health &

A number of school and college screening events are being funded by CRY ringfenced Memorial Funds. Screening at Berkhamstead School was funded in memory of Harry

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Grace Trust, 1 day was funded by Aubrey Orchard-Lisle Charitable Trust & The Sir Cliff Richard Charitable Trust, 1 day was funded by The Jan and Catherine Nasmyth Charitable Foundation, and 1 day was funded by The Sir Cliff Richard Charitable Trust, The Margaret Rolfe Charitable Trust and Chapman Charitable Trust.

Screening in sport

CRY has provided cardiac screening services to the following governing bodies / organisations:

Gallagher Premiership Rugby for senior / contracted academy players and u16s / u18s: Bath Rugby, Bristol Bears, Exeter Chiefs, Gloucester Rugby, Harlequins, Newcastle Falcons, Northampton Saints, Leicester Tigers, Sale Sharks, Saracens and Yorkshire Rugby Academy.

Championship Rugby Union: Ampthill RFC, Bedford Blues RFC, Cornish Pirates, Doncaster Knights RFC, Coventry RFC, Cambridge RFC, Ealing Trailfinders RFC, Gloucester Rugby, Hartpury RFC, and London Scottish RFC.

RFU: GB Rugby 7s, England Women’s Rugby squads including the ‘Red Roses’ senior squad and also their u20s squad Harlequins women’s squad.

Football: AFC Wimbledon, Arsenal FC Academy, London City Lionesses FC, Notts County FC, Bromley FC. Brentford FC (u15s).

Cricket: Surrey County Cricket, Sussex County Cricket, Leicestershire County Cricket, Bedfordshire County Cricket and England Cricket Disability.

INEOS cycling, Lawn Tennis Association and the Royal Ballet School.

Olympic and Paralympic: British Athletics, British Canoeing, British Diving, British Gymnastics, British Rowing, British Swimming /Para-swimming. British Weightlifting, England Hockey, Artistic Swimming, England Badminton, Modern Pentathlon, GB Wheelchair Rugby and Wheelchair Fencing.

Academic Papers

The academic papers published in this financial year include:

genetics” M Casian, et al, Kardiologia Polska, 2024 Sep 6.

“Prevalence of Coronary Atherosclerosis in Female Masters Endurance Athletes” E Papatheodorou, et al, Circulation , 2024 Oct 29.

“Are patients with hypertrophic cardiomyopathy given appropriate advice on exercise at a central London inherited cardiac conditions outpatient service?” N Jayaratne, et al. European Journal of Preventive Cardiology , 2024 June 13

“A case of Sudden Cardiac Death with myocardial infarction due to iatrogenic coronary dissection in a patient with coronary vasospasm” S D Arachchi, et al, Medicine, science, and the law , 2024 Oct 29.

“A longitudinal study of quantitative late gadolinium enhancement analysis in young athletes versus nonathletic individuals with acute myocarditis” H Butt, et al. European Journal of Preventive Cardiology , 2024 June 13

“Abstract We147: The Utility of Cardiopulmonary Exercise Testing (CPET) Amongst Male and Female athletes to Differentiate Between Physiological Left Ventricular Enlargement and Mildly Depressed Resting Systolic Function and Athletic Individuals with Dilated Cardiomyopathy” S Marwaha, et al, Circulation Research , 2024 October 9

“Feasibility of novel points-based health questionnaire utilised in a nationwide cardiac screening programme for young individuals” H Maclachlan, et al, European Journal of Preventive Cardiology , 2024 June 13

“Predicting non-specific myocardial fibrosis in

“Implications of age and sex on the diagnostic yield

clinical setting in a large cohort of young and veteran athletes using a powerful machine learning model” E Androulakis, et al, European Journal of Preventive Cardiology , 2024 June 13

of sudden arrhythmic death syndrome” B Gray, et al, European heart journal , 2024 October 28

“Insights into the aetiology and temporal trends in cardiac mortality in the young: a 21-year review of national and registry data in the United Kingdom” R Bhatia, et al, European Heart Journal , 2024 October 28

“Longitudinal insights into coronary plaque amongst

master athletes” S Fyyaz, et al, European Journal of Preventive Cardiology, 2024 June 13

“Cardiac screening with ECG in the young: significance of T wave inversion, T wave depth and T wave/QRS ratio” A Alzarka, et al, European Heart Journal , 2024 October 28

“The impact of drug use in athletes on resting LV systolic function and contractile reserve” S Marwaha, et al, European Journal of Preventive Cardiology , 2024 June 13

“Are the cardiovascular benefits and potential risks of physical activity and exercise dependent on race, ethnicity or sex?” D T Tardo, et al, The Canadian journal of cardiology , 2024 Nov 13.

“Left ventricular morphology and geometry in élite

athletes characterized by extreme anthropometry” E Moccia, et al, Hellenic journal of cardiology , 2024 July 5

“Influence of age and sex on the diagnostic yield of inherited cardiac conditions in sudden arrhythmic death syndrome decedents” B Gray, et al, European journal of preventive cardiology , 2024 Dec 23.

“Sudden cardiac death with morphologically normal

heart: always do toxicology” D Radaelli, et al, Journal of clinical pathology, 2024 Aug 16

“Ethnicity and sudden cardiac death in athletes: insights from a large United Kingdom registry” G Finocchiaro, et al, European journal of preventive cardiology , 2024 Sep 6

“Sudden cardiac death during anesthesia in noncardiac surgery and its link to possible cardiac channelopathies: A case series” S D Arachchi, et al, JCA Advances 2025 February

“Anabolic steroids in athletes: the interplay of hormones and inflammation leading to the heart's vulnerability” S Marwaha, et al, European journal of preventive cardiology , 2024 Sep 6

“Beyond the postmortem diagnosis of HCM: a genetic approach guided by clinical and morphological features in Noonan syndrome” E Sola-García, et al, Revista espanola de cardiologia (English ed), 2025 Jan 25.

“Arrhythmogenic right ventricular cardiomyopathies (ARVC): Diagnostic challenges from imaging to

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

“High intensity exercise programme in patients with hypertrophic cardiomyopathy: a randomised trial” J Basu, et al, European Heart Journal

“Influence of age and sex on the diagnostic yield of inherited cardiac conditions in sudden arrhythmic death syndrome decedents” B Gray, et al, European Journal of Preventive Cardiology

“Risk stratification and exercise recommendations in cardiomyopathies and channelopathies: a practical guide for the multidisciplinary team” J Basu, et al, Heart

“29-year-old Asymptomatic Caucasian Male Attends Cardiac Screening” J Lloyd, et al, European Association of Preventive Cardiology

“Sudden Cardiac Death in Childhood: Peaks in

Teenagers” J Westaby, et al, Circulation Arrythmia and electrophysiology , 2025 Feb 20

“Sudden cardiac death during anesthesia in noncardiac surgery and its link to possible cardiac channelopathies: A case series” S D Arachchi, et al, JCA Advances , 2025 Feb.

“High intensity exercise programme in patients with hypertrophic cardiomyopathy: a randomized trial” J Basu, et al, European Heart Journal , 2025 Mar 3.

“Echocardiography in the cardiac assessment of young athletes: a 2025 guideline from the British Society of Echocardiography (endorsed by Cardiac Risk in the Young)” D Oxborough, et al, Echo research and practice , 2025 Mar 14.

“Features of T Wave Inversion and Diagnosis of Cardiomyopathy: Relevance for a Cardiac Screening Programme in Young Individuals” A Alzarka, et al, European journal of preventive cardiology , 2025 April 30.

“Cardiac Risk in the Young: 30 years of supporting families and preventing young sudden cardiac deaths” S Cox, The British Journal of Cardiology , 2025 April 2

“High intensity exercise programme in patients with hypertrophic cardiomyopathy: a randomized trial” J Basu, et al, European Heart Journal , 2025 May 14.

“Seasonal Variation in Sudden Cardiac Death: Insights from a Large United Kingdom Registry” I Panayiotides, et al, Hellenic Journal of Cardiology , 2025 May-Jun.

“Exercise and phenotypic progression in

arrhythmogenic cardiomyopathy” T Minopoli, et al, European Journal of Preventive Cardiology , 2025 May 19

“Utility of cardiopulmonary stress testing in differentiating LV remodelling and dilated cardiomyopathy in athletes with an enlarged ventricle and baseline depressed LV function” S Marwaha, et al, European Journal of Preventive Cardiology , 2025 May 19

“Validation and refinement of a non-invasive algorithm for differentiating physiological LV enlargement and dilated cardiomyopathy in athletes with an enlarged and low resting LV” S Marwaha, et al, European Journal of Preventive Cardiology , 2025 May 19

“Sex-based differences in masters athletes: insights from CPET and cardiac MRI analysis” R Tomoaia, et al, European Journal of Preventive Cardiology , 2025 May 19

“Fibrosis patterns and arrhythmia risk in athletes with dilated left ventricles” S Marwaha, et al, European Journal of Preventive Cardiology , 2025 May 19

“Cardiac adaptation in young and master cyclists” I J Dominguez, et al, European Journal of Preventive Cardiology , 2025 May 19

“Epidemiology and aetiology of sudden cardiac

death in athletes” J Westaby, et al, The British journal of cardiology , 2025 May 7

Strategic Report

Financial Review

How CRY Spends Donations 2024-25

During the year, the funds received by the charity increased from £4.29 million to £5.04 million. Expenditure increased from £3.62 million to £4.36 million. The chart to the right “How CRY spends donations 2024-25” highlights the percentage of expenditure by each of the key areas of CRY’s operations. These are screening, research, raising awareness, support (of affected families and young people with inherited cardiac conditions), as well as fundraising and governance costs. The full breakdown of figures are shown on page 52.

Expenditure on research grants has increased from 13% last year to 21% this year. The research fellowship strategy has continued to adapt to meet with the current clinical environment and this has allowed the investment in research to increase. Research grants provide the funding for the CRY doctors who are essential to the CRY screening programme. The screening costs have reduced from 49% of total expenditure last year to 46% this year.

CRY continues to spend a high proportion of its funds to directly meet its charitable objectives. 85% of CRY’s expenditure went to screening, research, awareness and support, and just 15% going to fundraising costs and governance.

Total amount going to CRY's aims 2024-25

Reserves policy

The Trustees have established the level of reserves that the charity ought to have. Unrestricted funds are needed to: cover support and management costs; provide funds which can be designated to specific projects to enable these projects to be undertaken at short notice; achieve a liquid reserve to provide cover for further capital expenditure.

The Trustees consider it prudent that unrestricted reserves should be sufficient to cover 6 months Support and Management Costs. The Trustees have set the required level of free reserves for the above matters at £350,000. Free reserves increased from £256,775 at 31st May 2024 to £547,112 at 31st May 2025. The free reserves are now above the level set out by the Trustees for the first time since the Covid-19 pandemic. This has enabled plans to

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

be made for a continued increase in areas such as research. The budgets over the next 12 months predict that this level of free reserves will be maintained.

In 2020, a plan was put in place to arrange a Coronavirus Business Interruption Loan (CBIL) to ensure CRY would maintain sufficient cash reserves going forward and this is recognised in the accounts in note 11 on page 52. This loan was borrowed against the value of CRY’s office which was purchased in 2013 and was valued at £990,000 just prior to the loan being approved. The level of reserves is monitored and reviewed by the Trustees throughout the year. In October 2021 CRY fixed the interest of the loan at 2.44% for the full duration of the loan. Interest earned on our deposits currently more than covers this cost.

An explanation of CRY’s reserves and Ringfenced Funds

A significant proportion of CRY’s reserve funds are “ringfenced” and must be used for specific projects. The majority of these funds are raised by families who have suffered a tragedy from young sudden cardiac death, in order to take forward a screening programme in their community in memory of their child, sibling or partner. Once the family has reached the appropriate sum, CRY supports them in taking forward one or more screening events. £5.30 million is now ringfenced for CRY families who specifically request that it is spent on screening. CRY has significant ringfenced funds which provide the funding required for the screening programme going forward for the next 3 years.

By June 1st 2025, £1.57 million of the £5.30 million ringfenced had already been committed to screening events which had been booked in 2025-26 (£1,395,300)

and 2026-27 (£176,800). The ringfenced funds which are currently not committed will be allocated to events over the next 3 years.

CRY cannot use these funds for other activities such as bereavement support, raising awareness and clinical research. CRY encourages families to use the funds that are ringfenced, and funding their own screening programme in memory of their relative is important to many bereaved families. It is essential that CRY offers families the ability to raise funds safe in the knowledge that the funds can be dedicated to screening in the very community that raised the money.

Investment Policy

The Trustees have considered the most appropriate investment policy for funds and have decided that interest bearing accounts with clearing banks effectively meet their requirements to generate income and meet operational contingencies.

Risk Management

The Trustees have a risk management strategy, which comprises:

• a review of the risks the charity may face which is conducted at each board meeting;

• the establishment of systems and procedures to mitigate those risks identified;

• the implementation of procedures designed to minimise any potential impact on the charity should those risks materialise.

The major risks are considered to be those that would prevent CRY from carrying out its charitable objects permanently. The Trustees have identified the following as possible risks that the charity faces: impact of economic climate; failure to govern effectively; major fraud or financial mismanagement. The risks are regularly reviewed by the main board.

Achievements and Performance

Our achievements and performance are discussed in detail on pages 12-32 of this report.

Going Concern

The Trustees have reviewed the budget for the next 12 months and consider the charity has adequate resources to continue for the foreseeable future.

Related Parties

None of the Trustees received remuneration or other benefits for their work for the charity. Any transactions between the charity and the Trustees or senior management or related parties must be disclosed to the board. In the current year no such related party transactions were reported.

Committed Funds

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

Plans for the future

Strengthen CRY’s Specialist Clinical Centres at St. George’s Hospital

Sustain and develop the CRY Centres for Cardiac Pathology, Inherited Cardiac Conditions, and Sports Cardiology by securing sustainable funding, maintaining specialist clinical expertise, and supporting timely NHS referrals.

Expand and Enhance CRY’s Cardiac Screening Programme

Increase clinical capacity and strengthen ECG screening infrastructure to extend reach, meet rising demand, and maintain consistently high medical standards.

Statement of Trustees Responsibilities

The Trustees - who are also directors of Cardiac Risk in the Young for the purposes of company law - are responsible for preparing the Trustees’ Report (including the Strategic Report) and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the Trustees to prepare the financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the Trustees are required to:

Invest in Research, Innovation, and Research Capacity

Increase investment in research fellowships and innovation to expand screening activity, strengthen referral pathways, and support high-quality research into young sudden cardiac death. This includes investing in artificial intelligence and machine learning to translate CRY’s 30 years of clinical expertise and uniquely young person focused cardiac datainto scalable tools. These innovations willsupport clinicians, enable AI-assisted ECG interpretation across emergency, community, and screening settings, advance research into smart wearable technologies, and improve the costeffectiveness of screening through automated evaluation of symptoms and family history, while maintaining the highest clinical and governance standards.

Strengthen Bereavement Support Services

Expand and enhance bereavement support for families following a diagnosis or bereavement by increasing the number of trained supporters and developing highquality written and digital resources.

The Trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. In so far as the Trustees are aware:

The Trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Auditors

Increase Awareness of Cardiac Risk in the

Young

Continue to raise public awareness of cardiac risk, early detection, and prevention, strengthening the reach and impact of Raising Awareness Week through an expanded representative and volunteer network.

A resolution will be proposed at the Annual General Meeting that BGM Helmores Limited be re-appointed as auditors to the charity for the ensuring year.

By order of the Board

Trustee:

Advocate for Prevention at a National Level

it’ Continue to campaign for a coordinated national strategy to prevent young sudden cardiac death, 7 ensuring sustained focus and action across policy and healthcare systems.

Paul Quarterman Date: 19th November 2025

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

Independent Auditors’ Report

Opinion

We have audited the financial statements of Cardiac Risk in the Young for the year ending 31 May 2025 which comprise Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and the related notes, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable by law and United Kingdom Accounting Standards, including Financial Reporting Standard 102, the financial reporting standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees' use of the going concern basis of accounting in

the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the company's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to the going concern are described in the relevant sections of this report

Other information

The other information comprises the information included in the annual report, including the trustees’ report – other than the financial statements – and our auditor’s report thereon. The trustees are responsible for the other information. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

In connection with our audit of the financial statements, our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements, or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether there is a material misstatement in the financial statements or a material misstatement of the other information. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact. We have nothing to report in this regard.

Opinion on other matter prescribed by the Companies Act 2006

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the company and its environment obtained in the course of the audit, we have not identified material misstatements in the directors’ report or the strategic report included within the trustees’ report.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 and the Charities Accounts (Scotland) Regulations 2006 require us to report to you if, in our opinion:

Responsibilities of Trustees

As explained more fully in the Trustees' Responsibilities Statement set out on page 37, the Trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists.

Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

A further description of our responsibilities for the audit of the financial statements is located on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities

This description forms part of our auditor’s report.

We have been appointed as auditor under section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005 and under the Companies Act 2006 and report in accordance with the Acts and relevant regulations made or having effect thereunder.

In our opinion, based on the work undertaken in the course of the audit:

Extent to which the audit was considered capable of detecting irregularities, including fraud We identify and assess the risks of material misstatement of the financial statements, whether due to fraud or error,

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2025

STATEMENT OF FINANCIAL ACTIVITIES (including Income and Expenditure Account) FOR THE YEAR ENDED 31 MAY 2025

and then design and perform audit procedures responsive to those risks, including obtaining audit evidence that is sufficient and appropriate to provide a basis for our opinion.

In identifying and addressing risks of material misstatement in respect of irregularities, including fraud and noncompliance with laws and regulations, our procedures included the following:

We obtained an understanding of laws and regulations that affect the company, focusing on those that had a direct effect on the financial statements or that had a fundamental effect on its operations. Key laws and regulations that we identified included the Companies Act 2006, Charities SORP (FRS 102). We also compliance with other laws and legislation which may not have a direct impact on the financial statements but whose compliance is paramount to the charitable company such as General Data Protection Regulation (GDPR), employment and health and safety legislation.

We enquired of the trustees and the Audit Committee, reviewed trustees’ and Audit Committee meeting minutes for evidence of non-compliance with relevant laws and regulations. We also reviewed controls the trustees have in place to ensure compliance.

We gained an understanding of the controls that the trustees have in place to prevent and detect fraud. We enquired of the directors about any incidences of fraud that had taken place during the accounting period.

The risk of fraud and non-compliance with laws and regulations and fraud was discussed within the audit team and tests were planned and performed to address these risks. We identified the potential for fraud in the following areas: accounting estimates principally in respect of research grants, income recognition, related parties outside normal course of business, management override of controls, misappropriation of cash and other assets and compliance with debt covenants.

We reviewed financial statements disclosures and tested to supporting documentation to assess compliance with relevant laws and regulations discussed above.

We enquired of the trustees about actual and potential litigation and claims.

We performed analytical procedures to identify any unusual or unexpected relationships that might indicate risks of material misstatement due to fraud.

In addressing the risk of fraud due to management override of internal controls we tested the appropriateness of journal entries and assessed whether the judgements made in making accounting estimates were indicative of a potential bias.

Due to the inherent limitations of an audit, there is an unavoidable risk that we may not have detected some material misstatements in the financial statements, even though we have properly planned and performed our audit in accordance with auditing standards. For example, as with any audit, there remained a higher risk of non-detection of irregularities, as these may involve collusion, forgery, intentional omissions, misrepresentations, or the override of internal controls. We are not responsible for preventing fraud or non-compliance with laws and regulations and cannot be expected to detect all fraud and non-compliance with laws and regulations.

Use of our report

This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006, and to the charitable company’s trustees, as a body, in accordance with Regulation 10 of the Charities Accounts (Scotland) Regulations 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed.

Paul Davis FCA (Senior Statutory Auditor) for and on behalf of BGM Helmores Limited Chartered Accountants and Statutory Auditors 114a Cromwell Road, London, SW7 4AG

BGM Helmores Limited Date: 20th February 2026

Statement of Financial Activities

Note
INCOMING RESOURCES
Donations and Legacies
2
Investment Income
Screening
Other income
TOTAL INCOMING
RESOURCES
RESOURCES EXPENDED
Raising Funds
Charitable Activities
Screening
Family support
Research Grants
3
Awareness & PR
Other Expenditure
TOTAL RESOURCES
EXPENDED
4
Net Incoming / (Outgoing)
Resources
Transfers between funds
Net Movement in Funds for
the Year
Total funds brought forward
at 1 June 2024
Total funds carried forward
at 31 May 2025		 Unrestricted
Funds
2025
£
2,082,296
225,142
644,744
1,463		 Restricted
Funds
2025
£
2,086,736
-
-
-		 Total
Funds
2025
£
4,169,032
225,142
644,744
1,463		 Unrestricted
Funds
2024
£
1,910,975
177,213
525,058
-		 Restricted
Funds
2024
£
1,674,434
-
-
-		 Total
Funds
2024
£
3,585,409
177,213
525,058
-
2,953,645 2,086,736 5,040,381 2,613,246 1,674,434 4,287,680
-
1,474,819
-
176,319
-		 -
1,140,619
-
75,986
-
549,157 549,157 524,505 524,505
540,355
349,875
725,649
458,591		 2,015,174
349,875
901,968
458,591		 637,609
320,687
409,118
430,993		 1,778,228
320,687
485,104
430,993
2,074,470 1,651,138 3,725,608 1,798,407 1,216,605 3,015,012
- -
89,595 89,595 82,753 82,753
2,713,222 1,651,138 4,364,360 2,405,665 1,216,605 3,622,270
240,423
28,000		 435,598
(28,000)		 676,021
-		 207,581
34,462		 457,829
(34,462)		 665,410
-
268,423
894,086		 407,598
4,906,858		 676,021
5,800,944		 242,043
652,043		 423,367
4,483,491		 665,410
5,135,534
1,162,509 5,314,456 6,476,965 894,086 4,906,858 5,800,944

There are no recognised gains or losses other than disclosed above. All results derive from continuing operations.

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

STATEMENT OF FINANCIAL ACTIVITIES (including Income and Expenditure Account) FOR THE YEAR ENDED 31 MAY 2025

CASH FLOW STATEMENT FOR THE YEAR ENDED 31 MAY 2025

Balance Sheet at 31 MAY 2025

Note 2025 2025 2024 2024
£ £ £ £
Fixed assets
Tangible assets 7 615,397 637,311
Current assets
Debtors 8 279,594 291,082
Cash at bank and in hand 9 6,799,724 5,950,120
7,079,318 6,241,202
Creditors: Amounts falling due 10
within one year 1,129,578 799,397
Net current assets 5,949,740 5,441,805
Total assets less current liabilities 6,565,137 6,079,116
Creditors: Amounts falling due 11
greater than one year 88,172 278,172
Net assets 13 6,476,965 5,800,944
The funds of the charity:
Unrestricted funds: 14 1,162,509 894,086
Restricted funds: 14 5,314,456 4,906,858
Total Charity Funds: 6,476,965 5,800,944

The financial statements on pages 50 to 57 were approved by the Board of Trustees on 19th November 2025 and signed on its behalf by:

Paul Quarterman - Trustee

James Brown - Trustee

Cash Flow Statement

2025 2024
Notes £ £
Net cash provided by operating activities 1 656,879 (13,189)
Cash flows from investing activities:
Interest from investments 226,605 216,324
Purchase of plant and equipment (33,880) (83,249)
Proceeds from disposal of fixed assets - 22,712
Net cash used in investing activities 192,725 155,787
Change in cash and cash equivalents in the reporting period 849,604 142,598
Cash and cash equivalents at the beginning of the reporting 5,950,120 5,807,522
period
Cash and cash equivalents at the end of the reporting period 2 6,799,724 5,950,120
1. Reconciliation of net incoming resources to
net cash inflow from operating activities
2025 2024
£ £
Net incoming/(outgoing) resources for reporting period 676,021 690,411
Interest from investments (226,605) (216,324)
Depreciation charges 55,794 52,395
Movement in debtors 11,488 (15,715)
Movement in creditors 140,181 (509,341)
Gain on disposal of fixed assets
Net cash provided by operating activities		 -
656,879
~~_—~~		 (14,615)
(13,189)
2. Analysis of cash and cash equivalents
2025 2024
£ £
Cash at Bank 6,799,724 5,950,120
6,799,724 5,950,120

Date: 19th November 2025

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CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

Notes to the Accounts

1.4 Tangible Fixed Assets Tangible fixed Assets are initially measured at cost net of depreciation and impairment losses.

Depreciation is recognised so as to write off the cost or valuation of assets less than their residual values over their useful lives on the following basis- assets held under finance leases are depreciated in the same way as owned assets:

1. Accounting Policies

1.1 Basis of preparation

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK (FRS 102) (Effective 1 January 2019) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.

Cardiac Risk in the Young ('CRY') meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s).

1.2 Legal status of the Charity

The charity is a company limited by guarantee and has no share capital. In the event of the charity being wound up, the liability in respect of the guarantee is limited to £1 per member of the charity.

1.3 Incoming resources

Screening fees income are accounted for on a receivable basis

Donations are accounted for on a receivable basis as soon as they are capable of accurate financial measurement and includes any taxation recoverable under Gift Aid. Gifts in kind are included in the Statement of Financial Activities at their gross value to the charity.

Donated professional services and donated facilities are recognised as income when the charity has control over the item, any conditions associated with the donated items have been met, the receipt of economic benefit from the use by the charity of the items is probable and that economic benefit can be measured reliably. In accordance with the Charities SORP (FRS 102), general volunteer time is not recognised.

Donated professional services and donated facilities are recognised on the basis of the value of the gift to the charity. This is the amount the charity would have been willing to pay to obtain services or facilities of equivalent economic benefit on the open market; a corresponding amount is then recognised in expenditure in the period of receipt.

Government grants are recognised at the fair value of the asset received or receivable when there is reasonable assurance that the grant conditions will be met and the grants will be received.

Donated fixed assets are taken to income at the value to the charity, with the other entry being capitalised in fixed assets.

Legacies receivable are considered on a case by case basis and recognised as the earlier of the date on which: the charity is aware that probate has been granted, the estate has been finalised and notification has been made by the executor(s) to the charity that a distribution will be made, or when a distribution is received from the estate. Receipt of a legacy, in whole or in part, is only considered probable when the amount can be measured reliably and the charity has been notified of the executor’s intention to make a distribution. If the legacy is in the form of an asset other than cash or an asset listed on a recognised stock exchange, recognition is subject to the value of the asset being able to be reliably measured and title to the asset has passed to the charity. Where legacies have been notified to the charity, or the charity is aware of the granting of probate, and the criteria for income recognition have not been met, then the legacy is a treated as a contingent asset and disclosed if material.

Leasehold Property 2%

Equipment 25% Motor vehicles 20%

It is the charity's policy not to capitalise fixed assets costing below £500.

The gains or loss arising on disposal of an asset is determined as the difference between the sale proceeds and the carrying value of the asset, and is credited or charged to profit or loss.

At each reporting period end date, CRY reviews the carrying amounts of its tangible assets to determine whether there is any indication that those assets have suffered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of the impairment loss (if any). Where it is not possible to estimate the recoverable amount of an individual asset, the company estimates the recoverable amount of the cash- generating unit to which the asset belongs.

1.5 Expenditure

Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably. All expenditure is accounted for on an accruals basis under the following activity headings:

Fundraising

Costs incurred in financing fundraising activities including allocated staff costs and support costs.

Screening

These include all costs associated with the screening of individuals including the salary cost of time spent by employees, travel, subsistence and depreciation of related fixed assets.

Family Support

Costs incurred in undertaking Family Support including allocated staff costs and support costs.

Awareness and PR

This includes all costs for the purpose of promoting the charity's activities and increasing awareness in the public.

Research

The costs include research fellows, research assistants, donated equipment and related research expenses.

Governance

Includes staff time and expenses for time spent in connection with trustees meetings, plus the cost of audit and professional fees. Salary costs are charged in accordance with time spent.

Support costs

Costs incurred directly in support of expenditure on the objects of the charity and include functions such as Human Resources and Information Technology. All costs are allocated between the expenditure categories of the SOFA on a basis designed to reflect the use of the resource.

Stationery and brochures

Costs incurred in respect of stationery and brochures are written off as incurred.

46

47

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

1.6 Debtors

Trade and other debtors are recognised at the settlement amount due after any discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due. Accrued income and tax recoverable is included at the best estimate of the amounts receivable at the balance sheet date.

1.13 Funds held by the charity are either:

▪ Unrestricted funds - these are funds which can be used in accordance with the charitable objects at the discretion of the trustees.

▪ Designated funds - these are funds which have been designated by the trustees for research projects.

1.7 Financial Instruments

The charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.

1.8 Cash and Cash Equivalents

Cash and cash equivalents are basic financial assets and include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts.

▪ Restricted funds - these are funds that can only be used for particular restricted purposes within the charity's objects.

▪ Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

1.14 Going Concern

After producing a budget for 12 months from the date of signing the accounts, the trustees have reasonable expectations that the charity has adequate resources to continue acting as a going concern and has thus adopted this basis in preparing the accounts.

1.9 Creditors and Provisions

Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably.

. Debt instruments are subsequently carried at amortised cost, using the effective interest rate method

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of business from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

1.10 Employee Benefit

The costs of short-term employee benefits are recognised as a liability and an expense.

1.15 Significant areas of estimation and judgement

The preparation of the financial statements requires judgements, estimations and assumptions to be made which affect the reported values of assets, liabilities, income and expenditure. The nature of such could result in actual outcomes differing from expection. Management has applied judgement in the following material areas:

▪ Research grants are recognised in full by the charity as soon as the criteria for a constructive obligation has been met, payment is probable, can be measured reliably and there are no conditions attached which limit their recognition.

▪ Estimation of the useful economic life of buildings, equipment and motor vehicles.

▪ The allocation of staff costs to the charitable activities based on an estimate of time spent.

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefits are recognised immediately as an expense when the company is demonstrably committed to terminate the employment of an employee or to provide termination benefits.

1.11 Pensions

In line with recent changes in pension legislation CRY has enrolled eligible employees into an auto- enrolment pension scheme. The basic contributions for the scheme are 3% of pensionable earnings by CRY and 5% by the employees. Pension costs are charged to the Statement of Financial Activities as incurred. There were £14,703 (2024: £7,001) of outstanding contributions at the year end.

1.12 Leases

Leases are classified as finance leases whenever the terms of the lease transfer substantially all the risks and rewards of ownership to the lessees. All other leases are classified as operating leases.

Assets held under finance leases are recognised as assets at the lower of the assets fair value at the date of inception and the present value of the minimum lease payments. The related liability is included in the balance sheet as a finance lease obligation. Lease payments are treated as consisting of capital and interest elements. The interest is charged to the profit and loss account so as to produce a constant periodic rate of interest on the remaining balance of the liability.

Rentals payable under operating leases, including any lease incentives received, are charged to income on a straight line basis over the term of the relevant lease except where another more systematic basis is more representative of the time pattern in which economic benefits from the lease asset are consumed.

48

49

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

2 Donations and Legacies
Donations
Gifts
Legacies
Trusts
Sponsorship
3 Research
Research costs
Medical Research - Professor Sharma - St George’s, University of London
Cardiac Pathology and Coroners’ Referral Research
Medical Research - Dr Papadakis - St George’s, University of London
Medical Research - Liverpool John Moores
Medical Research - Dr Gati
See note 12		 2025
£
3,950,773
88,534
116,005
13,720
4,169,032
2025
£
298,348
184,281
359,257
500
59,582
901,968		 2024
£
3,439,555
47,154
98,700
-
3,585,409
2024
£
83,670
125,982
206,851
2,265
66,336
485,104

Please see the trustees report page 52 for further information in respect of provisions for research grants.

4 Total resources expended
Screening
Family Support
Awareness & PR
Governance
Research (Note 3)
Fundraising
Prior year analysis:
Screening
Family Support
Awareness & PR
Governance
Research (Note 3)
Fundraising		 Direct Staf
Costs
Other Direct
Costs
Support &
Management
Costs
Total 2025
£
£
£
£
1,244,612
489,543
281,019
2,015,174
246,992
20,578
82,305
349,875
196,642
163,490
98,459
458,591
16,076
-
73,519
89,595
-
901,968
-
901,968
233,704
134,663
180,790
549,157
1,938,026
1,710,242
716,092
4,364,360
Direct Staf
Costs
Other Direct
Costs
Other Direct
Costs
Total 2024
£
£
£
£
1,094,347
446,259
237,622
1,778,228
218,467
23,614
78,606
320,687
176,387
160,798
93,808
430,993
14,242
-
68,511
82,753
-
485,104
-
485,104
210,177
144,526
169,802
524,505
1,713,620
1,260,301
648,349
3,622,270
4 Total resources expended - continued
Support and Management Costs
Staf Costs (not included in direct staf costs above)
Rent & Rates
Heat, Light & Power
Motor Expenses
Travelling
Printing, Stationery and Telephone
Postage and carriage
Computer Expenses
Professional Fees
Auditors Remuneration
Insurance
Maintenance
Bad Debts
General Expenses
Bank charges and Interest
Depreciation
Proft on disposal of fxed assets		 2025
£
2024
£
303,819
281,772
10,819
9,463
10,469
13,285
15,024
17,363
1,687
1,010
19,621
22,054
36,583
36,034
105,379
99,471
18,104
7,606
26,620
27,750
51,460
44,423
22,604
20,112
6,837
450
3,299
2,502
27,973
27,274
55,794
52,395
-
(14,615)
716,092
648,349
Support Costs allocated
to activities
Premises
General Ofce
Management
Finance
Information Technology
Human Resources
Total		 Screening
£
Family support
£
Awareness
& PR
£
Fundraising
£
Governance
£
Total
2025
£
3,424
872
11,359
3,291
2,342
21,288
108,452
15,409
152,043
47,223
52,359
375,486
17,851
12,754
10,016
17,227
3,133
60,981
46,903
32,208
15,048
72,388
27,177
193,724
976
554
1,293
541
407
3,771
19,176
10,348
15,339
12,283
3,696
60,842
196,782
72,145
205,098
152,953
89,114
716,092

Prior year analysis:

Prior year analysis:
Support Costs allocated
to activities
Premises
General Ofce
Management
Finance
Information Technology
Human Resources
Total		 Screening
£
Family support
£
Awareness
& PR
£
Fundraising
£
Governance
£
Total
2024
£
3,190
937
12,496
3,621
2,502
22,746
74,428
13,912
145,066
44,343
45,964
323,713
16,403
12,368
10,115
16,908
2,775
58,569
44,212
31,669
13,796
66,233
28,028
183,938
769
512
1,191
498
275
3,245
17,561
9,634
14,300
11,667
2,976
56,138
156,563
69,032
196,964
143,270
82,520
648,349

Costs were allocated on the basis of staff time other than premises and general office costs which were allocated on a usage basis.

50

51

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

5. Staff costs and number of employees

5. Staf costs and number of employees
Wages and salaries
Social security costs
Pension costs
Other staf costs (including staf training)
Direct Staf Costs
Support Staf Costs		 2025
£
1,970,703
175,411
60,926
34,805
2,241,845
1,938,026
303,819
2,241,845		 2024
£
1,781,456
142,256
58,631
13,049
1,995,392
1,713,620
281,772
1,995,392

No employees received a salary in excess of £60,000 in the year to 31 May 2025 (2024: 1).

The charity trustees were not paid or received any other benefits from employment with CRY in the year (2024: £nil) neither were they reimbursed expenses during the year (2024: £nil). No charity trustee received payment for professional or other services supplied to the charity (2024: £nil)

'The key management personnel of the charity comprise the Chief Executive Officer and the Director of Screening and Research. The total employee benefits of the key management personnel of the charity were £131,991 (2024:£124,217) Total employee benefits include : Salary, pension and healthcare.

The average monthly number of employees during the year was:

Management and administration
Charitable work
Total
The above includes the following part time staf
6. Net incoming resources before transfers:
This is stated after charging:
Depreciation
Auditors’ remuneration
For audit services
For other services
Loss/(Proft) on disposal of fxed assets		 2025
6
93		 2024
6
92
98
52
2024
£
53,395
9,970
(Based on 3% audit fee increase)
17,780
(14,615)
99
52
2025
£
55,794
10,270
16,350
-
7 Tangible fxed assets Long
Leasehold		 Equipment Motor
Vehicles		 Total
property
£ £ £ £
Cost
At 1 June 2024 678,204 971,203 116,747
1,766,154
Additions - 33,880 -
33,880
Disposals - - -
-
At 31 May 2025 678,204 1,005,083 116,747
1,800,034
Depreciation
At 1 June 2024 148,953 932,430 47,460
1,128,843
Charge for the year 13,488 20,141 22,165
55,794
Depreciation on disposal - - -
-
At 31 May 2025 162,441 952,571 69,625
1,184,637
Net Book Value
At 31 May 2025		 515,763 52,512 47,122
615,397
At 31 May 2024 529,251 38,773 69,287
637,311
All fxed assets are used for charitable purposes.
8 Debtors 2025 2024
£ £
Trade debtors 88,770 101,482
Prepayments 89,590 88,455
Accrued income 101,234 101,145
279,594 291,082
9 Cash at bank and in hand 2025 2024
£ £
Deposit account 5,926,123 5,410,644
Current account 871,256 536,922
Cash in hand 2,345 2,554
6,799,724 5,950,120
10 Creditors: Amounts falling due within one year 2025 2024
£ £
Bank loan (Note 11) 193,240 194,609
Trade creditors 114,577 98,827
Other creditors 59,668 45,919
Taxation and social security costs - -
11 Accruals and deferred income 340,655 285,377
Research (Note 12) 420,069 174,665
1,129,578 799,397

All fixed assets are used for charitable purposes.

52

53

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

11.Creditors: Amounts falling due after one year

11.Creditors: Amounts falling due after one year
Bank loan 2025
£
88,172
88,172		 2024
£
278,172
278,172

The bank loan is secured by fixed charges over all the charity’s freehold property.

The loan is for a term of 6 years and with monthly instalment repayments having commenced in November 2021, after an initial 12 month capital repayment holiday. The final repayment date is 23 November 2026. Interest accrues at 2.44% per annum on a Fixed Rate.

12. Research

Provision at 1 June 2024
Recognised in statement of fnancial activities (Note 3)
Grant payments in the year
Provision at 31 May 2025		 2025
2024
£
£
174,665
234,216
901,968
485,104
(656,564)
(544,655)
420,069
174,655

Grant commitment at 31 May 2025

Grant commitment at 31 May 2025 2025 2024 2025 2024 Total Number of Institution Activity Type grants £ £ St George’s University of London Research under Professor Fellows Sharma 6 4 344,902 106,331 St George’s University of London Research under Professor Cardiac Sharma Physiologists 2 2 13,334 13,334 Cardiac Pathology and Coroners’ Referral Research 1 2 61,833 55,000 Total Grants 9 8 420,069 174,665

See note 15 in respect of further information on these projects

13. Analysis of net assets between funds
Unrestricted funds
Restricted funds		 Creditors:
amounts falling
Tangible
Net current
due after more
assets
assets
than one year
Total
£
£
£
£
615,397
635,284
(88,172)
1,162,509
-
5,314,456
5,314,456
615,397
5,949,720
(88,172)
6,476,965

14. Analysis of Funds

Unrestricted funds
Restricted funds (Note 16)		 Balance at
Incoming
Outgoing
Transfers
Balance at
1 June 2024
Funds
Funds
Between Funds
31 May 2025
£
£
£
£
£
894,086
2,953,645
(2,713,222)
28,000
1,162,509
4,906,858
2,086,736
(1,651,138)
(28,000)
5,314,456
5,800,944
5,040,381
(4,363,360)
-
6,476,965

15. Research Costs

Cardiac Pathology Research

After a death, fast track expert pathology is crucial. CRY has designated significant funds to support essential research and fund the expertise required to conduct these investigations at The CRY Centre for Cardiac Pathology (CRYCCP), which is based at St George's Hospital, University of London, Tooting, London. Expert cardiac pathology is essential to help understand the cause of death as well as inform which tests are required for the testing of first degree blood relatives.

Coroners' Referral

CRY is funding coroners' referrals to The CRY Centre for Cardiac Pathology for young people (aged 35 or under) where the cause of death in the initial pathology is "unascertained". Coroners sometimes do not have the funds to access a service where they can refer complex cases to an expert pathologist. This means that many deaths are simply recorded as unascertained or, incorrectly, such as epilepsy, asthma or drowning. This service allows coroners to refer cases directly and receive a full report of the actual cause of death within 2 weeks.

St George's, University of London

CRY has funded 6 research fellowship grants during this year. All 6 grants are supervised by Professor Sharma and Professor Michael Papadakis. The fellows under the supervision of Professor Sharma and Professor Papadakis focus on the data obtained in CRY's screening programme and take forward projects relating to Young Sudden Cardiac Death, inherited cardiovascular conditions and sports cardiology. Research Fellowship funding is essential for CRY's screening programme. A research fellow is present at every screening to ensure that all abnormal ECG findings are evaluated immediately with follow-up ECHO (ultrasound of the heart). CRY is also part funding two cardiac physiologists to work at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology. The research fellows and physiologists support Professor Sharma and Professor Papadakis to provide a specialist service for bereaved families after a tragedy, where all family members can be seen together and have all necessary tests conducted on the same day.

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55

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2025

16 Restricted Funds

16 Restricted Funds
Restricted
Memorial Funds
Cardif City Football Club
Robert Luf Foundation
Aubrey Orchard-Lisle Charitable Trust
The Edith Florence Spence Memorial
Trust
Chapman Charitable Trust
North West Project UKH Foundation
The Grace Trust
The Louis Nicholas Residuary Charitable
Trust
The Jan and Catherine Nasmyth Charita-
ble Foundation
Westfeld Health
Garfeld Weston Foundation
Sir Clif Richard Charitable Trust
Surabhi Organisation
Margaret Rolfe Charitable Trust		 Balance
at 1 June
2024
Incoming
Funds
Outgoing
Funds
Transfer to
Unrestricted
Funds
Balance
at 31 May
2025
£
£
£
£
£
4,870,412
1,977,736
(1,523,692)
(28,000)
5,296,456
4,946
-
(4,946)
-
20,000
20,000
(40,000)
-
-
5,500
(4,000)
1,500
1,500
-
-
1,500
-
2,000
(2,000)
-
5,000
-
-
5,000
-
4,000
(4,000)
-
-
5,000
-
5,000
-
10,000
(8,000)
2,000
5,000
-
(4,000)
1,000
-
50,000
(48,000)
2,000
-
3,000
(3,000)
-
-
8,000
(8,000)
-
-
1,500
(1,500)
-
4,906,858
2,086,736
(1,651,138)
(28,000)
5,314,456

16. Restricted Funds (continued)

Restricted funds include 354 active funds (2024: 327) which have been set up to fund primarily screening events, but also provide funds for research fellows, raising awareness and for the purchase of ECG machines and equipment and a screening van.

These grants and donations have been restricted to provide funding for cardiac screening:

These grants and donations have been restricted to finance research costs:

17. Contingent liability

The charity had no contingent liabilities at 31 May 2025.

18. Taxation

The charity is considered to pass the tests set out in Sch. 6, para. 1 of the Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the company is potentially exempt from taxation in respect of income or capital gains received within categories covered by Pt. 11, Ch. 3 of the Corporation Tax Act 2010 or s. 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.

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