Annual Report
& Accounts
2025~ 2026
## **Annual Report and Accounts**
The Executive Committee, which is comprised of the Trustees, are pleased to present their report and accounts for the year ended 31 March 2026
- 04 From the Chair of Trustees
- 06 Our objectives and activities
- 08 Structure, governance and management
- 10 Key achievements and performance in the year
- 12 Financial review
- 14 Receipts and payments accounts
- 16 Statement of assets and liabilities
- 17 Independent examiner’s report
- 19 Reference and administrative details
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## **From the Chair of Trustees**
This year has been another important and active one for Headlines, as we continue to support individuals and families aff ected by craniosynostosis and rare craniofacial conditions, whilst also investing in the future of the charity.
We have maintained our focus on delivering the core services that our community relies on, whilst also progressing key areas of development. This includes further planning to enable our community members to access psychological support through Hannah’s Fund. Developing our **psychological** support off er remains central to our **ambition to pr** ovide holistic support that refl ects **both the physi** cal and emotional realities faced by **those we serve** .
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Thank to all our supporters - our members, fundraisers, donors and volunteers. Your continued encouragement, generosity and involvement enable us to continue our work and to build a stronger future for our community.
This year we have seen the completion of long-term research commitments, as well the launch of exciting new research projects exploring shared decision making in craniofacial care and developing speech and language support. We believe strongly in using our resources to deliver meaningful impact, continuing to work towards our charitable objectives. We are also building income streams in new and innovative ways and remain confi dent in the long-term stability of the charity. We are particularly thankful to those who trained so hard to run the London Marathon in support of Headlines, helping to sustain our work.
##
As always, our work would not be possible without our small and dedicated staff team, who work cohesively with commitment, energy and care to continue to drive the charity forward while remaining focused on service user needs. Sadly, this will be the last annual report for our Charity Director, Karen Wilkinson-Bell, who will be retiring at our AGM, after eight years of service. On behalf of the Board of Trustees and our members, I would like to thank Karen for her determination and hard work in leading the charity over this period. She has worked skilfully with Trustees, providing clarity and purpose, and ensuring that we remain forward thinking and proactive. Karen has also worked tirelessly to build relationships with professionals across the supra centres and within academic research, achieving signifi cant success in raising our profi le and strengthening our connections both within the UK and across Europe. As our fi rst employed Charity Director, she leaves Headlines in a strong position, and we wish her a very joyful retirement.
We remain extremely grateful to our Trustees, who generously give their time, skills, and experience to guide the charity. Their ongoing commitment ensures that Headlines stays focused, well-governed and responsive to the needs of those we serve.
Finally, I would like to thank all our supporters - our members, fundraisers, donors and volunteers. Your continued encouragement, generosity and involvement enable us to continue our work and to build a stronger future for our community.
_Lucy Pearse_
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Our objects, as set out in our Constitution, are to:
## **Our objectives and activities**
Headlines is the leading UK charity supporting people with craniosynostosis and other rare craniofacial conditions. Our vision is for a world where the physical, psychological and social impacts of craniosynostosis and rare craniofacial conditions are no more.
## Provide support
## Faciliate research
We provide support for people throughout their life to overcome the physical, psychological and social impacts of living with craniosynostosis and rare craniofacial conditions;
We facilitate research that seeks to advance understanding, ensures the provision of quality care, and identifies the best treatments for craniosynostosis and rare craniofacial conditions;
## We seek to achieve this in a variety of ways, including:
- the provision of a confidential helpline
- organising conferences and information days
- producing newsletters, an annual magazine and a range of information leaflets
- working with the NHS and other stakeholders to improve care for those living with craniosynostosis
- arranging events to bring those living with rare craniofacial conditions together, including an annual Family Weekend
- supporting innovative research projects that address key priority questions for craniosynostosis and rare craniofacial conditions
- facilitating support groups and networks
## Raise awareness
We raise awareness and educate people to improve public understanding of craniosynostosis and rare craniofacial conditions.
## Public benefit
The Trustees have complied with their duty in Section 17 of the Charities Act 2011 to have due regard to the guidance issued by the Charity Commission. The Trustees consider that the charity’s aims, objectives and activities, as outlined above, demonstrate clear public benefit.
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## **Structure, governance and management**
Headlines Craniofacial Support (previously known as The Craniofacial Support Group), is an unincorporated association and a registered charity in England and Wales (no. 1058461) and Scotland (no. SC050262). The charity is governed by its Constitution, adopted on 24 March 1996 and subsequently amended. The charity was fi rst registered with the Charity Commission for England and Wales in 1996 and with the Offi ce of the Scottish Charity Regulator in 2021.
Anyone aff ected by or with an interest in craniosynostosis and rare craniofacial conditions can apply to become a member of the charity. Members elect the Board of Trustees at the Annual General Meeting (AGM). Trustees typically serve for a defi ned term in line with the Constitution.
The Board comprises not fewer than fi ve and not more than fi fteen Trustees. The Board may co-opt Trustees to fi ll casual vacancies between AGMs. The Trustees, who are all volunteers, are responsible for the overall strategic direction and governance of the charity.
The Board meets regularly throughout the year, including via video conference. Day-to-day operations are managed by a small staff team, supporting the delivery of the charity’s activities and services.
New Trustees are recruited through an open and transparent process, including application, interview and att endance at Board meetings prior to appointment. Trustees are provided with induction information and ongoing support to enable them to fulfi l their role eff ectively.
The Trustees are committ ed to maintaining high standards of governance and have regard to the Charity Governance Code for charities in England and Wales.
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## **Key achievements and performance in the year**
individuals from 27 families connected at our annual Family Weekend. **117**
**Hannah’s Fund 10%** enhanced emotional wellbeing support through average growth in our social the continued development of access to media channels enabling counselling and psychological therapy more people to access
average growth in our social media channels enabling more people to access information and support.
## **81 individuals and families**
received direct support through our confi dential helpline, providing timely information, reassurance and guidance at key points in their journey
Our membership grew to **2,626**
**Babble bags**
were introduced in partnership with Alder Hey Children’s Hospital
We continued to provide a wide range of support to individuals and families aff ected by craniosynostosis and rare craniofacial conditions. Our confi dential helpline remained a vital point of contact, with **81 enquiries handled** during the year, off ering information and reassurance at key moments in the patient journey.
We brought families together through our programme of events, including our annual Family Weekend, which welcomed **117 individuals from 27 families.** These opportunities to connect remain central to our work, helping to reduce isolation and build strong, supportive networks within our community.
We further strengthened our support off er through the continued development of **Hannah’s Fund** , expanding access to counselling and psychological support. This remains an important area of focus as we respond to the emotional and mental health needs of those we support.
We also worked in partnership with the **Specialist Speech and Language Therapy team** at **Alder Hey Children’s Hospital** to support the introduction of “Babble Bags” for their craniofacial parent support groups, helping to provide practical tools and early support for families.
Membership of the charity continued to grow, with an increase of just **over 2% during the year** , bringing total membership to **2,626** , refl ecting the ongoing relevance and reach of our work.
The charity continued to invest in research that seeks to improve understanding and treatment of craniosynostosis and related conditions. Signifi cant progress was made in funding the advancement of the **Screening Pipeline/Stem Cells research project undertaken by Kings College London and Erasmus Medical Centre in Rott erdam,** representing a major area of strategic investment.
We continued to raise awareness through a range of communications and engagement activities. Our social media channels saw **average growth of just over 10%** , helping us to reach a wider audience and ensure that support and information is accessible to those who need it.
We also continued to produce newslett ers, information materials and digital content to support members and improve understanding of craniosynostosis and rare craniofacial conditions. Our annual magazine, **Headline News** , was mailed to a record 2,650 supporters, highlighting the growing reach of the charity and strong engagement from our community.
Fundraising and supporter engagement remained an important part of our awareness-raising work. We were delighted to secure our **fi rst offi cial place in the London Marathon** , raising over **£2,500** , and are extremely grateful for this and all fundraising eff orts undertaken on behalf of the charity.
We were also pleased to secure a **£15,000 award from The National Lott ery Community Fund,** contributing towards the costs of delivering our Family Weekend.
Supporting young people remained a key priority. Our **Young Persons Network (YPN)** continued to provide a platform for connection and peer support, enabling young people to share experiences and shape the work of the charity.
During the year, we also launched a **new Teens Group** , creating additional opportunities for younger members to engage in a supportive, age-appropriate environment and strengthening our overall off er to young people within the community.
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## **Financial Review**
Income from donations and Gift Aid remained the charity’s primary funding source at £55,139 (2025: £96,372), demonstrating continued support from the community, although at a reduced level compared to the previous year. A new grant of £15,000 was received from The National Lottery Community Fund towards the 2025 Family Weekend.
Income from charitable activities, including events such as the Family Weekend, amounted to £4,840 (2025: £7,217). Additional income streams included merchandise sales (£512) and bank interest and sundry income (£2,454), both lower than in the prior year.
Total income for the year ended 31 March 2026 was £77,945 (2025: £124,983). This reduction reflects lower grant income compared to the previous year, particularly as 2025 included significant restricted funding from the VTCT Foundation and other grant sources.
Total expenditure for the year was £126,140 (2025: £113,999), reflecting increased investment in key charitable programmes and organisational capacity, including the purchase of a new laptop.
The charity made significant investments in its charitable objectives, including:
- £37,157 on the Screening Pipeline/Stem Cells research project (see below)
- £19,053 on events supporting beneficiaries (including Family Weekend activities)
- Continued support for welfare grants, speech and language resources, and patient information.
Staffing remained the largest single area of expenditure at £51,033 (2025: £49,149), reflecting the charity’s commitment to maintaining capacity to deliver services and support beneficiaries effectively.
Overall, the charity recorded a net deficit of £49,211 for the year (2025: surplus of £10,984). As indicated above, just over £37,000 of this relates to completion of the Kings College/ Erasmus MC Screening Pipeline/Stem Cells research project, which Trustees had agreed to fund in 2023 and thus reflects the Trustees’ strategic decision in previous years to draw on reserves to fund key research projects.
## Reserves Position and Policy
The Trustees recognise the importance of maintaining sufficient reserves to ensure the charity’s ongoing sustainability and ability to respond to beneficiary needs.
The Trustees aim to maintain reserves sufficient to cover approximately 12 months of unrestricted expenditure. The operating deficit in the year reflects a deliberate strategy to apply reserves to priority projects and activities aligned with the charity’s objectives rather than an underlying structural imbalance.
As at 31 March 2026 just under £110,000 was held in general funds, which is in line with the stated policy.
Trustees continue to monitor reserves closely and will prioritise rebuilding income streams, through fundraising and grant applications, in the forthcoming year to ensure reserves remain within target.
## Going Concern
The Trustees have considered the charity’s financial position and are satisfied that it remains appropriate to prepare the financial statements on a going concern basis. This is based on the charity’s current reserves, ongoing donor support, and planned fundraising activity.
## Risk Management
The Trustees have considered the major risks to which the charity is exposed and have implemented processes to identify, monitor and mitigate these risks where possible. Key risks include a reduction in income, particularly from donations and grants, and the impact this may have on the charity’s ability to sustain its programme of activities.
To mitigate these risks, the Trustees actively monitor income and expenditure against budget, maintain oversight of cash flow and reserves, and prioritise expenditure in line with the charity’s core objectives. Efforts are ongoing to diversify income streams, including pursuing new grant opportunities and strengthening fundraising activity. Operational risks, including staffing capacity and governance, are also reviewed regularly to ensure the charity continues to operate effectively and in compliance with regulatory requirements. A new risk register was introduced during the course of the year, to enable risks to be monitored on an ongoing basis.
## Serious incidents
There were no serious incidents to report during the year.
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## **Receipts and Payments**
## for the year ended 31 March 2026
|**Receipts**
Donations, incl. gift aid
Charitable activities (e.g. Family Weekend)
Grant – NL Community Fund
Grant - VTCT Foundation
Small Grants
Merchandise
Bank interest and sundry income
**Payments**
Events (e.g. Family Weekend)
Screening Pipeline/stem cells research project
ACCORD research
Birmingham Hospital research
Counselling/psycho-therapy costs
Dads Network
Other Events
Information Leafets
Digital Capabilities
Welfare Grants
Salary and related costs
Newsleters & website
Ofce Running costs
Fundraising costs
Legal / professional fees
Independent Examination
Trustee meeting and AGM costs
Trustee meeting costs and AGM fees
Purchase of laptop
**Net (Payments)/Receipts in the year**
Transfers between Funds
**Net (Payments)/Receipts in the year after Transfer**
Balance at 1 April 2025
**Balance at 31 March 2026**|**Unrestricted**
**2026**
**£**
**Restricted**
**2026**
**£**
**Total**
**2026**
**£**
55,139
-
55,139
4,840
-
4,840
-
15,000
15,000
-
-
-
-
-
-
512
-
512
2,454
-
2,454
**62,945**
**15,000**
**77,945**
4,053
15,000
19,053
37,157
-
37,157
-
-
-
-
-
-
-
-
-
-
-
-
940
-
940
-
142
142
-
900
900
700
-
700
51,033
-
51,033
4,959
-
4,959
3,355
-
3,355
4,172
-
4,172
2,066
-
2,066
840
-
840
823
-
823
86
-
86
**110,098**
**16,042**
**126,140**
-
1,016
1,016
**(47,153)**
**(2,058)**
**(49,211)**
-
-
-
**(47,153)**
**(2,058)**
**(49,211)**
160,837
28,199
189,036
**113,684**
**26,141**
**139,825**|**Unrestricted**
**2025**
**£**
**Restricted**
**2025**
**£**
**Total**
**2025**
**£**
73,289
23,083
96,372
6,325
892
7,217
-
-
-
-
15,240
15,240
-
573
573
1,139
-
1,139
4,442
-
4,442|
|---|---|---|
|||**85,195**
**39,788**
**124,983**
23,236
1,892
25,128
1,781
-
1,781
84
-
84
-
8,198
8,198
-
5,966
5,966
-
3,287
3,287
739
250
989
-
383
383
-
556
556
250
-
250
49,149
-
49,149
4,749
-
4,749
3,602
328
3,930
5,468
-
5,468
3,245
-
3,245
750
-
750
86
-
86
261
-
261|
|||**93,139**
**20,860**
**113,999**
-
-
-|
|||**(7,944)**
**18,928**
**10,984**|
|||12,424
(12,424)
-
**4,480**
**6,504**
**10,984**
156,357
21,695
178,052
**160,837**
**28,199**
**189,036**|
## Notes:
1. The Receipts and Payments Accounts of the charity are prepared on a cash accounting basis.
2. Restricted Funds at 31 March 2026 consists primarily of the remainder of funds transferred from Hannah’s Fund (£22,615 plus related donations, giving a total of £23,078), and of grants received from the VTCT Foundation for the Birmingham Hospital longitudinal analysis project (£911), for upgrading our Digital Capabilities (£1,116), and for further work on Patient Information Leaflets (£673).
3. The grant received from the National Lottery Community Fund was to support the Family Weekend. Grants received from the VTCT Foundation in the financial year ended 31 March 2025 (£15,240) related to the Counselling / psycho-therapy project to help Headlines prepare to absorb the work of Hannah’s Fund.
4. Transfers of £12,424 from Restricted Funds to Unrestricted Funds were made in 2025. These primarily related to work undertaken by Headlines staff in relation to the VTCTfunded Counselling / psycho-therapy project to help Headlines prepare to absorb the work of Hannah’s Fund, and in supporting the Dads’ Network.
5. No trustees received remuneration in their capacity as a trustee (2025: Nil). No trustees were reimbursed travel costs related to the management and governance of the charity in the year (2025: Nil). One trustee received £200 for services as a play specialist at Headlines events, and was reimbursed £55.65 for related travel expenses.
6. There were donations (including membership and for attendance at the Family Weekend) from Related Parties of £720 (2025: £1,017). Attendance at the Family Weekend was paid for at the same rate as for other attendees.
7. Other events for the year included costs associated with the Young Persons’ Network and attendance at conferences.
8. In the year ended 31 March 2026, we provided welfare grants of £700 (2025: £250).
9. Fundraising Costs includes fees for fundraising events held during this financial year and fees paid to third party fundraising platforms and on merchandise sales.
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## **Statement of assets and liabilities**
## as at 31 March 2026
||**Unrestricted**|**Restricted**|**Total**|**Unrestricted**|**Restricted**|**Total**|
|---|---|---|---|---|---|---|
||**2026**|**2026**|**2026**|**2025**|**2025**|**2025**|
||**£**|**£**|**£**|**£**|**£**|**£**|
|**Cash at Bank**|113,684|26,141|**139,825**|160,836|28,200|**189,036**|
|**Non-monetary Assets (note 2)**|||||||
|Computer Equipment, at estimated net book value|1,016|-|**1,016**|-|-|**-**|
|Expenses paid in advance|514|-|**514**|3,564|-|**3,564**|
|Amounts Due|575|-|**575**|-|-|**-**|
|**Non-monetary Liabilities (Note 3)**|||||||
|Income received in advance|-|-|**-**|(950)|-|**(950)**|
|Salaries and related costs|(2,374)|-|**(2,374)**|(2,249)|-|**(2,249)**|
|Unpaid expenses|(1,380)|-|**(1,380)**|(1,173)|-|**(1,173)**|
|Independent Examination fee|(870)|-|**(870)**|(840)|-|**(840)**|
|**Commited expenditure**|||||||
|Grants awarded awaiting payment|-|-|**-**|(39,658)|-|**(39,658)**|
## Notes:
1. Committed expenditure from unrestricted funds relates to commitments we have made to fund research projects, but where the expenses have not occurred in the financial year. In 2026 this related to no projects (2025: 2 projects). Unrestricted funds also include designated funds of £550 for Welfare Grants (2025: £1,050).
2. Non-monetary assets comprise expenses paid in advance for events occurring or services provided after the end of the financial year. In 2025 this primarily related to expenses for the Family Weekend to be held in September 2026. Amounts due relates to an accidental double payment to a supplier. This was repaid in April 2026.
3. Non-monetary liabilities represent expenses paid after 31 March 2026, but which are with respect to the financial year ended 31 March 2026, including expenses related to salary costs (such as payments to HMRC) and other expenses where invoices had not been received and paid prior to the end of the financial year. In addition, in 2025 £950 of income had been received before the end of the financial year relating to the Family Weekend taking place in August 2025. No advance income was received in 2026.
The accounts on pages 14-15 were approved by the Board of Trustees on 21 July 2026 and signed on their behalf by:
Chair of the Board of Trustees
## **Independent examiner’s report**
## To the Trustees of Headlines Craniofacial Support
I report to the trustees on my examination of the accounts of Headlines Craniofacial Support (charity registration no.1058461/SC050262) for the year ended 31 March 2026 which are set out on pages 14 to 16.
## Independent examiner’s statement
I have completed my examination. I confirm that no matters have come to my attention giving me cause to believe that in any material respect:
## Responsibilities and basis of report
- accounting records were not kept as required by section 44 (1) (a) of the 2005 Act and Regulation 4 of the Charities Accounts (Scotland) Regulations 2006 (as amended) and section 130 of the 2011 Act; or
As the trustees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities and Trustee Investment (Scotland) Act 2005 (the ‘2005 Act’), the Charities Accounts (Scotland) Regulations 2006 (as amended), and the Charities Act 2011 (‘the 2011 Act’).
- the accounts do not accord with those records; and
- the accounts do not comply with the accounting requirements of Regulation 8 of the Charities Accounts (Scotland) Regulations 2006 (as amended).
You are satisfied that your charity is not required by charity law to be audited and have chosen instead to have an independent examination.
I report in respect of my examination of the Trust’s accounts carried out under section 44 (1) ( c) of the 2005 Act and section 145 of the 2011 Act. In carrying out my examination I have followed the requirements of Regulation 11 of the Charities Accounts (Scotland) Regulations 2006 (as amended) and all applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
## **John Caladine FCCA CTA FCIE Chartered Certified Accountant and Independent Examiner**
Caladine Ltd Chantry House 22 Upperton Road Eastbourne East Sussex BN21 1BF Dated: 23 July 2026
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## **Reference and administrative details**
Registered office and administration address
Arquen House 4-6 Spicer Street St Albans Herts. AL3 4PQ
T: 0330 120 0410
E: info@headlines.org.uk
Charity no: 1058461 / SC050262
## Trustees
The Trustees who served in the year and up to the date of this report were:
Charlotte Ashby
## Patron
Professor Andrew Wilkie FMedSci FRS
## Bankers
CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ
## Independent Examiner
Caladine Ltd
Chantry House 22 Upperton Road Eastbourne East Sussex BN21 1BF
Neil Bowyer
David Coleman (Treasurer from 30 August 2025)
Charles Edwards (retired 30 August 2025)
Dr Caroline Hilton (Secretary)
Zoe Hilton-Webb
Mark Lindfield
Laura Melles
Dr Mehran Moazen
Dr Lucy Pearse (Chair)
Hannah Pitt (from 26 April 2025)
Richard Williams
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Headlines is the only national charity supporting those aff ected by craniosynostosis and rare craniofacial conditions.
As well as providing information for parents, carers and families, we off er a confi dential helpline and regular newsletters, conference and information days and an annual Family Weekend. We also support research into the causes and treatment of rare craniofacial conditions.
Join us! Membership is free.
Find us on social media:
@headlinescraniofacialsupport
@headlinescraniofacial
Headlines is a registered charity in England & Wales (no. 1058461) and Scotland (no. SCO50262) © Headlines Craniofacial Support 2026