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2025-12-31-accounts

Charity Registration No. SC047871 (Scotland)

MY NAME'5 DODDIE FOUNDATION

ANNUAL REPORT AND FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

MY NAME'5 DODDIE FOUNDATION

LEGAL AND ADMINISTRATIVE INFORMATION

Trustees Ian Watt (Chairman)
Matt Cooper
Annabel Howell
John Jeffrey
Stuart Paul
Kathy Weir
Stewart Weir (resigned 10th September 2025)
Catriona Woolner-Winders (appointed 20thJanuary 2025)
Martin Wilson (appointed 27th April 2026)
Chief Executive Officer Nicola Roseman
Charity number (Scotland) SC047871
Principal address Thorn House
5 Rose Street
Edinburgh
EH2 2PR
Auditor Saffery LLP
9 Haymarket Square
Edinburgh
EH3 8RY
Bankers Hampden Bank
20/21 Charlotte Square
Edinburgh
EH2 4DF
Royal Bank of Scotland Plc
36 St Andrew Square
Edinburgh
EH2 2AD
Investment Manager W1M
Exchange Tower
19 Canning Street
Edinburgh
EH3 8EG

MY NAME'5 DODDIE FOUNDATION

CONTENTS

Page
Trustees' report 1 - 6
Statement of Trustees' responsibilities 7
Independent auditor's report 8 - 10
Statement of financial activities 11
Balance sheet 12
Statement of Cash Flows 13
Notes to the financial statements 14 - 28

MY NAME'5 DODDIE FOUNDATION

TRUSTEES' REPORT

FOR THE YEAR ENDED 31 DECEMBER 2025

The trustees are pleased to present their report and financial statements for the year ended 31 December 2025.

The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the Foundation's Constitution, the Charities and Trustee Investment (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006, FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102).

Who we are

We are My Name’5 Doddie Foundation. Founded by Doddie Weir, we have a clear vision: a world free of MND. We fund the smartest, most efficient MND research. We back bold ideas and bring together the best minds from across the globe.

Our goal is simple: faster routes to effective treatments. Because when you’re living with MND, time matters. This is not a competition, but it is a race.

Our community makes it all possible. Together we’ve filled stadiums, baked, walked, run, and hiked. We’ve done it dressed in a tartan as bold as our approach, and echoing Doddie’s message: “MND isn’t incurable, it’s just underfunded.”

Our founder

Doddie Weir OBE was one of rugby’s most recognisable personalities. He earned 61 caps for Scotland during a successful playing career, represented the British and Irish Lions on their successful tour to South Africa in 1997, and won championships with his two club sides, Melrose and Newcastle Falcons.

A talented, committed and athletic lock forward, Doddie then faced his biggest challenge. In June 2017 he revealed he was living with motor neuron disease (MND). From the outset, Doddie was driven to help others in the same position and seek ways to further research into this, as yet, incurable disease.

In November 2017, Doddie and his trustees launched the registered charity, My Name’5 Doddie Foundation. Our vision is simple: A World Free of MND.

The number “5” is a special number for the Foundation. It features in the Foundation’s name and is a reference to Doddie’s playing number for his clubs, Melrose and Newcastle Falcons, and the jersey he wore when he earned his 61 caps for Scotland.

About MND

Motor neuron disease (MND) is a rapidly progressing neurological disease that affects the brain and spinal cord. More than 5,000 people in the UK are living with MND at any one time and the lifetime risk of dying from the disease is around one in 300.

Every day, six people are diagnosed with a disease that can move fast. Another six people die. Families live with uncertainty and fear, people lose their ability to walk, talk, eat and breathe.

For over 98% of people living with the disease, there have been no new treatment options for decades. There is no cure.

Objectives and activities

The Foundation's purposes are set out in its constitution. It raises funds to aid research into the causes of MND and investigate potential cures, and to provide grants to individuals affected by MND enabling them to live as fulfilled a life as possible.

1

MY NAME'5 DODDIE FOUNDATION TRUSTEES' REPORT (CONTINUED)

FOR THE YEAR ENDED 31 DECEMBER 2025

The Foundation's key aims and objectives are:

Through the Board of Trustees, the Foundation delivers its aims and objectives through the making of grants, donations, loans, gifts or pensions to individuals and makes grants, donations or gifts to relevant organisations.

Achievements and performance

Throughout 2025 the Foundation continued to concentrate on its core activity of investing in targeted MND research projects as outlined in our research strategy ‘Catalysing a Cure’ and helping people living with MND. We celebrated our 8th anniversary in mid-November and, thanks to our wonderful fundraisers, we have committed over £21.5m to 46 research projects within the last 8 years.

My Name’5 Doddie Foundation remains on a solid financial footing with funds available to honour its various commitments to vital MND research at several centres across the UK. In 2025 the Foundation gave a total of £150k to MND Association and £100k to MND Scotland and committed a further £100k to MND Association to be paid in 2026.

The Foundation continues to attract widespread support, driven by sustained media focus on MND and a calendar of high-profile fundraising events. Engagement from rugby and sporting clubs, individuals, families and organisations committed to backing our work remains exceptional. In 2025, the public recognition of Doddie’s iconic match ball delivery at Murrayfield — voted the greatest Murrayfield memory — served as a powerful reminder of the profound and lasting impact of his legacy. Our ongoing relationship with Scottish Rugby is deeply valued, and we are grateful for the continued solidarity shown across the rugby community.

As part of our annual flagship fundraising campaign, Doddie Aid, we kicked off 2025 with 13,442 participants logging almost 1.4 million miles, raising £1.35m over the month-long activity challenge. Encouragingly, we saw a 20% increase in participant retention compared to the previous year and 83% of users actively engaged with the new app, demonstrating strong supporter loyalty and sustained engagement.

As a central feature of the campaign, Rob Wainwright undertook another significant endurance challenge, Doddie’s Grand Tour. The core team set off from Dublin, covering more than 700 miles over four days while carrying the match ball for the Scotland v Ireland Six Nations fixture on 8[th] February. This high-profile initiative helped generate widespread media coverage, strong social media engagement and notable celebrity endorsement. Doddie Aid continues to provide a powerful platform to mobilise our supporter community at the start of each year — fostering connection, shared purpose and meaningful fundraising impact.

Throughout 2025, our supporters have shown creativity, determination and generosity with their fundraising initiatives. Highlights include a father and son trek to the base camps of K2 and Broad Peak, 90 Munros climbed in 90 days, a solo row across the Atlantic, and the first leg of a multi-year rowing challenge which aims to raise £57 million over 4 years. The March of the Day saw a group of former footballers and supporters continuously walk 146 miles via 22 Scottish football stadia, finishing at the Oor Doddie Statue at Murrayfield.

Cycling and golf continued to be central to our fundraisers’ interests, with a multi-day 900 mile ride across France, a 1,000-mile cycle across the British and Irish Lions tour venues in Australia, and a ‘25 rounds in 5 days’ golf challenge also featuring. At the Genesis Scottish Open, a stand was also named after one of our supporters, Scott Stewart, a scratch golfer and avid golf fan, who died from MND.

We were named the official charity partner of the Braemar Gathering and fielded a Doddie Weir tartan clad team in their event’s annual tug of war. Other Community events, including family-friendly races, dinners, bake sales and the return of the Doddie Duck Race through our partnership with Dalkeith Country Park, further highlight the creativity and commitment of supporters nationwide.

2

MY NAME'5 DODDIE FOUNDATION TRUSTEES' REPORT (CONTINUED)

FOR THE YEAR ENDED 31 DECEMBER 2025

Another annual highlight was Kevin Sinfield’s latest challenge ‘7 in 7: Together’ – over 7 days, Kevin ran an astonishing 7 ultramarathons in 7 days, covering 7 different UK regions in total, all to benefit a range of MND charities. Our team of volunteers joined locations across the UK and gave him a very warm Scottish welcome in Dundee as he crossed the finish line at Dens Park, the home of Dundee F.C.

Being an official charity partner of the British and Irish Lions Trust, has been a fantastic opportunity to further deepen our ties to the rugby community, while strengthening our reach beyond Scotland. In 2025 fundraising primarily focused on the Doddie'5 Lions Challenge, where a team of cyclists led by Kenny Logan, rode from Belfast to Dublin, covering over 555 miles in just 6 days to deliver the match ball to the British and Irish Lions match against Argentina.

For all the community events and challenges that are embarked on, we consistently see love, fun and hope in abundance. For that, we are extremely grateful, and we cannot fund the MND research projects without the tremendous energy that each supporter brings.

Our Doddie’s Clubhouse regular giving programme has grown to over 800 members - a 33% increase on last year. The newsletter that members receive keeps everyone up to date on what’s going on in the Foundation and provides invaluable insight into research being funded.

During 2025, the Foundation launched a broad range of new licensed products across apparel, accessories, ‑ and merchandise, including two Lions branded apparel collections, golf wear, outerwear, headwear, and seasonal merchandise, further expanding the licensed portfolio and brand presence. The Canterbury NZ x MND x British & Irish Lions apparel range launched in March 2025, securing strong national media coverage, broad retail distribution, and co-ordinated social support across partner channels. This specific range was stocked in major high street sporting retailers, wholesale channels and CCC Ecommerce platform, with total sales reaching almost £10k.

At a corporate partnership level, Switch Car & Van Rental and Breadalbane continue to support the Foundation, with both having renewed in 2025. We also value the support of our merchandise partners, whose efforts enhance our visibility and help raise funds across the UK.

Logan Sports Marketing, the Foundation’s commercial events and marketing agency, continues to provide dedicated and proactive support across our portfolio of activities. We greatly value this partnership and the expertise it brings as we continue to develop and strengthen the organisation.

Research & Impact

Research remains our fundamental focus and 2025 saw us publish the second-year impact report of our research strategy ‘Catalysing a Cure’. We remain committed to providing an update each year on the progress we have made towards our goals.

In our Research Strategy, we set out our mission to fund, guide and enable the smartest, most efficient research to expedite the development of new treatments, and ultimately, a cure. Our strategic priorities are to Validate therapeutic targets, Accelerate new treatments and Improve translation and our approach to deliver these is to invest in cutting-edge translational research, encourage collaboration and drive the adoption of new approaches and ways of thinking.

Invest

In our research strategy, we said we would invest in the best cutting-edge translational research projects and kickstart initiatives that encourage collaboration. In 2025 we:

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MY NAME'5 DODDIE FOUNDATION

TRUSTEES' REPORT (CONTINUED)

FOR THE YEAR ENDED 31 DECEMBER 2025

Partner

In our research strategy, we said we would partner with those who can help us to achieve our vision of a world free of MND.

In 2025:

Influence

In our research strategy, we said we would influence the scientific and political agenda to boost investment and support for translational MND research.

In 2025:

Involve

In our strategy, we promised to involve people affected by MND in everything we do, including research funding and activities.

We continued to do this in 2025:

Financial review

Total income for the twelve months to 31 December 2025 was £6.6 million (2024: £6.9 million). Almost all the income raised in the year was generated through generous donations, either from fundraising events hosted by third party organisations or direct from the general public.

Expenditure recognised during the year totalled £7.0 million (2024: £10.1 million) of which £5.9 million (2024: £9.1 million) was directed towards charitable activities, including the major funding awards outlined in note 10 and explained in the achievements and performance section of this report. Charitable expenditure therefore represents 84% (2024: 89%) of total expenditure.

At 31 December 2025, the charity held unrestricted funds of £4.5 million (2024: £5.0 million) and restricted reserves of £50k (2024: £(8k)). The Board recognise that a balance is required between spending on charitable causes and the need to hold funds until appropriate research proposals are received.

The policy of the Trustees remains in place to hold sufficient reserves to support all donations and grants that have been pledged, plus a minimum of 6 months estimated operating expenditure. This level of reserves is consistent with the approach taken by many similar sized charities. Based on our 2025 budgets, this is a maximum of £1.3 million. As at the year end, the unrestricted reserves balance were £4.5 million, following a period of rapid growth in 2023 and continued efforts to reduce reserves in a responsible and impactful way. This is significantly higher than is needed to ensure the short-term smooth running of the charity in the event of a sudden decline in income, however further grant commitments made in early 2026 continue to reduce our reserves in a well-governed manner. Trustees believe that the Foundation’s research strategy represents a bold yet sustainable approach to reducing the level of reserves in a responsible way.

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MY NAME'5 DODDIE FOUNDATION

TRUSTEES' REPORT (CONTINUED)

FOR THE YEAR ENDED 31 DECEMBER 2025

Risks and Uncertainties

The Board regularly assess the risks to which the charity is exposed and are satisfied that appropriate systems and processes are in place to mitigate these risks. In particular, the Board will only authorise payments, grants or donations if sufficient cleared funds are held in cash by the Foundation. The main operational risk the Foundation has been exposed to remains the variable income relating to the number of people taking part in our events. To protect the Foundation from these fluctuations the Board of Trustees have always taken a conservative approach to budgeting for income. This will allow the Foundation to continue its support in respect of its aims and objectives, while ensuring that an adequate level of reserves is held to ensure that it can maintain its promotion of its work as a means to encourage donations to support its aims. The future fundraising plans are based on a conservative approach to ensure we meet our aims.

The Board recognises that direct taxation is a risk to every charity and we have taken steps to mitigate by setting up a trading subsidiary for risk management and tax compliance reasons in 2025. My Name'5 Doddie Trading Limited is wholly owned by the Foundation and began trading on 1[st] May 2026.

Structure, governance and management

The Foundation is a Scottish Charitable Incorporated Organisation (SCIO), registered in Scotland by the Office of the Scottish Charity Regulator (OSCR) under number SC047871 from October 2017.

The board welcomed Catriona (Cat) Woolner-Winders as a trustee in 2025. Cat brings her invaluable experience as a Chief Communications Brand and Sustainability Officer to our board. By the end of 2025 we had a board of seven Trustees, all of whom are the organisation’s only members and are responsible for the strategic direction of the charity. The Board meets at least four times a year, all sessions are minuted.

The trustees who served during 2025 were:

Ian Watt (Chairman) Matt Cooper Annabel Howell John Jeffrey Stuart Paul Kathy Weir Stewart Weir (resigned 10th September 2025) Catriona Woolner-Winders (appointed 20[th] January 2025)

As well as regular full Trustee Board meetings, the Board has a Governance & Nominations Committee (GNC); Audit & Finance Committee (AFC); and Remuneration Committee. The GNC, amongst other things, is responsible for recruiting new Trustees and supports the orientation, education, and development of all Trustees. A Board Manual is provided to all Trustees and gives structure to the induction of new Trustees. The Board has undertaken an assessment to map the current Board competencies, skills and experience to identify any gaps and highlight the types of skills desired in potential new Board members.

Succession-planning for our board is of the utmost importance and in 2026 plans are in place for the retirement of our Chair, Ian Watt, who has served since 2022. Under his leadership, the Board has navigated significant developments and strengthened our governance, we are grateful for Ian’s commitment, insight, and support for the Foundation.

Key Management Personnel

Chief Executive Officer Nicola Roseman Chief Financial Officer Kerri Brown Director of Comms and Fundraising Paul Thompson

Director of Research Jessica Lee (returned from maternity leave 15th September 2025) Dr Madina Kara (maternity cover ended 6th November 2025)

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MY NAME'5 DODDIE FOUNDATION

TRUSTEES' REPORT (CONTINUED)

FOR THE YEAR ENDED 31 DECEMBER 2025

The Board of Trustees consider the above as key management personnel of the Foundation and they are instructed and authorised by the Board to deal with the daily operational activity of the charity.

The Board of Trustees and key management personnel meet quarterly, and the meetings cover Foundation objectives and activities as well as financial performance. Key decisions are taken by the Trustees, and the decisions are implemented by the Executive team.

The Remuneration Committee considers the level of payments made to key management personnel, using benchmarking information from other similar charitable organisations.

The Trustees do not receive formal training but following appointment received a presentation and information on the role and duties of a trustee. Should a need for additional training of Trustees be identified in the future, appropriate steps will be taken to address this in conjunction with legal advisors, professional advisors or the regulator.

Future Plans

Our vision remains ‘a world free of MND’ and we are determined to push forward until it’s a reality. Our Research Strategy “Catalysing a Cure”, is now into its 3rd year and we aim to accelerate the identification of promising new targets for MND treatments through the establishment of our Discovery Network. Within the network, multiinstitutional and multi-disciplinary teams will collaborate in an open-science environment to better understand MND biology and identify new targets. To ensure rapid and efficient translation, teams will be supported to secure additional funding or establish new partnerships to progress the most promising targets.

Future fundraising activities will build upon the many successful events undertaken and there are several exciting challenges planned with partners as well as our annual signature Doddie Aid campaign early 2026 and Doddie’s Triple Crown shortly after.

We are grateful that fundraising will continue in Hong Kong, with an agreement in place for the community there to host an annual dinner during the week of the Hong Kong Sevens with support from HKRFU, Cathay Pacific, HSBC and Laureus.

With Doddie’s drive and determination behind us, we have grown into a strong, influential and well-supported force within the MND community. We work closely with partners to fund the smartest, most efficient research. Our goal is simple: faster routes to effective treatments.

But we are not there yet. There is still urgent work to do. We must accelerate research, strengthen collaboration and turn scientific breakthroughs into real treatments. That is how we will achieve our goal.

With your support, we will keep moving forward at pace, focused on impact and guided by the ambition and values that defined our founder, Doddie.

The trustees' report was considered and approved by Trustees and signed on their behalf by:

Ian Watt (Chairman)

Trustee

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MY NAME'5 DODDIE FOUNDATION

STATEMENT OF TRUSTEES' RESPONSIBILITIES

FOR THE YEAR ENDED 31 DECEMBER 2025

The trustees are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

The law applicable to charities in Scotland requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the Foundation and of the incoming resources and application of resources of the Foundation for that year.

In preparing these financial statements, the trustees are required to:

The trustees are responsible for keeping sufficient accounting records that disclose with reasonable accuracy at any time the financial position of the Foundation and enable them to ensure that the financial statements comply with the Charities and Trustee Investment (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the Foundation and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity's website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

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MY NAME'5 DODDIE FOUNDATION

INDEPENDENT AUDITOR'S REPORT

TO THE TRUSTEES OF MY NAME'5 DODDIE FOUNDATION

Opinion

We have audited the financial statements of My Name'5 Doddie Foundation for the year ended 31 December 2025 which comprise the Statement of Financial Activities, Balance Sheet, the Statement of Cash Flows and the notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102, The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charity in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the Trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the Foundation's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the Trustees' with respect to going concern are described in the relevant sections of this report.

Other information

The other information comprises the information included in the annual report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information; we are required to report that fact.

We have nothing to report in this regard.

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MY NAME'5 DODDIE FOUNDATION

INDEPENDENT AUDITOR'S REPORT (CONTINUED)

TO THE TRUSTEES OF MY NAME'5 DODDIE FOUNDATION

Matters on which we are required to report by exception

We have nothing to report in respect of the following matters in relation to which the Charities Accounts (Scotland) Regulations 2006 as amended require us to report to you if, in our opinion:

Responsibilities of trustees

As explained more fully in the statement of Trustees' responsibilities, set out on page 7, the Trustees are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the Trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the Trustees are responsible for assessing the charity's ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the Trustees either intend to liquidate the charity or to cease operations, or have no realistic alternative but to do so.

Auditor responsibilities for the audit of the financial statements

We have been appointed as auditor under the Charities and Trustee Investment (Scotland) Act 2005 and report in accordance with regulations made under that Act.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor's report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The specific procedures for this engagement and the extent to which these are capable of detecting irregularities, including fraud are detailed below.

Identifying and assessing risks related to irregularities:

We assessed the susceptibility of the charity’s financial statements to material misstatement and how fraud might occur, including through discussions with the trustees, discussions within our audit team planning meeting, updating our record of internal controls and ensuring these controls operated as intended. We evaluated possible incentives and opportunities for fraudulent manipulation of the financial statements. We identified laws and regulations that are of significance in the context of the charity by discussions with trustees and updating our understanding of the sector in which the charity operates.

Laws and regulations of direct significance in the context of the charity include the Charities and Trustee Investment (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006 (as amended) and guidance issued by the Office of the Scottish Charity Regulator.

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MY NAME'5 DODDIE FOUNDATION

INDEPENDENT AUDITOR'S REPORT (CONTINUED) TO THE TRUSTEES OF MY NAME'5 DODDIE

Audit response to risks identified:

We considered the extent of compliance with these laws and regulations as part of our audit procedures on the related financial statement items including a review of financial statement disclosures. We reviewed the charity’s records of breaches of laws and regulations, minutes of meetings and correspondence with relevant authorities to identify potential material misstatements arising. We discussed the charity’s policies and procedures for compliance with laws and regulations with members of management responsible for compliance.

During the planning meeting with the audit team, the engagement partner drew attention to the key areas which might involve non-compliance with laws and regulations or fraud. We enquired of management whether they were aware of any instances of non-compliance with laws and regulations or knowledge of any actual, suspected or alleged fraud. We addressed the risk of fraud through management override of controls by testing the appropriateness of journal entries and identifying any significant transactions that were unusual or outside the normal course of business. We assessed whether judgements made in making accounting estimates gave rise to a possible indication of management bias. At the completion stage of the audit, the engagement partner’s review included ensuring that the team had approached their work with appropriate professional scepticism and thus the capacity to identify noncompliance with laws and regulations and fraud.

There are inherent limitations in the audit procedures described above and the further removed non-compliance with laws and regulations is from the events and transactions reflected in the financial statements, the less likely we would become aware of it. Also, the risk of not detecting a material misstatement due to fraud is higher than the risk of not detecting one resulting from error, as fraud may involve deliberate concealment by, for example, forgery or intentional misrepresentations, or through collusion.

A further description of our responsibilities is available on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor’s report.

Use of our report

This report is made solely to the charity's trustees, as a body, in accordance with regulation 10 of the Charities Accounts (Scotland) Regulations 2006. Our audit work has been undertaken so that we might state to the charity's trustees those matters we are required to state to them in an auditors' report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charity and the charity's trustees as a body, for our audit work, for this report, or for the opinions we have formed.

Saffery LLP Statutory Auditor 9 Haymarket Square Edinburgh EH3 8RY

Saffery LLP is eligible to act as an auditor in terms of section 1212 of the Companies Act 2006.

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MY NAME'5 DODDIE FOUNDATION

STATEMENT OF FINANCIAL ACTIVITIES

FOR THE YEAR ENDED 31 DECEMBER 2025

Notes
Income from:
Donations
3
Charitable activities
4
Other trading activities
5
Bank interest received
6
Other income
7
Total income
Expenditure on:
Raising funds
8
Charitable activities
9
Total expenditure
Net incoming resources
before transfers
Gross transfers between funds
Net movement in funds
Reconciliation of funds
Fund balances at 1 January 2025
Fund balances at 31 December 2025
22		 Unrestricted
funds
general
£
3,675,397
-
2,229,591
333,334
-
6,238,322
1,110,644
5,746,623
6,857,267
(618,945)
108,950
(509,995)
4,972,044
4,462,049		 Restricted
funds
£
99,985
216,681
-
-
-
316,666
-
150,000
150,000
166,666
(108,950)
57,716
(7,716)
50,000		 Total
2025
£
3,775,382
216,681
2,229,591
333,334
-
6,554,988
1,110,644
5,896,623
7,007,267
(452,279)
-
(452,279)
4,964,328
4,512,049		 Total
2024
£
4,364,067
219,667
1,971,142
308,026
235
6,863,137
1,075,300
9,054,987
10,130,287
(3,267,150)
-
(3,267,150)
8,231,478
4,964,328

The statement of financial activities includes all gains and losses in both the current and prior periods.

All income and expenditure derive from continuing activities.

11

MY NAME'5 DODDIE FOUNDATION

BALANCE SHEET

AS AT 31 DECEMBER 2025

Notes
Fixed assets
Intangible assets
15
Tangible fixed assets
16
Current assets
Stock
Debtors
17
Investments
18
Cash at bank and in hand
27
Creditors: amounts falling due within one
year
19
Net current assets
Creditors: amounts falling due after more
than one year
20
Total net assets
Income funds
Restricted funds
22
Unrestricted funds – general
22		 2025
£
£
94,558
2,894
97,452
17,209
777,159
1,033,858
12,718,550
14,546,776
(4,827,941)
9,718,835
(5,304,238)
4,512,049
50,000
4,462,049
4,512,049		 2024
£
£
60,838
3,739
64,577
24,765
532,743
997,473
12,442,964
13,997,945
(3,902,725)
10,095,220
(5,195,469)
4,964,328
(7,716)
4,972,044
4,964,328		 2024
£
£
60,838
3,739
64,577
24,765
532,743
997,473
12,442,964
13,997,945
(3,902,725)
10,095,220
(5,195,469)
4,964,328
(7,716)
4,972,044
4,964,328
64,577
10,095,220
(5,195,469)
14,546,776
(4,827,941)		 13,997,945
(3,902,725)
4,964,328
(7,716)
4,972,044
4,964,328

The notes on pages 14 to 28 form part of these financial statements.

The financial statements were approved by the Board of Trustees on 1[st] July 2026 and were signed on its behalf by:

Ian Watt (Chairman)

12

MY NAME'5 DODDIE FOUNDATION

STATEMENT OF CASH FLOWS

FOR THE YEAR ENDED 31 DECEMBER 2025

Notes
Cash flows from operating activities
Cash generated from operations
26
Investing activities
Purchase of intangible assets
Purchase of property, plant and equipment
Investment income received
Net cash generated from / (used in) investing
activities
Net cash used in financing activities
Net increase in cash and cash equivalents
Cash and cash equivalents at beginning of
year
Cash and cash equivalents at end of year		 2025
£
£
33,785
(54,000)
(1,148)
333,334
278,186
-
311,971
13,440,437
13,752,408		 2024
£
£
3,245,539
(60,838)
(4,830)
308,026
242,358
-
3,487,897
9,952,540
13,440,437		 2024
£
£
3,245,539
(60,838)
(4,830)
308,026
242,358
-
3,487,897
9,952,540
13,440,437
3,487,897
9,952,540
13,440,437

13

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

1 Accounting policies

Charity information

My Name'5 Doddie Foundation is a Scottish Charitable Incorporated Organisation ("SCIO"), registered in Scotland by the Office of the Scottish Charity Regulator (OSCR) under number SC047871. The registered office address is noted in the legal and administrative page.

1.1 Accounting convention

The financial statements have been prepared in accordance with the Charities and Trustee Investment " (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006, FRS 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland" ("FRS 102") including the provisions of Section 1A applicable to Small Entities and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)".

The Foundation is a Public Benefit Entity as defined by FRS 102.

The financial statements are prepared in sterling, which is the functional currency of the Foundation. Monetary amounts in these financial statements are rounded to the nearest £. The financial statements have been prepared under the historical cost convention, modified to include certain financial instruments at fair value. The principal accounting policies adopted are set out below.

1.2 Going concern

At the time of approving the financial statements, the trustees have a reasonable expectation that the Foundation has adequate resources to continue in operational existence for at least the twelve months following the approval of the financial statements and have not identified a material uncertainty in relation to the ability of the Foundation to continue as a going concern. In making this assessment, the Trustees have considered their plans for any future commitments in relation to the level of unrestricted funds held and are comfortable that the Foundation maintains significant operating headroom. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives unless the funds have been designated for other purposes.

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.

1.4 Income

Income is recognised when the Foundation is entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received. Where income has been received in advance of entitlement, this is deferred to future periods. Income is recorded net of VAT where applicable.

Donations are recognised when received and comprise amounts received which are not connected to the Foundation’s own fundraising events.

Income from grants is recognised when the charity has entitlement to the funds, any performance conditions attached to the grants have been met, it is probable that the income will be received and the amount can be measured reliably and is not deferred.

Income from events is received in the form of donations connected to the Foundation’s own fundraising events, event registration fees and sponsorship. Donations which are freely given and carry no performance obligations are recognised when received. Registration fees for Doddie Aid are recognised when received and participants can access the event app. Sponsorship income is recognised in the period in which the event takes place, when performance obligations are fulfilled.

Income from the sale of merchandise is recognised at point of sale.

14

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

1 Accounting policies

(Continued)

Royalty income comes from licensed use of the Foundation’s brand and is recognised on an accruals basis.

Interest income is accounted for on an accruals basis.

1.5 Expenditure

All expenditure is included on an accruals basis and has been classified under headings that aggregate all costs related to the category. Expenditure is recognised where there is a legal or constructive obligation to make payments to third parties, it is probable that the settlement will be required and the amount of the obligation can be measured reliably.

Expenditure on raising funds includes expenditure incurred by the charity to raise funds for its charitable activities.

Charitable activities expenditure comprises those costs incurred by the charity in the delivery of its activities for the benefit of the beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them.

Grants payable are payments to third parties in the furtherance of the charitable objects of the Foundation. Where research grants are approved and awards communicated to successful applicants, and the trustees expect - based on available evidence - that the Foundation will settle the commitment in full, the total approved amount is recognised immediately as expenditure in the Statement of Financial Activities, with a corresponding liability recognised within creditors. This reflects the best estimate of the obligation at the reporting date. In determining the amount recognised, management applies judgement in assessing whether it is probable that any conditions attached to the grant will be satisfied. Where such conditions are not considered substantive barriers to entitlement, the full value of the committed grant is recognised.

Support costs form part of expenditure on charitable activities and include the costs incurred to facilitate an activity which do not result directly from undertaking the activity. Support costs include general running and management costs. Governance costs include the costs associated with the Foundation's constitutional and statutory requirements.

Irrecoverable VAT is charged as a cost against the relevant category.

1.6 Intangible assets

Intangible assets are capitalised at cost less accumulated amortisation and impairment losses.

Amortisation is provided to write off the cost of assets on a straight-line basis over their expected useful lives. Software and website development costs will be amortised over a period of 3 - 5 years.

The holding values and estimated useful lives of assets are regularly reviewed for impairment triggers and, where deemed appropriate, the assets are written down.

1.7 Tangible fixed assets

Individual fixed assets are stated at cost, less accumulated depreciation and any accumulated impairment losses.

Depreciation is provided on all tangible fixed assets at rates calculated to write off the cost of each asset, net of anticipated disposal proceeds, over its expected useful life as follows: Fixtures and fittings 33% straight line Office equipment 33% straight line

1.8 Stock

Stock is valued at the lower of cost and net realisable value.

1.9 Cash and cash equivalents

Cash and cash equivalents are basic financial assets and include cash in hand and deposits held at call with banks.

15

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

1 Accounting policies

(Continued)

1.10 Financial instruments

The Foundation has elected to apply the provisions of Section 11 'Basic Financial Instruments' and Section 12 'Other Financial Instruments Issues' of FRS 102 to all of its financial instruments.

Financial instruments are recognised in the Foundation's balance sheet when the Foundation becomes party to the contractual provisions of the instrument.

Basic financial assets

Basic financial assets, which include debtors, investments and cash and bank balances, are measured at transaction price including transaction costs.

Basic financial liabilities

Basic financial liabilities, including creditors are recognised at transaction price.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less.

Derecognition of financial liabilities

Financial liabilities are derecognised when the Foundation's contractual obligations expire or are discharged or cancelled.

1.11 Employee benefits

The cost of any unused holiday entitlement is recognised in the period in which the employee's services are received.

1.12 Retirement benefits

Payments to defined contribution retirement benefit schemes are charged as an expense as they fall due.

1.13 Current asset investments

Current asset investments are measured at cost.

1.14 Grant commitments

Grants to institutions and partner organisations are made to organisations to deliver the Foundation's aims and objectives. The full value of the grant is recognised in the year in which the commitment is made and shown as a long or short-term creditor as appropriate. A discount is applied to grant commitments not yet paid falling due after more than one year to adjust the valuation to its present value as at the balance sheet date.

2 Critical accounting estimates and judgements

' In the application of the Foundation s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

In the view of the trustees, no critical accounting judgements have been made in these financial statements.

The most significant area of estimation that affects items in the financial statements relates to the estimate of grant commitments not yet paid falling due after more than one year. These are estimated based on the portfolio of outstanding grant commitments as at the reporting date, with reference to the grant contract which states the period over which the grant is awarded. A discount factor is applied to payments due after more than one year to reflect the valuation at its present value. In determining the amount recognised, management applies judgement in assessing whether it is probable that any conditions attached to the grant will be satisfied. Where such conditions are not considered substantive barriers to entitlement, the full value of the committed grant is recognised.

16

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

3
Donations
Donations and gifts
Legacies
4
Charitable activities
Grants received
5
Other trading activities
Events income
Royalties received
Merchandise income
Sponsorship		 Unrestricted
Restricted
Unrestricted
Restricted
Funds
Funds
Funds
Funds
general
general
Total
general
general
Total
2025
2025
2025
2024
2024
2024
£
£
£
£
£
£
3,381,143
99,985
3,481,128
3,806,476
100,000
3,906,476
294,254
-
294,254
457,591
-
457,591
3,675,397
99,985
3,775,382
4,264,067
100,000
4,364,067
Unrestricted
Unrestricted
Funds
Restricted
Funds
Restricted
general
Funds
Total
general
Funds
Total
2025
2025
2025
2024
2024
2024
£
£
£
£
£
£
-
216,681
216,681
3,000
216,667
219,667
Unrestricted
Unrestricted
Funds
Funds
general
general
2025
2024
£
£
2,053,174
1,763,524
123,423
164,202
20,494
33,006
32,500
10,410
2,229,591
1,971,142
6
Bank interest received
Bank interest received
7
Other income
Other		 Unrestricted
Unrestricted
Funds
Funds
general
general
2025
2024
£
£
333,334
308,026
Unrestricted
Unrestricted
Funds
Funds
general
general
2025
2024
£
£
-
235

17

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

8
Raising Funds
Commissions Paid
Event marketing
General marketing, fundraising and PR costs
Other fundraising costs
Event fees
Donations platform fees
Merchandise
9
Charitable activities
Staff costs
Medical research consultancy
Grant funding (note 10)
Share of support costs (note 11)
Share of governance (note 11)
VAT
Analysis by fund
Unrestricted general
Restricted funds		 Unrestricted
Unrestricted
Funds
Funds
general
general
2025
2024
£
£
91,326
85,735
-
6,023
528,183
547,670
83,546
39,722
328,616
251,993
58,063
72,454
20,910
71,703
1,110,644
1,075,300
2025
2024
£
£
817,474
692,244
105,621
101,137
923,095
793,381
4,451,167
7,864,270
368,277
262,234
129,013
115,339
25,071
19,763
5,896,623
9,054,987
5,746,623
9,013,952
150,000
41,035
5,896,623
9,054,987

18

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

10 Grants pledged in year

Research grants are generally awarded to a principal investigator, although the actual award is made to the host institution.

Non-research grants were awarded to MND Association and MND Scotland to support people living with MND. Small non-research grants may be awarded directly to individuals or organisations to support people living with MND.

Grants no longer required relates to unspent amounts of grants awarded in previous years.

2025 2024
Unrestricted Restricted **Total ** Unrestricted Restricted Total
£ £ £ £ £ £
Research Grants Research Institution
MN5DF/024 LifeArc Translational Fund - University College London - - - 8,562 - 8,562
MN5DF/025 LifeArc Translational Fund - University of Newcastle - - - 28,715 - 28,715
MN5DF/028 UK MND Research Institute - King's College London - - - 32,747 - 32,747
MN5DF/AH/100008 King's College London 883 - 883 17,507 - 17,507
MN5DF/AH/100004 University of Liverpool - - - 22,968 - 22,968
MN5DF/2AA/100001 King's College London - - - 49,967 - 49,967
MN5DF/029 Early Diagnosis Training Programme - - - 130,000 - 130,000
MN5DF/030 Longitude Prize - - - 937,743 - 937,743
MN5DF/038 Expert ALS / Turner McDermott 941,282 - 941,282 - - -
MN5DF/UKMNDRI100002 UK MND Research Institute (MND RI) Phase 2 1,905,754 - 1,905,754 - - -
Project awards
MN5DF/PA23/100001 University of Oxford - - - 257,403 - 257,403
MN5DF/PA23/100004 University College London - - - 457,844 - 457,844
Catalyst Awards
MN5DF/CAau23/027 University College London - - - 100,000 - 100,000
MN5DF/CAau23/008 Royal Veterinary College - - - 37,475 40,000 77,475
MN5DF/CAau23/025 University of Glasgow - - - 47,619 - 47,619
2CA/100006 CA / Oxford / Dafinca 49,543 50,441 99,984 - - -
2CA/100019 CA / Edinburgh / Gillingwater - 89,559 89,559 - - -
2CA/100014 CA / Swansea / Davies 99,959 - 99,959 - - -
2CA/100017 CA / KCL / White 99,640 - 99,640 - - -

19

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

Clinical Infrastructure Awards
MN5DF/CI/100001
University of Oxford
2CRIA/100009
CI / St Georges / Galtrey
2CRIA/100003
CI / NCA / Chaouch
2CRIA/100004
CI / Cardiff and Vale / Massey
2CRIA/100012
CI / Norfolk and Norwich / Barry
2CRIA/100010
CI / Glasgow / Gorrie
2CRIA/100014
CI / Newcastle / Williams
2CRIA/100015
CI / Sussex / Barritt
Discovery Network Awards
2DNFA\100021
University College London
2DNFA\100018
University of Oxford
2DNFA\100010
King's College London
2DNFA\100019
University of Edinburgh
Advancing Treatment Awards
MN5DF/ATA24/100017
University of Sheffield
MN5DF/ATA24/100019
University of Sheffield
MN5DF/ATA24/100010
University of Edinburgh
MN5DF/ATA24/100016
University College London
MN5DF/ATA24/100022
University of Edinburgh
Non Research Grants
MND Association
MND Scotland
Other non-research grants
Grants returned
Grants awarded in previous years no longer required
Discounting adjustments		 2025
2024
Unrestricted
Restricted
Total Unrestricted
Restricted
Total
£
£
£
£
£
£
50,832
-
50,832
39,716
-
39,716
123,504
-
123,504
-
-
-
124,036
-
124,036
-
-
-
119,971
-
119,971
-
-
-
112,738
-
112,738
-
-
-
119,830
-
119,830
-
-
-
89,861
-
89,861
-
-
-
76,682
-
76,682
-
-
-
-
-
-
948,540
-
948,540
-
-
-
934,784
-
934,784
-
-
-
950,283
-
950,283
-
-
-
937,842
-
937,842
-
-
-
275,304
-
275,304
-
-
-
359,229
-
359,229
-
-
-
390,608
-
390,608
-
-
-
369,674
-
369,674
-
-
-
280,594
-
280,594
100,000
-
100,000
150,000
-
150,000
-
-
-
75,000
-
75,000
65,000
10,000
75,000
8,771
10,000
18,771
(5,336)
-
(5,336)
(10,964)
-
(10,964)
226,988
-
226,988
(14,696)
(8,965)
(23,661)
4,301,167
150,000
4,451,167
7,823,235
41,035
7,864,270

20

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

11 Support and Governance costs

Administration costs
Bank charges
Travel expenses
IT costs
Recruitment fees
Sundry
Depreciation
Amortisation
Audit fee – prior year
Audit fee – current year
Accountancy fees
Legal and professional
Analysed between
Charitable activities		 Support
Costs
£
156,341
1,251
40,373
141,883
6,179
(22)
1,993
20,279
-
-
-
-
368,277
368,277		 Governance
costs
£
-
-
-
-
-
-
-
-
28,800
29,700
27,334
43,179
129,013
129,013		 2025
£
156,341
1,251
40,373
141,883
6,179
(22)
1,993
20,279
28,800
29,700
27,334
43,179
497,290
497,290		 Basis of
2024
allocation
£
100,339
Direct
1,499
Direct
47,692
Direct
92,737
Direct
11,674
Direct
7,202
Direct
1,091
Direct
-
Direct
36,600
Direct
33,500
Direct
38,775
Direct
6,464
Direct
377,573
377,573

12 Auditor's remuneration

ditor's remuneration
Restated
Unrestricted Unrestricted
Funds Funds
general general
2025 2024
£ £
Audit of the annual accounts 29,700 28,800

13 Trustees

None of the trustees (or any persons connected with them) received any remuneration from the Foundation during the current or prior period. During the period two trustees (2024 - one) were reimbursed expenses, totalling £4,230, for travel related costs (2024 - £88).

14 Employees

The average monthly number of employees during the year was:

Employment costs
Wages and salaries
Social security costs
Other pension costs
Agency costs
Staff training		 2025
2024
Number
Number
16
14
2025
2024
£
£
701,238
594,403
72,376
58,926
34,837
31,281
-
-
9,023
7,634
817,474
692,244

21

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

The key management personnel of the charity comprise the Chief Executive Officer and the Executive team which is made up of the Chief Financial Officer, Director of Fundraising and Director of Research.

Total costs in respect of key management personnel were £396,966 (2024 - £375,746).

The number of employees whose annual remuneration was more than £60,000 is as follows:

Between £60,000 - £70,000
Between £70,001 - £80,000
Between £80,001 - £90,000
Between £90,001 - £100,000
15
Intangible assets
Cost
As at 1 January 2025
Additions
As at 31 December 2025
Amortisation
As at 1 January 2025
Charge
As at 31 December 2025
Net book value as at 31 December 2025
Net book value as at 31 December 2024		 2025
2024
Number
Number
-
-
1
-
2
3
1
-
Web
Development
Total
£
£
60,838
60,838
54,000
54,000
114,838
114,838
-
-
20,280
20,280
20,280
20,280
94,558
94,558
60,838
60,838

22

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

16
Fixed assets
Cost
As at 1 January 2025
Additions
As at 31 December 2025
Depreciation
As at 1 January 2025
Charge
As at 31 December 2025
Net book value as at 31 December 2025
Net book value as at 31 December 2024
17
Debtors
Amounts falling due within one year:
Trade debtors
Prepayments and accrued income
Other debtors
18
Current asset investment
Cash held in investment portfolio		 Fixtures &
Fittings
£
1,321
-
1,321
367
440
807
514
954		 Office
Equipment
£
3,510
1,148
4,658
725
1,553
2,278
2,380
2,785
2025
£
47,105
681,854
48,200
777,159
2025
£
1,033,858		 Total
£
4,831
1,148
5,979
1,092
1,993
3,085
2,894
3,739
2024
£
40,742
491,328
673
532,743
2024
£
997,473

23

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

19
Creditors
Trade creditors
Accruals and grants payable
Taxation and social security
Other creditors
20
Creditors due after more than one year
Accruals and grants payable		 2025
£
54,528
4,700,021
16,783
56,609
4,827,941
2025
£
5,304,238		 2024
£
91,203
3,707,488
100,734
3,300
3,902,725
2024
£
5,195,469

21 Retirement benefit schemes Defined contribution schemes

Defined contribution schemes

The Foundation operates a defined contribution pension scheme for all qualifying employees. The assets of the scheme are held separately from those of the Foundation in an independently administered fund.

The charge to net income in respect of defined contribution schemes was £34,837 (2024 – £31,281).

22 Funds movement in the year

The funds of the charity include restricted funds, comprising the following funds received for specific purpose: Restricted funds


Restricted funds
University College London -
Patani
Tolkein Trust
Catalyst Fund
Longitude Prize		 Balance at
1
January
2025
£
(166,681)
58,965
100,000
-
(7,716)		 Income
£
166,681
50,000
-
99,985
316,666		 Expenditure
£
-
(50,000)
(100,000)
-
(150,000)		 Transfer
£
-
(8,965)
-
(99,985)
(108,950)		 Balance at
31
December
2025
£
-
50,000
-
-
50,000

The ‘University College London – Patani’ restricted fund represents funds from MNDF Hong Kong to support research to better understand the link between DNA damage, RNA processing and MND.

Tolkein Trust – represents grant funding from the Tolkein Trust to support our Catalyst Award scheme and projects that align with our ‘Support’ pillar, providing grants focused on care and support.

Catalyst Fund – represents donations received from philanthropic giving to support our Catalyst Award scheme, supporting researchers by providing small pots of money for testing proof-of-principle ideas and to gather the preliminary data they need to attract larger investment.

24

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

Longitude Prize – represents donations received from MNDF Hong Kong to contribute towards our commitment to the Longitude Prize on ALS, a new £7.5 million global challenge prize to incentivise and reward cutting edge AIbased approaches to transform drug discovery for the treatment of ALS, the most common form of MND.

During 2025 we received a restricted donation of £99,985 from MNDF Hong Kong, contributing towards our commitment to the Longitude Prize on ALS. This commitment has been transferred from Unrestricted to Restricted Funds in the year.

Balance
at 1
January
2025
Income
Expenditure
Transfer
£
£
£
£
Unrestricted funds
4,972,044
6,238,322
(6,857,267)
108,950
4,972,044
6,238,322
(6,857,267)
108,950
Restricted funds
Balance at
1
January
2024
Income
Expenditure
Transfer
£
£
£
£
University College London -
Patani
(333,348)
166,667
-
Tolkein Trust
-
50,000
(41,035)
50,000
Catalyst Fund
-
100,000
-
-
(333,348)
316,667
(41,035)
50,000
Unrestricted funds
Balance at
1 January
Net gains /
(losses) on
investments
2024
Income
Expenditure
£
£
£
£
Unrestricted funds
8,564,826
6,546,470
(10,089,252)
(50,000)
8,564,826
6,546,470
(10,089,252)
(50,000)		 Balance at
31
December
2025
£
4,462,049
4,462,049
Balance at
31
December
2024
£
(166,681)
58,965
100,000
(7,716)
Balance at
31
December
2024
£
4,972,044
4,972,044

25

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

23 Analysis of net assets between funds

Fund balances at 31 December 2025 are
represented by:
Intangible assets
Fixed assets
Investments
Current assets / (liabilities)
Fund balances at 31 December 2024 are
represented by:
Intangible assets
Fixed assets
Investments
Current assets / (liabilities)		 Unrestricted
funds
2025
£
94,558
2,894
1,033,858
3,330,739
4,462,049
Restated
Unrestricted
funds
2024
£
60,838
3,739
997,473
3,909,994
4,972,044		 Restricted
funds
2025
£
-
-
-
50,000
50,000
Restricted
funds
2024
£
-
-
(7,716)
(7,716)		 Total
2025
£
94,558
2,894
1,033,858
3,380,739
4,512,049
Total
2024
£
60,838
3,739
997,473
3,902,278
4,964,328

24 Related party transactions

During 2025 we recognised £166,681 of restricted grant income and £99,985 of restricted donations from MN5DF Hong Kong (2024 - £166,667). We paid £6,318 of costs relating to the MNDF Hong Kong fundraising dinner (£3,600 auctioneer fees and £2,718 table costs). (2024 - £4,150 auctioneer fees and filming costs), payments to Key Management Personnel as detailed in note 14 and the reimbursement of travel costs to Trustees as detailed in note 13.

25 Operating leases

Amounts paid in year
Due within one year
Due within two - five years		 2025
2024
£
£
2,022
-
3,783
-
5,990
-
9,773
-

26

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

26 Cash generated from operating activities

Net income for the year
Adjustments for:
Investment income recognised in statement of financial activities
Movements in working capital:
Depreciation
Amortisation
Decrease / (Increase) in stock
(Increase) in debtors
Increase in creditors
Cash generated from operating activities		 2025
2024
£
£
(452,279)
(3,267,150)
(333,334)
(308,026)
1,993
1,091
20,280
-
7,556
(24,765)
(244,416)
(63,392)
1,033,985
6,907,781
33,785
3,245,539

27 Analysis of changes in net funds

Cash held in investment portfolio
Cash at bank and in hand		 At 1
January
2025
Cash flows
At 31
December
2025
£
£
£
997,473
36,385
1,033,858
12,442,964
275,586
12,718,550
13,440,437
311,971
13,752,408

28 Post Balance Sheet Event

My Name'5 Doddie Trading Limited, a wholly owned subsidiary of the Foundation, began trading on 1st May 2026. The trading subsidiary was incorporated for the purposes of ringfencing commercial trading activities from the Foundation's core operations for risk management purposes and to facilitate tax compliance.

27

MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 DECEMBER 2025

29 Statement of Financial Activities 2024

Income from:
Donations
Charitable activities
Other trading activities
Bank interest received
Other income
Total income
Expenditure on:
Raising funds
Charitable activities
Total expenditure
Net gains / (losses) on investments
Net incoming resources
before transfers
Gross transfers between funds
Net movement in funds
Reconciliation of funds
Fund balances at 1 January 2024
Fund balances at 31 December
2024		 Unrestricted
funds
general
£
4,264,067
3,000
1,971,142
308,026
235
6,546,470
1,075,300
9,013,952
10,089,252
-
(3,542,782)
(50,000)
(3,592,782)
8,564,826
4,972,044		 Restricted
funds
£
100,000
216,667
-
-
-
316,667
-
41,035
41,035
275,632
50,000
325,632
(333,348)
(7,716)		 Total
2024
£
4,364,067
219,667
1,971,142
308,026
235
6,863,137
1,075,300
9,054,987
10,130,287
(3,267,150)
-
(3,267,150)
8,231,478
4,964,328

28