**Charity Registration No. SC047871 (Scotland)** 

## **MY NAME'5 DODDIE FOUNDATION** 

**ANNUAL REPORT AND FINANCIAL STATEMENTS** 

**FOR THE YEAR ENDED 31 DECEMBER 2024** 



**MY NAME'5 DODDIE FOUNDATION** 

## **LEGAL AND ADMINISTRATIVE INFORMATION** 

## **Trustees** 

**Chief Executive Officer Charity number (Scotland)** SC047871 **Principal address** Thorn House 5 Rose Street Edinburgh EH2 2PR **Auditor** Saffery LLP 9 Haymarket Square Edinburgh EH3 8RY **Bankers** Hampden Bank 20/21 Charlotte Square Edinburgh EH2 4DF Royal Bank of Scotland Plc 36 St Andrew Square Edinburgh EH2 2AD **Investment Manager** Waverton Wealth Planning LLP Exchange Tower 19 Canning Street Edinburgh EH3 8EH 



**MY NAME'5 DODDIE FOUNDATION** 

## **CONTENTS** 

||**Page**|
|---|---|
|Trustees' report|1 - 6|
|Statement of Trustees' responsibilities|7|
|Independent auditor's report|8 - 10|
|Statement of financial activities|11|
|Balance sheet|12|
|Statementofcash flows|13|
|Notes to the financial statements|14 - 27|





## **MY NAME'5 DODDIE FOUNDATION** 

## **TRUSTEES' REPORT** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

The trustees are pleased to present their report and financial statements for the period ended 31 December 2024. 

The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the Foundation's Constitution, the Charities and Trustee Investment (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006, FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). 

## **Who we are** 

Doddie Weir OBE was one of rugby’s most recognisable personalities. He earned 61 caps for Scotland during a successful playing career, represented the British and Irish Lions on their successful tour to South Africa in 1997, and won championships with his two club sides, Melrose and Newcastle Falcons. 

A talented, committed and athletic lock forward, Doddie then faced his biggest challenge. In June 2017 he revealed he was living with motor neuron disease (MND). From the outset, Doddie was driven to help others in the same position and seek ways to further research into this, as yet, incurable disease. 

In November 2017, Doddie and his trustees launched the registered charity, My Name’5 Doddie Foundation. Our vision is simple: A World Free of MND. 

The number “5” is a special number for the Foundation. It features in the Foundation’s name and is a reference to Doddie’s playing number for his clubs, Melrose and Newcastle Falcons, and the jersey he wore when he earned his 61 caps for Scotland. 

## **About MND** 

Motor neuron disease (MND) is a rapidly progressing neurological disease that affects the brain and spinal cord. More than 5,000 people in the UK are living with MND at any one time and the lifetime risk of dying from the disease is around one in 300. 

As symptoms progress, MND can leave people locked inside a failing body, unable to move, talk, swallow or even breathe. Every day, six people are diagnosed with MND. Another six people die. 

There are virtually no effective treatments. There is no cure. 

## **Objectives and activities** 

The Foundation's purposes are set out in its constitution. It raises funds to aid research into the causes of MND and investigate potential cures, and to provide grants to individuals affected by  MND enabling them to live as fulfilled a life as possible. 

The Foundation's key aims and objectives are: 

- the advancement of health, the saving of lives and the relief of those in need by reason of age, illhealth, disability, financial hardship or other disadvantage, as a result of MND; 

- for the purposes of benefiting the public and, in particular, through education and medical research relating to MND; 

- financial support, for individuals or family members of individuals living with MND; 

- by developing and assisting the treatment of individuals living with MND; and 

- for the benefit of such one or more Charity or Charities as the Trustees in their unfettered discretion may decide; or for the implementation or assistance in implementing any Charitable Purpose or purposes as the Trustees in their unfettered discretion may decide. 

Through the Board of Trustees, the Foundation delivers its aims and objectives through the making of grants, donations, loans, gifts or pensions to individuals and makes grants, donations or gifts to relevant organisations. 

1 



## **MY NAME'5 DODDIE FOUNDATION TRUSTEES' REPORT (CONTINUED)** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **Achievements and performance** 

Throughout 2024 the Foundation continued to concentrate on its core activity of investing in targeted MND research projects as outlined in our research strategy ‘Catalysing a Cure’ and helping people living with MND. We celebrated our 7th anniversary in mid-November and, thanks to our wonderful fundraisers, shared that we had committed over £18m to 40+ research projects within the last 7 years. 

My Name’5 Doddie Foundation remains on a solid financial footing with funds available to honour its various commitments to vital MND research at several centres across the UK.  In 2024 the Foundation gave a total of £150k to MND Association and £75k to MND Scotland and committed a further £150k to MND Association and £75k to MND Scotland to be paid in 2025. 

The Foundation continues to attract widespread support through increased focus on MND in the media and high-profile fundraising events. The engagement from rugby and sporting clubs, individuals, families and organisations that are committed to supporting the Foundation is incredible and our ongoing relationship with Scottish Rugby is much appreciated. 

As part of our annual signature fundraising campaign, Doddie Aid, we kicked off 2024 with 17,000 participants logging 1.7 million miles, raising £1.4m over the month-long activity challenge.  As part of this event, mbarked upon an epic cycle adventure ‘All Roads Lead to Rome’ – the core team began in Oban and rode in continuous relay for four days, carrying the match ball for the Scotland vs Italy Six Nations match on 9th March. We continue to build on the success of previous years’ events driven by social media activation and attracted widespread celebrity endorsement and media coverage. Doddie Aid remains a positive way to engage with our supporters, giving purpose and a sense of community to kick-start the year. 

We are always impressed with the creativity shown by our community of supporters, whether it be bringing the idea of a tartan tractor to life, or seeing people living with MND embarking on challenges that have included an 84 mile Hadrian’s Wall hike, a 444-mile cycle from Suffolk to Cornwall on a tricycle, and even cheering on the first person with MND ever to compete at international level parasport snowsports winning two silver medals. 

We are proud to have a broad range of support that includes golf, rides, treks, horse races, swims to dinners, Burns Suppers, bake-sales, raffles and much more.  There are so many wonderful events throughout the year that it’s difficult to highlight only a few, however since its unveiling, the tartan tractor, a JCB Fastrac named ‘Doddie the iCON’, has made appearances at many farming events including the Royal Highland Show and led a convoy of more than 250 tractors from Turriff to Inverurie.  We were an official charity partner for the Burghley Horse Trials and had a My Name’5 Doddie Garden designed at the Tatton Park Royal Horticultural Society Flower Show. Both provided great opportunities to raise awareness of MND and bring new people into our community. 

The cycling community continued to look for opportunities to get on their bikes in support of our work. Around 60 participants supported us at the Threshold's Ride Across Britain, cycling the 980 miles from Land's End to John O'Groats across nine days. It was wonderful to be able to give them a warm welcome at Biggar Rugby Club on day six of the challenge. Another adventure for the Ride of the Legends team pushed beyond our shores, riding from San Francisco to New York, and it was brilliant to see ‘Doddie'5 Ride USA’ prove such a success. 

Another highlight was latest challenge ‘Running Home for Christmas’ – over 7 days, an an astonishing 50km per day, covering 7 different UK regions in total, all to benefit a range of MND charities. Our team of volunteers joined locations across the UK and gave very warm Scottish welcome in Glasgow as he crossed the finish line at Scotstoun. 

Becoming an official charity partner of the British and Irish Lions Trust, has been a fantastic opportunity to further deepen our ties to the rugby community, while strengthening our reach beyond Scotland. We held two Lions Long Lunches, in Edinburgh and London, in 2024 and have further events planned to maximise the partnership in 2025. 

For all the community events and challenges that are embarked on, we consistently see love, fun and hope in abundance. For that, we are extremely grateful, and we cannot fund the MND research projects without the tremendous energy that each supporter brings. 

2 



## **MY NAME'5 DODDIE FOUNDATION** 

## **TRUSTEES' REPORT (CONTINUED)** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

Our Doddie’s Clubhouse regular giving program has grown to around 600 members. The newsletter that members receive keeps everyone up to date on what’s going on in the Foundation and provides invaluable insight into research being funded. 

At the end of 2024, and early this year, we welcomed new partnerships with Canterbury NZ & The British & Irish Lions (apparel), Royal & Awesome (golf wear), Duncan Taylor (whisky), Gilbert Rugby (rugby balls), Novelty Bottle Coolers (stubby and can coolers) and Quirky Chocolate (chocolate bars). We continue to count Switch/Thrifty Car & Van Rental, Breadalbane, OddBalls, The Cycle Jersey, Scotland Shop, Ellis Rugby, Raging Bull, Halbro, Angus Alchemy, Gen!us Brewing, Cold Town House, Icons Art, Liaisons Gallery, The Rugga Coffee co., Sporting Wine Club and You Are The Star Books as valued key partners, official supporters, and merchandise partners. 

Logan Sports Marketing, the commercial events and marketing agency used by the Foundation, continues to work tirelessly on our behalf and we value this relationship greatly as we move forward as an organisation. 

## **Research & Impact** 

Research remains our fundamental focus and 2024 saw us publish the first-year impact report of our research strategy ‘Catalysing a Cure’.  We are committed to providing an update each year on the progress we have made towards our goals. 

In our Research Strategy, we set out our mission to fund, guide and enable the smartest, most efficient research to expedite the development of new treatments, and ultimately, a cure. Our strategic priorities are to Validate therapeutic targets, Accelerate new treatments and Improve translation and our approach to deliver these is to invest in cutting-edge translational research, encourage collaboration and drive the adoption of new approaches and ways of thinking. 

## **Invest** 

- In 2024, alongside our Research Review Committee, we set up our Discovery Network Advisory Board made up of independent experts from academia, industry, alongside people affected by MND. 

- We launched two new competitive funding programmes: 

   - Discovery Network Awards for multi-disciplinary, multi-institutional teams to apply for £1 million over 3 years. Teams will take on bold ideas and innovative approaches to better understand the biology of MND, with a focused goal of identifying new therapeutic targets. The Network will be underpinned by a culture of collaboration and open science. 

   - Clinical Research Infrastructure Awards to support clinical trial staff specialising in the delivery of MND trials to enable centres to either begin recruiting to MND trials for the first time or provide additional capacity at sites that already recruit to MND trials that have the potential to expand their portfolio and increase recruitment numbers. 

- We ran two additional funding calls for schemes established in 2023: 

   - Advancing Treatments Awards to enable the translation of potential targets into new treatments. 

   - Catalyst Awards to help researchers bring bold, innovative and early-stage ideas to life. 

- In total, we committed over £8m to cutting-edge research projects targeting all three of our strategic priorities 

- We became a full member of the Association of Medical Research Charities (AMRC), meaning we’re awarding funding to the highest standard to ensure we only invest in the very best science 

We said we would **partner** with those who can help us achieve our vision. We said we’d pool our resources with other funders to generate larger funding and create more impact by investing in research together. 

## **Partner** 

- We continued to work with the International Alliance of ALS/MND Associations, partnering with them on a project focusing on developing a training course that is universally applicable that would give healthcare professionals the knowledge and tools to empower them to make earlier ALS/MND diagnoses or earlier referrals to ALS/MND specialists. We continued to be part of their forum of international Research Directors to share knowledge and expertise on a global scale. 

- We co-funded projects with the MND Association and Darby Rimmer MND Foundation. 

- We continued to partner with other UK funders (National Institute of Health and Care Research, Medical Research Council, LifeArc, MND Association and MND Scotland) to fund the UK MND Collaborative Partnership (UK MND Research Institute). 

3 



**MY NAME'5 DODDIE FOUNDATION** 

## **TRUSTEES' REPORT (CONTINUED)** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

We said we would **influence** the scientific and political agenda to boost investment and support for translational MND research. 

## **Influence** 

- We have encouraged translational research in MND through our focused award scheme, the Advancing Treatments Awards. This is the first annual award in the UK focused on this type of research in MND. 

- • We brought our scientific advisors together twice to delve into the latest research developments, inform our Research Strategy, and influence the research agenda. 

We promised to **involve** people living with MND, their families, and carers in all our work. We wanted to ensure their needs and priorities would be at the heart of our activities. 

## **Involve** 

- Alongside the four people affected by MND who are on our Research Review Committee, we recruited three people living with MND onto our Discovery Network Advisory Board and they have helped decide which projects to fund. 

- People living with MND attended our scientific advisory board meetings to bring their perspectives and hold our researchers to account. 

## **Financial review** 

Total income for the twelve months to 31 December 2024 was £6.9 million (2023: £8.2 million). Of this £4.4 million of the income raised in the year was generated through generous donations, either from fundraising events hosted by third party organisations or direct from the general public. 

During the year we invested £61,000 in developing the Doddie Aid app which has been recognised as an intangible asset in the Balance Sheet.  Engagement with supporters during the Doddie Aid campaign is key to its success and this investment will give users a better experience, improve functionality, introduce gamification, and deliver more content for our supporters. 

Expenditure recognised during the year totalled £10.1 million (2023: £3.9 million) of which £9.1 million (2023: £2.7 million) was directed towards charitable activities, including the major funding awards outlined in note 10 and explained in the achievements and performance section of this report. Charitable expenditure therefore represents 89% (2023: 70%) of total expenditure. 

At 31 December 2024, the charity held unrestricted funds of £5.0 million (2023: £8.6 million) and restricted reserves of (£8k) (2023: (£333k)). The Board recognise that a balance is required between spending on charitable causes and the need to hold funds until appropriate research proposals are received. 

The policy of the Trustees remains in place to hold sufficient reserves to support all donations and grants that have been pledged, plus a minimum of 6 months estimated operating expenditure. 

## **Risks and Uncertainties** 

The Board regularly assess the risks to which the charity is exposed and are satisfied that appropriate systems and processes are in place to mitigate these risks. In particular, the Board will only authorise payments, grants or donations if sufficient cleared funds are held in cash by the Foundation. 

The main operational risk the Foundation has been exposed to remains the variable income relating to the number of people taking part in our events. To protect the Foundation from these fluctuations the Board of Trustees have always taken a conservative approach to budgeting for income.  This will allow the Foundation to continue its support in respect of its aims and objectives, while ensuring that an adequate level of reserves is held to ensure that it can maintain its promotion of its work as a means to encourage donations to support its aims. The future fundraising plans are based on a conservative approach to ensure we meet our aims. 

The Board recognises that direct taxation is a risk to every charity and we have taken steps to mitigate by setting up a trading subsidiary for risk management and tax compliance reasons in 2025. 

## **Structure, governance and management** 

The Foundation is a Scottish Charitable Incorporated Organisation (SCIO), registered in Scotland by the Office of the Scottish Charity Regulator (OSCR) under number SC047871 from October 2017. 

4 



**MY NAME'5 DODDIE FOUNDATION** 

## **TRUSTEES' REPORT (CONTINUED)** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

By the end of 2024 we had a board of seven Trustees, all of whom are the organisation’s only members and are responsible for the strategic direction of the charity. The Board meets at least four times a year, all sessions are minuted. 

The trustees who served during 2024 were: 


(appointed 20[th] January 2025) (resigned 28[th] October 2024) 

As well as regular full Trustee Board meetings, the Board has a Governance & Nominations Committee (GNC); Audit & Finance Committee (AFC); and Remuneration Committee.  The GNC, amongst other things, is responsible for recruiting new Trustees and supports the orientation, education, and development of all Trustees.  A Board Manual is provided to all Trustees and gives structure to the induction of new Trustees.  The Board has undertaken an assessment to map the current Board competencies, skills and experience to identify any gaps and highlight the types of skills desired in potential new Board members. 

Key Management Personnel 

Chief Executive Officer 

Chief Financial Officer Director of Comms and Fundraising Director of Research 


The Board of Trustees consider the above as key management personnel of the Foundation and they are instructed and authorised by the Board to deal with the daily operational activity of the charity. 

The Board of Trustees and key management personnel meet quarterly and the meetings cover Foundation objectives and activities as well as financial performance.  Key decisions are taken by the Trustees and the decisions are implemented by the Executive team. 

The Remuneration Committee considers the level of payments made to key management personnel, using benchmarking information from other similar charitable organisations. 

The Trustees do not receive formal training but following appointment received a presentation and information on the role and duties of a trustee.  Should a need for additional training of Trustees be identified in the future, appropriate steps will be taken to address this in conjunction with legal advisors, professional advisors or the regulator. 

## **Future Plans** 

As we work to deliver our Research Strategy “Catalysing a Cure”, we aim to accelerate the identification of promising new targets for MND treatments through the establishment of our Discovery Network.  Within the network, multi-institutional and multi-disciplinary teams will collaborate in an open-science environment to better understand MND biology and identify new targets. To ensure rapid and efficient translation, teams will be supported to secure additional funding or establish new partnerships to progress the most promising targets. Our vision remains ‘a world free of MND’ and we are determined to push forward until it’s a reality. 

5 



## **MY NAME'5 DODDIE FOUNDATION** 

## **TRUSTEES' REPORT (CONTINUED)** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

Future fundraising activities will build upon the many successful events undertaken and there are several exciting challenges planned with partners including the British & Irish Lions tour of Australia in 2025. 

Fundraising will continue in Hong Kong, with an agreement in place for the community there to host an annual dinner during the week of the Hong Kong Sevens with support from HKRFU, Cathay Pacific, HSBC and Laureus. 

With Doddie’s enthusiasm and drive, we have collaborated with other stakeholders within the 

MND community and firmly established the Foundation as a trusted, influential and well supported charity.  Our vision of a world free of MND remains at the heart of our strategy. As we look to the future, we will honour Doddie’s name and deliver on his legacy. There is much still to do and with your support, we will continue our work, remaining true to the values and ambition of our founder. 

The trustees' report was considered and approved by Trustees and signed on their behalf by: 


6 



## **MY NAME'5 DODDIE FOUNDATION** 

## **STATEMENT OF TRUSTEES' RESPONSIBILITIES** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

The trustees are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). 

The law applicable to charities in Scotland requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the Foundation and of the incoming resources and application of resources of the Foundation for that year. 

In preparing these financial statements, the trustees are required to: 

- select suitable accounting policies and then apply them consistently; 

- observe the methods and principles in the Charities SORP (FRS 102); 

- make judgements and estimates that are reasonable and prudent; 

- state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; and 

- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation. 

The trustees are responsible for keeping sufficient accounting records that disclose with reasonable accuracy at any time the financial position of the Foundation and enable them to ensure that the financial statements comply with the Charities and Trustee Investment (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the Foundation and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. 

The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity's website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions. 

7 



## **MY NAME'5 DODDIE FOUNDATION** 

## **INDEPENDENT AUDITOR'S REPORT** 

## **TO THE TRUSTEES OF MY NAME'S DODDIE FOUNDATION** 

## **Opinion** 

We have audited the financial statements of My Name'5 Doddie Foundation for the year ended 31 December 2024 which comprise the Statement of Financial Activities, Balance Sheet, the Statement of Cash Flows and the notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102, The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice). 

In our opinion, the financial statements: 

- give a true and fair view of the state of the Charity's affairs as at 31 December 2024 and of its incoming resources and application of resources, for the year then ended; 

- have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and 

- have been prepared in accordance with the requirements of the Charities and Trustee Investment (Scotland) Act 2005 and regulation 8 of the Charities Accounts (Scotland) Regulations 2006 (as amended). 

## **Basis for opinion** 

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charity in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion. 

## **Conclusions relating to going concern** 

In auditing the financial statements, we have concluded that the Trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate. 

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the Foundation's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue. 

Our responsibilities and the responsibilities of the Trustees' with respect to going concern are described in the relevant sections of this report. 

## **Other information** 

The other information comprises the information included in the annual report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information; we are required to report that fact. 

We have nothing to report in this regard. 

8 



## **MY NAME'5 DODDIE FOUNDATION** 

## **INDEPENDENT AUDITOR'S REPORT (CONTINUED)** 

## **TO THE TRUSTEES OF MY NAME'5 DODDIE  FOUNDATION** 

## **Matters on which we are required to report by exception** 

We have nothing to report in respect of the following matters in relation to which the Charities Accounts (Scotland) Regulations 2006 as amended require us to report to you if, in our opinion: 

- the information given in the trustees’ annual report is inconsistent in any material respect with the financial statements; or 

- the charity has not kept proper accounting records; or 

- the financial statements are not in agreement with the accounting records and returns; or 

- we have not received all the information and explanations we require for our audit. 

## **Responsibilities of trustees** 

As explained more fully in the statement of Trustees' responsibilities, set out on page 7, the Trustees are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the Trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error. 

In preparing the financial statements, the Trustees are responsible for assessing the charity's ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the Trustees either intend to liquidate the charity or to cease operations, or have no realistic alternative but to do so. 

## **Auditor responsibilities for the audit of the financial statements** 

We have been appointed as auditor under the Charities and Trustee Investment (Scotland) Act 2005 and report in accordance with regulations made under that Act. 

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor's report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements. 

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The specific procedures for this engagement and the extent to which these are capable of detecting irregularities, including fraud are detailed below. 

## Identifying and assessing risks related to irregularities: 

We assessed the susceptibility of the charity’s financial statements to material misstatement and how fraud might occur, including through discussions with the trustees, discussions within our audit team planning meeting, updating our record of internal controls and ensuring these controls operated as intended. We evaluated possible incentives and opportunities for fraudulent manipulation of the financial statements. We identified laws and regulations that are of significance in the context of the charity by discussions with trustees and updating our understanding of the sector in which the charity operates. 

Laws and regulations of direct significance in the context of the charity include the Charities and Trustee Investment (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006 (as amended) and guidance issued by the Office of the Scottish Charity Regulator. 

9 



## **MY NAME'5 DODDIE FOUNDATION** 

## **INDEPENDENT AUDITOR'S REPORT (CONTINUED) TO THE TRUSTEES OF MY NAME'5 DODDIE** 

## Audit response to risks identified: 

We considered the extent of compliance with these laws and regulations as part of our audit procedures on the related financial statement items including a review of financial statement disclosures. We reviewed the charity’s records of breaches of laws and regulations, minutes of meetings and correspondence with relevant authorities to identify potential material misstatements arising. We discussed the charity’s policies and procedures for compliance with laws and regulations with members of management responsible for compliance. 

During the planning meeting with the audit team, the engagement partner drew attention to the key areas which might involve non-compliance with laws and regulations or fraud. We enquired of management whether they were aware of any instances of non-compliance with laws and regulations or knowledge of any actual, suspected or alleged fraud. We addressed the risk of fraud through management override of controls by testing the appropriateness of journal entries and identifying any significant transactions that were unusual or outside the normal course of business. We assessed whether judgements made in making accounting estimates gave rise to a possible indication of management bias. At the completion stage of the audit, the engagement partner’s review included ensuring that the team had approached their work with appropriate professional scepticism and thus the capacity to identify noncompliance with laws and regulations and fraud. 

There are inherent limitations in the audit procedures described above and the further removed non-compliance with laws and regulations is from the events and transactions reflected in the financial statements, the less likely we would become aware of it. Also, the risk of not detecting a material misstatement due to fraud is higher than the risk of not detecting one resulting from error, as fraud may involve deliberate concealment by, for example, forgery or intentional misrepresentations, or through collusion. 

A further description of our responsibilities is available on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor’s report. 

## **Use of our report** 

This report is made solely to the charity's trustees, as a body, in accordance with regulation 10 of the Charities Accounts (Scotland) Regulations 2006. Our audit work has been undertaken so that we might state to the charity's trustees those matters we are required to state to them in an auditors' report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charity and the charity's trustees as a body, for our audit work, for this report, or for the opinions we have formed. 


Safffery LLP is eligible to act as an auditor in terms of section 1212 of the Companies Act 2006. 

10 



## **MY NAME'5 DODDIE FOUNDATION** 

## **STATEMENT OF FINANCIAL ACTIVITIES** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

|**Notes**<br>**Income from:**<br>Donations<br>**3**<br>Charitable activities<br>**4**<br>Other trading activities<br>**5**<br>Bank interest received<br>**6**<br>Other income<br>**7**<br>**Total income**<br>**Expenditure on:**<br>Raising funds<br>**8**<br>Charitable activities<br>**9**<br>**Total expenditure**<br>**Net incoming resources**<br>**before transfers**<br>Gross transfers between funds<br>**Net movement in funds**<br>**Reconciliation of funds**<br>Fund balances at 1 January 2024<br>Fund balances at 31 December 2024<br>**22**|**Unrestricted**<br>**funds**<br>**general**<br>**£**<br>4,264,067<br>3,000<br>1,971,142<br>308,026<br>235<br>6,546,470<br>1,075,300<br>9,013,952<br>10,089,252<br>(3,542,782)<br>(50,000)<br>(3,592,782)<br>8,564,826<br>4,972,044|**Restricted**<br>**funds**<br>**£**<br>100,000<br>216,667<br>-<br>-<br>-<br>316,667<br>-<br>41,035<br>41,035<br>275,632<br>50,000<br>325,632<br>(333,348)<br>(7,716)|**Total**<br>**2024**<br>**£**<br>4,364,067<br>219,667<br>1,971,142<br>308,026<br>235<br>6,863,137<br>1,075,300<br>9,054,987<br>10,130,287<br>(3,267,150)<br>-<br>(3,267,150)<br>8,231,478<br>4,964,328|**Restated**<br>**Total**<br>**2023**<br>**£**<br>6,402,829<br>416,652<br>1,246,661<br>90,466<br>200|
|---|---|---|---|---|
|||||8,156,808|
|||||1,169,399<br>2,730,827|
|||||3,900,226|
|||||4,256,582<br>-|
|||||4,256,582<br>3,974,896|
|||||8,231,478|



The statement of financial activities includes all gains and losses in both the current and prior periods. 

All income and expenditure derive from continuing activities. 

11 



## **MY NAME'5 DODDIE FOUNDATION** 

## **BALANCE SHEET** 

## _**AS AT 31 DECEMBER 2024**_ 

|**Notes**<br>**Fixed assets**<br>Intangible assets<br>**15**<br>Tangible fixed assets<br>**16**<br>**Current assets**<br>Stock<br>Debtors<br>**17**<br>Investments<br>**18**<br>Cash at bank and in hand<br>**26**<br>**Creditors: amounts falling due within one year**<br>**19**<br>Net current assets<br>**Creditors: amounts falling due after more than**<br>**one year**<br>**20**<br>**Total net assets**<br>Income funds<br>Restricted funds<br>**22**<br>Unrestricted funds – general<br>**22**|**2024**<br>**£**<br>**£**<br>60,838<br>3,739<br>64,577<br>24,765<br>532,743<br>997,473<br>12,442,964<br>13,997,945<br>(3,902,725)<br>10,095,220<br>(5,195,469)<br>4,964,328<br>(7,716)<br>4,972,044<br>4,964,328|**Restated**<br>**2023**<br>**£**<br>**£**<br>-<br>-<br>-<br>469,351<br>957,865<br>8,994,675<br>10,421,891<br>(2,190,413)<br>8,231,478<br>-<br>8,231,478<br>(333,348)<br>8,564,826<br>8,231,478|**Restated**<br>**2023**<br>**£**<br>**£**<br>-<br>-<br>-<br>469,351<br>957,865<br>8,994,675<br>10,421,891<br>(2,190,413)<br>8,231,478<br>-<br>8,231,478<br>(333,348)<br>8,564,826<br>8,231,478|
|---|---|---|---|
||||8,231,478<br>-|
||13,997,945<br>(3,902,725)|10,421,891<br>(2,190,413)||
|||||
||||8,231,478|
||||(333,348)<br>8,564,826|
||||8,231,478|



The notes on pages 14 to 27 form part of these financial statements. 

The financial statements were approved by the Board of Trustees on ……………………………………... and were signed on its behalf by: 


12 



## **MY NAME'5 DODDIE FOUNDATION** 

## **STATEMENT OF CASH FLOWS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

|**Notes**<br>**Cash flows from operating activities**<br>Cash generated from operations<br>**25**<br>**Investing activities**<br>Purchase of intangible assets<br>Purchase of property, plant and equipment<br>Investment income received<br>**Net cash generated from / (used in) investing**<br>**activities**<br>**Net cash used in financing activities**<br>**Net increase in cash and cash equivalents**<br>**Cash and cash equivalents at beginning of**<br>**year**<br>**Cash and cash equivalents at end of year**|**2024**<br>**£**<br>**£**<br>3,245,539<br>(60,838)<br>(4,830)<br>308,026<br>242,358<br>-<br>3,487,897<br>9,952,540<br>13,440,437|**Restated**<br>**2023**<br>**£**<br>**£**<br>5,179,216<br>-<br>-<br>90,466<br>90,466<br>-<br>5,269,682<br>4,662,858<br>9,952,540|**Restated**<br>**2023**<br>**£**<br>**£**<br>5,179,216<br>-<br>-<br>90,466<br>90,466<br>-<br>5,269,682<br>4,662,858<br>9,952,540|
|---|---|---|---|
|||||
||||5,269,682<br>4,662,858|
||||9,952,540|



Statement of cash flows for 2023 has been restated to include investment cash equivalents of £957,865. 

13 



**MY NAME'5 DODDIE FOUNDATION NOTES TO THE FINANCIAL STATEMENTS** 

_**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **1 Accounting policies** 

## **Charity information** 

My Name'5 Doddie Foundation is a Scottish Charitable Incorporated Organisation ("SCIO"), registered in Scotland by the Office of the Scottish Charity Regulator (OSCR) under number SC047871. The registered office address is noted in the legal and administrative page. 

## **1.1 Accounting convention** 

The financial statements have been prepared in accordance with the Charities and Trustee Investment " (Scotland) Act 2005, the Charities Accounts (Scotland) Regulations 2006, FRS 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland" ("FRS 102") including the provisions of Section 1A applicable to Small Entities and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)". 

The Foundation is a Public Benefit Entity as defined by FRS 102. 

The financial statements are prepared in sterling, which is the functional currency of Foundation. Monetary amounts in these financial statements are rounded to the nearest £. The financial statements have been prepared under the historical cost convention, modified to include certain financial instruments at fair value. The principal accounting policies adopted are set out below. 

## **1.2 Going concern** 

At the time of approving the financial statements, the trustees have a reasonable expectation that the Foundation has adequate resources to continue in operational existence for at least the twelve months following the approval of the financial statements and have not identified a material uncertainty in relation to the ability of the Foundation to continue as a going concern. In making this assessment, the Trustees have considered their plans for any future commitments in relation to the level of unrestricted funds held and are comfortable that the Foundation maintains significant operating headroom. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements. 

## **1.3 Charitable funds** 

Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives unless the funds have been designated for other purposes. 

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements. 

## **1.4 Income** 

Income is recognised when the Foundation is entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received. Where income has been received in advance of entitlement, this is deferred to future periods. 

Donations are recognised when received and comprise amounts received which are not connected to the Foundation’s own fundraising events. 

Income from grants is recognised when the charity has entitlement to the funds, any performance conditions attached to the grants have been met, it is probable that the income will be received and the amount can be measured reliably and is not deferred. 

Income from events is recognised in the period in which the event takes place. 

Income from the sale of merchandise is recognised at point of sale. 

Royalty income comes from licensed use of the Foundation’s brand and is recognised on an accruals basis. 

Interest income is accounted for on an accruals basis. 

14 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **1 Accounting policies** 

**(Continued)** 

## **1.5 Expenditure** 

All expenditure is included on an accruals basis and has been classified under headings that aggregate all costs related to the category. Expenditure is recognised where there is a legal or constructive obligation to make payments to third parties, it is probable that the settlement will be required and the amount of the obligation can be measured reliably. 

Expenditure on raising funds includes expenditure incurred by the charity to raise funds for its charitable activities. 

Charitable activities expenditure comprises those costs incurred by the charity in the delivery of its activities for the benefit of the beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them. 

Grants payable are payments to third parties in the furtherance of the charitable objects of the Foundation. Grants are accounted for when the recipient has a reasonable expectation that they will receive a grant and the trustees have agreed to pay the grant, without conditions preventing recognition. 

Support costs form part of expenditure on charitable activities and include the costs incurred to facilitate an activity which do not result directly from undertaking the activity. Support costs include general running and management costs. Governance costs include the costs associated with the Foundation's constitutional and statutory requirements. 

Irrecoverable VAT is charged as a cost against the relevant category. 

## **1.6 Intangible assets** 

Intangible assets are capitalised at cost less accumulated amortisation and impairment losses. 

Amortisation is provided to write off the cost of assets on a straight-line basis over their expected useful lives. Software and website development costs will be amortised over a period of 3 - 5 years. 

The holding values and estimated useful lives of assets are regularly reviewed for impairment triggers and, where deemed appropriate, the assets are written down. 

## **1.7 Tangible fixed assets** 

Individual fixed assets are stated at cost, less accumulated depreciation and any accumulated impairment losses. 

Depreciation is provided on all tangible fixed assets at rates calculated to write off the cost of each asset, net of anticipated disposal proceeds, over its expected useful life as follows: Fixtures and fittings 33% straight line Office equipment 33% straight line 

33% straight line 33% straight line 

## **1.8 Stock** 

Stock is valued at the lower of cost and net realisable value. 

## **1.9 Cash and cash equivalents** 

Cash and cash equivalents are basic financial assets and include cash in hand and deposits held at call with banks. 

## **1.10 Financial instruments** 

The Foundation has elected to apply the provisions of Section 11 'Basic Financial Instruments' and Section 12 'Other Financial Instruments Issues' of FRS 102 to all of its financial instruments. 

Financial instruments are recognised in the Foundation's balance sheet when the Foundation becomes party to the contractual provisions of the instrument. 

## _**Basic financial assets**_ 

Basic financial assets, which include debtors, investments and cash and bank balances, are measured at 

. 

15 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **1 Accounting policies** 

**(Continued)** 

transaction price including transaction costs. 

## _**Basic financial liabilities**_ 

Basic financial liabilities, including creditors are recognised at transaction price. 

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less 

## _**Derecognition of financial liabilities**_ 

Financial liabilities are derecognised when the Foundation's contractual obligations expire or are discharged or cancelled. 

## **1.11 Employee benefits** 

The cost of any unused holiday entitlement is recognised in the period in which the employee's services are received. 

## **1.12 Retirement benefits** 

Payments to defined contribution retirement benefit schemes are charged as an expense as they fall due. 

## **1.13 Current asset investments** 

Current asset investments are measured at cost. 

## **1.14 Grant commitments** 

Grants to institutions and partner organisations are made to organisations to deliver the Foundation's aims and objectives. The full value of the grant is recognised in the year in which the commitment is made and shown as a long or short-term creditor as appropriate. A discount is applied to grant commitments not yet paid falling due after more than one year to adjust the valuation to its present value as at the balance sheet date. 

## **2 Critical accounting estimates and judgements** 

' In the application of the Foundation s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates. 

In the view of the trustees, no critical accounting judgements have been made in these financial statements. 

The most significant area of estimation that affects items in the financial statements relates to the estimate of grant commitments not yet paid falling due after more than one year. These are estimated based on the portfolio of outstanding grant commitments as at the reporting date, with reference to the grant contract which states the period over which the grant is awarded. A discount factor is applied to payments due after more than one year to reflect the valuation at its present value. 

16 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

- **3 Donations** 

||||**Unrestricted**|**Unrestricted**|<br>**Restricted**|||
|---|---|---|---|---|---|---|---|
|||||**Funds**|<br>**Funds**|||
|||||**general**|<br>**general**|**Total**|**Total**|
|||||**2024**|<br>**2024**|**2024**|**2023**|
|||||**£**||**£**|**£**|
||Donations and gifts|||3,806,476|<br>100,000|3,906,476|6,402,829|
||Legacies|||457,591|<br>-|457,591|-|
|||||4,264,067|<br>100,000|4,364,067|6,402,829|
|**4**|**Charitable activities**|||||||
|||**Unrestricted**|||**Unrestricted**|||
|||**Funds**|**Restricted**||**Funds**|**Restricted**||
|||**general**|**Funds**|**Total**|**general**|**Funds**|**Total**|
|||**2024**|**2024**|**2024**|**2023**|**2023**|**2023**|
|||**£**|**£**|**£**|**£**|**£**|**£**|
||Grants received|3,000|216,667|219,667|50,000|366,652|416,652|



## **5 Other trading activities** 

|**ther trading activities**||
|---|---|
|Events income<br>Royalties received<br>Merchandise income<br>Sponsorship|**Unrestricted**<br>**Unrestricted**<br>**Funds**<br>**Funds**<br>**general**<br>**general**<br>**2024**<br>**2023**<br>**£**<br>**£**<br>1,763,524<br>999,453<br>164,202<br>192,970<br>33,006<br>34,238<br>10,410<br>20,000|
||1,971,142<br>1,246,661|



- **6 Bank interest received** 

|**6**<br>**Bank interest received**||
|---|---|
|Bank interest received<br>**7**<br>**Other income**|**Unrestricted**<br>**Unrestricted**<br>**Funds**<br>**Funds**<br>**general**<br>**general**<br>**2024**<br>**2023**<br>**£**<br>**£**<br>308,026<br>90,466|
|||



||**Unrestricted**|**Unrestricted**|
|---|---|---|
||**Funds**|**Funds**|
||**general**|**general**|
||**2024**|**2023**|
||**£**|**£**|
|Other|235|200|



17 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

- **8 Raising Funds** 

|Commissions Paid<br>Event marketing<br>General marketing, fundraising and PR costs<br>Other fundraising costs<br>Event fees<br>Travel associated with fund raising<br>Donations platform fees<br>Merchandise<br>**aritable activities**<br>Staff costs<br>Medical research consultancy<br>Grant funding (note 10)<br>Share of support costs (note 11)<br>Share of governance (note 11)<br>VAT<br>**Analysis by fund**<br>Unrestricted general<br>Restricted funds||**Unrestricted**<br>**Unrestricted**<br>**Funds**<br>**Funds**<br>**general**<br>**general**<br>**2024**<br>**2023**<br>**£**<br>**£**<br>85,735<br>166,910<br>6,023<br>7,038<br>547,670<br>459,412<br>39,722<br>1,048<br>251,993<br>371,962<br>-<br>1,177<br>72,454<br>53,017<br>71,703<br>108,835|
|---|---|---|
|||1,075,300<br>1,169,399|
|||**2024**<br>**2023**<br>**£**<br>**£**<br>692,244<br>507,680<br>101,137<br>116,407<br>793,381<br>624,087<br>7,864,270<br>1,788,446<br>262,234<br>215,437<br>115,339<br>66,207<br>19,763<br>36,650<br>9,054,987<br>2,730,827<br>9,013,952<br>2,230,827<br>41,035<br>500,000<br>9,054,987<br>2,730,827|



- **9 Charitable activities** 

18 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **10 Grants pledged in year** 

Research grants are generally awarded to a principal investigator, although the actual award is made to the host institution. 

Non-research grants were awarded to MND Association and MND Scotland to support people living with MND.  Small non-research grants may be awarded directly to individuals or organisations to support people living with MND. 

Grants no longer required relates to unspent amounts of grants awarded in previous years. 

||||**2024**||||**2023**|||
|---|---|---|---|---|---|---|---|---|---|
|||**Unrestricted**<br>**Restricted**||**Total**|**Unrestricted**||**Restricted**|**Total**||
|||**£**<br>**£**||**£**|**£**||**£**|**£**||
|**Research Grants**|**Research Institution**|||||||||
|MN5DF/018|University of Edinburgh|-|-||-|83,004||-|83,004|
|MN5DF/018|University of Oxford|-|-||-|56,438||-|56,438|
|MN5DF/2022/001|King's College London|-|-||-|250,000||-|250,000|
|MN5DF/2022/002|University College London|-|-||-|50,000||-|50,000|
|MN5DF/2022/003|University College London|||||-|<br>500,000||500,000|
|MN5DF/024|LifeArc Translational Fund - University College London|8,562|-||8,562|-||-|-|
|MN5DF/025|LifeArc Translational Fund - University of Newcastle|28,715|-||28,715|-||-|-|
|MN5DF/028|UK MND Research Institute - King's College London|32,747|-||32,747|-||-|-|
|MN5DF/APP/005|University of Glasgow|-|-||-|14,893||-|14,893|
|MN5DF/AH/100008|King's College London|17,507|-||17,507|-||-|-|
|MN5DF/AH/100004|University of Liverpool|22,968|-||22,968|-||-|-|
|MN5DF/2AA/100001|King's College London|49,967|-||49,967|-||-|-|
|MN5DF/029|Early Diagnosis Training Programme|130,000|-||130,000|-||-|-|
|MN5DF/030|Longitude Prize|937,743|-||937,743|-||-|-|
|Project awards||||||||||
|MN5DF/PA23/100001|University of Oxford|257,403|-||257,403|-||-|-|
|MN5DF/PA23/100003|King's College London|-|-||-|500,000||-|500,000|
|MN5DF/PA23/100004|University College London|457,844|-||457,844|-||-|-|
|Catalyst Awards||||||||||
|MN5DF/CAau23/027|University College London|100,000|-||100,000|-||-|-|
|MN5DF/CAau23/008|Royal Veterinary College|37,475|40,000||77,475|-||-|-|
|MN5DF/CAau23/025|University of Glasgow|47,619|-||47,619|-||-|-|
|Clinical Infrastructure Awards||||||||||
|MN5DF/CI/100001|University of Oxford|39,716|-||39,716|-||-|--|
||||||||||-|



19 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

|||||**2024**|||**2023**||
|---|---|---|---|---|---|---|---|---|
||||**Unrestricted**|**Restricted**|**Total **|**Unrestricted**|**Restricted**|**Total**|
||||**£**|**£**|**£**|**£**|**£**|**£**|
|Discovery Network Awards|||||||||
|2DNFA\100021||University College London|948,540|-|948,540|-|-|-|
|2DNFA\100018||University of Oxford|934,784|-|934,784|-|-|-|
|2DNFA\100010||King's College London|950,283|-|950,283|-|-|-|
|2DNFA\100019||University of Edinburgh|937,842|-|937,842|-|-|-|
|Advancing Treatment Awards|||||||||
|MN5DF/ATA24/100017|University of Sheffield||275,304|-|275,304|-|-|-|
|MN5DF/ATA24/100019|University of Sheffield||359,229|-|359,229|-|-|-|
|MN5DF/ATA24/100010|University of Edinburgh||390,608|-|390,608|-|-|-|
|MN5DF/ATA24/100016|University College London||369,674|-|369,674|-|-|-|
|MN5DF/ATA24/100022|University of Edinburgh||280,594|-|280,594|-|-|-|
|**Non Research Grants**|||||||||
|MND Association|||150,000|-|150,000|150,000|-|150,000|
|MND Scotland|||75,000|-|75,000|75,000|-|75,000|
|Other non-research grants|||8,771|10,000|18,771|113,180|-|113,180|
|Grants returned|||-|-|-|(4,069)|-|(4,069)|
|Grants awarded in previous years no longer required|||(10,964)|-|(10,964)|-|-|-|
|Discounting adjustments|||(14,696)|(8,965)|(23,661)||||
||||7,823,235|41,035|7,864,270|1,288,446|500,000|1,788,446|



20 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **11 Support and Governance costs** 

|Administration costs<br>Bank charges<br>Travel expenses<br>IT costs<br>Recruitment fees<br>Sundry<br>Depreciation<br>Audit fee – prior year<br>Audit fee – current year<br>Accountancy fees<br>Legal and professional<br>Analysed between<br>Charitable activities|**Support**<br>**Costs**<br>**£**<br>100,339<br>1,499<br>47,692<br>92,737<br>11,674<br>7,202<br>1,091<br>-<br>-<br>262,234<br>262,234|**Governance**<br>**costs**<br>**£**<br>-<br>-<br>-<br>-<br>-<br>-<br>-<br>36,600<br>33,500<br>38,775<br>6,464<br>115,339<br>115,339|**2024**<br>**£**<br>100,339<br>1,499<br>47,692<br>92,737<br>11,674<br>7,202<br>1,091<br>36,600<br>33,500<br>38,775<br>6,464<br>377,573<br>377,573|**Basis of**<br>**2023**<br>**allocation**<br>**£**<br>64,642<br>Direct<br>2,115<br>Direct<br>37,238<br>Direct<br>76,583<br>Direct<br>3,055<br>Direct<br>31,804<br>Direct<br>-<br>Direct<br>12,000<br>Direct<br>12,600<br>Direct<br>17,312<br>Direct<br>24,295<br>Direct<br>281,644<br>281,644|
|---|---|---|---|---|



## **12 Auditor's remuneration** 

|**ditor's remuneration**|||
|---|---|---|
||**Unrestricted**|**Unrestricted**|
||**Funds**|**Funds**|
||**general**|**general**|
||**2024**|**2023**|
||**£**|**£**|
|Audit of the annual accounts|33,500|18,000|



## **13 Trustees** 

None of the trustees (or any persons connected with them) received any remuneration from the Foundation during the current or prior period. During the period one trustee (2023 - two) was reimbursed expenses, totalling £88, for travel related costs (2023 - £911). 

## **14 Employees** 

The average monthly number of employees during the year was: 

|**Employment costs**<br>Wages and salaries<br>Social security costs<br>Other pension costs<br>Agency costs<br>Staff training|**2024**<br>**2023**<br>**Number**<br>**Number**<br>14<br>9|
|---|---|
||**2024**<br>**2023**<br>**£**<br>**£**<br>594,403<br>414,505<br>58,926<br>44,390<br>31,281<br>20,068<br>-<br>25,819<br>7,634<br>2,898|
||692,244<br>507,680|



21 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

The key management personnel of the charity comprise the Chief Executive Officer and the Executive team which is made up of the Chief Financial Officer, Director of Fundraising and Director of Research. 

Total costs in respect of key management personnel were £375,746 (2023 - £293,246). 

The number of employees whose annual remuneration was more than £60,000 is as follows: 

|Between £60,000 - £70,000<br>Between £70,001 - £80,000<br>Between £80,001 - £90,000<br>**15**<br>**Intangible assets**<br>**Cost**<br>Additions<br>As at 31 December 2024<br>**Amortisation**<br>Charge<br>As at 31 December 2024<br>**Net book value as at 31 December 2024**<br>**16**<br>**Fixed assets**<br>**Cost**<br>Additions<br>As at 31 December 2024<br>**Depreciation**<br>Charge<br>As at 31 December 2024<br>**Net book value as at 31 December 2024**|**Fixtures &**<br>**Fittings**<br>**£**<br>1,321<br>1,321<br>367<br>367<br>954|**2024**<br>**Number**<br>-<br>-<br>3<br>**Web App**<br>**£**<br>60,838<br>60,838<br>**-**<br>**-**<br>60,838<br>**Office**<br>**Equipment**<br>**£**<br>3,510<br>3,510<br>725<br>725<br>2,785|**2024**<br>**Number**<br>-<br>-<br>3<br>**Web App**<br>**£**<br>60,838<br>60,838<br>**-**<br>**-**<br>60,838<br>**Office**<br>**Equipment**<br>**£**<br>3,510<br>3,510<br>725<br>725<br>2,785|<br>**2023**<br>**Number**<br> <br>1<br> <br>3<br> <br>-<br>**Total**<br>**£**<br>60,838<br>60,838<br>**-**<br>**-**<br>60,838<br>**Total**<br>**£**<br>4,830<br>4,830<br>1,091<br>1,091<br>3,739|
|---|---|---|---|---|
||||||
||||||
||||||
||||||
||||||



22 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

|**17**<br>**Debtors**<br>**Amounts falling due within one year:**<br>Trade debtors<br>Prepayments and accrued income<br>Other debtors<br>**18**<br>**Current asset investment**<br>Cash held in investment portfolio<br>**19**<br>**Creditors**<br>Trade creditors<br>Accruals and grants payable<br>Taxation and social security<br>Other creditors<br>**20**<br>**Creditors due after more than one year**<br>Accruals and grants payable||**2024**<br>**£**<br>40,742<br>491,328<br>673<br>532,743<br>**2024**<br>**£**<br>997,473<br>**2024**<br>**£**<br>91,203<br>3,707,488<br>100,734<br>3,300<br>3,902,725<br>**2024**<br>**£**<br>5,195,469||**Restated**<br>**2023**<br>**£**<br>47,782<br>418,885<br>2,684<br>469,351<br>**2023**<br>**£**<br>957,865<br>**2023**<br>**£**<br>10,533<br>2,075,863<br>97,083<br>6,934|
|---|---|---|---|---|
||||||
||||||
||||||
|||||2,190,413|
|||||**2023**<br>**£**<br>-|



## **21 Retirement benefit schemes Defined contribution schemes** 

## **Defined contribution schemes** 

The Foundation operates a defined contribution pension scheme for all qualifying employees. The assets of the scheme are held separately from those of the Foundation in an independently administered fund. 

The charge to net income in respect of defined contribution schemes was £31,281 (2023 –  £20,068). 

23 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **22 Funds movement in the year** 

|**unds movement in the year**|**unds movement in the year**|||||
|---|---|---|---|---|---|
|The funds of the charity include restricted funds,||comprising the|following funds received for specific||purpose:|
|**Restricted funds**|**Balance**|||||
||**at**||||**Balance at**|
||**1**||||**31**|
||**January**||||**December**|
||**2024**|<br>**Income**|**Expenditure**|**Transfer**|**2024**|
||**£**|<br>**£**|**£**|**£**|**£**|
|University College London - Patani|(333,348)|<br>166,667|-|-|(166,681)|
|Tolkein Trust|-|<br>50,000|(41,035)|50,000|58,965|
|Catalyst Fund|-|100,000|-|-|100,000|
||(333,348)|316,667|(41,035)|50,000|(7,716)|



The ‘University College London – Patani’ restricted fund represents grants pledged for a research project for which annual income is expected to be recovered over three years. In the event that income conditions are not met the fund deficit would be serviced by charity unrestricted funds. 

|**Restated**<br>**Balance**<br>**at 1**<br>**January**<br>**2024**<br>**£**<br>Unrestricted funds<br>8,564,826<br>8,564,826<br>**Restricted funds**<br>Sheffield University<br>University of Edinburgh<br>University College London – Patani<br>**Unrestricted funds**<br>**Restated**<br>**Balance at**<br>**1 January**<br>**2023**<br>**£**<br>Unrestricted funds<br>4,174,896<br>4,174,896||**Income**<br>**£**<br>6,546,470|**Expenditure**<br>**Transfer**<br>**£**<br>**£**<br>(10,089,252)<br>(50,000)<br>(10,089,252)<br>(50,000)<br>**Income**<br>**Expenditure**<br>**£**<br>**£**<br>100,000<br>-<br>100,000<br>-<br>166,652<br>(500,000)<br>366,652<br>(500,000)<br>**Net gains /**<br>**(losses) on**<br>**investments**<br>**Expenditure**<br>**£**<br>(3,400,226)<br>-<br>(3,400,226)<br>-|**Expenditure**<br>**Transfer**<br>**£**<br>**£**<br>(10,089,252)<br>(50,000)<br>(10,089,252)<br>(50,000)<br>**Income**<br>**Expenditure**<br>**£**<br>**£**<br>100,000<br>-<br>100,000<br>-<br>166,652<br>(500,000)<br>366,652<br>(500,000)<br>**Net gains /**<br>**(losses) on**<br>**investments**<br>**Expenditure**<br>**£**<br>(3,400,226)<br>-<br>(3,400,226)<br>-|**Expenditure**<br>**Transfer**<br>**£**<br>**£**<br>(10,089,252)<br>(50,000)<br>(10,089,252)<br>(50,000)<br>**Income**<br>**Expenditure**<br>**£**<br>**£**<br>100,000<br>-<br>100,000<br>-<br>166,652<br>(500,000)<br>366,652<br>(500,000)<br>**Net gains /**<br>**(losses) on**<br>**investments**<br>**Expenditure**<br>**£**<br>(3,400,226)<br>-<br>(3,400,226)<br>-|**Transfer**<br>**£**<br>(50,000)|**Balance at**<br>**31**<br>**December**<br>**2024**<br>**£**<br>4,972,044<br>4,972,044<br>**Balance at**<br>**31 December**<br>**2023**<br>**£**<br>-<br>-<br>(333,348)|**Balance at**<br>**31**<br>**December**<br>**2024**<br>**£**<br>4,972,044|
|---|---|---|---|---|---|---|---|---|
|||6,546,470||||(50,000)||4,972,044|
|||**Balance at**<br>**1 January**<br>**2023**<br>**£**<br>(100,000)<br>(100,000)<br>-|||||||
|||(200,000)||||||(333,348)|
||**Income**<br>**£**<br>7,790,156<br>7,790,156|||||||**Restated**<br>**Balance at**<br>**31**<br>**December**<br>**2023**<br>**£**<br>8,564,826|
||||(3,400,226)||-|||8,564,826|



24 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **23 Analysis of net assets between funds** 

|Fund balances at 31 December 2024 are<br>represented by:<br>Intangible assets<br>Fixed assets<br>Investments<br>Current assets/(liabilities)<br>Fund balances at 31 December 2023 are<br>represented by:<br>Current assets/(liabilities)|**Unrestricted**<br>**funds**<br>**2024**<br>**£**<br>60,838<br>3,739<br>997,473<br>3,909,994<br>4,972,044<br>**Restated**<br>**Unrestricted**<br>**funds**<br>**2023**<br>£<br>8,564,826<br>8,564,826|**Restricted**<br>**funds**<br>**2024**<br>**£**<br>-<br>- <br>(7,716)<br>(7,716)<br>**Restricted**<br>**funds**<br>**2023**<br>£<br>(333,348)<br>(333,348)|**Total**<br>**2024**<br>**£**<br>60,838<br>3,739<br>997,473<br>3,902,278|
|---|---|---|---|
||||4,964,328|
||||**Restated**<br>**Total**<br>**2023**<br>£<br>8,231,478|
||||8,231,478|



## **24 Related party transactions** 

During 2024 we recognised £166,667 of restricted grant income from MN5DF Hong Kong. We paid £4,150 of costs on behalf of MN5DF Hong Kong in relation to their fundraising dinner (auctioneer fees and filming costs) (2023 - none), payments to Key Management Personnel as detailed in note 14 and the reimbursement of travel costs to Trustees as detailed in note 13. 

## **25 Cash generated from operating activities** 

|Net income for the year<br>Adjustments for:<br>Investment income recognised in statement of financial activities<br>Movements in working capital:<br>Depreciation<br>(Increase) in stock<br>(Increase) / decrease in debtors<br>Increase in creditors<br>**Cash generated from operating activities**|**2024**<br>**Restated**<br>**2023**<br>£<br>£<br>(3,267,150)<br>4,256,582<br>(308,026)<br>(90,466)<br>1,091<br>-<br>(24,765)<br>-<br>(63,392)<br>432,400<br>6,907,781<br>580,700|
|---|---|
||3,245,539<br>5,179,216|



25 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **26 Analysis of changes in net funds** 

|**nalysis of changes in net funds**||
|---|---|
|Cash at bank and in hand|**Restated**<br>**At 1**<br>**January**<br>**2024**<br>**Cash flows**<br>**At 31**<br>**December**<br>**2024**<br>**£**<br>**£**<br>**£**<br>9,952,540<br>3,487,897<br>13,440,347|
||9,952,540<br>3,487,897<br>13,440,347|



## **27 Post Balance Sheet Event** 

In December 2024 the Foundation took steps to set up a trading subsidiary for risk management and tax compliance reasons. The subsidiary My Name’5 Doddie Trading Limited company number 833426 is wholly owned by the charity, it was registered in January 2025 and is expected to begin trading later in the year. 

The Foundation was registered for VAT on 3rd January 2025, with an effective date of 1 October 2020. The Foundation's liability as at 31 December 2024 was £100,734 which has been recognised on the balance sheet. This liability was settled on submission of its first VAT return on 7[th] May 2025. 

## **28 Prior year adjustments** 

Restricted grant income of £200,000 due to the Foundation but not received was not properly recognised in 2022.  A prior year adjustment made in the 2023 accounts recategorised £200,000 of unrestricted donations to restricted grants in 2022, however the entry to recognise the additional income and a corresponding debtor was not made.  An adjustment is required to correct this position.  To reflect this adjustment, the comparative figures of the Foundation have been restated as follows: 

- Unrestricted funds at 1 January 2023 have been updated to include £200,000 of additional donations at 1 January 2023 (Notes 22 and 23). 

- A debtor of £200,000 has been recognised to represent restricted grant income due to the Foundation, but not received, in 2022 identified (Note 17). 

26 



## **MY NAME'5 DODDIE FOUNDATION** 

## **NOTES TO THE FINANCIAL STATEMENTS** 

## _**FOR THE YEAR ENDED 31 DECEMBER 2024**_ 

## **29 Statement of Financial Activities 2023** 

|**Income from:**<br>Donations<br>Charitable activities<br>Other trading activities<br>Bank interest received<br>Other income<br>**Total income**<br>**Expenditure on:**<br>Raising funds<br>Charitable activities<br>**Total expenditure**<br>Net gains / (losses) on investments<br>**Net incoming resources**<br>**before transfers**<br>Gross transfers between funds<br>**Net movement in funds**<br>**Reconciliation of funds**<br>Fund balances at 1 January 2023<br>Fund balances at 31 December<br>2023|**Unrestricted**<br>**funds**<br>**general**<br>**£**<br>6,402,829<br>50,000<br>1,246,661<br>90,466<br>200<br>7,790,156<br>1,169,399<br>2,230,827<br>3,400,223<br>-<br>4,389,930<br>-<br>4,389,930<br>4,174,896<br>8,564,826|**Restricted**<br>**funds**<br>**£**<br>-<br>366,652<br>-<br>-<br>-<br>366,652<br>-<br>500,000<br>500,000<br>(133,348)<br>-<br>(133,348)<br>(200,000)<br>(333,348)|**Restated**<br>**Total**<br>**2023**<br>**£**<br>6,402,829<br>416,652<br>1,246,661<br>90,466<br>200|
|---|---|---|---|
||||8,156,808|
||||1,169,399<br>2,730,827|
||||3,900,226|
|||||
||||4,256,582<br>-|
||||4,256,582<br>3,974,896|
||||8,231,478|



27 

