OpenCharities

Batten Disease Family Association

Also known as: Bdfa

Country
Scotland
Charity number
SC047408
Status
Active
Registered
May 12, 2017
Legal form
Unincorporated association

Address

Address
PO Box 379
Shipley
BD18 9GE

Contact

Activities

'It makes grants, donations, loans, gifts or pensions to individuals','It carries out activities or services itself'

'the advancement of education','the advancement of health','the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage'

Beneficiaries: 'Children or young people','People with disabilities or health problems','Other defined groups','Other charities or voluntary bodies'

Objectives: Objects The Association is established to: a) Preserve and protect the health and promote the welfare of persons affected by all types of Neuronal Ceriod Lipofuscinosis (NL) commonly known as Batten disease. b) To advance the education of the medical profession and the general public on the subject of Batten disease and its implications for the family. c) To promote research into the management of Batten disease and to publish the useful results thereof and to support organisations promoting research into Batten disease.

Geography

Main operating location
Outwith Scotland
Geographical spread
UK and overseas

Finances

Period end Income Expenditure Employees
Aug. 31, 2025 £0 £0 8
Aug. 31, 2024 £438,139 £419,965 8
Aug. 31, 2023 £540,139 £601,373 5
Aug. 31, 2022 £545,653 £554,602 7
Aug. 31, 2021 £635,015 £308,938 3
Aug. 31, 2020 £274,407 £279,174 2