# Pachyonychia Congenita Project Europe

## Details

- **Country:** Scotland
- **Charity number:** SC046480
- **Known as:** PC Project Europe / Pachyonychia Congenita Project / PC Project
- **Status:** Active
- **Legal form:** SCIO (Scottish Charitable Incorporated Organisation)
- **Registered:** April 15, 2016
- **Register:** https://www.oscr.org.uk/about-charities/search-the-register/charity-details?number=SC046480


## Contact

- **Address:** c/o Robyn Hickerson, Flat 12 2a Elm Street, Dundee
- **Postcode:** DD2 2AY
- **Website:** www.pachyonychia.org



## Activities

**Activities:** &#x27;It makes grants, donations, loans, gifts or pensions to individuals&#x27;,&#x27;It makes grants, donations or gifts to organisations&#x27;,&#x27;It carries out activities or services itself&#x27;

**Purposes:** &#x27;the advancement of education&#x27;,&#x27;the advancement of health&#x27;,&#x27;the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage&#x27;

**What the charity does:** PC Project Europe connects patients, researchers, physicians, and industry partners to help those who suffer from the debilitating effects of PC.  We are a subsidiary of our parent company the PC Project, based in the United States.  We engage with patients and professionals, offer support to patients and their loved ones, and partner with scientists and industry to advance PC research and drug development. We also engage in fundraising activities to support these activities.  Pachyonychia Congenita is one of nearly 7,000 rare diseases, 2,000–3,000 of which are rare genetic skin diseases. Together with the PC Project and with the work of our international consortium of professionals, the participation of genetically confirmed patients in our registry, and the support of many givers, we have helped educate the world about PC and are on the path to effective treatments for patients.

**Objectives:** The organisation&#x27;s purposes are: To advance education and health by: (a) promoting  the study of pachyonychia congenita and improving the standard of knowledge of the means of prevention, diagnosis and treatment of pachyonychia congenita. (b) initiating, encouraging, supporting (whether financially or otherwise) and carrying out research and investigations into pachyonychia congenita and the treatment or cure of pachyonychia congenita and related disorders. (c) providing access to genetic testing and registration in respect of pachyonychia congenita and other rare genetic diseases. (d) organising and encouraging a community of professionals including physicians and scientists to collaborate in efforts to find effective treatments for pachyonychia congenita and related disorders. To relieve those in need due to ill health through the provision of care, support and practical assistance to sufferers of pachyonychia congenita and related disorders and assisting sufferers of pachyonychia congenita and related disorders to live better, more fulfilled lives through the facilitation of a range of initiatives including those directed towards social inclusion.





## Areas of operation

- **Main operating location:** Glasgow City
- **Geographical spread:** UK and overseas






